Re: musical tinnitis

[Guest guest]

tinnutintus (sp) is the bane of those with hearing problems and ci's. In my

life I have heard everything from badly tuned radio stations of symphonies to

car horns blaring. Vivian

[Guest guest]

The thread hasn't arrived in my mailbox yet but oh

YEAH plenty of things we deaf people " hear " ! LOL

Deb

--- VAnn <v_wb@...> wrote:

> I am glad to see this thread. I though I was really

> losing it! Not

> really. I knew it was sort of normal, but glad to

> see others " hear "

> things that aren't there. Before I went for my

> psyche eval as part of

> the pre-implant process, my sister (a therapist in a

> mental

> hospital)said " whatever you do, deny hearing voices "

> She didn't know

> about auditory memory tricks deaf people get. I

> hear talk radio once

> in awhile and songs too.

>

>

>

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[Guest guest]

VAnn,

What a relief it is to know that other people experience this too! While I

knew about cases where deaf people experienced auditory hallucinations, I

never gave it much thought and it was the *last* thing I expected to go

through myself following my second CI surgery. Thank goodness I had a

psychiatrist and MD who knew exactly what was happening!

Do you still experience musical tinnitus? My talk radio " hosts " are finally

gone and have been since mid March. They were replaced by the sound of a car

engine revving repeatedly, but if I had to choose between the two, I'll

gladly take the latter! LOL!

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

[Guest guest]

Speaking of tinnitus, something strange happened to me last night. As I was

getting ready to go to bed, I kept hearing this repetitive high pitched beep

in my right ear. At first I thought it might be my processor, but as I

listened closely, I realized that the beeps were persistent instead of the

four beep tones that usually indicate low battery power. My next assumption

was that I left a radio or other electronic device on accidentally. When I

realized that wasn't the case, I suspected that I was hearing the warning

beeps of a truck or other emergency vehicle as it was backing up. However,

when I turned off my right processor, that's when I realized what it was --

" good ol' tinnitus. "

Over the past several months it seems that the tinnitus in my right ear has

changed. For example, for the longest time it sounded like a car engine

starting over repeatedly. Last night it sounded like repetitive high pitched

beeps and this morning it sounded like a fan turned on low speed. Thank

goodness the tinnitus in my left ear has always remained the same or else I

would be having a much more difficult time coping with it.

I can emphasize with Rebekah (although my tinnitus is not as severe as

hers). I'm hoping that the tinnitus in my right ear will eventually settle

down to ONE sound for awhile so I can get a good night's sleep. LOL! Since I

wasn't used to it, the repetitive high pitched beep tones I heard last night

caused a headache and made getting to sleep more difficult.

Oh, if only there were a cure for tinnitus.

I'm still patiently waiting... LOL!

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

[Guest guest]

Hello Rebekah,

I am sorry to hear of your tinnitis troubles.

I always thought CI resolves your tinnitis because you are hearing sound all

day. Hearing nothing is where tinnitis seems to come in.

Before I got my CI - I had tinnitis for years - loud fire engines going off all

night long. I got so i could ignore it but it was ALWAYS there.

But since I got activated last January, my tinnitis started only at night when I

took off the CI. Now I don't notice it at all.

Did you have tinnitis prior to CI?

Do you wear your CI as much as possible? and take off only at night? And how

long have you had your CI?

Larsen

---------------------

Freedom Right Ear

Implanted 11/20/2005

Activated 01/04/2006

Re: musical tinnitis

I've told this before but I will tell it agian. I

wish I had never heard of a CI. I have Tinnitus so

bad that it has destroyed my life. Jet engines, LOUD

roaring, Jack hammer vibrating, opera singers, and now

I have the headach so bad my skull is not big enough

to hold my brain and I expect to explode out of my ear

canal any minute. Be thankful if you don't have any

of these problems. I HATE this CI. Rebekah

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[Guest guest]

Rebekah,

I had roaring tinnitus for many years before I lost my hearing and certainly

before my CI surgery. It was so bad that many times, my husband would find me in

tears. I heard all kinds of loud, blasting sounds. Sometimes it was worse than

other times. I had trouble sleeping because the noise kept me awake. After the

CI surgery, it was horrible. I was asked which ear was giving me the tinnitus.

It was so loud that I couldn't discern which ear it was coming from..... it was

in my whole head.

However, once my CI was activated, the tinnitus subsided to the point when I

turn on the CI, even with no sound in the room, there is no tinnitus at all. I

have recently learned that tinnitus can be helped without having to take

medicine. There is something called tinnitus retraining therapy.

There is a national Tinnitus Association which you can access online at

http://www.ata.org

I know it is debilitating. When this happened to me, there was little awareness

of tinnitus. Today there are centers across the country. Please try to get some

help.

Happy Hearing!

Carol

Boca Raton, FL

N24C 3G left ear -12/11/01

N Freedom- right ear- implanted 3/01/06 activated 4/6/06

Re: musical tinnitis

I've told this before but I will tell it agian. I

wish I had never heard of a CI. I have Tinnitus so

bad that it has destroyed my life. Jet engines, LOUD

roaring, Jack hammer vibrating, opera singers, and now

I have the headach so bad my skull is not big enough

to hold my brain and I expect to explode out of my ear

canal any minute. Be thankful if you don't have any

of these problems. I HATE this CI. Rebekah

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[Guest guest]

How long has it been since you were activated, Rebekah?

I had tinnitus in my implanted ear, for a few weeks. But it either went

away, or I got used to it. I hope yours does the same. Dont give up on

the C.I.

Ted F.

>

> I've told this before but I will tell it agian. I

> wish I had never heard of a CI. I have Tinnitus so

> bad that it has destroyed my life. Jet engines, LOUD

> roaring, Jack hammer vibrating, opera singers, and now

> I have the headach so bad my skull is not big enough

> to hold my brain and I expect to explode out of my ear

> canal any minute. Be thankful if you don't have any

> of these problems. I HATE this CI. Rebekah

>

[Guest guest]

Tinnitus is a bugger, huh. I too have tinnitus and it drives me nuts.

It is sometimes so loud it interferes with my ability to understand

what I am truly hearing. Takes away from my ability to focus. I have

this 24/7, but it can be annoyingly LOUD after a new map, exposure to

a lot of background noises excess sodium and even stress/nerves.

Sometimes I think my unimplanted ear is jealous because it can't hear

like my CI ear does

Of course thats just a little humour to help me get through this

constant buzzzzzzzzzzzzzzzzzzzzzzzzzz.

Freedom 9/21/05 HOOKED!!

Sensorineural hearing loss discovered at age 4

>

> Speaking of tinnitus, something strange happened to me last night.

As I was

> getting ready to go to bed, I kept hearing this repetitive high

pitched beep

> in my right ear. At first I thought it might be my processor, but as I

> listened closely, I realized that the beeps were persistent instead

of the

> four beep tones that usually indicate low battery power. My next

assumption

> was that I left a radio or other electronic device on accidentally.

When I

> realized that wasn't the case, I suspected that I was hearing the

warning

> beeps of a truck or other emergency vehicle as it was backing up.

However,

> when I turned off my right processor, that's when I realized what it

was --

> " good ol' tinnitus. "

>

> Over the past several months it seems that the tinnitus in my right

ear has

> changed. For example, for the longest time it sounded like a car engine

> starting over repeatedly. Last night it sounded like repetitive high

pitched

> beeps and this morning it sounded like a fan turned on low speed. Thank

> goodness the tinnitus in my left ear has always remained the same or

else I

> would be having a much more difficult time coping with it.

>

> I can emphasize with Rebekah (although my tinnitus is not as severe as

> hers). I'm hoping that the tinnitus in my right ear will eventually

settle

> down to ONE sound for awhile so I can get a good night's sleep. LOL!

Since I

> wasn't used to it, the repetitive high pitched beep tones I heard

last night

> caused a headache and made getting to sleep more difficult.

>

> Oh, if only there were a cure for tinnitus.

>

> I'm still patiently waiting... LOL!

>

>

>

> Left ear - Nucleus 24 Contour Advance with 3G

> Implanted: 12/22/04 Activated: 1/18/05

>

> Right ear - Nucleus Freedom

> Implanted: 2/1/06 Activated: 3/1/06

>

[Guest guest]

,

LOL! Sometimes we need a little humor to help us " deal. "

In my case, I think both of my ears are rivals and jealous of each other.

LOL!

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

[Guest guest]

I too am concerned, Rebekah. How long since you were

activated? I had some very very loud weird tinnitus

sounds after surgery, and for many months post

activation although only occasionally when I had the

CI on, usually when it was off. Mine has not gone

completely away but it feels manageable. I'm

especially concerned about this headache you report.

What does your surgeon say?

Deb

--- " Ted F. " <ted.fletcher@...> wrote:

> How long has it been since you were activated,

> Rebekah?

>

> I had tinnitus in my implanted ear, for a few weeks.

> But it either went

> away, or I got used to it. I hope yours does the

> same. Dont give up on

> the C.I.

>

> Ted F.

>

>

>

> >

> > I've told this before but I will tell it agian. I

> > wish I had never heard of a CI. I have Tinnitus

> so

> > bad that it has destroyed my life. Jet engines,

> LOUD

> > roaring, Jack hammer vibrating, opera singers, and

> now

> > I have the headach so bad my skull is not big

> enough

> > to hold my brain and I expect to explode out of my

> ear

> > canal any minute. Be thankful if you don't have

> any

> > of these problems. I HATE this CI. Rebekah

> >

>

>

>

>

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