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Tinnitus and CI Implant Surgery

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Gerald, I had a very low level tinnitus in my unimplanted ear before the

surgery which is still there. But after the implant I have experienced

short periods, maybe a couple of hours now and then, of a fairly loud

roaring or hum in my implanted ear. It is usually days or weeks between the

times that I experience that but I didn't have it in that ear before.

Virg - 'Got my Auria last december at 77.

> I never had the tinnitus disorder in either ear. Did any of the group

> members develop tinnitus after CI Implant surgery but never had it

> before then? - Gerald

>

>

>

>

>

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Gerald,

Welcome to the list!

I had brief episodes of tinnitus before my CI surgery, but they weren't

bothersome to me. However, ever since my bilateral surgery, I now have

tinnitus in both ears. My left ear sounds like a fan on low speed and the

right ear like a car engine turning over repeatedly. I have tinnitus 24/7

and can hear the tinnitus in both ears over my CI when it's quiet.

If I had to do it all over again, would I? You bet! Even though there are

times when my tinnitus can get really loud (usually at night when I remove

my processors), I consider this a small price to pay for the wonderful gift

of hearing I have received.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

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Hi Gerald.

I just had my implants done on October 3rd, so it is probably too soon to tell

if my new tinnitus will last. I had only mild tinnitus before the implants. Now

it is very, very loud. I have not been activated yet, and am still having

balance problems. I am hoping that all of this will clear up soon. Right now, I

am taking steroids to try to fix these issues. I will keep you posted on whether

it lasts.

Jane

Tinnitus and CI Implant Surgery

I never had the tinnitus disorder in either ear. Did any of the group

members develop tinnitus after CI Implant surgery but never had it

before then? - Gerald

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,

I am Gerald Gollinger and you may remember me from beyond hearing. Thank you

for the honest appraisal. I am without tinnitus now. On my job which is

relatively quiet I hear okay. In noisy environment and off Broadway theater

without IR I do very poorly. From beyond hearing I understand that you had

profound hearing and vision problems. In your circumstances the trade off was

worthwhile. I am more fortunate to be able to use assistive listening devices

with my hearing aid and captions with DVD. Thank you again for your kind

thoughts. I have to read what other people say. - Gerald

Kozlik <lisak70@...> wrote:

Gerald,

Welcome to the list!

I had brief episodes of tinnitus before my CI surgery, but they weren't

bothersome to me. However, ever since my bilateral surgery, I now have

tinnitus in both ears. My left ear sounds like a fan on low speed and the

right ear like a car engine turning over repeatedly. I have tinnitus 24/7

and can hear the tinnitus in both ears over my CI when it's quiet.

If I had to do it all over again, would I? You bet! Even though there are

times when my tinnitus can get really loud (usually at night when I remove

my processors), I consider this a small price to pay for the wonderful gift

of hearing I have received.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

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I find it discouraging for a person like myself who is without tinnitus and can

hear conversation in quiet environments to suffer the way you tell me. Whether

or not I am eligible for surgery I am making it a commitment to remain on this

list. So by all means report back to the group on how you are doing. - Gerald

dogsville <dogsville@...> wrote: Hi Gerald.

I just had my implants done on October 3rd, so it is probably too soon to tell

if my new tinnitus will last. I had only mild tinnitus before the implants. Now

it is very, very loud. I have not been activated yet, and am still having

balance problems. I am hoping that all of this will clear up soon. Right now, I

am taking steroids to try to fix these issues. I will keep you posted on whether

it lasts.

Jane

Tinnitus and CI Implant Surgery

I never had the tinnitus disorder in either ear. Did any of the group

members develop tinnitus after CI Implant surgery but never had it

before then? - Gerald

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Hi Gerald,

Good that you are taking the steps to improve your communication

skills. Never hurts to be able to hear more.

According to the information Advanced Bionics released, adult post

lingual users must use the HiRes system for at lease 3 months before

being allowed to use the Fidelity 120 system with the Harmony processor.

So you won't be starting out with that system, if you go with AB.

Check out the FDA site for further information:

http://www.fda.gov/cdrh/pma/pmaaug06.html

Lots of us have tinnitus in varying degrees, but the processor seems

to mask it while you wear it. I don't even notice tinnitus, but it's not

an uncommon side effect from any ear surgery.

You might want to check out the website for frequently asked

questions:

www..com

Good luck with your evaluation. If you have any questions, we're here

to answer them.

The Original

I have progressive hearing loss in both ears. I am presently age 65.

I hold an Associates In Arts in Marketing and took upper level courses

at Pace University in New York City. I am employed full time with the

State of New York as a Senior Clerk. My late wife died of kidney

failure many years ago.

I am being evaluated for a CI implant next week at the New York

University Cochlear Implant Center. If I fail the testing I probably

will be eligible for an Advanced Bionics Harmony processor. I have a

question but I will put that in a different post. - Gerald

Posted by: " gerald3nyc " gerald3nyc@... gerald3nyc

Mon Oct 16, 2006 11:43 am (PST)

I have progressive hearing loss in both ears. I am presently age 65.

I hold an Associates In Arts in Marketing and took upper level courses

at Pace University in New York City. I am employed full time with the

State of New York as a Senior Clerk. My late wife died of kidney

failure many years ago.

I am being evaluated for a CI implant next week at the New York

University Cochlear Implant Center. If I fail the testing I probably

will be eligible for an Advanced Bionics Harmony processor. I have a

question but I will put that in a different post. - Gerald

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Virg

Is there a typo in your note? I thought the Auria came out in 2003 and not

1977. But thank you for your note from someone who uses an AB product.

Tinnitus is not exclusively a Nucleus condition. - Gerald

Virg <jvtomlin@...> wrote:

Gerald, I had a very low level tinnitus in my unimplanted ear before

the

surgery which is still there. But after the implant I have experienced

short periods, maybe a couple of hours now and then, of a fairly loud

roaring or hum in my implanted ear. It is usually days or weeks between the

times that I experience that but I didn't have it in that ear before.

Virg - 'Got my Auria last december at 77.

> I never had the tinnitus disorder in either ear. Did any of the group

> members develop tinnitus after CI Implant surgery but never had it

> before then? - Gerald

>

>

>

>

>

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I believe 77 refers to years of age not the year of

implant

--- Gerald Gollinger <gerald3nyc@...> wrote:

> Virg

>

> Is there a typo in your note? I thought the Auria

> came out in 2003 and not 1977. But thank you for

> your note from someone who uses an AB product.

> Tinnitus is not exclusively a Nucleus condition. -

> Gerald

>

> Virg <jvtomlin@...> wrote:

> Gerald, I had a very low level tinnitus in

> my unimplanted ear before the

> surgery which is still there. But after the implant

> I have experienced

> short periods, maybe a couple of hours now and then,

> of a fairly loud

> roaring or hum in my implanted ear. It is usually

> days or weeks between the

> times that I experience that but I didn't have it in

> that ear before.

>

> Virg - 'Got my Auria last december at 77.

>

> > I never had the tinnitus disorder in either ear.

> Did any of the group

> > members develop tinnitus after CI Implant surgery

> but never had it

> > before then? - Gerald

> >

> >

> >

> >

> >

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Gerald,

Yes, you're correct -- I'm totally blind and had severe-profound hearing

loss before my CI surgery.

I'm a member of the Beyond-Hearing list, but don't post often.

I agree with that it's good to see you asking questions. The decision

to have a CI should not be made lightly.

You have nothing to lose by being evaluated for a CI. If at any point you

feel that a CI is not in your best interest, you can always decide not to

have the surgery.

What does IR stand for -- infra red?

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

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Gerald,

I forgot to mention that yes, I do remember you from Beyond-Hearing.

<smile> (I've been a member of that list for about two years.)

I wouldn't be too discouraged about four people reporting their experiences

with tinnitus because there are many other CI users who report no tinnitus

after surgery.

If tinnitus is a concern of yours, it may help you feel better knowing that

it can be successfully treated to some degree with steroids such as

Prednisone.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

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Gerald

Thanks for saying what you said. As someone sitting in your shoes, so to

speak, I want to learn both the positive wonderful stories such as

Carol and shared, but also the downsides such as the noises

(sometimes constant) that some of you have to put up with.

I realize that all this is a balancing act, and the gains received may

outweigh the frustrations, but I believe that it is important not only

sharing the stories of victory and the enpowerment that it brings, but

also to share what may some who view themselves ascheerleaders choose to

not disclose -- their frustrations, concerns, fears, and the like.

Success is a subjective term most certainly, but it is also very clear

that not every implant achieves what was initially hoped for.

What I want to understand is why these occur as that is part of the

learning curve I want to understand before attempting to address the issue

if this is something I wish to pursue.

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Hi Gerald,

I am Lynn also from the Beyond Hearing list. I recently had my CI surgery

and was activated on September 27. I had some tinnitus before the surgery,

but it was not bad or bothersome. Most of the time I only noticed it when

things were very quiet. After the CI surgery, I had some waves of tinnitus,

but not anything that was intolerable. This only lasted a few days and

things got back to normal. After activation, I only have tinnitus when the

processor is off-- particularly in the morning while getting dressed. Once

the processor is on, the tinnitus goes away. Even that is not anything

bothersome - just a hum. I might add I had some weird sounding tinnitus in

the week before my 2nd mapping. It sounded like a weak radio station. After

the 2nd mapping, that particular tinnitus is gone and it's back to only a

little hum. And, only with my processor off.

I highly recommend the CI if you qualify. It has made a HUGE difference in

my life. I had no idea the amount of improvement it would give me and how

much I was missing. I am one of the very fortunate ones who could hear and

understand speech immediately upon activation. I am also able to hear on the

phone with my CI much better than I could before with 2 ears and using the

booted FM and TelCom.

Lynn

Fairhope, AL

Nucleus Freedom

Surgery date: 9/6/06

Activation date: 9/27/06

_____

From: [mailto: ] On Behalf Of

Gerald Gollinger

Sent: Monday, October 16, 2006 7:13 PM

Subject: Re: Tinnitus and CI Implant Surgery

,

I am Gerald Gollinger and you may remember me from beyond hearing. Thank you

for the honest appraisal. I am without tinnitus now. On my job which is

relatively quiet I hear okay. In noisy environment and off Broadway theater

without IR I do very poorly. From beyond hearing I understand that you had

profound hearing and vision problems. In your circumstances the trade off

was worthwhile. I am more fortunate to be able to use assistive listening

devices with my hearing aid and captions with DVD. Thank you again for your

kind thoughts. I have to read what other people say. - Gerald

Kozlik <lisak70ticon (DOT) <mailto:lisak70%40ticon.net> net> wrote:

Gerald,

Welcome to the list!

I had brief episodes of tinnitus before my CI surgery, but they weren't

bothersome to me. However, ever since my bilateral surgery, I now have

tinnitus in both ears. My left ear sounds like a fan on low speed and the

right ear like a car engine turning over repeatedly. I have tinnitus 24/7

and can hear the tinnitus in both ears over my CI when it's quiet.

If I had to do it all over again, would I? You bet! Even though there are

times when my tinnitus can get really loud (usually at night when I remove

my processors), I consider this a small price to pay for the wonderful gift

of hearing I have received.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

..

<http://geo./serv?s=97359714/grpId=7962067/grpspId=1705013490/msgId

=48834/stime=1161047277/nc1=3848432/nc2=2/nc3=3>

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> I believe 77 refers to years of age not the year of

> implant

LOL! Yep. I was 77 years old. 78 now. I don't keep track of when I get

tinnitus in the implanted ear but it's been some time now since it happened.

I'm thankful that it only lasts a couple of hours. The tinnitus in my

unimplanted ear never stops but it's very low and only noticeable in very

quiet surroundings. I'm so used to it that it doesn't bother me at all and

sometimes don't notice it even with the processor off when I hear nothing

externally unless I happen to think of it and it's still there but very

faint.

Virg

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Gerald,

Glad to see you will stay on the list, its a wonderful resource.

What makes you discouraged tho? Tinnitus? Mine is mild. The day of

surgery I had a waterfall in my head...after drinking coffee. A week of

decaf and I was fine. Its otherwise still mild unless I have had too much

caffeine.

Feeling ill? No more than the usual. I was out riding around 3 hours

after I was implanted. No pain, just off balance for about a week.

You must not focus on the issues that may or may not result from having

CI surgery. If those issues outweigh the positive benefits of CI hearing,

then you may not be ready. One major point is, for me anyways, with losses

in the higher frequencies that hearing aids could not handle, my Nucleus

gives back almost a normal range of frequencies, enough that I again enjoy

music.

I would suggest you not focus on how many have tinnitus or feel ill, but

rather, focus on the evaluation. Once you have done that, you can decide on

the next step.

*---* *---* *---* *---* *---*

Duct tape is like the force; it has a light side & a dark side, and it holds

the universe together.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

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Gerald,

I had some mild tinnitus before my CI and afterwards I no longer have it. I

mean it was dead silence right away. There were some sporadic episodes (wild

but not too loud) of tinnitus starting during the fifth month for about three or

four months. It went away and I haven't heard it since. I'm not sure what was

that all about other than maybe internal healing in the cochlea itself.

All I can say, it is totally unpredictable how it will turn out for any given

individual. I will chime with what others had said that hearing pretty well

makes it worth it all.

Dale

Implanted with Freedom in March '05

gerald3nyc <gerald3nyc@...> wrote:

I never had the tinnitus disorder in either ear. Did any of the group

members develop tinnitus after CI Implant surgery but never had it

before then? - Gerald

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

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It sounds like you have made your mind up not to go any further with

pursueing a C.I. Gerald. If you have doubts, this is probably the

best decision.

Someone once said to me, that during our lives we have things

called 'windows of opportunity'. These are times in our lives when we

get the chance to make a decision on something important and the

circimstance rarely ever repeats itself. I hope you arent letting one

of your windows of opportunity go, without a fight.

You will see a lot more positives written about cochlear implants

than negative ones. Personally, I dont have any negatives. I can hear

much better now with a C.I. and a pretty useless hearing aid, than I

ever could with the two hearing aids.

Cochlear implants arent just for totally deaf people. Why not go for

the evaluation, what have you got to lose? From what you have told

us, I have my doubts whether you would qualify for one. If this is

the case, the decision would have been made for you and you wouldnt

have wasted one of your 'windows of opportunity' :-)

Ted F.

>

> Mike,

>

> I want to acknowledge reading your reply. I do not want to

discourage anyone with total. hearing loss not to consider CI. You

would not believe this but some co workers feel that I am feigning

this entire thing. In a quiet environment and close range I do quite

good with one hearing aid. I have an ear mold for my poor ear that I

am wearing now (bi aural). So with the disclaimer that I see at the

dentist " surgery is an art and not a science " I personally rather

call my cable company and reinstall my close captions. The

audiologist at AB who was working with me will be disappointed but

business is business. - Gerald

>

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I have had mild tinnitus most of my life. After CI surgery, it did

not increase. It did increase in my implanted ear big time after

activation, but just four or five times. One evening, I was

preparing for bed. My husband was already asleep. The tinnitus was

so loud that it sounded like a train whistle and the train was coming

through our bedroom! In a panic, I looked at my husband, worried

that the noise would wake him up. Of course, the next instant I felt

foolish realizing in was " all in MY head. "

I love to tell this story, perhaps because I no longer suffer from

tinnitus (maybe slightly if I'm feeling ill but certainly no more

than I did prior to the surgery).

It would not be a lie to say that having a cochlear implant is

possibly the best thing I have ever done for myself. I cannot

believe the improvement in my hearing since February of this year.

Although I heard fairly well with the my hearing aids--the birds, the

microwave, wind chimes, airplane passing over--it was no comparison

to crispness and increased volume that a CI offers. When I heard

myself breathing, the crunch of dry grass under my feet, the

shuffling of my bare feet on the carpet, or the sound of the salt

rattling in the salt shaker when I used it, I thought this was

miraculous.

As Ted F., said you might not be eligible for an implant, and good

for you if that is the case. My implanted ear had a 105 decibel loss

and now with the implant, it ranges from 25 to 30 decibel loss.

Even so, I just barely made the cut in the evaluation process.

I do have a question though because I didn't understand your remark

on calling the cable company to reinstall your closed captions. Maybe

that is an inside joke, but can't you do that yourself?

Best of luck on whatever you decide to do.

Judy in Jax

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Gerald, it is like I told my twin brother who needed hearing aids for a very

long time (I had implant on left side three years ago and wore hearing aids

for many years prior to that).....you will do what you need to in " your " own

timeframe and in your own frustrations of attempting to hear. No-one is

trying to rush you into something you aren't ready to do. You've ask questions

and all these nice people have tried answering them for you. Oh, BTW...my

brother finally did get fitted for hearing aids and now understands all that I

was trying to say. So, the point of all this is: You take your own time and

feel good about your decision no matter what that is or when. Evon

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Gerald,

Here are some stats to make all this a bit more realistic. Worldwide

the total number of CI patients is probably better than 80,000. There are

just over 1,200 members on this list. Put it in perspective. Also, most

people on the list are honest about their experiences. Many who have less

than ideal experiences you wont hear from. So its not really going to be

helpful to assemble numbers as you have been doing.

ALL surgery carries risks. This was the only type of surgery I looked

forward to. I didnt have a lot of hearing left to lose. Its been jsut over

6 years now and I could not imagine being deaf now. Its a blessing to have

the CI.

Get that evaluation, but dont think beyond that. You may do well in

quiet but, we dont live in a quiet world. The testing will not all be done

in quiet. The MRI and CAT is the least of the tests. The word/sentence

tests are what matters.

*---* *---* *---* *---* *---*

Shoot for the moon. Even if you miss it you will land among the stars.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

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, Below is what I sent to Nina but her server did not accept the

server. I sent it to you. I noticed your comments below went on list. So

please put my reply through. Again, in two or three years I can retire. I

already have social security to supplement my salary. When I have a pension,

and I am not accountable for lost time I can reconsider. NYU has my medical

identification numbers and audiogram. I am sure they will hold it for awhile.

I can empathize with total deafness. I chose to speak to the NYU administrative

assistant by voice and not VCO. Prior I used the Internet Relay. I can speak

to a person with good articulation on the phone. Otherwise, it would be

troublesome.

I have a promotion civil service exam on Saturday and a prerequisite course on

website design on Sunday. For the interim I like to turn my attention to these

other issues. How I do in class will be another factor on whether or not I am

ready for CI providing my hearing aids are in optimum condition which they are

now. So please try not to divert me from my present tasks at hand. - Gerald

Nina,

The female administrative assistant at the NYU CI Implant Center is a

personable person. She told me that when " you are ready contact us again. " I

am age 65 and on Medicare Part A and working. I like to make my retirement date

around 2008. It is nerve wracking and I do not think that people while working

have the time for a year long commitment for the rehabilitation process.

Perhaps, when I am getting my pension besides social security and no one is

watching the clock at work I can reapply. If my hearing progressively worsens

and I am a better candidate I can chose on whether iatrogenic (side effect of

treatment) disorder is worth total deafness. I am not there yet. So time will

tell. - Gerald

<rclark0276@...> wrote:

Gerald,

Here are some stats to make all this a bit more realistic. Worldwide

the total number of CI patients is probably better than 80,000. There are

just over 1,200 members on this list. Put it in perspective. Also, most

people on the list are honest about their experiences. Many who have less

than ideal experiences you wont hear from. So its not really going to be

helpful to assemble numbers as you have been doing.

ALL surgery carries risks. This was the only type of surgery I looked

forward to. I didnt have a lot of hearing left to lose. Its been jsut over

6 years now and I could not imagine being deaf now. Its a blessing to have

the CI.

Get that evaluation, but dont think beyond that. You may do well in

quiet but, we dont live in a quiet world. The testing will not all be done

in quiet. The MRI and CAT is the least of the tests. The word/sentence

tests are what matters.

*---* *---* *---* *---* *---*

Shoot for the moon. Even if you miss it you will land among the stars.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

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Gerald,

Oh you did not send a reply to the list. Ok, that is different and

beyond the control of the list mods. Also, please understand, no one can or

is trying to divert your attention.

The list members are responding to your posts regarding many issues,

sharing their experiences or information. No one to date have tried to

control your actions, only you can do that. Whatever you decide is

ultimately your own choice. We can only give you support.

*---* *---* *---* *---* *---*

No Appointment Necessary, We Hear You Coming.

--sign outside a muffler shop

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

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Mike

I'm in Australia, my evaluation and subsequent implant were financed

by one of the government departments. But I believee the cost to be

about Aus$20,000 all up. That seems a fair bit less than in the

States. I suppose where insurance companies are involved, the costs

go up.

As to whats involved, a series of hearing tests and scans and face to

face evaluation with counsellors to assess ones attitude and

expectations. Then the C.I. team get together, surgeon, audiologist,

counsellors etc and discuss the individual cases. They decide if you

are suitable and what kind of outcome you should be able to expect,

from the data they have. A good positive attitude is a plus IMO.

Ted F.

> > >

> > > Mike,

> > >

> > > I want to acknowledge reading your reply. I do not want to

> > discourage anyone with total. hearing loss not to consider CI.

You

> > would not believe this but some co workers feel that I am

feigning

> > this entire thing. In a quiet environment and close range I do

quite

> > good with one hearing aid. I have an ear mold for my poor ear

that I

> > am wearing now (bi aural). So with the disclaimer that I see at

the

> > dentist " surgery is an art and not a science " I personally

rather

> > call my cable company and reinstall my close captions. The

> > audiologist at AB who was working with me will be disappointed

but

> > business is business. - Gerald

> > >

> >

> >

> >

> >

> >

> >

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Hi Gerald,

You might find out that stronger hearing aids (HA), assistive

listening devices and other technology could do the trick for you without

having to resort to an implant. All worth knowing. When I was implanted

9 years ago, the criteria was NO amplifiable hearing in either ear. So

only people left with the choice between and implant and no hearing were

eligible.

The criteria has been modified several times, but I'm of the opinion

that if you can do well with the HAs and assistive devices, you're better

off with them.

Tinnitus is a side effect of almost any ear surgery. I had it after a

stapedectomy, and I think most people will tell you regardless of implant

type, they had some degree of tinnitus. They will also tell you that the

processor will mask tinnitus when it is worn.

By all means, do all the research necessary. Don't rush into

something based on hype or slick publicity from ANY company. Check the

facts, see if you are a candidate, and then make your decision.

The Original

gerald3nyc@... gerald3nyc

Mon Oct 16, 2006 6:19 pm (PST)

Hi ,

I find it very discouraging that the score is 4 to nothing of tinnitus

with CI Implant. I could use a MRI and see how the evaluation at NYU

goes. If I have too much speech discrimination for a CI the exam was not

wasted but the subject line here is. - Gerald

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Mike (I think is who ask the question about the appt to evaluate as to your

qualifying for an implant)....

I can only speak from my own personal experience...my appointment was only

like an office call and a very short hearing test. My insurance company paid

the most of both. This would obviously take different length of time for

tests for whatever is causing your hearing loss or deafness. So, again.....it

is not a simple answer to address. Evon

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