Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 The only real problems besides having a very odd shaped head was for the most part MENTAL. It caused such a self esteem issue. Try joining the football team with this problem. You think you can fit a football helmet on? NOT. That alone is enough to drive you insane. Even something as simple as putting on a cap will never work. It simply will never fit right. During my teens I grew my hair very long to hide my head. Long hair lead me to become a some what of an outcast at school. But I turned that around by becoming a huge rebel. In college I cut my hair and people noticed it right away. Again very few would socialize because of it. I also had a very difficult time with school as far as studying. I spent 6-10 hours a day studying for classes. But I don't know if that is a result of this problem. I did and do continue to have a problem with my shoulders. If you were to look at me straight on you would find that one shoulder lays lower than the other. But I do a lot of weight lifting and that seems to help. I do not know if that has a relation however. For myself I think I am very healthy. But recently I have discovered I may have A.D.D. Again I don't know if that has a relation. If nothing else the mental aspect is enough. Today I am fine after mentally batteling with my self (why I am the way I am). I also am glad I had the surgery. However the self esteem issues I had growing up will never leave me. I continue to have self esteem issues and difficulties in socializing. If you have any other questions, I will answer any of them. e-mail me directly at Scubaj357@... S Phoenix AZ >From: " Niki " <niki_jay175@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: S >Date: Mon, 12 Nov 2001 05:50:41 -0000 > >, >I hope you don't find this extrememly rude of me and I apologize if >you do, but a lot of us parents wonder what kind of problems, if any, >untreated plagiocephaly could cause. You said 'growing up with this >problem is horrible', can you tell us why? Since plagio is >considered a new epidemic since the back to sleep campaign, most of >the plagio babies are still too young for the docotrs to be certain >of what problems might lie ahead. If you wouldn't mind sharing some >of your experiences with us, it would be greatly appreciated. Thank >you in advance and take care. > >Niki >Kaylie & Danny (STAR grads) >Phila., PA > > > > > > You found the right group to ask guestions. you must do >something. A band > > or surgery are your choices. You dont want your child to end up >like me. > > Im a 27 year old that just had a surgery to help the problem. >Growing up > > with this problem is horrible. > > > > You are doing the right thing. > > > > >From: charla104@h... > > >Reply-Plagiocephaly@y... > > >Plagiocephaly@y... > > >Subject: Concerned Newcomer > > >Date: Mon, 12 Nov 2001 04:41:45 -0000 > > > > > >Hello There! I have just today gotten information on this group >and > > >have spent the past two hours reading all kinds of information. >My 9 > > >month old, Connor, is being casted for his DOC band on Tuesday the > > >13th. I am more than a little nervous and wondering if we are >doing > > >the right thing. I have been to one Cranial Specialist and have > > >another appointment on December 3 to see another (per my insurance > > >requirements!) I have been reading through the arcives and have >seen > > >a lot of letters regarding negative experiences with the bands so >now > > >I am concerned. Have any of you been overly thrilled with your > > >experience? Connor's plagio is mild to moderate and we have had > > >people say that they don't even notice it at all. I guess I notice > > >it most when he is in the bath tub with wet hair. He does have > > >torticollis on the left side and is almost perfectly flat in the >back > > >of his head and to the right side of the back of his head. His >right > > >ear is about 1/2 to 1 inch in front of his left ear. I guess I >just > > >want to hear some positive feed back from the Bands. I have only > > >spoke with one person who has had any experience with the band. >Any > > >insight would be GREATLY appreciated!! > > >Thanks! > > >Charla Brown > > > > > > > > > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at >http://explorer.msn.com/intl.asp > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 , Damn, dude. That was deep. It really hit home to me. My son (now 16mos.) and I flew back & forth to Cranial Tech every other weekend from SF to Phoenix all summer long. The emotional trauma you went through is one of the major issues almost ALL insurance companies avoid. They say the cosmetic/emotional issues are so insignifican. If they only knew. Thank You. I truly appreciate you taking the time to share you very personal life with us. I could ramble on at you and ask a ton more questions but the only one that I'm sure most will want to know (so I'll ask it for the 'public') is at what age did you have surgery and what surgery did you have? (If you already answered this, I apologize but I am just reading your post right now and didn't read any of the previous posts. Sorry!) & Maxwell San Francisco DOC Banded 5.16.01 Graduated 9.4.01 > The only real problems besides having a very odd shaped head was for the > most part MENTAL. It caused such a self esteem issue. Try joining the > football team with this problem. You think you can fit a football helmet > on? NOT. That alone is enough to drive you insane. Even something as > simple as putting on a cap will never work. It simply will never fit right. > > During my teens I grew my hair very long to hide my head. Long hair lead me > to become a some what of an outcast at school. But I turned that around by > becoming a huge rebel. In college I cut my hair and people noticed it right > away. Again very few would socialize because of it. I also had a very > difficult time with school as far as studying. I spent 6-10 hours a day > studying for classes. But I don't know if that is a result of this problem. > > I did and do continue to have a problem with my shoulders. If you were to > look at me straight on you would find that one shoulder lays lower than the > other. But I do a lot of weight lifting and that seems to help. I do not > know if that has a relation however. > > For myself I think I am very healthy. But recently I have discovered I may > have A.D.D. Again I don't know if that has a relation. > > If nothing else the mental aspect is enough. Today I am fine after mentally > batteling with my self (why I am the way I am). I also am glad I had the > surgery. However the self esteem issues I had growing up will never leave > me. I continue to have self esteem issues and difficulties in socializing. > > If you have any other questions, I will answer any of them. > > e-mail me directly at > > Scubaj357@h... > > S > Phoenix AZ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 , you've made me sad. Your story alone was enough to make me feel 100% confident and glad that I got my little Em's band!!! Thank you for your story. In the long run, I didn't want Em to have the problem of people noticing her little noggin being off if she decided to have short hair. And of course her ears also. Again, thank you for your story. Kelli __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 , Thank you so much for sharing your story. I now feel alot better about putting my daughter through the multiple castings and all the tests she had. I hope things will get better for you now that you have had the surgery. Always remember, it is what's on the inside that counts! If people are too darn ignorant to be your friend, then maybe you would not want them to be your friend anyway. Once again, Thank You! Anne mom of Livia Canada Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.