MedEl Users Posting :-)

[Guest guest]

I am not a MedEl user but I couldn't agree with you more and I'm

thrilled to see MedEl users posting to CI Hear. It's something I've

hoped for. Perhaps you could invite others to join the group and

post their experiences. I'd also love to have some stories from MedEl

users submitted for the website. A few nice nice feature stories

from a MedEl user would be great. Anyone willing?

Thanks so much for joining us and posting.

Alice

http://www..com

>

> Since I'm a MedEl user (Tempo 40+) it's good to see other MedEl

> users I don't see many. When I was implanted I wasn't given the

> option of having both the BTE and BWP it was either two BTE's or

two

> BWP, this was 2004 maybe things have changed.

>

[Guest guest]

Me too Alice. I used to know a Med El user who lived in Washington

state and wonder how she is doing with her device.

*---* *---* *---* *---* *---*

What's the use of happiness? It can't buy you money.

-- Henny Youngman

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

[Guest guest]

Our daughter is a Med El user. She got hers in 2001

(age 5)...she is 10 now (going on 11 in Sept). She

loves it. She is doing very well. (especially for

being implanted at age 5 and being profoundly deaf).

She can talk on the phone...she loves music.....she is

at or above grade level is all subjects. She goes to

a regular elementary school (she is the only deaf/hoh

person right now). The only supports she gets are the

FM unit, speech therapy 2x a week, and a TOD comes and

check in on her and the teacher about 3 times a month.

She just got back her standardized testing scores

from WI...(her first time taking it) and she scored

high average to above average in all areas. We are

very very proud of her. Her speech is still only

about 70% intelligible....but she works very hard.

She has friends in school etc...

Thanks for letting me brag a bit.

(WI)

__________________________________________________

[Guest guest]

, thank you for sharing. We have a dearth of Med El users on this

group, so it is nice to hear your daughter's story. So glad that your

daughter is getting all the benefits of getting an implant now. Just

curious, how often do you take her in for reMAPpings, to her audiologist?

I am now aged 46. I got my implant 2 years ago after wearing analog hearing

aids all my life. The difference is outstanding. I never knew how much I

was missing out -- high frequencies were not " there " for me -- and I found

it hard to say my Ss and SHs correctly as I couldn't hear them despite years

of speech therapy. Now it's a cinch.

I wonder what life would have been like for me if I had today's implant 45

years ago.

born profoundly deaf

On 5/1/07, <moisurreal@...> wrote:

>

> Our daughter is a Med El user. She got hers in 2001

> (age 5)...she is 10 now (going on 11 in Sept). She

> loves it. She is doing very well. (especially for

> being implanted at age 5 and being profoundly deaf).

> She can talk on the phone...she loves music.....she is

> at or above grade level is all subjects. She goes to

> a regular elementary school (she is the only deaf/hoh

> person right now). The only supports she gets are the

> FM unit, speech therapy 2x a week, and a TOD comes and

> check in on her and the teacher about 3 times a month.

> She just got back her standardized testing scores

> from WI...(her first time taking it) and she scored

> high average to above average in all areas. We are

> very very proud of her. Her speech is still only

> about 70% intelligible....but she works very hard.

> She has friends in school etc...

>

> Thanks for letting me brag a bit.

>

> (WI)

>

> __________________________________________________

>

[Guest guest]

Well since we moved to WI (last March).....It seems like its going

to be every year. (ONCE). They seem a lot more hesitant to remap

then U of Mich. did. We were probably going every 4-6 months prior

to that. She went in Jan last year at U of M......and I had a heck

of a time convincing U of W that she needed a remap (due to her

testing in the booth well)....but they did JUST do it....like 2

weeks ago.....so actually it was a year and 3 months. All her

teachers say " MUCH BETTER " . Honestly....I think it still needs a

little tweaking....but it is definitely better. But I know I won't

be able to get it tweak for a bit.

How about you? How often?

> >

> > Our daughter is a Med El user. She got hers in 2001

> > (age 5)...she is 10 now (going on 11 in Sept). She

> > loves it. She is doing very well. (especially for

> > being implanted at age 5 and being profoundly deaf).

> > She can talk on the phone...she loves music.....she is

> > at or above grade level is all subjects. She goes to

> > a regular elementary school (she is the only deaf/hoh

> > person right now). The only supports she gets are the

> > FM unit, speech therapy 2x a week, and a TOD comes and

> > check in on her and the teacher about 3 times a month.

> > She just got back her standardized testing scores

> > from WI...(her first time taking it) and she scored

> > high average to above average in all areas. We are

> > very very proud of her. Her speech is still only

> > about 70% intelligible....but she works very hard.

> > She has friends in school etc...

> >

> > Thanks for letting me brag a bit.

> >

> > (WI)

> >

> > __________________________________________________

> >

[Guest guest]

Hi ,

If your implant center gives you grief about mapping when you need it,

find another center. Some people go years between mappings, although

that is NOT recommended. Because when you do get a mapping, you have a

while to adjust to it.

But if your child is not understanding the way she did before, then go

back for a mapping. You're paying for it, what is the problem?

Sometimes you just have to DEMAND what you need.

MedEl Users Posting :-)

Posted by: " moisurreal " moisurreal@... moisurreal

Wed May 2, 2007 9:13 am (PST)

Well since we moved to WI (last March).....It seems like its going

to be every year. (ONCE). They seem a lot more hesitant to remap

then U of Mich. did. We were probably going every 4-6 months prior

to that. She went in Jan last year at U of M......and I had a heck

of a time convincing U of W that she needed a remap (due to her

testing in the booth well)....but they did JUST do it....like 2

weeks ago.....so actually it was a year and 3 months. All her

teachers say " MUCH BETTER " . Honestly....I think it still needs a

little tweaking....but it is definitely better. But I know I won't

be able to get it tweak for a bit.

How about you? How often?

[Guest guest]

, I go whenever I feel the need.

If I find myself asking people to repeat more often, or I notice some parts

of words are getting too soft, and that I need to ask people to repeat or

rephrase their words. I was born profoundly deaf, so I have no idea of HOW

MUCH I'm supposed to hear, and WHAT I'm supposed to hear. I just have to

figure it out for myself. I sometimes ask a hearing friend " did you hear

that? " and he/she says " what, I didn't hear that " and when I hear that sound

again, I exclaim " that's it, did you hear it? " And they go, " oh that? oh,

it's just a bird " and then I reckon they've tuned it out or just not paying

attention like I do now. I would make a very good student now... ha ha.

I would go for a reMAPping every six months, or follow my audiologist's

advice. I just got the Freedom processor. so of course, I needed to go to

get that MAPped. So nice to have 4 programs on that, with the ability to

adjust both sensitivity and volume for each program, as opposed to the

previous 3G (which is now lying in a drawer, unused, sigh) which only

allowed me to adjust the sensitivity and there was no way for me to adjust

the volume. (My audiologist said with the 3G, I had a choice of either

sensitivity or volume adjustment, which I didn't like at all.) He said for

me to come back when I want to. I don't feel the need just yet, it's been

only 6 weeks.

When I look back on it, I realize now that my 3G was programmed./set TOO LOW

in volume for some frequencies. I love my new Freedom, I'm hearing much

more now. I couldn't hear the microwave oven in the kitchen (on the first

floor) beep-beep from my office on the second floor till now, the Freedom

enables me to do that, hearing " around corners " and up flights. Wow.

profoundly deaf at birth, aged 46

upgraded to Freedom 03/07, activated 12/05

On 5/2/07, moisurreal <moisurreal@...> wrote:

>

> Well since we moved to WI (last March).....It seems like its going

> to be every year. (ONCE). They seem a lot more hesitant to remap

> then U of Mich. did. We were probably going every 4-6 months prior

> to that. She went in Jan last year at U of M......and I had a heck

> of a time convincing U of W that she needed a remap (due to her

> testing in the booth well)....but they did JUST do it....like 2

> weeks ago.....so actually it was a year and 3 months. All her

> teachers say " MUCH BETTER " . Honestly....I think it still needs a

> little tweaking....but it is definitely better. But I know I won't

> be able to get it tweak for a bit.

> How about you? How often?

>

> > >

> > > Our daughter is a Med El user. She got hers in 2001

> > > (age 5)...she is 10 now (going on 11 in Sept). She

> > > loves it. She is doing very well. (especially for

> > > being implanted at age 5 and being profoundly deaf).

> > > She can talk on the phone...she loves music.....she is

> > > at or above grade level is all subjects. She goes to

> > > a regular elementary school (she is the only deaf/hoh

> > > person right now). The only supports she gets are the

> > > FM unit, speech therapy 2x a week, and a TOD comes and

> > > check in on her and the teacher about 3 times a month.

> > > She just got back her standardized testing scores

> > > from WI...(her first time taking it) and she scored

> > > high average to above average in all areas. We are

> > > very very proud of her. Her speech is still only

> > > about 70% intelligible....but she works very hard.

> > > She has friends in school etc...

> > >

> > > Thanks for letting me brag a bit.

> > >

> > > (WI)

> > >

> > > __________________________________________________

> > >

[Guest guest]

Thats the other thing........they put the SAME program

on all 3 channels and just have a little degree of

variance on the volume. But started her off right at

the TOP volume??? Again.......at U of

M.......usually they would keep her old program on one

channel and then the new one on the other 2 with the

volume variation (but like 80%/90%/95%) and always

started her on the lowest one and she would work her

way up to the loud one.

And thats what my daughter is doing....the " what " and

it seems to be certain sounds in particular. Or like

I noticed an improvement in some areas....but a

decrease in others....like the car......she definitely

is hearing worse in the car now.???

Any advice is welcomed! ps. when I emailed my

concern they said that she might still be getting use

to it and to let them know what the teachers say about

it. I know my daughter......and after a week.......I

pretty much know if its not quite right.

Thanks all

__________________________________________________