Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 I believe that this vaccine is standard and expected, but I have no experience with it. Last night, the news stated that the flue vaccine is being added to the " going back to college " list because the flu and SARS share similar symptoms. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Well, since meningitis can kill very quickly and students in dormitories are at high risk, I would strongly recommend you get the vaccine. You know, Adrienne's disease sounds so similar to mine (mine started at age 10) and I never had the Hepatitis B vaccine, so it's possible that it had nothing to do with it. God Bless., Janet in SF ReA since 1973; diagnosed 1997 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Vaccines are dangerous. new research is proving they are responsible for triggering autism in children. vaccines have also been implicated in Gulf War Syndrome and triggering other auto-immune diseases, allergies, ear infections, and more. this is partly due to the fact that they contain mercury compounds – used for killing bacteria in the vaccines. A healthy female US soldier in Iraq just died of a vaccine complication (anthrax and smallpox vaccines). the smallpox vaccine can be lethal if you have auto-immune problems as minor as eczema. Vaccines are full of toxic chemicals such as formaldehyde, glutaraldehyde, 2-Phenoxyethanol (the chemical name for antifreeze), and thimerosal (a mercury-containing preservative). children are exposed to about 20 vaccines. i for one, will never take another vaccine. Steve ReA 18 yrs, multiple chemical sensitivities. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 I see your point about vaccinations, but I also wonder if the vaccine caused the reaction it did, what would a full blown case of the illness have caused? I'm not playing Devil's Advocate here. This is a serious question on my part. I have a son who reacted badly to baby immunizations. He had to take half doses instead of the usual dose, so it took twice as many visits for him to get immunized. When he took the boosters, he still had to take 1/2 doses. Is that a possibility for Adrienne? I have absolutely no idea how to adivse you on your current question, I can only throw out a few questions that might help. Best of luck on whatever you decide. I only know what you have already read and heard about the immunization. I do know that the illness happens more often in situations where young people are together, like in the dorm or a college situaiton. Maybe another part of that equation is that kids don't eat and rest as they should when off at college and this contributes to the liklihood of their getting the meningitis? /MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2003 Report Share Posted October 6, 2003 K, I'm suprised to hear that the vaccine is only suggested. My 4 kids were required to have it before entering college. I am a survivor of meningoencephalitis (barely). Although I believe I have had Reiter's since childhood, it was the ME that did me in. My Rheumy says that Reiter's does not affect the brain. But I have doubts about this. I believe this is probably true in most circumstances. But I think the ME gave the Reiters access to the brain. All of my symptoms act in concert. The urinary, eyes, joints and head all flare up at the same time. I don't think that is coincidence. My brain fog and Alzheimer's type symptoms are always worse when the rest of my body is bad. I know it's a tough choice for you to make and I wish you the best. Just wanted to let you know about the dangers of Reiters and Meningitis combined. Is anyone else dealing with the combination of Reiters and meningitis? Are Alzheimers type symptoms common with Reiters. Just wondering. God Bless, Sherm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 I had the Pneumovax. See the CDC recommendations for children and adults with CI's on this link _http://www.cdc.gov/nip/issues/cochlear/cochlear-gen.htm_ (http://www.cdc.gov/nip/issues/cochlear/cochlear-gen.htm) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 I just got my meningitis shot 2 weeks ago. My surgery is in 2 days!!! They told me the difference in the 2 shots were that the 3 year one has been around since the 70's and the 10 year one has been out since the 90's. The 10 year is the most widely given one now. That's the one I got. Hope that helps! *~**~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 I had to get one. It was required. it was called Pneumovax. (sp) Hope that helps. Jane Meningitis Vaccine? Did any of you get a meningitis vaccine? Or is it only for kids? If you did get one, what was it called? My primary care dr didn't know which one I needed if at all and I think my CI surgeon is out of the office for a few weeks so I don't know if I'll get a reply from him before my surgery date Nov 6th. Sheree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 Hi Sheree: I, a 55 year old adult at the time, got the shot three years ago about two days before the implantation. I think it was a pneumo- something shot but I'm not at all sure. I don't know if it's standard operating procedure or not now. Back then some did it and some didn't. Hal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 Yes I did get a meningitis vaccine, however, I don't know which one I received. I am sure your surgeon's office can help you with finding out which one to get. Be sure to call to make sure where you are going to get the shot has some available as I remember that in the Fall they sometimes run short because of all the students going back to school. Connie --- TnS <hswannabe@...> wrote: > Did any of you get a meningitis vaccine? Or is it > only for kids? If you did get one, what was it > called? My primary care dr didn't know which one I > needed if at all and I think my CI surgeon is out of > the office for a few weeks so I don't know if I'll > get a reply from him before my surgery date Nov 6th. > > Sheree > > > " The Miracle at Ohio State " aka Nucleus Freedom Implanted 10/04/2005 Activated 11/1/2005 Surgery: Ohio State University Surgeon: Dr. Bradley Welling http://internalmedicine.osu.edu/article.cfm?ID=2021 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 I believe they are all following the protocol which calls for the pneumovax vaccine. Deb C J <cjcj05@...> wrote: Yes I did get a meningitis vaccine, however, I don't know which one I received. I am sure your surgeon's office can help you with finding out which one to get. Be sure to call to make sure where you are going to get the shot has some available as I remember that in the Fall they sometimes run short because of all the students going back to school. Connie --- TnS <hswannabe@...> wrote: > Did any of you get a meningitis vaccine? Or is it > only for kids? If you did get one, what was it > called? My primary care dr didn't know which one I > needed if at all and I think my CI surgeon is out of > the office for a few weeks so I don't know if I'll > get a reply from him before my surgery date Nov 6th. > > Sheree > > > " The Miracle at Ohio State " aka Nucleus Freedom Implanted 10/04/2005 Activated 11/1/2005 Surgery: Ohio State University Surgeon: Dr. Bradley Welling http://internalmedicine.osu.edu/article.cfm?ID=2021 --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 Hi Sheree, I had a pneumovax innoculation a couple weeks prior to my implant surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 Correct, Hal. " Back then it was not part of the protocol so some got it, some didn't. It's my understanding from my surgeon, circa summer 2005, that it is now protocol to get the pneumovax. For those who think they are getting a " meningitis " vaccine, the weblink shared by a forum member is useful. Also, it was explained to me by my surgeon that the pneumovax is the shot of choice because the kind of meningitis that developed, developed following a type of pneumonia. So you cover all the bases with the pneumovax. Deb halfencer@... wrote: Hi Sheree: I, a 55 year old adult at the time, got the shot three years ago about two days before the implantation. I think it was a pneumo- something shot but I'm not at all sure. I don't know if it's standard operating procedure or not now. Back then some did it and some didn't. Hal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 s Hopkins required me to get a shot to minimize the risk of pneumococcal menningitis before I had CI surgery Sept 26th. I got mine about Aug 3rd and the instructions they gave me was to get it as soon as possible before surgery. I'm quoting off the paper I was given: " To minimize this risk, we require that all patients receive the age-appropriate vaccine Prevnar (PCV7) & /or Pneumovax (PPV23) against the organism prior to cochlear implant surgery. " I was given the Pneumovax. They also said for more information to visit: http://www.cdc.gov/nip/issues/cochlear/chochlear-gen.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 I never opted to get the vaccine. No problems here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 Hi Sheree, I did not get the vaccine. It was never mentioned prior to surgery and afterwards when I questioned my surgeon, he said that lately, it was more of a option for adults and encouraged for children. I did speak to my PCP (family doc) and she felt that it was unnecessary, in fact, she stated her opinion that she feels vaccines are often times unnecessary. Everyone has different opinions though. Freedom 9/21/05 HOOKED!!! Sensorineural hearing loss discovered at age 4 > > Did any of you get a meningitis vaccine? Or is it only for kids? If you did get one, what was it called? My primary care dr didn't know which one I needed if at all and I think my CI surgeon is out of the office for a few weeks so I don't know if I'll get a reply from him before my surgery date Nov 6th. > > Sheree > Quote Link to comment Share on other sites More sharing options...
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