Stacie

[Guest guest]

Stacie,

You truly are a miracle. I got my defibrillator at 13 too. They said there was no reason I should have lived, you can't live throught that many attacks of V-Fib without being defibrillated. They call me the miracle girl, but maybe they have the wrong person. At any rate, my family has a friend who is a nun, named Sister Edith. She too had so many medical problems and still does, and all the doctors kept telling her when she was going to die and guess what? Now they're all dead and she's still alive!!! She says it is because God wants her here, and I believe it's the same for us. God wants us here. Maybe it's only to give hope to others, but he still has some mission for us. As for Sr.Edith, she is a brilliant pianist and organist and has taught music as well as faith to thousands of people. Just because the doctors tell you that you have a certain amount of time to live doesn't mean it's true. They know some things, but they don't know God's plan. I have really low heart function too. It's 18% right now. I'm trying to get on the transplant list, but the people in pediatrics, (the transplant team, not any of my doctors) did something so illegal that they've practically brought the wrath of God down on themselves. They gathered only a small amount of information, then they invented all sorts of new medical conditions and psychiatric conditions that I don't have and they put them in my file as a reason not to transplant me and sent it to everyone, except my doctor. My doctor had to find out from me that I couldn't be transplanted, and the way I found out was because they called me and told me while I was alone in the house. This is the "crazy" person, remember? Malpractice in a big way. You know why they think I was really turned down? The doctor who was the head of the transplant team was mad at my doctor and basically said "well I won't transplant any of your kids." I was so upset that I only slept and cried for a whole week. The only thing I took comfort in was God's word and I was so scared to know they could actually do this to me. But my doctor took me to the adult side and worked day and night to convince them that eveything that was said about me was false, and I had many friends there that helped too.

The adult side wants to transplant me but they are not used to having people so young, so we are having a meeting on Thursday with practically everyone at U of M so they can get to know me better. They said really I should be transplanted on the pediatric side and I will be their youngest, smallest "adult." My doctor says I am the perfect size. He says if you are too small you will have to wait for a small heart, and if you are normal sized you have to wait maybe three years or more for a large heart. But I am 102lbs and I can take a relatively small heart or I can take a normal sized heart, or even a bigger heart if they pushed aside one of my lungs a little bit. I would welcome any prayers, but I have forgiven the people on the pediatric side. I will be praying for you Stacie.

[Guest guest]

Stacie,

You truly are a miracle. I got my defibrillator at 13 too. They said there was no reason I should have lived, you can't live throught that many attacks of V-Fib without being defibrillated. They call me the miracle girl, but maybe they have the wrong person. At any rate, my family has a friend who is a nun, named Sister Edith. She too had so many medical problems and still does, and all the doctors kept telling her when she was going to die and guess what? Now they're all dead and she's still alive!!! She says it is because God wants her here, and I believe it's the same for us. God wants us here. Maybe it's only to give hope to others, but he still has some mission for us. As for Sr.Edith, she is a brilliant pianist and organist and has taught music as well as faith to thousands of people. Just because the doctors tell you that you have a certain amount of time to live doesn't mean it's true. They know some things, but they don't know God's plan. I have really low heart function too. It's 18% right now. I'm trying to get on the transplant list, but the people in pediatrics, (the transplant team, not any of my doctors) did something so illegal that they've practically brought the wrath of God down on themselves. They gathered only a small amount of information, then they invented all sorts of new medical conditions and psychiatric conditions that I don't have and they put them in my file as a reason not to transplant me and sent it to everyone, except my doctor. My doctor had to find out from me that I couldn't be transplanted, and the way I found out was because they called me and told me while I was alone in the house. This is the "crazy" person, remember? Malpractice in a big way. You know why they think I was really turned down? The doctor who was the head of the transplant team was mad at my doctor and basically said "well I won't transplant any of your kids." I was so upset that I only slept and cried for a whole week. The only thing I took comfort in was God's word and I was so scared to know they could actually do this to me. But my doctor took me to the adult side and worked day and night to convince them that eveything that was said about me was false, and I had many friends there that helped too.

The adult side wants to transplant me but they are not used to having people so young, so we are having a meeting on Thursday with practically everyone at U of M so they can get to know me better. They said really I should be transplanted on the pediatric side and I will be their youngest, smallest "adult." My doctor says I am the perfect size. He says if you are too small you will have to wait for a small heart, and if you are normal sized you have to wait maybe three years or more for a large heart. But I am 102lbs and I can take a relatively small heart or I can take a normal sized heart, or even a bigger heart if they pushed aside one of my lungs a little bit. I would welcome any prayers, but I have forgiven the people on the pediatric side. I will be praying for you Stacie.

[Guest guest]

Who is your doctor on the pediatrics side I go to U of M too and my doctor is

Dr Rosenthal who is yours?

[Guest guest]

Who is your doctor on the pediatrics side I go to U of M too and my doctor is

Dr Rosenthal who is yours?

[Guest guest]

I love Dr.Rosenthal, he is the greatest. My doctor is Dr.Dick, who specializes in arrhythmias. The transplant doctor that turned me down was Dr.Crowley. Do you have a rhythm problem too? How old are you? I am 21.

Even though I am 21 and technically an adult they said I should be done on the pediatric side because mine is a congenital problem and I am only the size of an average 12 year old. Oh, by the way, where do you live? I live in Canton, between Warren and Ford and Beck and Canton Center (which is currently closed). Please write back.

[Guest guest]

I love Dr.Rosenthal, he is the greatest. My doctor is Dr.Dick, who specializes in arrhythmias. The transplant doctor that turned me down was Dr.Crowley. Do you have a rhythm problem too? How old are you? I am 21.

Even though I am 21 and technically an adult they said I should be done on the pediatric side because mine is a congenital problem and I am only the size of an average 12 year old. Oh, by the way, where do you live? I live in Canton, between Warren and Ford and Beck and Canton Center (which is currently closed). Please write back.

[Guest guest]

Hi I live i love Dr Rosenthal too.... Dr serwer put my defib in who put yours

in... i love Krisin and Sara do you know them.. Well write back I would love

to get to know you. I am 21 also and My dad had a heart transplant and I

will have to one day.. i hope not soon.... Dr Nickolas was my dads transplant

doctor... write back soon... maybe we can talk on the phone

[Guest guest]

Can someone give me some history and information about what is going on with

Stacey. I think she is around my age I am 22 and I wanted to know what

everyone is talking about. Thanks ahead of time.

[Guest guest]

Stacie baby girl listen we all know you are going through hard times, and we all LOVE you deeply and pray for you, wishing you strength and courage to keep up your "fight"... Everyone is rooting for you sweetie, you can not control what your dad is going through, you can can only help him by being strong for yourself that is what he wants count on it! You are very young to be going through all this but sweet Stacie, this has been dealt to you, and can not pull away and let it win, you win you keep going baby girl, we all are here all your buddies who care so much about you and wait for your news everyone roots for you Stacie... With all that is on your plate, we are here to listen, to give something back, don't pull away this group will support you, maybee it is your vise to let out steam and concerns, and through what you "say" someone may offer advise or help to you... We are going to keep on writting to you for you, you are not alone, you won't be left "alone" smile a little sweetie, patience strength, it is so hard but you can do it Stacie, everyone needs you as much as you the group, remember goodbyes are not accepted, only pauses, time out, and you know even if things are great everyone wants to be there... Read what everyone writes to you upon reading your e-mail and you will see what I mean... Be strong Stacie, we love you Hugs and kisses to you, and blowing winds of power your way.... We love you......... Be Well, Good Heart, Many Smiles Vicky P. aka GypsyStar513@...

rcsejt <rcsejt@...> wrote: i have had my icd for going on 5 years i got it 6 months before i turned 18my dad has a icd he just got this year they dont have any meds the isworking because his heart is to weak they told us today it's a matter oftime about a month or two if that my mom has to have sugery in july i justdont know how to handle this my firsted icd was put in 26 of feb in 1998 myseconed one was int march of 2002 it has went off over 263 times yes youseen right i dont know how to cope with this i'm to young for this rightnow i'm tring to find a way to pay the bills as mom dont need the worry andniether does dad all of are back up money is gone there is no way to pay thebills so i have to find a way to pay thim i'm under to much stress most kidsmy age would be out of the house and working and getting clothes and stuffthey want i cant what the state gives me everythang goes to bills and it'snot paying but one or two the states ran out of fuonding to help people sothey cant help us we are going to food pantry's one a week and it's notenough to feed us all see what i mean bye i cant handle it it's to much forone kid to deal with i just want to be nomal so i can take care of my momand dad my sister and brother are but they take from my mom and dad when ibrang somethang for us to eat they get it i just want to know what in theworld we are supposed to do hm???????????? i'm sorry to hear about yourhusband and that your son has a icdstacie,18 one month till 19-----Original Message-----From: Belinda Burkhart [mailto:belinda.burkhart@...]Sent: Saturday, June 29, 2002 6:26 PM Subject: RE: To everyone / Prom queen raceStacie, we are fairly new to the group. My 16 year old son was implanted onFebruary 27, 2002. I know that you are going through a very rough time rightnow and at your age it really isn't fair. I wasn't much older than you whenI was expecting my son and my husband died. An autopsy could not find thecause of death but now with my son's diagnosis of ARVD we can only assumethat is what my husband had. It seems like the rough times will never endbut keep fighting. It will get better. And I do look forward to reading yourposts. You are not much older than my son and are a wealth of informationfor us. Take care.BelindaPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

, You are such a good friend and I love how very patient you are.

Sharon in Ohio

[Guest guest]

Way to go Stacie. I am proud of you for standing up for yourself!

You know I haven't posted here for several years because I too was

called a whiny baby. But you girl are strong and have had to deal

with alot in your YOUNG life. Hon, I will always take the time to

listen to you. I know there is nothing I can do to make things

better but I wish I could. But I can and will listen. To other

people: Stacie is young and an adult person has no right to put down

a young woman like that. We do not know what her life is like and we

have no right. She is a wonderful young woman and she is scared and

probably lonely. Have a heart. Don't try to fix it, we can't. But

be a friend. If not, then ignore the posts. This is NOT the place

for such critisim (sp) Things like that should be done in private.

There probably is not even one person here that hasn't needed a

friend for whatever reason in the worse way. We would not want

someone to put down our own children.

[Guest guest]

Stu,

Thanks for letting me know about Stacie. When you next talk to her tell her I say hi and hope she gets the help she needs to feel better.

I don't get out much but I'll try to make her a card.

Take care of yourself,

[Guest guest]

STACIE,

A very happy birthday to you to you a very happy birthday to you!

ALWAYS REMEMBER THIS PLEASE... FOR RIGHT HERE AND RIGHT NOW I, AM, YESTERDAY IS THE PAST, TOMORROW IS THE FUTURE. TODAY IS ALL WE HAVE TO DEAL WITH THAT WHY THEY CALL IT THE PRESENT.

LOVE,

Sharon YOU MADE IT STACIE YOU MADE IT

[Guest guest]

And many moooorrrrrreee!!!!!!

Bridget

[Guest guest]

thinks lisa i worry about everyone on the zapper board i have been reading

posted but have not post in a long time ! last night i was being paced but

luckly no shocks which i am gratetful for but you always fear that when it does

anything this is the mosted truoble i have had in a long time i'm in the

process of waiting for a service animal specaily trained to alert when my

defibrillator fires bye either finding someone in house or calling 911 or if i'm

out barking for help ! my rythm has worsen to the point i am passign out with it

now which makes it even harder for me to handle ! but i'm gettign used to it

!lisa i think your and everyone on zapper board is amazeing and really lucky to

have these specail devices when the are not defective ! ibeleive there is a

reason everything i have nad that has happen is happing although i get scared i

try and look at it from a piont of veiw of atleast it worked and i'm still here

it's hard as mosted nknow the fear of the shock or the phatom will hunt you !

how are you doing lisa and everyone easle!

stacie,21 shocking life for shocking people !

[Guest guest]

As I always say Stacey, you are an inspiration to the group. I am doing well thank god. I hope you wont get that many shocks any more. Regards TURK"rcsejt@..." <rcsejt@...> wrote:

thinks lisa i worry about everyone on the zapper board i have been reading posted but have not post in a long time ! last night i was being paced but luckly no shocks which i am gratetful for but you always fear that when it does anything this is the mosted truoble i have had in a long time i'm in the process of waiting for a service animal specaily trained to alert when my defibrillator fires bye either finding someone in house or calling 911 or if i'm out barking for help ! my rythm has worsen to the point i am passign out with it now which makes it even harder for me to handle ! but i'm gettign used to it !lisa i think your and everyone on zapper board is amazeing and really lucky to have these specail devices when the are not defective ! ibeleive there is a reason everything i have nad that has happen is happing

although i get scared i try and look at it from a piont of veiw of atleast it worked and i'm still here it's hard as mosted nknow the fear of the shock or the phatom will hunt you !how are you doing lisa and everyone easle!stacie,21 shocking life for shocking people !Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hiya, Stacie. Good to see your emails again. You've really hung in there

through a lot of trials. That comment about passing out worries me. I hope

your doctors are adjusting your ICD to pace your heart rhythms. Last week I

had near passing out episodes because my blood pressure fell too low. Don't

know why but this week everything is fine. Glad to know your dad may join

the zapper group.

Mike

> [Original Message]

> From: rcsejt@... <rcsejt@...>

> < >

> Date: 7/12/2005 7:11:52 PM

> Subject: Re: Stacie

>

>

> thinks lisa i worry about everyone on the zapper board i have been

reading posted but have not post in a long time ! last night i was being

paced but luckly no shocks which i am gratetful for but you always fear

that when it does anything this is the mosted truoble i have had in a long

time i'm in the process of waiting for a service animal specaily trained

to alert when my defibrillator fires bye either finding someone in house or

calling 911 or if i'm out barking for help ! my rythm has worsen to the

point i am passign out with it now which makes it even harder for me to

handle ! but i'm gettign used to it !lisa i think your and everyone on

zapper board is amazeing and really lucky to have these specail devices

when the are not defective ! ibeleive there is a reason everything i have

nad that has happen is happing although i get scared i try and look at it

from a piont of veiw of atleast it worked and i'm still here it's hard as

mosted nknow the fear of the shock or the phatom will hunt you !

>

> how are you doing lisa and everyone easle!

>

>

>

> stacie,21 shocking life for shocking people !

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

[Guest guest]

i have to say alot of people on here handle there episodes well i cant say for everyonr thi=ougn but for me i got someoen used to the shocks and i know what to exept although there have been a few time that i have been really nervus after the shocks exepical after the firsted few i usealy try to focus on other things always keeping in mind the defibrialtor and the chance of lightingbolt ( my defibrillator ) showing his tempper ! i do not bye no means like the shocks but i knwo that right after a shock i will shake and feel every beat my heart makes and every pace that my defibrilator makes i will tune in to it and be more cuaseng on doing things specail things i know trigger higher heat beats as for the shock there self i dont really think anyone can keep there mind when they are going though the shocks if soemones aroudn or my dog oreos around i will talk to thimn or her ( when i'm home ) to get my mind off it but i

never forget and the feeling is nevr racking my mind will semtimes replay it over and over which makes it hard but for me alot of support comes from here and other groups ingcluding one that i run ! and my dog oreo and i musted say a very careing heart doctor helps to ! i think but all in all i have had health problems and chanlinges from the time i was born had minny heart problems and sugerys brain sugerys and infections in the brain amough other things so its apart of my daily life i have to deal with it and face it otherwise i wouldn't have a life to live! i think everyday is specail and should be chareished shock or no shock !

stacie,21 shockign life for shocking peopleamericanwmn28 <lipznhypz@...> wrote:

Stacie,Im a new member and I have been reading back through messages for some time now and trying to follow everyones story, but I have to say..How do you manage to keep your mind right? I've been witness to my mother going through just the after effects from her zaps,and I feel like im suffering more then she is mentally from it, although I know that could not be farther from the truth! You have amazing will Stacie... And my hats off to you and everyone else that has to deal with these life changes. May God bless You and continue to keep you strong. I agree with the cruel way everyone reacted to your episode at the clinic, but You deffinately handled it with grace. > > > Stacie,> > I am sorry to hear that you are going thru so

many shocks still. You are > one amazing girl. How you keep picking yourself up and going is truly > incredible. Especially being a young adult. I often think about you and hope you > are doing well.....> > Take care,> > > > glad to here your okay duffey sorry rascal sp? got hurt but hopefuly he'll > be home soon i'll keep you and everyone easle in my prayers although the > strom has weakened it's heading my way !> > it's funny i get shocked all the time and yet the one today scared me the > most i was going for a test it was at a diffrent clinic then my normal clinic > wallked though the doors down the hall way and BAM! a shocking suprize i got > up shook off started to walk over to a sit and BAM off my difibrillator > fired again bye this time i was shakeing and really scared and low and behold > people where

stare and laughing it wasnt pretty so i sat for about a half hour > got up and walked on to the test mind you i was white as a gosted firsted > thing they say is why are you late funny huh? i beng tellign thim and they > justed stood speech less i think i hear a pin drop but i was still shakeing > which made the test hard i got though the test and went home calling my doctor > and waiting that was 12 hours ago and i'm still shakeing and really scared > it might fire again !even though this is over 750 shocks for me i'm still > frighten out of my mind !justed though i would update you !> > stacie,21 shocking life for shockign people !> > > > > M in CAPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Thanks for the welcome and advice, I'll be checking them out right

after i finish typing. My implant center is at WVU hospital.

Everyone there is so nice and have me at ease there.

I'll have a lot of questions, biggest decision of my life.

Thanks

Stacie

>

> Hi Stacie,

> Welcome to the forum. THE best of the forums - no brand

> bashing, and folks with all 3 of the implant types. You might

want to

> check out the website for reviews on different brands, frequently

asked

> questions, and user stories. www..com Wealth of

knowledge yours

> for the taking.

> Who is your implant center? I see you're in West Va. Sounds

like

> you're ready to make the move for better hearing.

> Let us know if you have any questions.

>

> The Original

>

> From: " Stacie " <stacben@...>

> Subject: hi

>

> Hi, my name is Stacie

> i lost my hearing to meningitis when i was 2, i got my first

hearing

> aid when i was 4 in my left ear and my right ear was profound, so

no

> hearing aid for that one.

> over the last 10 years, i noticed i wasn't hearing as good,

thought

> it was a bad hearing aid. then last year i got my new hearing aid,

> the highest power i could get. it was great, but then i had to

keep

> turning it up, couldn't understand anyone, so i thought my ear was

> clogged up with wax. went to several doctors, said ear was clean.

> Finally this past Monday i went to an ENT to check it out. He was

> new to me, but surprised me. First thing he did after looking in

my

> ear, was said I should go to another doctor and talk about getting

> the cochlear implant. I've always heard of it, but I did not think

> my hearing was that bad yet. So yesterday I went to the implant

doc,

> after having my hearing tested, the audi says i was a canidate for

> CI.

> saw the doc, talked about it, already research as much i could

> before i went, he has me scheduled for surgery next month,

providing

> my ct scan goes well. i'm excited and scared at the same time.

hope

> to get to know you all.

> Stacie of wv

>

[Guest guest]

Hi Stacie,

Just catching up on some emails and I am so excited to see that you are going

to WVU for your implant. I am a Mountaineer at heart as our son graduated from

there and we still make at least one trip a year back for football games.

Please feel free to ask me anything you like about my implant. I have the

Nucleus Freedom and I was implanted last October and activated in November. In

fact one of the first big groups I was in was we spent Thanksgiving in

town at the WVU Pitt game. I love my Freedom.

Connie

Stacie <stacben@...> wrote:

Thanks for the welcome and advice, I'll be checking them out right

after i finish typing. My implant center is at WVU hospital.

Everyone there is so nice and have me at ease there.

I'll have a lot of questions, biggest decision of my life.

Thanks

Stacie

>

> Hi Stacie,

> Welcome to the forum. THE best of the forums - no brand

> bashing, and folks with all 3 of the implant types. You might

want to

> check out the website for reviews on different brands, frequently

asked

> questions, and user stories. www..com Wealth of

knowledge yours

> for the taking.

> Who is your implant center? I see you're in West Va. Sounds

like

> you're ready to make the move for better hearing.

> Let us know if you have any questions.

>

> The Original

>

> From: " Stacie " <stacben@...>

> Subject: hi

>

> Hi, my name is Stacie

> i lost my hearing to meningitis when i was 2, i got my first

hearing

> aid when i was 4 in my left ear and my right ear was profound, so

no

> hearing aid for that one.

> over the last 10 years, i noticed i wasn't hearing as good,

thought

> it was a bad hearing aid. then last year i got my new hearing aid,

> the highest power i could get. it was great, but then i had to

keep

> turning it up, couldn't understand anyone, so i thought my ear was

> clogged up with wax. went to several doctors, said ear was clean.

> Finally this past Monday i went to an ENT to check it out. He was

> new to me, but surprised me. First thing he did after looking in

my

> ear, was said I should go to another doctor and talk about getting

> the cochlear implant. I've always heard of it, but I did not think

> my hearing was that bad yet. So yesterday I went to the implant

doc,

> after having my hearing tested, the audi says i was a canidate for

> CI.

> saw the doc, talked about it, already research as much i could

> before i went, he has me scheduled for surgery next month,

providing

> my ct scan goes well. i'm excited and scared at the same time.

hope

> to get to know you all.

> Stacie of wv

>

[Guest guest]

Hi Connie,

nice to meet you, glad to meet another Mountaineer. They rocked last

season, didn't they? lol never been to their game before, but always

watch it every week and root for them. I'll let you know if i have

any question so far, i've ran out lol.

Thanks again

Stacie

>

> Hi Stacie,

>

> Just catching up on some emails and I am so excited to see that

you are going to WVU for your implant. I am a Mountaineer at heart

as our son graduated from there and we still make at least one trip

a year back for football games.

>

> Please feel free to ask me anything you like about my implant.

I have the Nucleus Freedom and I was implanted last October and

activated in November. In fact one of the first big groups I was in

was we spent Thanksgiving in town at the WVU Pitt game. I

love my Freedom.

> Connie

>

[Guest guest]

The book was 5th Horseman by , women's murders club

series. I loved them all, I read too much, lol. Bookworm since I

first learn. The ear they want to do, has had no stimulation in 25

years. My audie didn't tell me what range my other ear was, except

say very very bad at 90 dB. They said since I can talk good and had

understood speech before, chances are I will adapt to it fast. But

we will find out.

The surgery will take place a week after my 27th B-day......my

present

Stacie

>

> Hi Stacie,

> It is frustrating having a crowd over and you're the only one

who's

> not " getting it " . Indeed. Bear in mind that children's voices

are very

> high pitched, and everyone loses the high frequencies first. Even

people

> with typical hearing often have lost a lot of high frequencies. My

> friend's husband was told he needed a hearing aid because he

couldn't

> hear high frequencies like women and children's voices. They had

8 kids.

> His reply was " Good, don't want to hear them " . LOL.

> Hun sounds like a keeper. What was the book? I can't recall

buying a

> new book in ages (except Harry Potter in hardback). Generally go

to the

> thrift stores like Goodwill and buy used paperbacks for a

quarter. Or

> garage sales. Friends of the Library has book sales and a bag for

$3 on

> the last day. Can I pack books into a bag? YOU bet.

> It took me about 3 months to get to where I'm hearing like I do

now,

> so don't expect instant understanding with the first map. Indeed;

I was

> wondering why I went through all the surgery and stuff to have

annoying

> noises in my head! But with more mappings and time, it became lots

> better. Those folks who hear and understand perfectly with their

first

> mapping make me nuts. I think it's probably people who were only

> deafened a short time before being implanted. I got an ear

implanted

> that was without hearing or stimulation for 20 years.

>

> The Original

>

[Guest guest]

Love to read . Good luck on your surgery and happy birthday.

I can't think of a better gift.

Happy Hearing!

Carol

Boca Raton, FL

N24C left ear -12/11/01

N Freedom- right ear- implanted 3/01/06 activated 4/6/06

Re: Stacie

The book was 5th Horseman by , women's murders club

series. I loved them all, I read too much, lol. Bookworm since I

first learn. The ear they want to do, has had no stimulation in 25

years. My audie didn't tell me what range my other ear was, except

say very very bad at 90 dB. They said since I can talk good and had

understood speech before, chances are I will adapt to it fast. But

we will find out.

The surgery will take place a week after my 27th B-day......my

present

Stacie

>

> Hi Stacie,

> It is frustrating having a crowd over and you're the only one

who's

> not " getting it " . Indeed. Bear in mind that children's voices

are very

> high pitched, and everyone loses the high frequencies first. Even

people

> with typical hearing often have lost a lot of high frequencies. My

> friend's husband was told he needed a hearing aid because he

couldn't

> hear high frequencies like women and children's voices. They had

8 kids.

> His reply was " Good, don't want to hear them " . LOL.

> Hun sounds like a keeper. What was the book? I can't recall

buying a

> new book in ages (except Harry Potter in hardback). Generally go

to the

> thrift stores like Goodwill and buy used paperbacks for a

quarter. Or

> garage sales. Friends of the Library has book sales and a bag for

$3 on

> the last day. Can I pack books into a bag? YOU bet.

> It took me about 3 months to get to where I'm hearing like I do

now,

> so don't expect instant understanding with the first map. Indeed;

I was

> wondering why I went through all the surgery and stuff to have

annoying

> noises in my head! But with more mappings and time, it became lots

> better. Those folks who hear and understand perfectly with their

first

> mapping make me nuts. I think it's probably people who were only

> deafened a short time before being implanted. I got an ear

implanted

> that was without hearing or stimulation for 20 years.

>

> The Original

>

[Guest guest]

Tnanks!

He's a good writer, enjoy all his books.

is the Nuc Freedom, saw it on website, feels as comfy as hearing

aid? I've been wondering bout that.

Stacie

-- In , " Carol " <carol@...> wrote:

>

> Love to read . Good luck on your surgery and happy

birthday.

> I can't think of a better gift.

> Happy Hearing!

> Carol

> Boca Raton, FL

> N24C left ear -12/11/01

> N Freedom- right ear- implanted 3/01/06 activated 4/6/06

>

>

[Guest guest]

Stacie

You will get used to having it on your ear. And as

for the alarm going off in stores--as for myself the

queen of shopping it has never happened.

Connie

--- Stacie <stacben@...> wrote:

---------------------------------

That's cool, was it hard to get used to having it at

the side of your

head? I noticed the way i sit all the time, my hand

propping at the

side of my head, is that something i'm going to have

to change?

Also read on net something about CI causing alarm to

go off in mall?

could that happen? Hope not, lol.

Stacie

>

> I never was comfortable with a HA because I hated

anything in my

ear. With

> the CI nothing is in the ear so I find it much more

comfortable.

>

>