Re: Re:New Member - Wanted to Say Hello

[Guest guest]

Hi Caryn,

Thanks for your email. I'm so happy to hear about your daughter's new CI.

That's great!! I can't wait to hear about her experiences with it. And as

soon as I get my CI's I'll defintely explain the differences between the three

different kinds of hearing that I experienced. From what I've been reading,

bilateral CI's are beginning to be the trend now, so I can't wait to hear of

people's experiences with two.

I hope your daughter has a smooth transition with her new CI. Keep me posted!

And thanks again for your email.

Re:New Member - Wanted to Say Hello

,

I am so glad you are on this list serve. For one reason, I would love to hear

you explain the difference between " normal hearing " -before yoru hearing loss,

hearing with the hearing aids and hearing with the cochlear implant (once you

get it). It is so hard to get that perspective and I had wished I could find

someone with that perspective when I was deciding to get an implant for my

daughter. Similaryly, i will share her experience with this list serve because

she has used Hearing aids for 3 years and was just implanted last week. She is 6

and has a strong language base so I am excited to hear her explain the different

sound.

Regarding bi-lateral implants. I know they are kind of new, but at the school

my daughter goes to several children who had CI's when they were 1 or 2 have

recently gone in for the second/bi-lateral implant. (these kids are around 4-6

yrs old) Several other parents are looking into it. I think it is becoming more

common.....now that insurance is beginning to pay in some instances.

Best of Luck.

Caryn

[Guest guest]

Thanks , for sharing all that information.

You made a comment that motivates me to ask a general

question. You said " And most of us have some residual

hearing in one ear, and maybe use a hearing aid in

that one, so don't need 2 at the same time. "

I wonder how true it is, are there others like me who

have a single implant and do not have useable hearing

in the other ear, or ability to use a hearing aid in

the unimplanted ear? Of course even those you get

some benefit out of the HA may do better with the

implant, but my question has to do with not being able

to benefit from a HA in the other ear.

Thanks.

Deb

--- M Jansen <nucleus24@...> wrote:

> Hi ,

> Welcome to the forum. The best source for

> information about

> any kind of cochlear implant.

> Getting simultaneous bilaterals has certainly

> been done in the past,

> but in special cases. For instance when a child has

> meningitis and the

> cochleas are ossified, and the doctors fear that if

> they don't implant a

> child right away, they won't be able to get the

> device in at all. So

> that has been the case. There is at least one

> person on this forum

> (Sharon) who got simultaneous bilaterals several

> years ago.

> Generally it's a question of getting insurance

> approval. And most of

> us have some residual hearing in one ear, and maybe

> use a hearing aid in

> that one, so don't need 2 at the same time.

> But it is less expensive to do both at the same

> time. Only one rental

> of the operating room, one anesthesia to go under,

> one operation, and

> hearing in both ears (which is normal)

> I participated in clinical trials for the Nucleus

> 24 device when it

> was out 9 1/2 years ago. There may be more tests

> you go through, but

> they certainly keep good records. They may even

> give you the second

> implant for free. Never hurts to ask. Especially

> since it's hard to

> find candidates who qualify. Having lost hearing

> completely, at the same

> time, and after having acquired speech (Post

> lingually deafened).

> Since you were hearing from both ears all along,

> I think you will

> like bilaterals rather than having to learn to turn

> your head to hear

> from the other side. This could be very important

> in getting your job

> back eventually.

> I, too, lost my hearing due to Auto Immune

> disorder. However, mine

> happened in 2 separate instances. I also did the

> steroid treatment, and

> you cannot stay on them forever. Once I was off

> them, the hearing went.

>

> I was implanted with a Nucleus 24 9 1/2 years

> ago. I use the phone,

> go to movies, understand speech without lipreading

> (which would be

> important for a court reporter). Although I only

> have one implant (my

> insurance won't pay for a second), I do very well

> with it. I think

> you'll be hearing from folks who had sequential

> implants, and wish they

> had done both at the same time.

> Do you get a choice of implant brand with this

> study?

> Any of them work, it's just a question of what

> features fit your

> lifestyle. I like the Nucleus because they give you

> choices of batteries

> (disposable or rechargeables), mapping strategies

> (6, more than anyone

> else offers) 4 slots to hold 4 different programs

> for hearing, the most

> up to date internal array, and so forth. Check out

> the features at the

> wegsite. www.cochlear.com

> Good luck, ask any questions you have,

>

>

________________________________________________________________________________\

____

Need Mail bonding?

Go to the Q & A for great tips from Answers users.

http://answers./dir/?link=list & sid=396546091

[Guest guest]

Hey ,

Thanks so much for your email and your information. And to answer your

question, no, I don't get a choice of implants. I have to go with AB, who is

funding the study, but that's who I was going to choose anyway, so that isn't a

problem for me. The problem is waiting for my insurance company to deny my

request for the second CI, and then deny my appeal. Once they do that, then AB

will donate the device to me for the study. But I just wish they would just

donate it to begin with so I don't have to wait so long for the insurance

denials. I just want to get a surgery date and get on with this whole process

so I can join the hearing world again!

Thanks again, , for your help. Talk to you soon.

Re:New Member - Wanted to Say Hello

Hi ,

Welcome to the forum. The best source for information about

any kind of cochlear implant.

Getting simultaneous bilaterals has certainly been done in the past,

but in special cases. For instance when a child has meningitis and the

cochleas are ossified, and the doctors fear that if they don't implant a

child right away, they won't be able to get the device in at all. So

that has been the case. There is at least one person on this forum

(Sharon) who got simultaneous bilaterals several years ago.

Generally it's a question of getting insurance approval. And most of

us have some residual hearing in one ear, and maybe use a hearing aid in

that one, so don't need 2 at the same time.

But it is less expensive to do both at the same time. Only one rental

of the operating room, one anesthesia to go under, one operation, and

hearing in both ears (which is normal)

I participated in clinical trials for the Nucleus 24 device when it

was out 9 1/2 years ago. There may be more tests you go through, but

they certainly keep good records. They may even give you the second

implant for free. Never hurts to ask. Especially since it's hard to

find candidates who qualify. Having lost hearing completely, at the same

time, and after having acquired speech (Post lingually deafened).

Since you were hearing from both ears all along, I think you will

like bilaterals rather than having to learn to turn your head to hear

from the other side. This could be very important in getting your job

back eventually.

I, too, lost my hearing due to Auto Immune disorder. However, mine

happened in 2 separate instances. I also did the steroid treatment, and

you cannot stay on them forever. Once I was off them, the hearing went.

I was implanted with a Nucleus 24 9 1/2 years ago. I use the phone,

go to movies, understand speech without lipreading (which would be

important for a court reporter). Although I only have one implant (my

insurance won't pay for a second), I do very well with it. I think

you'll be hearing from folks who had sequential implants, and wish they

had done both at the same time.

Do you get a choice of implant brand with this study?

Any of them work, it's just a question of what features fit your

lifestyle. I like the Nucleus because they give you choices of batteries

(disposable or rechargeables), mapping strategies (6, more than anyone

else offers) 4 slots to hold 4 different programs for hearing, the most

up to date internal array, and so forth. Check out the features at the

wegsite. www.cochlear.com

Good luck, ask any questions you have,

[Guest guest]

Ted I totally agree with you. From my perspective now

with my CI things sound " normal " or as I remember

them. It did take me awhile to recognize some sounds

but after I recognized them they do sound as I

remember them. In my humble opinion there is no

comparison to a hearing aid and a CI. The CI is eons

better.

Thanks!!!

Connie

--- " Ted F. " <ted.fletcher@...> wrote:

> I can answer this from my perspective too, Caryn. I

> had normal

> hearing until I was in my late 20's, then my hearing

> started going

> off. I then wore hearing aids for nearly 30 years.

>

> With the C.I. I DO hear normally. I know what

> different things sound

> like, because I grew up with hearing. Things with

> the C.I. sound

> exactly the same, only much better than they ever

> were with hearing

> aids. Its a wonderful piece of technology that we

> are blessed with.

>

> Ted F.

>

>

>

>

>

>

> >

> > ,

> >

> > I am so glad you are on this list serve. For

> one reason, I would

> love to hear you explain the difference between

> " normal hearing " -

> before yoru hearing loss, hearing with the hearing

> aids and hearing

> with the cochlear implant (once you get it). It is

> so hard to get

> that perspective and I had wished I could find

> someone with that

> perspective when I was deciding to get an implant

> for my daughter.

> Similaryly, i will share her experience with this

> list serve because

> she has used Hearing aids for 3 years and was just

> implanted last

> week. She is 6 and has a strong language base so I

> am excited to

> hear her explain the different sound.

> >

> > Regarding bi-lateral implants. I know they are

> kind of new, but

> at the school my daughter goes to several children

> who had CI's when

> they were 1 or 2 have recently gone in for the

> second/bi-lateral

> implant. (these kids are around 4-6 yrs old)

> Several other parents

> are looking into it. I think it is becoming more

> common.....now that

> insurance is beginning to pay in some instances.

> >

> > Best of Luck.

> >

> > Caryn

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

" The Miracle at Ohio State "

aka Nucleus Freedom

Implanted 10/04/2005

Activated 11/1/2005

Surgery: Ohio State University

Surgeon: Dr. Bradley Welling

http://internalmedicine.osu.edu/article.cfm?ID=2021

[Guest guest]

Interesting perspectives the CI sounding like normal hearing and not like

hearing aids. I have never known normal hearing and used hearing aids for 30

years, and my CIs sound like hearing aids to me.

[Guest guest]

Hi Deb,

I have a single implant and was just implanted in September. My audie and

doctor required me to go 3 months without my hearing aid in my unimplanted

ear. When I tried to add it back in January, I did not like it. In fact, I

found that the muffled sounds from the HA side actually interfered with the

good clear sound from my CI. Therefore, I am not planning to wear the

hearing aid again. I'm also not ready to go for a second CI, even though

BCBS is paying for bilaterals. I have a VERY steep ski slope loss in my

unimplanted ear. It enables me to hear my clock radio go off in the morning,

thunder, my shower running, muffled voices and other noises. I can even hear

the very bassy sounds in music with my CI on. I'm just not ready to go

totally DEAF without my CI. Maybe I'll be ready in a few years, or if the

residual hearing in that ear declines further.

Lynn

Fairhope, AL

Nucleus Freedom

Surgery date: 9/6/06

Activation date: 9/27/06

Re: Re:New Member - Wanted to Say Hello

Thanks , for sharing all that information.

You made a comment that motivates me to ask a general question. You said

" And most of us have some residual hearing in one ear, and maybe use a

hearing aid in that one, so don't need 2 at the same time. "

I wonder how true it is, are there others like me who have a single implant

and do not have useable hearing in the other ear, or ability to use a

hearing aid in the unimplanted ear? Of course even those you get some

benefit out of the HA may do better with the implant, but my question has to

do with not being able to benefit from a HA in the other ear.

Thanks.

Deb

[Guest guest]

Hi Lynn,

Thanks for that feedback! That all sounds quite

reasonable to me. I too have a bit of low frequency

sound in my unimplanted ear, though that does not

motivate me to use an HA in that ear, not anymore. I

can enjoy some bass-y sounds in music when the volume

it up high enough, which helps to round out the sound

of music and song. Maybe at some point, when it's an

option insurance wise, I'll consider bilateral. Or

not. Hard to say right now.

Thanks again.

Deb

--- Lynn <HibiscusBelle@...> wrote:

> Hi Deb,

> I have a single implant and was just implanted in

> September. My audie and

> doctor required me to go 3 months without my hearing

> aid in my unimplanted

> ear. When I tried to add it back in January, I did

> not like it. In fact, I

> found that the muffled sounds from the HA side

> actually interfered with the

> good clear sound from my CI. Therefore, I am not

> planning to wear the

> hearing aid again. I'm also not ready to go for a

> second CI, even though

> BCBS is paying for bilaterals. I have a VERY steep

> ski slope loss in my

> unimplanted ear. It enables me to hear my clock

> radio go off in the morning,

> thunder, my shower running, muffled voices and other

> noises. I can even hear

> the very bassy sounds in music with my CI on. I'm

> just not ready to go

> totally DEAF without my CI. Maybe I'll be ready in a

> few years, or if the

> residual hearing in that ear declines further.

>

> Lynn

> Fairhope, AL

>

> Nucleus Freedom

> Surgery date: 9/6/06

> Activation date: 9/27/06

>

>

> Re: Re:New Member - Wanted to Say

> Hello

>

> Thanks , for sharing all that information.

>

> You made a comment that motivates me to ask a

> general question. You said

> " And most of us have some residual hearing in one

> ear, and maybe use a

> hearing aid in that one, so don't need 2 at the same

> time. "

>

> I wonder how true it is, are there others like me

> who have a single implant

> and do not have useable hearing in the other ear, or

> ability to use a

> hearing aid in the unimplanted ear? Of course even

> those you get some

> benefit out of the HA may do better with the

> implant, but my question has to

> do with not being able to benefit from a HA in the

> other ear.

>

> Thanks.

> Deb

>

>

________________________________________________________________________________\

____

Want to start your own business?

Learn how on Small Business.

http://smallbusiness./r-index

[Guest guest]

Ted,

There have been many studies done regarding using the CI alone for a period of

time before introducing the HA. It forces the brain to hear and understand

quicker and better. Even when I got a 2nd CI, it was strongly suggested by my

CI Center that I only use the new one for a month before introducing the older

CI. I balked about it and used both CIs together anyway but wasn't very

pleased with how it sounded. After doing this for a month and still not happy,

I was then sent a copy of a study done by a leading audiologist in the field.

After reading about it, I tried it and the results I received were very good. I

guess it works much like what they do for children with " lazy eye " where they

patch the good eye to strengthen the eye which is having the problem.

Happy Hearing!

Carol

Boca Raton, FL

N24C 3G left ear -12/11/01

N Freedom- right ear- implanted 3/01/06 activated 4/6/06

Re: Re:New Member - Wanted to Say Hello

>

> Thanks , for sharing all that information.

>

> You made a comment that motivates me to ask a general question. You

said

> " And most of us have some residual hearing in one ear, and maybe

use a

> hearing aid in that one, so don't need 2 at the same time. "

>

> I wonder how true it is, are there others like me who have a single

implant

> and do not have useable hearing in the other ear, or ability to use

a

> hearing aid in the unimplanted ear? Of course even those you get

some

> benefit out of the HA may do better with the implant, but my

question has to

> do with not being able to benefit from a HA in the other ear.

>

> Thanks.

> Deb

>

[Guest guest]

This is another reply to Deb,

I cought 's reply to you about single implant and no useable

hearing in the opposite ear. I too am one of those unlucky people.

I think it all depends on the length of time

you have no usable hearing and that will determine how successful you

would be in having an implant. I was just implanted in my left ear

Aug 06 with a Freedom. I would

love to have one in the right ear but since I was born deaf and I am

68 years old, I feel that ear has never been stimulated. I tried a

cross hearing aid many years ago but

it did nothing.

Good luck to you in your quest for bilateral

a in L.A.

Freedom 8-06

On Mar 7, 2007, at 5:05 PM, wrote:

> Deb,

> I am so behind in the posts, but caught this one where you asked if

> there are others like you who have a single implant and no useable

> hearing in the opposite ear. I am one of those people. Am currently

> awaiting a new decision from my insurance company in regards to going

> bilateral. Keeping my fingers crossed!!

>

>

> Freedom 9/21/05 HOOKED!!

> Sensorineural hearing loss discovered age 4

>

>

> >

> > > Hi ,

> > > Welcome to the forum. The best source for

> > > information about

> > > any kind of cochlear implant.

> > > Getting simultaneous bilaterals has certainly

> > > been done in the past,

> > > but in special cases. For instance when a child has

> > > meningitis and the

> > > cochleas are ossified, and the doctors fear that if

> > > they don't implant a

> > > child right away, they won't be able to get the

> > > device in at all. So

> > > that has been the case. There is at least one

> > > person on this forum

> > > (Sharon) who got simultaneous bilaterals several

> > > years ago.

> > > Generally it's a question of getting insurance

> > > approval. And most of

> > > us have some residual hearing in one ear, and maybe

> > > use a hearing aid in

> > > that one, so don't need 2 at the same time.

> > > But it is less expensive to do both at the same

> > > time. Only one rental

> > > of the operating room, one anesthesia to go under,

> > > one operation, and

> > > hearing in both ears (which is normal)

> > > I participated in clinical trials for the Nucleus

> > > 24 device when it

> > > was out 9 1/2 years ago. There may be more tests

> > > you go through, but

> > > they certainly keep good records. They may even

> > > give you the second

> > > implant for free. Never hurts to ask. Especially

> > > since it's hard to

> > > find candidates who qualify. Having lost hearing

> > > completely, at the same

> > > time, and after having acquired speech (Post

> > > lingually deafened).

> > > Since you were hearing from both ears all along,

> > > I think you will

> > > like bilaterals rather than having to learn to turn

> > > your head to hear

> > > from the other side. This could be very important

> > > in getting your job

> > > back eventually.

> > > I, too, lost my hearing due to Auto Immune

> > > disorder. However, mine

> > > happened in 2 separate instances. I also did the

> > > steroid treatment, and

> > > you cannot stay on them forever. Once I was off

> > > them, the hearing went.

> > >

> > > I was implanted with a Nucleus 24 9 1/2 years

> > > ago. I use the phone,

> > > go to movies, understand speech without lipreading

> > > (which would be

> > > important for a court reporter). Although I only

> > > have one implant (my

> > > insurance won't pay for a second), I do very well

> > > with it. I think

> > > you'll be hearing from folks who had sequential

> > > implants, and wish they

> > > had done both at the same time.

> > > Do you get a choice of implant brand with this

> > > study?

> > > Any of them work, it's just a question of what

> > > features fit your

> > > lifestyle. I like the Nucleus because they give you

> > > choices of batteries

> > > (disposable or rechargeables), mapping strategies

> > > (6, more than anyone

> > > else offers) 4 slots to hold 4 different programs

> > > for hearing, the most

> > > up to date internal array, and so forth. Check out

> > > the features at the

> > > wegsite. www.cochlear.com

> > > Good luck, ask any questions you have,

> > >

> > >

> >

> >

> >

> >

> >

> >

> __________________________________________________________

> > Need Mail bonding?

> > Go to the Q & A for great tips from Answers users.

> > http://answers./dir/?link=list & sid=396546091

> >

>

>

>

[Guest guest]

You're not so behind, , at least not with this

thread. Thanks for the feedback and keeping fingers

crossed for you!

Deb

--- <cindy4baskets@...> wrote:

> Deb,

> I am so behind in the posts, but caught this one

> where you asked if

> there are others like you who have a single implant

> and no useable

> hearing in the opposite ear. I am one of those

> people. Am currently

> awaiting a new decision from my insurance company in

> regards to going

> bilateral. Keeping my fingers crossed!!

>

>

> Freedom 9/21/05 HOOKED!!

> Sensorineural hearing loss discovered age 4

>

>

> >

> > > Hi ,

> > > Welcome to the forum. The best source

> for

> > > information about

> > > any kind of cochlear implant.

> > > Getting simultaneous bilaterals has

> certainly

> > > been done in the past,

> > > but in special cases. For instance when a child

> has

> > > meningitis and the

> > > cochleas are ossified, and the doctors fear that

> if

> > > they don't implant a

> > > child right away, they won't be able to get the

> > > device in at all. So

> > > that has been the case. There is at least one

> > > person on this forum

> > > (Sharon) who got simultaneous bilaterals several

> > > years ago.

> > > Generally it's a question of getting

> insurance

> > > approval. And most of

> > > us have some residual hearing in one ear, and

> maybe

> > > use a hearing aid in

> > > that one, so don't need 2 at the same time.

> > > But it is less expensive to do both at the

> same

> > > time. Only one rental

> > > of the operating room, one anesthesia to go

> under,

> > > one operation, and

> > > hearing in both ears (which is normal)

> > > I participated in clinical trials for the

> Nucleus

> > > 24 device when it

> > > was out 9 1/2 years ago. There may be more

> tests

> > > you go through, but

> > > they certainly keep good records. They may even

> > > give you the second

> > > implant for free. Never hurts to ask.

> Especially

> > > since it's hard to

> > > find candidates who qualify. Having lost

> hearing

> > > completely, at the same

> > > time, and after having acquired speech (Post

> > > lingually deafened).

> > > Since you were hearing from both ears all

> along,

> > > I think you will

> > > like bilaterals rather than having to learn to

> turn

> > > your head to hear

> > > from the other side. This could be very

> important

> > > in getting your job

> > > back eventually.

> > > I, too, lost my hearing due to Auto Immune

> > > disorder. However, mine

> > > happened in 2 separate instances. I also did

> the

> > > steroid treatment, and

> > > you cannot stay on them forever. Once I was off

> > > them, the hearing went.

> > >

> > > I was implanted with a Nucleus 24 9 1/2 years

> > > ago. I use the phone,

> > > go to movies, understand speech without

> lipreading

> > > (which would be

> > > important for a court reporter). Although I

> only

> > > have one implant (my

> > > insurance won't pay for a second), I do very

> well

> > > with it. I think

> > > you'll be hearing from folks who had sequential

> > > implants, and wish they

> > > had done both at the same time.

> > > Do you get a choice of implant brand with

> this

> > > study?

> > > Any of them work, it's just a question of

> what

> > > features fit your

> > > lifestyle. I like the Nucleus because they give

> you

> > > choices of batteries

> > > (disposable or rechargeables), mapping

> strategies

> > > (6, more than anyone

> > > else offers) 4 slots to hold 4 different

> programs

> > > for hearing, the most

> > > up to date internal array, and so forth. Check

> out

> > > the features at the

> > > wegsite. www.cochlear.com

> > > Good luck, ask any questions you have,

> > >

> > >

> >

> >

> >

> >

> >

> >

>

________________________________________________________________________________\

____

> > Need Mail bonding?

> > Go to the Q & A for great tips from

> Answers users.

> >

>

http://answers./dir/?link=list & sid=396546091

> >

>

>

>

________________________________________________________________________________\

____

Now that's room service! Choose from over 150,000 hotels

in 45,000 destinations on Travel to find your fit.

http://farechase./promo-generic-14795097

[Guest guest]

Hi a,

Thanks for your feedback. I am not currently seeking

bilateral, though it's not out of the question for the

future.

You say you worry that the unimplanted ear has never

been stimulated re: success/failure rates. How are you

doing with your implant now? Was that ear " less

deafened " and truly by how much. I just wonder if you

wouldn't benefit enough to make it worthwhile. Not

that you have to pursue it, it's just a question and a

thought.

Thanks!

Deb

--- Bernard Borenstein <bernardb3@...> wrote:

> This is another reply to Deb,

> I cought 's reply to you about single implant

> and no useable

> hearing in the opposite ear. I too am one of those

> unlucky people.

> I think it all depends on the length of time

> you have no usable hearing and that will determine

> how successful you

> would be in having an implant. I was just implanted

> in my left ear

> Aug 06 with a Freedom. I would

> love to have one in the right ear but since I was

> born deaf and I am

> 68 years old, I feel that ear has never been

> stimulated. I tried a

> cross hearing aid many years ago but

> it did nothing.

>

> Good luck to you in your quest for bilateral

> a in L.A.

> Freedom 8-06

>

> On Mar 7, 2007, at 5:05 PM, wrote:

>

> > Deb,

> > I am so behind in the posts, but caught this one

> where you asked if

> > there are others like you who have a single

> implant and no useable

> > hearing in the opposite ear. I am one of those

> people. Am currently

> > awaiting a new decision from my insurance company

> in regards to going

> > bilateral. Keeping my fingers crossed!!

> >

> >

> > Freedom 9/21/05 HOOKED!!

> > Sensorineural hearing loss discovered age 4

> >

> >

> > >

> > > > Hi ,

> > > > Welcome to the forum. The best source

> for

> > > > information about

> > > > any kind of cochlear implant.

> > > > Getting simultaneous bilaterals has certainly

> > > > been done in the past,

> > > > but in special cases. For instance when a

> child has

> > > > meningitis and the

> > > > cochleas are ossified, and the doctors fear

> that if

> > > > they don't implant a

> > > > child right away, they won't be able to get

> the

> > > > device in at all. So

> > > > that has been the case. There is at least one

> > > > person on this forum

> > > > (Sharon) who got simultaneous bilaterals

> several

> > > > years ago.

> > > > Generally it's a question of getting insurance

> > > > approval. And most of

> > > > us have some residual hearing in one ear, and

> maybe

> > > > use a hearing aid in

> > > > that one, so don't need 2 at the same time.

> > > > But it is less expensive to do both at the

> same

> > > > time. Only one rental

> > > > of the operating room, one anesthesia to go

> under,

> > > > one operation, and

> > > > hearing in both ears (which is normal)

> > > > I participated in clinical trials for the

> Nucleus

> > > > 24 device when it

> > > > was out 9 1/2 years ago. There may be more

> tests

> > > > you go through, but

> > > > they certainly keep good records. They may

> even

> > > > give you the second

> > > > implant for free. Never hurts to ask.

> Especially

> > > > since it's hard to

> > > > find candidates who qualify. Having lost

> hearing

> > > > completely, at the same

> > > > time, and after having acquired speech (Post

> > > > lingually deafened).

> > > > Since you were hearing from both ears all

> along,

> > > > I think you will

> > > > like bilaterals rather than having to learn to

> turn

> > > > your head to hear

> > > > from the other side. This could be very

> important

> > > > in getting your job

> > > > back eventually.

> > > > I, too, lost my hearing due to Auto Immune

> > > > disorder. However, mine

> > > > happened in 2 separate instances. I also did

> the

> > > > steroid treatment, and

> > > > you cannot stay on them forever. Once I was

> off

> > > > them, the hearing went.

> > > >

> > > > I was implanted with a Nucleus 24 9 1/2 years

> > > > ago. I use the phone,

> > > > go to movies, understand speech without

> lipreading

> > > > (which would be

> > > > important for a court reporter). Although I

> only

> > > > have one implant (my

> > > > insurance won't pay for a second), I do very

> well

> > > > with it. I think

> > > > you'll be hearing from folks who had

> sequential

> > > > implants, and wish they

> > > > had done both at the same time.

> > > > Do you get a choice of implant brand with this

> > > > study?

> > > > Any of them work, it's just a question of what

> > > > features fit your

> > > > lifestyle. I like the Nucleus because they

> give you

> > > > choices of batteries

> > > > (disposable or rechargeables), mapping

> strategies

> > > > (6, more than anyone

> > > > else offers) 4 slots to hold 4 different

> programs

> > > > for hearing, the most

> > > > up to date internal array, and so forth. Check

> out

> > > > the features at the

> > > > wegsite. www.cochlear.com

> > > > Good luck, ask any questions you have,

> > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

__________________________________________________________

> > > Need Mail bonding?

> > > Go to the Q & A for great tips from

> Answers users.

> > >

>

http://answers./dir/?link=list & sid=396546091

> > >

> >

> >

> >

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

=== message truncated ===

________________________________________________________________________________\

____

Bored stiff? Loosen up...

Download and play hundreds of games for free on Games.

http://games./games/front

[Guest guest]

Hi Deb,

My implant is still a struggle. The phones are hard, and people do

not sound like they did when I wore a HA. I cannot make out the

radio. Maybe just a few words if I am lucky.

I had a ski sloop loss in the implanted ear. I used the phone both

land and cell with no difficulty. It still sounds robatic. I am

seeing a new audi in May. My other audie tried and tried

many speeds and turned off two electrodes with no success.

Currently I am seeing a speech pathologist for AV training. I try to

practice with the audio books and the unabridged

book. I don't know what more I can do. I was thinking of the Sound

& Beyond but I have an apple computer and I learned it was not

compatible.

Thanks for any suggestions you can give me.

a

On Mar 7, 2007, at 6:50 PM, Deborah C wrote:

> Hi a,

>

> Thanks for your feedback. I am not currently seeking

> bilateral, though it's not out of the question for the

> future.

>

> You say you worry that the unimplanted ear has never

> been stimulated re: success/failure rates. How are you

> doing with your implant now? Was that ear " less

> deafened " and truly by how much. I just wonder if you

> wouldn't benefit enough to make it worthwhile. Not

> that you have to pursue it, it's just a question and a

> thought.

>

> Thanks!

> Deb

>

> --- Bernard Borenstein <bernardb3@...> wrote:

>

> > This is another reply to Deb,

> > I cought 's reply to you about single implant

> > and no useable

> > hearing in the opposite ear. I too am one of those

> > unlucky people.

> > I think it all depends on the length of time

> > you have no usable hearing and that will determine

> > how successful you

> > would be in having an implant. I was just implanted

> > in my left ear

> > Aug 06 with a Freedom. I would

> > love to have one in the right ear but since I was

> > born deaf and I am

> > 68 years old, I feel that ear has never been

> > stimulated. I tried a

> > cross hearing aid many years ago but

> > it did nothing.

> >

> > Good luck to you in your quest for bilateral

> > a in L.A.

> > Freedom 8-06

> >

> > On Mar 7, 2007, at 5:05 PM, wrote:

> >

> > > Deb,

> > > I am so behind in the posts, but caught this one

> > where you asked if

> > > there are others like you who have a single

> > implant and no useable

> > > hearing in the opposite ear. I am one of those

> > people. Am currently

> > > awaiting a new decision from my insurance company

> > in regards to going

> > > bilateral. Keeping my fingers crossed!!

> > >

> > >

> > > Freedom 9/21/05 HOOKED!!

> > > Sensorineural hearing loss discovered age 4

> > >

> > >

> > > >

> > > > > Hi ,

> > > > > Welcome to the forum. The best source

> > for

> > > > > information about

> > > > > any kind of cochlear implant.

> > > > > Getting simultaneous bilaterals has certainly

> > > > > been done in the past,

> > > > > but in special cases. For instance when a

> > child has

> > > > > meningitis and the

> > > > > cochleas are ossified, and the doctors fear

> > that if

> > > > > they don't implant a

> > > > > child right away, they won't be able to get

> > the

> > > > > device in at all. So

> > > > > that has been the case. There is at least one

> > > > > person on this forum

> > > > > (Sharon) who got simultaneous bilaterals

> > several

> > > > > years ago.

> > > > > Generally it's a question of getting insurance

> > > > > approval. And most of

> > > > > us have some residual hearing in one ear, and

> > maybe

> > > > > use a hearing aid in

> > > > > that one, so don't need 2 at the same time.

> > > > > But it is less expensive to do both at the

> > same

> > > > > time. Only one rental

> > > > > of the operating room, one anesthesia to go

> > under,

> > > > > one operation, and

> > > > > hearing in both ears (which is normal)

> > > > > I participated in clinical trials for the

> > Nucleus

> > > > > 24 device when it

> > > > > was out 9 1/2 years ago. There may be more

> > tests

> > > > > you go through, but

> > > > > they certainly keep good records. They may

> > even

> > > > > give you the second

> > > > > implant for free. Never hurts to ask.

> > Especially

> > > > > since it's hard to

> > > > > find candidates who qualify. Having lost

> > hearing

> > > > > completely, at the same

> > > > > time, and after having acquired speech (Post

> > > > > lingually deafened).

> > > > > Since you were hearing from both ears all

> > along,

> > > > > I think you will

> > > > > like bilaterals rather than having to learn to

> > turn

> > > > > your head to hear

> > > > > from the other side. This could be very

> > important

> > > > > in getting your job

> > > > > back eventually.

> > > > > I, too, lost my hearing due to Auto Immune

> > > > > disorder. However, mine

> > > > > happened in 2 separate instances. I also did

> > the

> > > > > steroid treatment, and

> > > > > you cannot stay on them forever. Once I was

> > off

> > > > > them, the hearing went.

> > > > >

> > > > > I was implanted with a Nucleus 24 9 1/2 years

> > > > > ago. I use the phone,

> > > > > go to movies, understand speech without

> > lipreading

> > > > > (which would be

> > > > > important for a court reporter). Although I

> > only

> > > > > have one implant (my

> > > > > insurance won't pay for a second), I do very

> > well

> > > > > with it. I think

> > > > > you'll be hearing from folks who had

> > sequential

> > > > > implants, and wish they

> > > > > had done both at the same time.

> > > > > Do you get a choice of implant brand with this

> > > > > study?

> > > > > Any of them work, it's just a question of what

> > > > > features fit your

> > > > > lifestyle. I like the Nucleus because they

> > give you

> > > > > choices of batteries

> > > > > (disposable or rechargeables), mapping

> > strategies

> > > > > (6, more than anyone

> > > > > else offers) 4 slots to hold 4 different

> > programs

> > > > > for hearing, the most

> > > > > up to date internal array, and so forth. Check

> > out

> > > > > the features at the

> > > > > wegsite. www.cochlear.com

> > > > > Good luck, ask any questions you have,

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> __________________________________________________________

> > > > Need Mail bonding?

> > > > Go to the Q & A for great tips from

> > Answers users.

> > > >

> >

> http://answers./dir/?link=list & sid=396546091

> > > >

> > >

> > >

> > >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> === message truncated ===

>

> __________________________________________________________

> Bored stiff? Loosen up...

> Download and play hundreds of games for free on Games.

> http://games./games/front

>

>

[Guest guest]

I actually am in somewhat of a similar situation only I wouldn't let them

implant my " good " ear the first time--12% word discrim so it was my good ear Ha

Ha. At any rate wearing a hearing aid in that ear was more of a interference to

me than a help so I have not done so for the last 16 months. It will be

interesting to see what happens now that I am bilateral and have that ear

implanted at my activation next month in that ear. I wonder how long it will

take for it to catch up.

I must say that my first ear was in the 110-120 db loss range at implantation

and I had no trouble understanding speech at activation. This ear is in the

70-80 db range so we will see. I am probably the only person who would ask the

resident in recovery if my NRT test was good.

Thanks and doing a happy dance that the bandage is off!!!

Connie

<cindy4baskets@...> wrote:

I just want to clarify about my having no useable hearing in my

unimplanted ear. I CAN use a hearing aid in that ear, however, it

does nothing to help with speech understanding and does very little

for sound awareness. I stopped wearing it shortly after getting my

better ear implanted because it just didn't do anything for me. The

CI overpowered any help the hearing aid in opposite ear could

possibly give me. So why bother?

I've heard mixed reactions in regards to " keeping the ear stimulated "

for preparation of surgery. This is an interesting topic. Maybe if I

get approved for the bilateral I'll dig out my graveyard hearing aid

and stick it in the old ear for the sake of " stimulation " . LOL

Freedom 9/21/05

Sensorineural hearing loss discovered at age 4

> > >

> > > > Hi ,

> > > > Welcome to the forum. The best source for

> > > > information about

> > > > any kind of cochlear implant.

> > > > Getting simultaneous bilaterals has certainly

> > > > been done in the past,

> > > > but in special cases. For instance when a child has

> > > > meningitis and the

> > > > cochleas are ossified, and the doctors fear that if

> > > > they don't implant a

> > > > child right away, they won't be able to get the

> > > > device in at all. So

> > > > that has been the case. There is at least one

> > > > person on this forum

> > > > (Sharon) who got simultaneous bilaterals several

> > > > years ago.

> > > > Generally it's a question of getting insurance

> > > > approval. And most of

> > > > us have some residual hearing in one ear, and maybe

> > > > use a hearing aid in

> > > > that one, so don't need 2 at the same time.

> > > > But it is less expensive to do both at the same

> > > > time. Only one rental

> > > > of the operating room, one anesthesia to go under,

> > > > one operation, and

> > > > hearing in both ears (which is normal)

> > > > I participated in clinical trials for the Nucleus

> > > > 24 device when it

> > > > was out 9 1/2 years ago. There may be more tests

> > > > you go through, but

> > > > they certainly keep good records. They may even

> > > > give you the second

> > > > implant for free. Never hurts to ask. Especially

> > > > since it's hard to

> > > > find candidates who qualify. Having lost hearing

> > > > completely, at the same

> > > > time, and after having acquired speech (Post

> > > > lingually deafened).

> > > > Since you were hearing from both ears all along,

> > > > I think you will

> > > > like bilaterals rather than having to learn to turn

> > > > your head to hear

> > > > from the other side. This could be very important

> > > > in getting your job

> > > > back eventually.

> > > > I, too, lost my hearing due to Auto Immune

> > > > disorder. However, mine

> > > > happened in 2 separate instances. I also did the

> > > > steroid treatment, and

> > > > you cannot stay on them forever. Once I was off

> > > > them, the hearing went.

> > > >

> > > > I was implanted with a Nucleus 24 9 1/2 years

> > > > ago. I use the phone,

> > > > go to movies, understand speech without lipreading

> > > > (which would be

> > > > important for a court reporter). Although I only

> > > > have one implant (my

> > > > insurance won't pay for a second), I do very well

> > > > with it. I think

> > > > you'll be hearing from folks who had sequential

> > > > implants, and wish they

> > > > had done both at the same time.

> > > > Do you get a choice of implant brand with this

> > > > study?

> > > > Any of them work, it's just a question of what

> > > > features fit your

> > > > lifestyle. I like the Nucleus because they give you

> > > > choices of batteries

> > > > (disposable or rechargeables), mapping strategies

> > > > (6, more than anyone

> > > > else offers) 4 slots to hold 4 different programs

> > > > for hearing, the most

> > > > up to date internal array, and so forth. Check out

> > > > the features at the

> > > > wegsite. www.cochlear.com

> > > > Good luck, ask any questions you have,

> > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > > Need Mail bonding?

> > > Go to the Q & A for great tips from Answers

users.

> > > http://answers./dir/?link=list & sid=396546091

> > >

> >

> >

> >

>

>

>

>