Re: Decide about cochlear implant

[Guest guest]

Colleen,

I am very sorry to read that you are not happy with your CI. Being

depressed and sad is not fun. Since I know that this CI is fairly new

for you, I hope you will continue to try to make it work to help you

hear and most of all, understand what the people around you are

saying. Your audiologist and doctor need to know how you are feeling

so I hope you have discussed this with them. If they can't help you,

would it be possible for you to go to another CI team to see if they

might be able to help you thru this?

If this is your first experience with sound or it has been a very long

time, it probably just plain sounds awful. In fact, it may just Feel

awful. Sound really is a feeling. This is a brand new learning

process for the brain. In fact, in reality the brain may have closed

the area most receptive to hearing and replaced that with other

senses. Now hearing via the CI has to push it's way thru and make

room for the sound that needs to process to make sense to you.

Don't put extra pressure on yourself. I don't see any reason why you

can't schedule yourself with the CI. Maybe two or three hours at a

time would work for you. We usually are most alert in the morning,

after our bodies have been given time to rest so perhaps that would be

the ideal time since hearing thru the CI can be very tiring at first.

Keep in mind that you are taking baby steps. Some babies take long

strides at first and others just tip toe. Whatever works is what is

best.

I think you owe yourself a huge ice cream sunday and your favorite

movie tonight. You've worked hard and you continue to do so. You are

to be commended for your achievements so give yourself a pat on the

back and don't let this worry you. If it takes a year or more - so

what? There's no race or competition in this.

Keep a journal of how things sound (or feel). Keep posting and let us

try to help you. We're here 24/7 for you.

Alice

http://www..com

[Guest guest]

What is the problem, Colleen?

Nearly all problems can be overcome.

Ted F.

>

> I am thinking and decide if I do not want to wear or hear with

> cochlear implant for few weeks or longer. I am think about it if I

> don't feel want to wear it but depends on how I feel about not wear

> or wear. I am not very happy with my cochlear implant. I am very

> depressed and sad. Thanks Colleen

>

[Guest guest]

It was from last night about post and someone thought this might be

good to tell you about it. I tried to tell my mother to call Nebraska

center with usher sydrome

program but she said she will not call there because of they would

contact my ENT ear doctor in Missouri to find out what is going on.

But one time I seen larger center in big city and he did not know

anything and not communication but I had someone who drove me and my

mother so it caused problem. I do not want to talk or see ENT ear

doctor anymore now because of I am scared of him because of he said

he will block me and not email him anymore and he did not understand

my communication and also two words are bothering me what he said

about my communication is not inapproiated that remind me from one

woman with bad job about the inapproiated. I did not do anything

wrong. Even audologist said she can not email or anything and have to

wait for the appointments with journal. So have to wait for 5

weeksuntil see audologist with problems and journals. I do not want

to do journals now anymore becuase it makes worst for me and I been

wrote journal about problem almost everyday for almost 2 months now.

But after see psychairsist with stranger not know interpter that does

not know much about cochlear implant made me more worst and

havelomore emotionals two weeks ago then it got became got worst

emotion at home but psycharist said that i was normal but I did not

realized unitl i was home with start feeling and emotion problems

worst after seen psycharist and not like to tell that much with

stranger interpter becaue it bother me that remind me with other

stranger interpter. Yesterday I can not hear people voice or some

sounds when I was on volume 2. Today it became very loud on control 2

and after hear voice then it started sounded like doorbell,big high

beep or tone like balloon for one hour by repeat from any few sounds

all morning when i was outside. Then I turned it down to control one

and it became loud then few times few sounds sounded like

doorbell,big high beep or tone like balloon like this morning but it

was not usual normal today but this week been not usual sound. But I

usually use volume 2 all the time. But where my right ear is pain

that where the device white part hook on head is lot of pain all day

and tonight. Then in ear started itch and hurt. But even I am really

very sick lot but i was at work but very sick. I have combinate

mixing are sinsus/bad serve allergies,teeth and cochlear implant. But

on Wednesday I seen dentist and found out that my teeth have nerve

damanage from pulled widsom out but dentist want to give me shot for

pain other day but we did not do that but maybe next time but not

sure but then I got really very very sick last night with sinsu and

stuck stuff in throat then threw up few times last night and I have

no sleep and just woke all night but only 2 hrs slept last night.

After seen dentist it made my throat very sick on Wed night from

something that might allergy to in mouth. I had a lot trouble with

allergies/sinusus for almost one month and I tried two different

medicines for sinuses but it become worst but today my regular

psychain dr gave me antiboditic and she listened to me this time so I

had not seen dr but know the trouble sickness is but I been

seen her few weeks ago after on rides at fair then found out in left

side ear had drainage ear becaue if allergy is not under control then

get ear infections every time but everything is out of control for me

right now. Hear sounds are not correctly or different is out of

control for me right now. So everything is out of control this time

now. But we did not get chance to talk to my regular psychain dr

about dentist and teeth. But I am really very concern about pains

becaue if dentist want to give me shot for pain to find out then

drill in teeth and it will be many times but other also part sinus

can hurt ear and also cochlear implant side but audolgoist told me if

pains came back again and let her know but few weeks ago one music

called rock with hamorny and juicy was high tone and gave me ear

pain. But dentist thought I may feel funny vibrate and hear through

sounds into teeth from ear other day when I had problem on monday.

But everyday sound and volume change but some day I do not hear well

and other day hear some and other day okay but I feel like I do not

know sounds or hear different anymore this time since i had 5

electrodes off in June then sinsuses/allergies appeared and it is

still almost one month now. But I feel something is bother me more

about cochlear implant problems when seen psycharist and I am scared

if I do wrong thing or make mistake about hearing because remember

someone asked me if i hear something from bad job and bad meeting

experiences but I did not report audiology right away and waited too

much longest. But also Helen Keller and my blind of Reh counselor

been bother me before becaue of that bad meeting with bad job when we

were talked about hear issues and audologist appointment check up

that bad people asked me the questions then found out the last answer

about bad news and one last one was not with helen keller or

counselor being there and I was alone with one supporter but I

quitted the program service from supporter in july becuaes program

service of support made me really worst and many problems that did

not help or work out for me. Now ENT ear doctor will not even email

me anymore about the concern and will block me when I told him about

pain concerns about combine 3 areas then he will not say anything on

email and just block me on email but only see in clinic. But we live

2 hours away from the center. But I do not want to talk through Relay

with people that is not private. But it is impossible if someone call

doctor then someone have doctor call here so it is really impossible

if it is through relay or something. But they do not have TTY there.

But someday I do not want any interpters or my mother to be with me

see ENT ear dr and want to learn communication by myself notes or

communication device. But mostly I go by myself to see my regular

pyshcain dr and I do fine with her. But she do not know about

Cochlear implant or ear issues so it is biggest problems. But before

Blind of Reh they can not email that much but state of MO not let

them install the IM messagner on there either so I can not talk to my

counselor on the phone either but one time her supervisor got very

confused and not understand communication between RElay and me then

they called here to talked to my mother. So it is very impossible.

But I remember one bad place can not do email becuaes of danger thing

concerns. I feel like ENT ear dr is mad at me and not want to help

and I can not do anything about pains or concerns and I have no

contact there anytime either but I can not email him becuaes he will

block me. And now I feel like I do not want to wear or hear with

cochlear implant this time. But I been through enough hear and pain

issues and I feel like I am out of control and do not know anymore.

My physcial is feel weak and become worst now becaue I am wore out.

Does emotional or physcial stand signal mean is it time for me to see

someone to check up or is it signal about my cochlear implant issues

that need to be checked up as soon as possible. I can not tell if map

is work or mess. Becaue I hear different and mess sounds everyday and

not know so it is much pretty difficult at first normal map for one

month then sick almost one month and not sure what is going on or

happen next with hear,sounds,any pains that can not tell which ones.

I know I really want normal hearing and everything back to normal. If

you need to know what been bother me and my feelings with cochlear

implant and why not wear cochlear implant with bad meeting and job

long time ago and have difficult time on own private e-mail. That why

I am having lot difficult time now with hear

and emotionals. Let me know. Colleen

>

> What is the problem, Colleen?

> Nearly all problems can be overcome.

>

> Ted F.

[Guest guest]

I replied to this by private email, but I am not qualified or

experienced enough in C.I. use, to be of much help.

I hope that someone here, can point Colleen in the right direction,

so that she can get the support she needs and deserves. I did suggest

that she get the pain problems sorted out first, because I know from

my own experience that toothache can certainly effect ones hearing

and mapping. The brain seems to take over and hones in on the pain

rather than what you are hearing. Once all Colleens dental pain and

allergies have been eliminated, then the C.I. implant can be explored

as a possible source of more pain. As she had a previous good mapping

with the Cochlear rep present, I also suggested that she request that

he be there again, but I do think that the other pain issues have to

be addressed first.

Ted F.

> >

> > What is the problem, Colleen?

> > Nearly all problems can be overcome.

> >

> > Ted F.

>

[Guest guest]

Hi Ted, People are trying to help her. She is posting to multiple forums,

and at this point she has an excuse for not seeking any help suggested. She

has multiple health care coordination options available to her where she

lives and has a problem relating to all of them. Your suggestions are all

good, but she is the one that has to follow through. Ruth

_____

From: [mailto: ] On Behalf Of

Ted F.

Sent: Saturday, August 19, 2006 8:25 PM

Subject: Re: Decide about cochlear implant

I replied to this by private email, but I am not qualified or

experienced enough in C.I. use, to be of much help.

I hope that someone here, can point Colleen in the right direction,

so that she can get the support she needs and deserves. I did suggest

that she get the pain problems sorted out first, because I know from

my own experience that toothache can certainly effect ones hearing

and mapping. The brain seems to take over and hones in on the pain

rather than what you are hearing. Once all Colleens dental pain and

allergies have been eliminated, then the C.I. implant can be explored

as a possible source of more pain. As she had a previous good mapping

with the Cochlear rep present, I also suggested that she request that

he be there again, but I do think that the other pain issues have to

be addressed first.

Ted F.

> >

> > What is the problem, Colleen?

> > Nearly all problems can be overcome.

> >

> > Ted F.

>

[Guest guest]

Hi, Colleen,

Many of us here on the forum are trying to help you. We understand how

difficult it is for you to communicate. We also understand your need for

privacy. But you are going to have to trust SOMEbody to get help with all of

your

needs. And it has to be somebody you can see in person. Maybe you have a

good friend who communicates in SEE instead of ASL? Or maybe a former teacher?

If so - get that person to sit with you and help you write your journals in

language that the audie, and the ENT can understand more easily. We here on

the forum take pains to understand your posts, but professionals have very

little time to try to decifer it and I'm sure it is no surprise to you that your

writing is very confusing, and very long. Also, if I am reading you correctly,

you need dental work done. Any time you have problems with your teeth it will

affect your ears, your throat, and even other areas. Please make every

effort to get that fixed immediately - then you can find more easily what the

ear

problems and pain are. (If money is a problem, go to a city dental clinic. Or

make arrangements with your own dentist to have the work done and work with

Medicare or whomever later.). At your age you have obviously been

communicating with some people. Surely there is someone who understands your

signing that

you can ask to help you and to confide in. Repeating what Ruth has told you,

a physciatrist must keep anything you tell them to themselves. Any good

interpretor who knows ASL can, and will, easily transition to SEE if you Give

Them

a Chance. I work with 10 of them who do it every day. Interpretors MUST

know SEE so they can work with people who are learning to read. But YOU have to

be very flexible, too. The interpretor who is with you at any doctor is also,

by law, bound to secrecy about anything you say. Your doctor, your

phyciatrist, even your mom can NOT help you if you aren't telling the full

story. It

would be like asking a surgeon to do an operation with one hand tied behind his

back.

I wish you all the very best, Colleen, and I hope you take the very good

advice of so many here who are trying to help you.

) Jackie

[Guest guest]

Hi guys --

Where is Colleen located? Anyone have any specific recommendations for

professionals in that town? I'm in New York City.

Ethan's Mom

In a message dated 8/20/2006 9:37:06 P.M. Eastern Standard Time,

ted.fletcher@... writes:

Hello Ruth, from further reading I can see that Colleen has already

been given the exact same advice, that I gave her in my first reply

to her:

Hello Colleen

My heart goes out to you, because you are in obvious pain and you

cannot find the right people to talk to. My immediate thought, is

that you need someone you really trust, that you are able to tell

anything to. Have you got a very good friend, who would go to some

appointments or meetings with you?

Are there any support groups in your area, where you could talk to

someone one-to-one, who isnt in an official capacity, like a doctor

or a dentist is. Someone who would just sit down with you as a friend

and listen to you and read your journals? Tell them what you just

told me and ask them if they would be prepared to go along to the ENT

doctor with you. You shouldnt be trying to do this on your own and

you shouldnt feel too proud to ask for help. Most people are only too

happy to be of help, but unless we tell them, they dont know that we

need any.

You sound in very much pain to me and nobody should be fobbing you

off for treatment. I'm not a doctor, but I do know from my own

personal experience, that being in pain, in my case it was the

toothache, DOES affect ones hearing and mapping with a cochlear

implant. Also, it can be very stressful going for appointments with

someone that doesnt understand you. I dont know anything about Ushers

Syndrome, but you need to talk to people who do.

I think you need to address what is causing you the pain as your

first priority. Someone else in the group suggested wearing

your C.I. for a few hours each morning, its worth a try. Personally,

I wouldnt stop wearing it altogether, but if I was in pain with it, I

would have to find out what was causing the pain and get it fixed. If

the major pain is dental related, you need to get that fixed up

first, so that you at least feel better within yourself and feel

capable and willing to fight for what you want. Dental pain and

toothache are very debilitating and can really get you down. If your

major pains are related to Ushers, then either yourself or your

friend need to find someone to talk to about it.

I dont know whether you have posted this message into , but it

would probably be a good thing to do, because most of the people that

read in there are in the US and there maybe someone very close to

where you live, that would be willing to meet with you. A trouble

shared is a trouble halved.

I'm praying that you can get some relief from the pain and then, that

you can get good use out of your cochlear implant.

Regards

Ted Fletcher

(I'm in Australia)

I agree with you, Colleen has to make some decisions with people on a

face to face basis. Emails are all well and good and the

communication is invaluable to us deaf people, but trust is the

underlying issue here and I think she needs to learn to trust someone.

Ted F.

>

> Hi Ted, People are trying to help her. She is posting to multiple

> forums, and at this point she has an excuse for not seeking any

> help suggested. She has multiple health care coordination options

> available to her where she lives and has a problem relating to all

> of them. Your suggestions are all good, but she is the one that has

> to follow through. Ruth

>

[Guest guest]

I live in NYC. Dr. Darius Kohan @ Beth Israel did my surgery and it

certainly worked for me! I work with Nikki Sislian for mappings and

DiStefano for my HA needs. Both are wonderful and highly skilled.

Dr. Parisier and Dr. Roland have the top reputations.

In a message dated 8/20/2006 10:07:50 PM Eastern Standard Time,

Ethansmomnyc@... writes:

Hi guys --

Where is Colleen located? Anyone have any specific recommendations for

professionals in that town? I'm in New York City.

Ethan's Mom

[Guest guest]

Hello Ruth, from further reading I can see that Colleen has already

been given the exact same advice, that I gave her in my first reply

to her:

Hello Colleen

My heart goes out to you, because you are in obvious pain and you

cannot find the right people to talk to. My immediate thought, is

that you need someone you really trust, that you are able to tell

anything to. Have you got a very good friend, who would go to some

appointments or meetings with you?

Are there any support groups in your area, where you could talk to

someone one-to-one, who isnt in an official capacity, like a doctor

or a dentist is. Someone who would just sit down with you as a friend

and listen to you and read your journals? Tell them what you just

told me and ask them if they would be prepared to go along to the ENT

doctor with you. You shouldnt be trying to do this on your own and

you shouldnt feel too proud to ask for help. Most people are only too

happy to be of help, but unless we tell them, they dont know that we

need any.

You sound in very much pain to me and nobody should be fobbing you

off for treatment. I'm not a doctor, but I do know from my own

personal experience, that being in pain, in my case it was the

toothache, DOES affect ones hearing and mapping with a cochlear

implant. Also, it can be very stressful going for appointments with

someone that doesnt understand you. I dont know anything about Ushers

Syndrome, but you need to talk to people who do.

I think you need to address what is causing you the pain as your

first priority. Someone else in the group suggested wearing

your C.I. for a few hours each morning, its worth a try. Personally,

I wouldnt stop wearing it altogether, but if I was in pain with it, I

would have to find out what was causing the pain and get it fixed. If

the major pain is dental related, you need to get that fixed up

first, so that you at least feel better within yourself and feel

capable and willing to fight for what you want. Dental pain and

toothache are very debilitating and can really get you down. If your

major pains are related to Ushers, then either yourself or your

friend need to find someone to talk to about it.

I dont know whether you have posted this message into , but it

would probably be a good thing to do, because most of the people that

read in there are in the US and there maybe someone very close to

where you live, that would be willing to meet with you. A trouble

shared is a trouble halved.

I'm praying that you can get some relief from the pain and then, that

you can get good use out of your cochlear implant.

Regards

Ted Fletcher

(I'm in Australia)

I agree with you, Colleen has to make some decisions with people on a

face to face basis. Emails are all well and good and the

communication is invaluable to us deaf people, but trust is the

underlying issue here and I think she needs to learn to trust someone.

Ted F.

>

> Hi Ted, People are trying to help her. She is posting to multiple

> forums, and at this point she has an excuse for not seeking any

> help suggested. She has multiple health care coordination options

> available to her where she lives and has a problem relating to all

> of them. Your suggestions are all good, but she is the one that has

> to follow through. Ruth

>

[Guest guest]

I think her ENT doctor is in Missouri, so she must live in a small

community near that area.

Ted F.

>

>

> Hi guys --

>

> Where is Colleen located? Anyone have any specific recommendations

> for professionals in that town? I'm in New York City.

> Ethan's Mom

>

[Guest guest]

Hi guys,

My ENT doctor is really very young and do not know much about

cochlear implant but I only seen him 3 times so not know well enough

yet but every time see him and my is fine but then next few days or

few weeks or month then ear just happened but my regular psychain

doctor in my location only know my issues and only pay attention to

me lot because every time I get to see my regular psychain doctor in

time on same day and sometime she found ear infection or something. I

never get any fever at all so i am not usual person about these

syptoms. But ENT do not get me in on day and just wait for 2 to 4

weeks or longer. But one time we had go biggest larger cochlear

implant in larger center when ent dr sent me to see specialist in may

and could not find anything wrong but it took about 2 months to get

into larger city but I had one supporter took me and my mother that

what one supporter wanted go with us in large city and she was with

me so it made more cause problem because she asked lot questions

about not important thing like sport than me. But one audologist who

did hearing test on me and knew i was not passed with strange new

audologist or not experienced with new equipment understand in sound

booth. My mother figured out I was not used to stranger new people

or something so that why I did not pass or do well. But it was not

good communication with specialist one. But my mtoher was with me. So

it was not good either. But even my regular psychain doctor do not

know about pains or cochlear implant but she only know the level of

pains that is still same every time when I see her. But I know she

not want me to be in the doctor office too much because she afraid i

would get sick around flu people but know we have no choice to do

this. I wonder will it work out if my regular pyschain doctor can

contact cochlear implant rep who know about ear if she need any

questions ot something about ear or pains? Colleen

> >

> >

> > Hi guys --

> >

> > Where is Colleen located? Anyone have any specific

recommendations

> > for professionals in that town? I'm in New York City.

> > Ethan's Mom

> >

>

[Guest guest]

I start get more scared and scared. And also something with hear

sound or memory came back to me and makes me scared more. I know I

want come back to normal. I been go through and sort feelings and

confused. That why I am scared to communication with other people.

My parents started scared more yesterday and became frustrated but

they wished they could help me but they do not know what to do but my

father want my mother to try to see and maybe ask questions on my

groups and maybe contact Nebraksa program about the pains or see if

have other same problems what I have or go through issues. My parents

were worried about I am hurting. Ear is still pain. I have not wear

my cochlear implant for 3 days and I am not eat very well now. I am

not sure when I am ready to try wear my cochlear implant but I know i

am more scared but yesterday i was not on the computer because i need

to be calm down and relaxed. Thanks Colleen

[Guest guest]

If you havent worn your C.I. for three days, Colleen. Are you still

getting the same pains? I think its negative to not wear the implant at

all, unless you know positively, that there is a problem with it or

more likely with your mapping.

All the communication in the world, on these groups, wont ease any of

that pain. Thats a job for the doctors/dentists and medication. Once

the pain has been recognised and eliminated or eased, then you can

start to concentrate on your cochlear implant and as to whether that

might have any input to your pain.

Are you not eating because of toothache or other dental issues? Not

eating is not good for you. Have you at any time, since you had your

cochlear implant, been able to hear pretty well with it? If thats the

case, then there is no reason IMO why you cant get back to that and

then probably improve on it.

Ted F.

>

> I start get more scared and scared. And also something with hear

> sound or memory came back to me and makes me scared more. I know I

> want come back to normal. I been go through and sort feelings and

> confused. That why I am scared to communication with other people.

> My parents started scared more yesterday and became frustrated but

> they wished they could help me but they do not know what to do but my

> father want my mother to try to see and maybe ask questions on my

> groups and maybe contact Nebraksa program about the pains or see if

> have other same problems what I have or go through issues. My parents

> were worried about I am hurting. Ear is still pain. I have not wear

> my cochlear implant for 3 days and I am not eat very well now. I am

> not sure when I am ready to try wear my cochlear implant but I know i

> am more scared but yesterday i was not on the computer because i need

> to be calm down and relaxed. Thanks Colleen

>

[Guest guest]

It is still same pain. On Friday voices became sound like

doorbell,beep or high tone like balloon or something that was

discomfort then it made ear pain more too and last week sounds was

not normal what I heard all week that what I usually was on volume

but on few times last week i had to switched down or up the sensetive

control but sometimes last week one or two days not good to hear and

other day was loud then it changed lot so it was not normal or

usually like that last week before and after dentist. I am eat food

tonight better but ear is still pain. But in ear feel like something

move or alittle bit dry drainage. But I was sick with allergy and

sinus for almost one month. But at first one month it was normal and

sound well then it decrease dropped next month then it keep decrease

more so journal became worst now from at begin of month where I was

started with first step to now. My mother will talk to my regular

psychain doctor and talk to her about dentist, ear and few thing

issues and see what she would suggest to do first. And also I will

remind my mother to tell my regular psychain doctor that toothache

and allergies could make it pain or cause or affect map. Even with

dentist was not easy because I may allergy to something in mouth

becuase something made me choke and cause throat sore worst and then

got very sick for few days. But after I had oral surgery I was

really very sick for three week with throat. My mother was alittle

bit concern if something affect me with throat, throw up or something

for few weeks. I do get sick from anasthetic from something.

Sometimes when chew or eat something hurt ear pain but do not know

why it hurt ear but it is more issues than chew food or dental or

tooth issues to cause ear pains. It been in a mess about pains.

Colleen

> >

> > I start get more scared and scared. And also something with hear

> > sound or memory came back to me and makes me scared more. I know

I

> > want come back to normal. I been go through and sort feelings

and

> > confused. That why I am scared to communication with other

people.

> > My parents started scared more yesterday and became frustrated

but

> > they wished they could help me but they do not know what to do

but my

> > father want my mother to try to see and maybe ask questions on my

> > groups and maybe contact Nebraksa program about the pains or see

if

> > have other same problems what I have or go through issues. My

parents

> > were worried about I am hurting. Ear is still pain. I have not

wear

> > my cochlear implant for 3 days and I am not eat very well now. I

am

> > not sure when I am ready to try wear my cochlear implant but I

know i

> > am more scared but yesterday i was not on the computer because i

need

> > to be calm down and relaxed. Thanks Colleen

> >

>

[Guest guest]

Colleen,

It appears you have many issues facing you. The proper course of action

seems to be to focus on some of the the more pressing issues, the pain.

Focus on that, find the source and correct it by whatever means your doctor

recommends.

If its found that the implant may be a cause, you can proceed from

there. But until then, work on resolving this by seeing a doctor. It may

not be the implant at all, and you want to rule that out. Its possible to

have ear infections not related to the implant, the doctor, can determine

that. Dont put it off, see one as soon as possible. Once this issue is

resolved, then you can get back to using the implant again and getting new

maps that will work better. But do what you need to do to get back on

track. It may mean work, work and more work.

*---* *---* *---* *---* *---*

The face of a child can say it all, especially the mouth part of the face.

--Jack Handley

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

[Guest guest]

I will try to put Cochlear implant on tomorrow but not sure which

during time or wait at home when I get home at evening where it is

more quiet. But I am working all day tomorrow but one class is very

loud and also if it is not rain then will be outside lot all

morning. I am trying to think which I want to try use it tomorrow

during daytime or wait at evening at home when it is quiet that give

me plenty time to connect and alittle bit to adapt to hear something.

Colleen

>

> Colleen,

> It appears you have many issues facing you. The proper course

of action

> seems to be to focus on some of the the more pressing issues, the

pain.

> Focus on that, find the source and correct it by whatever means

your doctor

> recommends.

>

> If its found that the implant may be a cause, you can proceed

from

> there. But until then, work on resolving this by seeing a doctor.

It may

> not be the implant at all, and you want to rule that out. Its

possible to

> have ear infections not related to the implant, the doctor, can

determine

> that. Dont put it off, see one as soon as possible. Once this

issue is

> resolved, then you can get back to using the implant again and

getting new

> maps that will work better. But do what you need to do to get back

on

> track. It may mean work, work and more work.

>

> *---* *---* *---* *---* *---*

> The face of a child can say it all, especially the mouth part of

the face.

> --Jack Handley

> & Dreamer Doll (Guide Dawggie)

> Newport, Oregon

> N24C 3G 8/2000 Hookup

> rclark0276@...

> http://webpages.charter.net/dog_guide/

>

[Guest guest]

I wonder did after seen psycharist and hear some sounds that lead me

memories where I was at and just start happened and that get me to

feel sort out something to figure out what is going on with me that

something I did not open communication to anyone with psycharist or

audologist or someone or when problems were started occured with

express feeling that why I did not wear CI in few years ago before for

one year before to try get me to tell someone what is problem or go on

with me? Is it reason that why audologist is trying to find more

informations and get me to tell her why and full informations that I

did not wear cochlear implant and what I was scare or afraid of

something that did not tell anyone or audologist about the feelings

before? When I see audologist in 4 weeks and do I need to start tell

audologist what I am scared or afraid of and what happened about why

not or hear cochlear implant and scared of communication with other

people that why I did not open communication with anyone? Is it reason

that they are trying to get me to tell them about feelings? Thanks

Colleen

[Guest guest]

Colleen: I'm sorry but dear you need to open up to people and tell them

what is going on. They can't help you unless you let them, thats what they are

there for thats what you are paying for........so please start explaining all

of this to them. I understand that you have a hard time understanding

people some times but you can read, and you can write so all you have to do is

use

a peice of paper. I know you don't like doing that but it's the best thing

to do sometimes, if you dont' have someone with you that you trust......I

hope the best for you. Since I had my implant I have heard so many different

things that I want every one else to be able to hear it also. I never realized

that everything makes a sound. I still don't make out words but with my lip

reading and what I hear I am getting as much as 95% of everythng now. So

best to you ,

Patsy

Freedom implanted Feb. 24, 2006

activated March 27, 2006

[Guest guest]

I agree completely.........................

[Guest guest]

HI Colleen, The reason that people get referred to psychiatrists or

counselors is because they are showing signs that they are not coping well

with their emotions. No one sends anyone to a psychiatrist or counselor to

“get information”. You are demonstrating through your writing that you are

extremely frustrated and have issues that are brothering you to the point of

being “scared”. Being frustrated and scared is normal in some

circumstances, but when it is out of control to the point that you are

expressing it, people benefit from the help of psychiatric/psychological

professionals. Sometimes emotions get in the way of resolving other

problems, such as resolving the problems with your CI. It sounds like this

is happening to you and you need to give help dealing with these emotions so

that you can also get some of these other issues resolved.

No one is really concerned or needs to hear about the events that you

experienced that lead to these out of control emotions. But they are

concerned and care about what the emotions are doing to you, and what you

are doing or not doing in response to them. That is why they want you to

seek professional psychiatric/psychological help.

You audiologist is trying to sort out what is causing your CI problems and

therefore, as I told you before, needs to know what “CI problems” such as

what type of sounds are causing problems and when the sound and resulting

pain problems are happening.

You need to be aware that when you share things about yourself by writing

to this and other boards you are communicating with over a thousand people,

some of who may recognize who you are. It is also possible that your

audiologist and other people that you are writing about, might be members of

these forums too. While many of us on this forum care about you, and feel

badly for the problems you are having, none of us can do anything about your

problems other than give you support and ideas. You need to make the

contacts with the professionals, and allow them to help you. Writing us

about it, though it may ease some intensity of your frustration, will not

get the problems resolved. Until you start working on the problems, you

will experience increased frustration from the needs you have that are not

met.

Ruth

_____

From: [mailto: ] On Behalf Of

cop

Sent: Tuesday, August 22, 2006 2:00 AM

Subject: Re: Decide about cochlear implant

I wonder did after seen psycharist and hear some sounds that lead me

memories where I was at and just start happened and that get me to

feel sort out something to figure out what is going on with me that

something I did not open communication to anyone with psycharist or

audologist or someone or when problems were started occured with

express feeling that why I did not wear CI in few years ago before for

one year before to try get me to tell someone what is problem or go on

with me? Is it reason that why audologist is trying to find more

informations and get me to tell her why and full informations that I

did not wear cochlear implant and what I was scare or afraid of

something that did not tell anyone or audologist about the feelings

before? When I see audologist in 4 weeks and do I need to start tell

audologist what I am scared or afraid of and what happened about why

not or hear cochlear implant and scared of communication with other

people that why I did not open communication with anyone? Is it reason

that they are trying to get me to tell them about feelings? Thanks

Colleen

[Guest guest]

Colleen,

You have been writing about various issues for months now, about

physical pain and about emotional pain. While CI Hear is indeed a wonderful

support list for those with cochlear implants, or looking to get one, there

is only so much that we can do. You need to see a real live person, a

physician, or physiatrist, whatever is recommended to you. We have tried to

offer you encouragement for weeks. Its time for you to get out there and do

something about your issues so that you can move forward with your cochlear

implant. I don't remember when you were implanted, but its been a few

years? And after all that time, for you to feel the need to take it off,

can only indicate you have some problems that need to be addressed...now.

So please, go see the doctors.

*---* *---* *---* *---* *---*

If you think there is good in everybody, you haven't met everybody.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

[Guest guest]

I'd like to ask question. Can't we move on. This topic has been on for the

past 2 wks or so, and we don't seem to be getting any where.

Thank you,

Patsy

[Guest guest]

Colleen, you should be open and honest with all the medical and audio

people, they are trying to help you. The mapping especially, is a

very personal thing between your audi and yourself, you have to work

together as a team, to get the best results. You have to trust each

other. All these people have to go on, to sort out your problems, is

what you tell them. And if you withold information, for whatever

reason, you are not being fair to yourself or to them and you will

NOT get the best results.

Ted F.

>

> I wonder did after seen psycharist and hear some sounds that lead

me

> memories where I was at and just start happened and that get me to

> feel sort out something to figure out what is going on with me that

> something I did not open communication to anyone with psycharist or

> audologist or someone or when problems were started occured with

> express feeling that why I did not wear CI in few years ago before

for

> one year before to try get me to tell someone what is problem or go

on

> with me? Is it reason that why audologist is trying to find more

> informations and get me to tell her why and full informations that

I

> did not wear cochlear implant and what I was scare or afraid of

> something that did not tell anyone or audologist about the feelings

> before? When I see audologist in 4 weeks and do I need to start

tell

> audologist what I am scared or afraid of and what happened about

why

> not or hear cochlear implant and scared of communication with other

> people that why I did not open communication with anyone? Is it

reason

> that they are trying to get me to tell them about feelings? Thanks

> Colleen

>