Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Hats off to Y & R for making the CI storyline as realistic as possible! I was almost certain they would substitute BTE hearing aids in place of bilateral CIs, but I'm glad to hear (no pun intended) otherwise. My only hope is that brand names aren't announced during the show since this is completely irrelevant to the storyline. (I'd say the same thing regardless of the CI brand being donated.) At the end of some episodes, the producers of Y & R display contact information for various organizations on the screen so that viewers can obtain more information about a particular health or social issue presented on the show. I wonder if Advanced Bionics' contact information will be shown? If is the case, it will obviously create more publicity for AB which would definitely be a positive trade-off in exchange for their donation. I'd like to stress that all of my comments above apply *regardless* of the CI brand being donated. Left ear - Nucleus 24 Contour Advance with 3G Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Once it was seen that the donation wasnt an altruistic one, it was always going to be made public. They dont need to mention it in the programme, it is already on the net and will be over all the newspapers. I'm with you, inasmuch as which ever brand was used, the manufacturers name shouldnt have been released. The makers of the programme are obviously happy for someone to foot the bill, but IMO they should have paid for it themselves and kept the brand generic. Its a risky strategy from AB, given their previous track record on reliability and selective information about same. Perhaps they are trying to catch up? Ted F. > > My only hope is that brand names aren't announced during the show > since this is completely irrelevant to the storyline. (I'd say the > same thing regardless of the CI brand being donated.) > > > > > Left ear - Nucleus 24 Contour Advance with 3G > Implanted: 12/22/04 Activated: 1/18/05 > > Right ear - Nucleus Freedom > Implanted: 2/1/06 Activated: 3/1/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Ted, I agree. When " Guiding Light " featured an actress in its storyline who (was deaf in real life and) received a CI, I don't believe any mention was made of a particular CI brand. However, various magazines and newspapers indicated that she received an Advanced Bionics CI. If AB's name is mentioned, it will be interesting to see if Fidelity 120 is also mentioned at the time of Devon's activation (despite new implantees being unable to use F120 until they've had 3 months experience with HiRes). And again, I would say the *same* thing about Cochlear or Med-El. Left ear - Nucleus 24 Contour Advance with 3G Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Awww c'mon, there are several who proudly donate their time to advertise for Cochlear Corp. on this list (and elsewhere) all the time. Unfortunately some of the same regularly ridicule AB also. Still others say Cochlear Americas rewards them for both, because of their track record with paying volunteers. If I agreed with your logic, I guess I'd have to say the same as you about them keeping the brand generic, etc. *But* I don't know or care. What I do know is every user should be able to say what they like and don't like about their own brand, or share good news about it without those wearing another device taking the opportunity to criticize a brand they don't wear. At least out of courtesy, don't you think? Besides, AB couldn't sell a CI to Y & R if they wanted to. These are regulated medical devices. They can't just be sold to anyone for any old reason. The FDA allows their sale for very specific purposes, especially when money is exchanged. Chances are it's just on loan for use in the show, or it's a non-functioning demo model. And every company needs advertising, whether is't paid for or donated. Sincerely, Steve > > > > My only hope is that brand names aren't announced during the show > > since this is completely irrelevant to the storyline. (I'd say the > > same thing regardless of the CI brand being donated.) > > > > > > > > > > Left ear - Nucleus 24 Contour Advance with 3G > > Implanted: 12/22/04 Activated: 1/18/05 > > > > Right ear - Nucleus Freedom > > Implanted: 2/1/06 Activated: 3/1/06 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 I am totally baffled here. How does one donate a real product to a fictional character on a fictional show ? Someone made a comment that the producers should have footed the bill themselves. How is that possible? Why would anyone buy an implant for a made up storyline ? Couldn't someone had just made a prop? I am glad to see that a CI is being mentioned on TV but come one this donation business is just plain stupid (regardless of what brand is being donated) Implants should be donated to people who are real and need them. duh. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 said " Implants should be donated to people who are real and need them. duh. " That could not have been said any better. *---* *---* *---* *---* *---* After eating, do amphibians need to wait an hour before getting OUT of the water? & Dreamer Doll (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Steve, Why continue to perpetrate bad feelings? Shame on you. There is a big difference between advertising a product on tv and volunteers whom people can talk to and hear the real life stories. You know well how tv glamorizes life unrealistically. In this case, it looks like shameless self promotion. As was pointed out, why was a donation needed at all for a fictional show? *---* *---* *---* *---* *---* Quoting one is plagiarism; quoting many is research. & Dreamer Doll (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 I have been a member of this list since January, 2006, and have met some nice people on here. Unfortunately there are quite a few not-so-nice people who seem to thoroughly enjoy trying to make AB users feel unwelcome. At absolutely any opportunity they make snide, nasty comments about AB and Med El. I have never seen a post bashing Cochlear Americas on here. I believe that if anyone tried they would immediately be banned or put on moderated status. Are Cochlear users so insecure that they have to constantly bash the other brands. It seems like it. I get so angry and sad reading the nasty posts that I feel physically ill every time I see new posts from this list coming in, as half of them are just brand bashing nastiness. and others have made comments that there are not many AB users on this list, and that they post infrequently. This list is designed to make us unwelcome. One of the reasons I have lasted as long as I have is that I feel there should be enough of us to refute the false and mean posts about the other manufacturers. The cochlear users who brand bash are not censored by the moderators. That seems to only happen when AB users refute the false statements made by Cochlear users. Why can't we all just be happy and excited that these wonderful CIs, of all brands, are allowing us to hear? , you are accusing Steve of continuing to perpetrate bad feelings. Continuing is the key word. The bad feelings were perpetrated by Cochlear users brand bashing as usual. Steve was simply answering the previous brand bashing posts. He wasn't even mean about it. The real shame is that this claims to be a neutral forum for people who have all brands of CIs and for are interested in getting CIs, yet a large number of the most frequent posters are so completely biased and so prone to brand bashing that newcomers are fed misinformation and people with devices other than Cochlear Americas are subjected to constant baiting and put-downs. To me, that is the real shame. Jane AB 90K Hi-Res Implanted 10-03-06 Activated 11-03-06 Re: Re: [CI-Clarion-2] more exciting young & restless news! Steve, Why continue to perpetrate bad feelings? Shame on you. There is a big difference between advertising a product on tv and volunteers whom people can talk to and hear the real life stories. You know well how tv glamorizes life unrealistically. In this case, it looks like shameless self promotion. As was pointed out, why was a donation needed at all for a fictional show? *---* *---* *---* *---* *---* Quoting one is plagiarism; quoting many is research. & Dreamer Doll (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 You know, Jane, some of us have tried to make the AB users feel welcome. My attsmpt at that earlier this month fell totally flat. Totally misinterpreted. But you know, if everything that is said here is taken personally, it will never stop. My comment that I am sure you are refering to was NOT even close to an attack on anyone. The reaction to that comment was not justified. If people are going to continue to react to what they percieve as personal affronts, well, sorry, that is their problem. If it will make you feel better, Jane, I will volunteer to be put on moderated status. But it wont be necessary for I am done with this topic. *---* *---* *---* *---* *---* Whose cruel idea was it for the word " lisp " to have an " s " in it? & Dreamer Doll (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Jane, I feel the same way, and is sad. There one person who posts on other forums, also, and she is a perfect example of the right way to post. Her name is Kozlik. She is very happy with her Nucleus implants, and her postings are either informative or inspiring. I remember on another forum where she asked some questions about the AB device, and she had positive comments to make about them, and wished people well. She has never once said anything negative about AB or MedEl. We should all follow her example. Ralph CII 8/01 HiRes 2/03 > Unfortunately there are quite a few not-so-nice people who seem to > thoroughly enjoy trying to make AB users feel unwelcome. At absolutely any > opportunity they make snide, nasty comments about AB and Med El. I have > never seen a post bashing Cochlear Americas on here. I believe that if > anyone tried they would immediately be banned or put on moderated status. > Are Cochlear users so insecure that they have to constantly bash the other > brands. It seems like it. I get so angry and sad reading the nasty posts > that I feel physically ill every time I see new posts from this list > coming in, as half of them are just brand bashing nastiness. and > others have made comments that there are not many AB users on this list, > and that they post infrequently. This list is designed to make us > unwelcome. > Jane > AB 90K Hi-Res > Implanted 10-03-06 > Activated 11-03-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 I agree with you 100% Ralph. is one of the people on here that I have very much enjoyed. I just wish we could all be more supportive of users and candidates of all the brands like she is. The list would be ever so much better if people could all play nice. Jane Re: Re: [CI-Clarion-2] more exciting young & restless news! Jane, I feel the same way, and is sad. There one person who posts on other forums, also, and she is a perfect example of the right way to post. Her name is Kozlik. She is very happy with her Nucleus implants, and her postings are either informative or inspiring. I remember on another forum where she asked some questions about the AB device, and she had positive comments to make about them, and wished people well. She has never once said anything negative about AB or MedEl. We should all follow her example. Ralph CII 8/01 HiRes 2/03 > Unfortunately there are quite a few not-so-nice people who seem to > thoroughly enjoy trying to make AB users feel unwelcome. At absolutely any > opportunity they make snide, nasty comments about AB and Med El. I have > never seen a post bashing Cochlear Americas on here. I believe that if > anyone tried they would immediately be banned or put on moderated status. > Are Cochlear users so insecure that they have to constantly bash the other > brands. It seems like it. I get so angry and sad reading the nasty posts > that I feel physically ill every time I see new posts from this list > coming in, as half of them are just brand bashing nastiness. and > others have made comments that there are not many AB users on this list, > and that they post infrequently. This list is designed to make us > unwelcome. > Jane > AB 90K Hi-Res > Implanted 10-03-06 > Activated 11-03-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 I agree, that we can each only talk about our own brand of implant. But there are people that read this forum prior to getting an implant and IMO they are entitled to know about any of the bad things too. The major companies are not going to talk about recalls of their products and for what reasons. As for the TV storyline, IF the actor involved isnt deaf in real life and isnt actually receiving a cochlear implant in real life, then why does brand name have to be mentioned anywhere? I am all for the use of the storyline as long as it is authentic, because it does raise awareness of deafness and C.I.'s and I think that is a good thing. What is the characters hearing history? I dont think we get that particular programme over here, if we do its not something I would watch. But it will be interesting to see if the character gets the instant hearing miracle that some of us do get on activation, or whether it takes a longer time to become accustomed to it. Whether in fact, their results correspond to their history. Ted F. > >> What I do know is every user should be able to say what they like > and don't like about their own brand, or share good news about it > without those wearing another device taking the opportunity to > criticize a brand they don't wear. At least out of courtesy, don't > you think? > > Besides, AB couldn't sell a CI to Y & R if they wanted to. These are > regulated medical devices. They can't just be sold to anyone for > any old reason. The FDA allows their sale for very specific > purposes, especially when money is exchanged. Chances are it's > just on loan for use in the show, or it's a non-functioning demo > model. > And every company needs advertising, whether is't paid for or > donated. > > > Sincerely, > Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 I came home to over 60 e-mails. I really only want to know the basics for information. Can someone take me off this so i can check in when I need to or when I want to report something, use it periodically. Thanks, Leila On Nov 21, 2006, at 2:58 PM, Ralph Chiaradia wrote: > Jane, I feel the same way, and is sad. > > There one person who posts on other forums, also, and she is a perfect > example of the right way to post. Her name is Kozlik. She is > very happy > with her Nucleus implants, and her postings are either informative or > inspiring. > > I remember on another forum where she asked some questions about > the AB > device, and she had positive comments to make about them, and > wished people > well. > > She has never once said anything negative about AB or MedEl. We > should all > follow her example. > > Ralph > CII 8/01 > HiRes 2/03 > > > Unfortunately there are quite a few not-so-nice people who seem to > > thoroughly enjoy trying to make AB users feel unwelcome. At > absolutely any > > opportunity they make snide, nasty comments about AB and Med El. > I have > > never seen a post bashing Cochlear Americas on here. I believe > that if > > anyone tried they would immediately be banned or put on moderated > status. > > Are Cochlear users so insecure that they have to constantly bash > the other > > brands. It seems like it. I get so angry and sad reading the > nasty posts > > that I feel physically ill every time I see new posts from this list > > coming in, as half of them are just brand bashing nastiness. > and > > others have made comments that there are not many AB users on > this list, > > and that they post infrequently. This list is designed to make us > > unwelcome. > > Jane > > AB 90K Hi-Res > > Implanted 10-03-06 > > Activated 11-03-06 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 I want to clarify something. My less then glowing comments regarding the donation of a CI to a fictional show had nothing to do with the brand or the company. I just think it's idiotic to be issuing press releases touting a donation to a fictional character. I am very sorry if the users of that particular brand felt I was singling them out. I go out of my way to avoid brand bashing and brand praising. You will note I do not even advertise what brand I am implanted with in my signatures. So let me restate " No matter what company does it- when you donate a needed medical device to a television character it is moronic and an insult to those who need it " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Do you guys think that they really donated working devices? I suspect it could have been a mock-up (like the demos the audis have) or maybe one that didn't get through quality control. And even if it was real, the cost of manufacturing it is likely not nearly as much as the sticker price, because so much of the sales price goes to recovering the development investment. I was surprised to find last year, real Nucleus Freedom BTEs at the Museum of Science in Boston. The exhibit was The Technology of Star Wars in the Real World (can't remember exact title.) Anyway, this museum volunteer had what she said was a real Freedom BTE on a tray for people to look at and handle, along with a retinal implant controller and some other things. My son (who is a bilateral CI user) started explaining what the buttons do (because his audi showed him a demo in her office) and the silly museum volunteer said, " No dear, that is not a hearing aid. " I guess she wasn't even paying attention to what he said and probably says that to everybody! Well, she was pretty surprised when she discovered she was actually talking to a young expert -- probably the first actual implant user she met! So I doubt that the cost of the device donated was really all that much or that it was donated at the expense of some needy person. I am very glad that cochlear implants are making it into TV because it helps to raise awareness about this awesome technology. And think about it -- if the companies started giving away devices to people, everybody would want free ones and insurance companies might stop paying if they were freely available. By donating a device and raising awareness on TV, more people might end up benefitting from CIs. And if lots more people get them, maybe, just maybe the cost of the devices will come down making it easier for insurance companies to cover them for more people. Lydia Mom of , almost 10, Nucleus bilateral 1/01 and 3/05 > ... " No > matter what company does it- when you donate a needed medical device to a > television character it is moronic and an insult to those who need it " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 I couldnt handle the volume of emails that some of these groups generate, so I opt to read everything at the website. /messages You can get 30 messages on a page, which makes them easier to scroll through. You can then respond to whichever ones you want, or none whichever is your choice. I write down the number of the last message I read, so that the next time I log on, I know where to start again. Ted F. > > I came home to over 60 e-mails. I really only want to know the > basics for information. Can someone take me off this so i can > check in when I need to or when I want to report something, use it > periodically. Thanks, Leila > > Quote Link to comment Share on other sites More sharing options...
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