Re: Statistics and CI Problems

[Guest guest]

Hi Gladys ,

My name is a and I was hooked up 8-21-06. I agree with you whole heartedly.

Low tones are pre-dominant. Lip reading is my salvation. You didn't mention if

you have the Freedom or the AB. I have the Freedom. My husband and other

family members have to constantly remind me that I am talking toooo loud. Its

difficult monitoring your own voice. My voice is starting to sound a little

more normal now. I can hear the TV upstairs in my house but cannot make out

heads or tails what they are saying. Still have to depend on captions on TV. I

hear high tones but the bass are more prevalent. I guess we have to be patient.

That's what everyone

says. It takes time.

a

[Guest guest]

Gladys, this is the first time I've responded to a post. Hopefully I've

done it correctly.

First of all, I'd like to say that I believe you definitely need to work

hard with your audiologist to get more comfortable with the sounds you are

hearing. Perhaps you need to also be better schooled on how you can turn down

the

volume on your processor. With the body worn one, you can also turn down

the sensitivity. While much of this at first is sometimes frustrating, I do

not recall being as uncomfortable as you've described in your message. Of

course, we are all different and our hearing losses are all different and our

programs are all different. All I feel I need to do is stress the importance

of working with your audiologist, ask questions, and just keep trying. I hope

that very soon you will have more comfortable hearing.

Evon

[Guest guest]

a,

What would you do if you were totally blind with a CI and could use

neither lip reading or captioning as a crutch? You would learn to listen

with your cochlear implant. You would help your audiologist because he/she

would learn how to adjust your cochlear implant by observing what you can't

hear. How can the audiologist accomplish this if your mode of communication

is reading lips? Thanks for listening. This is one of my pet peeves!

Larry

Re: Statistics and CI Problems

> Hi Gladys ,

> My name is a and I was hooked up 8-21-06. I agree with you whole

> heartedly. Low tones are pre-dominant. Lip reading is my salvation. You

> didn't mention if you have the Freedom or the AB. I have the Freedom. My

> husband and other family members have to constantly remind me that I am

> talking toooo loud. Its difficult monitoring your own voice. My voice is

> starting to sound a little more normal now. I can hear the TV upstairs in

> my house but cannot make out heads or tails what they are saying. Still

> have to depend on captions on TV. I hear high tones but the bass are more

> prevalent. I guess we have to be patient. That's what everyone

> says. It takes time.

>

> a

>

>

>

[Guest guest]

Larry,

Why is lipreading one of your pet peeves?

Remember that CI users have varying levels of success whether this means

hearing environmental sounds or being able to talk on the telephone. Not

everyone is able to understand speech without the aid of lipreading or sign.

I know a CI user who is totally blind and uses fingerspelling to supplement

what she hears through her implant because she never gained the ability to

understand speech completely with her CI. Is this person less of a success

because she relies on fingerspelling to help her understand what she hears

through her CI? I don't think so.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

[Guest guest]

,

Is the person who relied on fingerspelling in conjunction with their

cochlear implant prelingually or postlingually deaf? My audiologist covers

his face with a mask to test the implant. The utilization of fingerspelling

would make appointments very long. Larry

Re: Statistics and CI Problems

> Larry,

>

> Why is lipreading one of your pet peeves?

>

> Remember that CI users have varying levels of success whether this means

> hearing environmental sounds or being able to talk on the telephone. Not

> everyone is able to understand speech without the aid of lipreading or

> sign.

>

> I know a CI user who is totally blind and uses fingerspelling to

> supplement

> what she hears through her implant because she never gained the ability to

> understand speech completely with her CI. Is this person less of a success

> because she relies on fingerspelling to help her understand what she hears

> through her CI? I don't think so.

>

>

>

> Left ear - Nucleus 24 Contour Advance with 3G

> Implanted: 12/22/04 Activated: 1/18/05

>

> Right ear - Nucleus Freedom

> Implanted: 2/1/06 Activated: 3/1/06

>

>

>

>

>

>

>

[Guest guest]

Larry, are you saying that if someone can't hear or understand well enough to

communicate without lipreading with their CI, that they should just give up, or

just pretend? You seem to be implying that a, and anyone else who needs

lipreading with their CIs are not trying to hear and understand, and not trying

to help their Audies to program the CIs. You ask how the audie can program the

CI if the client is lip reading. How can they program the CI if the client can't

communicate with them, because they can understand them? Lip reading is not

always a crutch, it is sometimes an absolute necessity, whether prelingually or

postligually deaf.

Just my humble opinion.

Jane

Re: Statistics and CI Problems

> Hi Gladys ,

> My name is a and I was hooked up 8-21-06. I agree with you whole

> heartedly. Low tones are pre-dominant. Lip reading is my salvation. You

> didn't mention if you have the Freedom or the AB. I have the Freedom. My

> husband and other family members have to constantly remind me that I am

> talking toooo loud. Its difficult monitoring your own voice. My voice is

> starting to sound a little more normal now. I can hear the TV upstairs in

> my house but cannot make out heads or tails what they are saying. Still

> have to depend on captions on TV. I hear high tones but the bass are more

> prevalent. I guess we have to be patient. That's what everyone

> says. It takes time.

>

> a

>

>

>

[Guest guest]

Everyone, I do not understand lipreading. Even I am usher syndrome.I

never give up and still use and work on it about many problems.But I

am very confused right now and we are still figure out about

everything.Even I can not describe sounds this time.We can not do map

until I get replacement/repair processor.This time my audologist did

not let me see the computer screen while we did few beeps when I hear

it.But we are still work and figure out everything.I might may have

to do some tests or something but do not know but we are still work

on paperworks to get ready right now and wait for the processor to

come in and see what happens. Then maybe I have to do test for TMJ at

chrispoter where I got massager to find out but I have to ask my

audologist about few thing that chrispoter dr is ask me question

about if it is safe for me or not then next maybe CI center to figure

out and doing researches. Colleen

>

> Larry, are you saying that if someone can't hear or understand well

enough to communicate without lipreading with their CI, that they

should just give up, or just pretend? You seem to be implying that

a, and anyone else who needs lipreading with their CIs are not

trying to hear and understand, and not trying to help their Audies to

program the CIs. You ask how the audie can program the CI if the

client is lip reading. How can they program the CI if the client

can't communicate with them, because they can understand them? Lip

reading is not always a crutch, it is sometimes an absolute

necessity, whether prelingually or postligually deaf.

> Just my humble opinion.

> Jane

> Re: Statistics and CI Problems

>

> > Hi Gladys ,

> > My name is a and I was hooked up 8-21-06. I agree with you

whole

> > heartedly. Low tones are pre-dominant. Lip reading is my

salvation. You

> > didn't mention if you have the Freedom or the AB. I have the

Freedom. My

> > husband and other family members have to constantly remind me

that I am

> > talking toooo loud. Its difficult monitoring your own voice. My

voice is

> > starting to sound a little more normal now. I can hear the TV

upstairs in

> > my house but cannot make out heads or tails what they are

saying. Still

> > have to depend on captions on TV. I hear high tones but the

bass are more

> > prevalent. I guess we have to be patient. That's what everyone

> > says. It takes time.

> >

> > a

> >

> >

> >

[Guest guest]

Larry,

Just because you have a pet peeve does not mean you can pass judgement

on others. And asking someone what he or she would do if she or he was

blind is completely inappropriate.

What would you do if someone told you that you are too dependent on your

white cane? You are bilateral now, so you are using your white cane as a

crutch when you should instead use echo location.

As others have pointed out, not everyone has the same level of success,

and more importantly, you need to recognize that there are many many factors

in play. So please be careful that you do not pass judgement on people you

do not know.

*---* *---* *---* *---* *---*

Last week, I stated this woman was the ugliest woman I had ever seen. I have

since been visited by her sister . and now wish to withdraw that statement.

-- Mark Twain

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

[Guest guest]

I was advised right from the very beginning, to use all the tools and

skills at my disposal. If lip reading is a skill one has acquired over

the years, why shouldnt one still use it? The same with hearing aids, I

wa advised to wear the hearing aid in the non implanted ear, right from

the beginning. On its own, the hearing aid is pretty useless, but

combined with the C.I. it gives me a much better sound. I am aware that

as my gets more used to the implant, that the implanted ear will

dominate and thats already happened.

I still use captions when they are available, but I make a point of

watching some of the news each day, without them. The news is usually

well annunciated, so thats probably the best programme to try it with.

Obviously, I still have trouble with some peoples and place names.

There is no " one size fits all " in this journey to better hearing, but

I do believe in helping oneself as much as possible and if lip reading

is one of those things that makes life easier, then so be it.

Ted F.

>

> a,

> What would you do if you were totally blind with a CI and

> could use neither lip reading or captioning as a crutch? You would

> learn to listen with your cochlear implant. You would help your

> audiologist because he/she would learn how to adjust your cochlear

> implant by observing what you can't hear. How can the audiologist

> accomplish this if your mode of communication is reading lips?

> Thanks for listening. This is one of my pet peeves!

> Larry