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Can anyone help me????

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Hi Adge--

My daughter had scoliosis surgery and to my amazement her kyphosis was fixed,

as well. Many doctors had said it was not possible to do so (more than a

decade ago), but her surgeon did it. I think it involves rotating the rib cage

back into place once the spine is straightened? Does that seem right? Where

are you having your surgery?

Bek

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  • 2 years later...
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Hi..I am a brand new group member and my father just recently got a

cochlear implant back in October 2005. He wasn't very happy with it

at all in the beginning and up until a few months ago, he was

beginning to get used to the mapping he was on. The audiologist

changed the mapping and now my dad is completely disappointed again

and is relying more on his hearing aid. He doesn't really know how to

use the computer, so I would like to find the correct information for

him! Is this normal...have any of you had similar experiences? He is

to the point where he wants to change audiologists. Did anyone do

that? Can anyone help me??? I would love to hear all suggestions!

Thanks sooo much

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Your father can request to have his better, previous MAP put back on his

processor as one program, along witht other MAPs put in the other program

slots. That way he can fall back on the familiar one in times of necessity

and practice the new ones in less stressful conditions.

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Attached herein is a list of terms describing how we are hearing. If you print

this out for your father, perhaps he can use this to better describe what the

sounds are like to his audiologist. The audiologist can then adjust his map to

make the sounds better.

Hope this helps.

Happy Hearing!

Carol

Boca Raton, FL

N24C 3G left ear -12/11/01

N Freedom- right ear- implanted 3/01/06 activated 4/6/06

Can anyone help me????

Hi..I am a brand new group member and my father just recently got a

cochlear implant back in October 2005. He wasn't very happy with it

at all in the beginning and up until a few months ago, he was

beginning to get used to the mapping he was on. The audiologist

changed the mapping and now my dad is completely disappointed again

and is relying more on his hearing aid. He doesn't really know how to

use the computer, so I would like to find the correct information for

him! Is this normal...have any of you had similar experiences? He is

to the point where he wants to change audiologists. Did anyone do

that? Can anyone help me??? I would love to hear all suggestions!

Thanks sooo much

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Can you send me a copy as well, please Carol?

Ted F.

>

> Attached herein is a list of terms describing how we are hearing. If

you print this out for your father, perhaps he can use this to better

describe what the sounds are like to his audiologist. The audiologist

can then adjust his map to make the sounds better.

> Hope this helps.

> Happy Hearing!

> Carol

> Boca Raton, FL

> N24C 3G left ear -12/11/01

> N Freedom- right ear- implanted 3/01/06 activated 4/6/06

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Hi Cbarto!

Welcome to the group! I see you got some advice already. I was

wondering how many mapping appointments your dad has had since his

hook up date. It sounds like he needs to go back for another

mapping. And at that time the audie can put that last program back on

his processor that he liked before and then change the other programs

for him. It can take a lot of appointments to get that " ahhh this is a

nice map! " I started out going for a mapping once a week then every

two weeks then once a month until the third month of my hook up.

Then for a year I went every 3 months before being switched to twice a

year. It took me 3 months to get my favorite program and that was

based on my youngest sister's voice. I couldn't stand her high pitched

voice! So my audie rounded off the edges of the highs and lows from

my ACE 900 program and I LOVED it! That's when speech discrimination

started kicking in for me for the first time in my whole life. Just 3

days after that, I responded to my name being called just a few feet

behind me. Imagine that, at the age of 40 I was jumping up and down

because I responded to my name being called. What a day that was!

Anyway, Between appointments I tried to take notes of what I knew I

was not hearing or what didn't sound right and what I liked about the

different programs. I always took 3-7 observations on each program to

help my audie better map me next time. I feel those observations

helped a lot especially when I noticed I couldn't stand my youngest

sister's voice. Now hers is the easiest for me to understand from

another room. Once speech disrimination started kicking in that's

when I seriously started listening exercises with my family. My dad

and nieces and nephews enjoyed playing categories with me or giving me

spelling tests so I could practice listening. When we played

Categories, my dad always made it the kitchen table because there are

countless things on it for him to name and for me to repeat back.

Through Categories, we discovered I was not hearing the letter " c " and

so after my next mapping, I could then hear it. We also learned

another time that I was not hearing the letter r and that too was

fixed. I don't know if your dad needs to change audies. Only he can

make that decision. I do know that he needs another mapping. Tell him

not to give up. He is still a newbie with his processor. It has not

even been a year yet for him. He surely has not tried all the

different mappings out there. Good luck to him! I hope he someday

soon has that " Ah, this is a nice map! " And congratulations to you.

Maybe just maybe your dad will hear your vows on your wedding day!

Anything is possible.

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day BWP 1/2/03 (A Happy Day!)

3G 1/31/03 (An Even Happier Day!)

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Hi C Barto,

Of course your father can change audiologists any time he wants. Many

of us hate new mappings for the first few days, or so. I know it takes

about a week for me to adjust to a new mapping. But if he is really not

getting what he needs from his audiologist, go to someone else. By all

means.

Meanwhile, is dad wearing the processor all the time he's awake?

Because you really need to have it on all the waking hours to make sure

your brain is adapting to it. And have dad make a list of what he is

hearing, what it sounds like and so forth. All those things help with

mapping.

Good luck,

Posted by: " cbarto68 " cbarto68@... cbarto68

Thu Jul 6, 2006 9:29 am (PST)

Hi..I am a brand new group member and my father just recently got a

cochlear implant back in October 2005. He wasn't very happy with it

at all in the beginning and up until a few months ago, he was

beginning to get used to the mapping he was on. The audiologist

changed the mapping and now my dad is completely disappointed again

and is relying more on his hearing aid. He doesn't really know how to

use the computer, so I would like to find the correct information for

him! Is this normal...have any of you had similar experiences? He is

to the point where he wants to change audiologists. Did anyone do

that? Can anyone help me??? I would love to hear all suggestions!

Thanks sooo much

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Hi Carol,

Thank you for responding to me...I don't believe that I received the item

listed below. I looked and looked and waited for it, but I never found it. Do

you mind sending it to be again! I really hope that it is helpful for my dad!

Thanks again...I can't believe how many people have requested a copy from you!

Its amazing... Question for you...do the batteries in the CI have any thing to

do with the hearing? My father is thinking of every way possible and why he

cannot hear....he changed batteries...could that make a difference?

Thanks again Carol-

Carol <carol@...> wrote:

Attached herein is a list of terms describing how we are hearing. If

you print this out for your father, perhaps he can use this to better describe

what the sounds are like to his audiologist. The audiologist can then adjust his

map to make the sounds better.

Hope this helps.

Happy Hearing!

Carol

Boca Raton, FL

N24C 3G left ear -12/11/01

N Freedom- right ear- implanted 3/01/06 activated 4/6/06

Can anyone help me????

Hi..I am a brand new group member and my father just recently got a

cochlear implant back in October 2005. He wasn't very happy with it

at all in the beginning and up until a few months ago, he was

beginning to get used to the mapping he was on. The audiologist

changed the mapping and now my dad is completely disappointed again

and is relying more on his hearing aid. He doesn't really know how to

use the computer, so I would like to find the correct information for

him! Is this normal...have any of you had similar experiences? He is

to the point where he wants to change audiologists. Did anyone do

that? Can anyone help me??? I would love to hear all suggestions!

Thanks sooo much

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I dont know what age your father is, . This isnt meant to be

a silly comment, just a process of elimination, but I presume he does

know how to turn his device on properly after putting new batteries

in it?

Ted F.

>

> Its amazing... Question for you...do the batteries in the CI

> have any thing to do with the hearing? My father is thinking of

> every way possible and why he cannot hear....he changed

> batteries...could that make a difference?

>

> Thanks again Carol-

>

>

>

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