RE: financial help for those without

[Guest guest]

,

Could you please supply background information on this CI wannahear? Is

this person gainfully employed. Is this person handicapped? (mentally or

physically?) I am not trying to be nosy, but how can we possibly help

without pertinent information. thanks Larry

financial help for those without

> Hello,

> This is the second time someone has asked me how they can get a CI

> funded. They are without insurance, and do not qualify for

> Medicare/Medicaid.

> Are there any sources of private funding for CI wanna be's?

> Thanks,

>

> Freedom 9/21/05 HOOKED!!

>

>

>

>

>

>

>

>

>

[Guest guest]

Larry,

I cannot help but wonder why you want more info on this when others have

asked you for help? Whats up with this?

*---* *---* *---* *---* *---*

Quit? Me quit? It's purely your imagination...

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

Larry,

This person has Meniere's Disease and as a result has lost her hearing

in both ears (bilateral meniere's) She works but has no insurance. She

has applied to VR but they are telling her at least 3 to 6 months

before they can give her an answer. She is concerned that VR won't

really help financially anyway, and I've never heard of VR paying for

a CI....or am I naive about this?

>

> ,

> Could you please supply background information on this CI

wannahear? Is

> this person gainfully employed. Is this person handicapped?

(mentally or

> physically?) I am not trying to be nosy, but how can we possibly help

> without pertinent information. thanks Larry

>

[Guest guest]

,

http://www.thecni.org/hearing/assistance.htm

They will pay for one CI if approved. But they only pay for about 6 a

year so it may be tough to get in the door. Worth a try tho.

*---* *---* *---* *---* *---*

Why doesn't glue stick to the inside of the bottle?

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

Thanks for not being hostile about giving pertinent information about

this individual. My only suggestion would be to quit her job, go on

Medicaid, get the CI, and try to get a better job that offers work

insurance.

Vocational Rehabilitation paid for 20% of the cost of my surgeries, and

80% was paid for with Medicare. Believe me, I kept all documentation just in

case they try to bill me. Larry

Re: financial help for those without

> Larry,

> This person has Meniere's Disease and as a result has lost her hearing

> in both ears (bilateral meniere's) She works but has no insurance. She

> has applied to VR but they are telling her at least 3 to 6 months

> before they can give her an answer. She is concerned that VR won't

> really help financially anyway, and I've never heard of VR paying for

> a CI....or am I naive about this?

>

>

>

>

>>

>> ,

>> Could you please supply background information on this CI

> wannahear? Is

>> this person gainfully employed. Is this person handicapped?

> (mentally or

>> physically?) I am not trying to be nosy, but how can we possibly help

>> without pertinent information. thanks Larry

>>

>

>

>

>

>

>

>

>

[Guest guest]

I wasn't aware of that one. (smile) This is a good example of self

advocacy. Larry

Re: financial help for those without

> ,

> http://www.thecni.org/hearing/assistance.htm

>

> They will pay for one CI if approved. But they only pay for about 6 a

> year so it may be tough to get in the door. Worth a try tho.

>

> *---* *---* *---* *---* *---*

> Why doesn't glue stick to the inside of the bottle?

> & Dreamer Doll (Guide Dawggie)

> Newport, Oregon

> N24C 3G 8/2000 Hookup

> rclark0276@...

> http://webpages.charter.net/dog_guide/ NEW Home Page!

>

>

>

>

[Guest guest]

Larry,

Self advocacy. What is it without information? Someone has to have it

in the first place and not only have it, but share it. Yes? No? Ever hear

the phrase " re-inventing the wheel " ?

*---* *---* *---* *---* *---*

" Support your local Search and Rescue unit -- get lost. "

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

Larry,

Did vocational rehabilitation in the state of Arkansas pay 20% towards your

CI surgery? The reason I ask is because I'm trying to compile a list of CI

funding options for the deafblind other than Medicaid and Medicare.

If I learn of more cases where VR is paying partial and total cost of CI

surgery, I would like to add that information to my list of resources.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

Hi -

Several years ago I knew someone in FL (not deaf blind, just deaf) who had

Vocational Rehab pay for his CI.

>>If I learn of more cases where VR is paying partial and total cost of CI

surgery, I would like to add that information to my list of resources.<<

Lorie

Clarion 1.2 5/96

NYC

[Guest guest]

,

Yes, Vocational Rehabilitation for the state of Arkansas played for 20%

of my bilateral surgeries. It is not easy to get Medicaid or Medicare to pay

the other 80%, but it is possible with perseverance and self advocacy. Milo,

the best rule of thumb is to meet them and communicate with them in person

with your CI. I left my hearing aid at home so they knew I had to be

communicating with my CI. Since I had trouble facing the lady, I also

illustrated succinctly that having bilateral implants would be advantageous

to me as a totally blind person. I am nothing special. You can do it too!

The decision was also agonizing to me because I didn't want to lose all

vestiges of natural hearing. However, I don't need to worry about my hearing

getting worse. It will only get better! Larry

Re: Re: financial help for those without

> Larry,

>

> Did vocational rehabilitation in the state of Arkansas pay 20% towards

> your

> CI surgery? The reason I ask is because I'm trying to compile a list of CI

> funding options for the deafblind other than Medicaid and Medicare.

>

> If I learn of more cases where VR is paying partial and total cost of CI

> surgery, I would like to add that information to my list of resources.

>

>

> Implanted: 12/22/04 Activated: 1/18/05

> Deafblind/Postlingual

> BTE hearing aid user 20 years

> Severe-profound hearing loss 10 years

>

>

>

>

>

>

[Guest guest]

Yes. It was used when the owner of the Ten Lezzy wanted to drive a

Porsche. Larry

Re: financial help for those without

> Larry,

> Self advocacy. What is it without information? Someone has to have it

> in the first place and not only have it, but share it. Yes? No? Ever

> hear

> the phrase " re-inventing the wheel " ?

>

> *---* *---* *---* *---* *---*

> " Support your local Search and Rescue unit -- get lost. "

> & Dreamer Doll (Guide Dawggie)

> Newport, Oregon

> N24C 3G 8/2000 Hookup

> rclark0276@...

> http://webpages.charter.net/dog_guide/ NEW Home Page!

>

>

>

>

[Guest guest]

Uh huh Larry and say what? A Ten Lezzy? Oh my now, that is bound to

ruffle some feathers. This should be fun.

*---* *---* *---* *---* *---*

Just think how much deeper the ocean would be if sponges didn't live there.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

Larry,

I highly doubt my VR counselor will pay anything towards the cost of a

second CI. Even when I requested a BrailleNote for use with realtime

captioning at school, she was reluctant to pay the cost. She's an excellent

counselor, but tends to be very careful about how and where money is spent.

For now I'm going to see what kind of response we get from Medicaid and

Medicare. My surgeon doesn't anticipate any problems with approval. I hope

he's right!! <smile> I should receive an answer one way or the other within

the next several weeks.

I hope to go bilateral very soon. My digital hearing aids stopped working

again (for the 5th time since 2001). One of the aids is exhibiting the same

symptoms it did back in June/July which is indicative of a problem with the

internal amplifier. The other aid has a damaged microphone that causes sound

to fade in and out. The microphone has been repaired several times yet

continues to give me problems. I've given up on these aids. It's hard to

believe my analog Oticon 380Ps that are over 10 years old have never needed

repair and continue to work perfectly to this day.

I told my CI audi I've given up on the digitals, but will continue to wear

my analog. Fortunately I have two of them, so if one needs repair, I still

have the other. Thank goodness for small favors. LOL!

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

in case u missed fine print on ci aistance program its for colorado only

>

> ------------------------------------------------------------------------

>

[Guest guest]

Lori,

Thanks for sharing this information with me! Although I'm compiling this

list specially for the deafblind clients I work with (or communicate with by

e-mail), I'm sure others would appreciate this information as well.

By the way, this afternoon I received an e-mail from a teacher whose student

is totally deafblind and considering a CI. I don't want to disclose any

specific information for obvious reasons, but this is encouraging! The more

information and resources we can compile for the deafblind (or *anyone*

considering a CI), the more informed they will be when it comes to making

this decision. I'm one of the lucky ones because I had this forum to turn to

when I had questions or concerns. I know others here who did not have that

opportunity because there was no Internet at the time they received a CI!

Thanks again!!

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

,

Point us to that. This is from their criteria....

1.. Applications will be considered only if the candidate is a permanent

legal resident of the United States. In the case of applicants who are under

18 years of age at the time of their application, the legal guardians must

show proof of permanent, legal US residence.

Where does it say Colorada residents only?

*---* *---* *---* *---* *---*

Eagles may soar, but weasels don't get sucked into jet engines.

--

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

,

I'd be surprised if VR really pays the 20% or even a fraction of that

given how tight VR budgets are all across the country. I also am skeptical

if it matters what status their case is in. As you know all too well, its

like pulling teeth to even get basics paid for let alone have VR pay, what,

$10.000 towards surgery costs.

*---* *---* *---* *---* *---*

I just broke up with someone and the last thing she said to me was, " You'll

never find anyone like me again! " I'm thinking, I should hope not! If I

don't want you, why would I want someone like you? "

--Larry

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

that downloaded application form lol

wrote:

> ,

> Point us to that. This is from their criteria....

>

> 1.. Applications will be considered only if the candidate is a

> permanent

> legal resident of the United States. In the case of applicants who are

> under

> 18 years of age at the time of their application, the legal guardians

> must

> show proof of permanent, legal US residence.

>

> Where does it say Colorada residents only?

>

[Guest guest]

,

Yeah? Dont see it. The Angel Network on the other hand IS limited to

Colorado and Wyoming. Sorry , wrong again.

*---* *---* *---* *---* *---*

Isn't Disney World a people trap operated by a mouse?

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

nope look at top of the form that says " shall be governed by the laws of

the State of Colorado. " get it?

>

> Yeah? Dont see it. The Angel Network on the other hand IS

> limited to

> Colorado and Wyoming. Sorry , wrong again.

>

[Guest guest]

No . That is legalese, meaning, any disputes with CNI will be

covered by the LAWS of the state of Colorado.

*---* *---* *---* *---* *---*

My wife has a slight impediment in her speech. Every now and then she stops

to breathe.

-- Jimmy Durante

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

,

I am very glad your doctor concurs with you on bilateral CI's On a

personal note, when my surgeon recommended it for me, I knew I would get the

funding. Have you asked your vr counselor about paying for 20% of your CI?

There is nothing I can say at this time. As was the case with me, once the

surgeon recommended the operation, it is just a matter of time. If your

surgeon didn't think the CI's would be paid for, would he have made the

recommendation?

I also had two Oticon 380's that gave me no trouble and never had to be

repaired. My Phonaks, on the other hand, needed repair three months after I

received them.

I can understand 's frustration and hostility and

frustration because he thought I didn't give him information. I did! May I

suggest he might have inadvertently hit the delete key without reading the

email? He wrote me one email in which he cursed me out. I'm glad you are

more well mannered. I am tired of bantering with him. I asked him if he

could see and used alternative means of communications. I told him he would

deal with Medicaid or Medicare differently than if he were totally blind and

communicating. He got bent out of shape and told me his background

information was none of my business. I hope you have a pleasant day.

Larry

Re: Re: financial help for those without

> Larry,

>

> I highly doubt my VR counselor will pay anything towards the cost of a

> second CI. Even when I requested a BrailleNote for use with realtime

> captioning at school, she was reluctant to pay the cost. She's an

> excellent

> counselor, but tends to be very careful about how and where money is

> spent.

> For now I'm going to see what kind of response we get from Medicaid and

> Medicare. My surgeon doesn't anticipate any problems with approval. I hope

> he's right!! <smile> I should receive an answer one way or the other

> within

> the next several weeks.

>

> I hope to go bilateral very soon. My digital hearing aids stopped working

> again (for the 5th time since 2001). One of the aids is exhibiting the

> same

> symptoms it did back in June/July which is indicative of a problem with

> the

> internal amplifier. The other aid has a damaged microphone that causes

> sound

> to fade in and out. The microphone has been repaired several times yet

> continues to give me problems. I've given up on these aids. It's hard to

> believe my analog Oticon 380Ps that are over 10 years old have never

> needed

> repair and continue to work perfectly to this day.

>

> I told my CI audi I've given up on the digitals, but will continue to wear

> my analog. Fortunately I have two of them, so if one needs repair, I still

> have the other. Thank goodness for small favors. LOL!

>

>

> Implanted: 12/22/04 Activated: 1/18/05

> Deafblind/Postlingual

> BTE hearing aid user 20 years

> Severe-profound hearing loss 10 years

>

>

>

>

>

>

[Guest guest]

This is only speculation. However, VR might very well say an emphatic

no. What will it be if you don't become a self advocate and at least ask?

No! Larry

Re: Re: financial help for those without

> ,

> I'd be surprised if VR really pays the 20% or even a fraction of that

> given how tight VR budgets are all across the country. I also am

> skeptical

> if it matters what status their case is in. As you know all too well, its

> like pulling teeth to even get basics paid for let alone have VR pay,

> what,

> $10.000 towards surgery costs.

>

> *---* *---* *---* *---* *---*

> I just broke up with someone and the last thing she said to me was,

> " You'll

> never find anyone like me again! " I'm thinking, I should hope not! If I

> don't want you, why would I want someone like you? "

> --Larry

> & Dreamer Doll (Guide Dawggie)

> Newport, Oregon

> N24C 3G 8/2000 Hookup

> rclark0276@...

> http://webpages.charter.net/dog_guide/ NEW Home Page!

>

>

>

>

[Guest guest]

Larry,

LOL Have you ever had your questions answered with questions instead of

answers? I told you that you did not need my background. You dont need to

know how much sight I have or what methods I use for communication. It is

irrelevant. Let me worry about communications with Medicare or whomever I

talk to. I asked simple and direct questions. The approach to Medicare is

the same regardless of whether I am sighted or total. So, again, will you

answer my questions without playing your self advocate game? We are not

sitting in on a seminar on how to advocate so lectures are not appropriate.

If you dont know, then say so. If you dont want to help the deafblind, say

so. And by the way, why the fixation on " totally blind " ? Does it make any

difference that I am not totally blind?

*---* *---* *---* *---* *---*

The sooner you fall behind, the more time you'll have to catch up.

--

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

And by the way Larry, if you really understand my frustration, why dont

you just be a nice fella and give me answers? Or would you rather talk to

, who is too nice to become hostile? She and I have the same questions,

yet you still cannot or wont give the answers we seek? Its sort of like

playing 20 questions.

*---* *---* *---* *---* *---*

Wait...I'm trying to imagine you with a personality.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!