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Re: Tinnitus and sound boost?

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You're not crazy! My experiences are similar. Sometimes I get this when I

have a slight head cold.

In a message dated 10/1/2005 11:32:00 AM Eastern Standard Time,

cindy4baskets@... writes:

Even after the tinnitus has subsided, it

seems I hear more loudly than I did prior to the onset of the

tinnitus...has anyone else experienced this or is it just crazy me? :)

Freedom, 9/21/05

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,

You are not alone...

I started experiencing very infrequent sporatic episodes of such events some 5

months after surgery. There seems to be no rythme or reasons for it. It first

started when it awoke me from a very sound sleep and I then realized it was

happening. It scared me to death (at first having no idea what was going and

everything has been quiet up to this point when not wearing my CI device) but it

subsided slowly over two hours or so and it stopped. Since then, I have had

maybe less than a dozen episodes of various intensities but nothing quite like

the first. Like you, I notice along with the " tinnitus " that I hear much louder

as well. Typically, it is not so loud that I have to change my volume setting.

I did have an episode (an early one) where I did do just that.

I have a hunch there may be a correlation (for me anyway) when I have drainage

issues in my eustachian tube. I'm thinking possibly when I have lots of

drainage that there is some pressure internally that could trigger this from

time to time. Since, it is very infrequent, I'm not inclined to worry about it

too much right now. I have mentioned it to my Audi and she wanted me to see the

Doctor about it. I told her I wanted to wait to see what transpires and since

it is rather seldom. We will see but as I said earlier I'm not too concerned at

the moment.

Dale

<cindy4baskets@...> wrote:

Hi Everyone,

Hope you are all having a good weekend!

Something that I am noticing, is that since my surgery, I had episodes

of roaring tinnitus. Since I was activated, they are becoming less.

One thing that I notice (unless I am absolutely out of my tree, which

is quite possible, LOL) is that during the tinnitus, it seems I get a

huge boost in sound level. Even after the tinnitus has subsided, it

seems I hear more loudly than I did prior to the onset of the

tinnitus...has anyone else experienced this or is it just crazy me? :)

Freedom, 9/21/05

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Dale and ,

I also have problems with blocked Eustachian tubes and allergies. From what

my ENT told me, tinnitus is one of the symptoms of an ear infection and can

be an indicator of drainage and/or blocked Eustachian tubes. Oddly enough,

tinnitus has never been a problem for me. I've experienced mild episodes in

my left ear that only lasted for a minute or two, but nothing that required

medical treatment. However, following my CI surgery I did experience severe

tinnitus that was quite bothersome to me. Mine alternated between a high

pitched beep, ocean/whooshing sound and freight train. Just when I became

used to one sound, it changed to another. :( It was so bothersome to me that

I asked my surgeon to prescribe something to help it subside or go away

completely. He prescribed Prednisone, but after learning about the possible

side effects, I decided to wait it out since I only had a week before

activation. I continued to experience tinnitus after my activation (whenever

I removed my speech processor). It improved over time and although it's

something I still experience, it now equates to a fan turned on low speed

and is something I can easily ignore.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

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, I never had tinnitus until my hearing worsen in July of this

summer. When I first got tinnitus it took me 3 days to get used to

it. It varies in pitches, from soft to loud. Sometimes the noise gets

quite loud, like a train whistling or buzzing humming noise, it

drowns out the sounds around me. It drove me nuts in the beginning. I

couldnt sleep well either.

I still have tinnitus constantly (never went away) and I was going

nuts as there is no escape from it. I read online that there is no

cure for it although there are herbal or medicinal remedies to relief

temproarily. I had to learn acceptance and to ignore tinnitus. I

have learnt very well by now how to ignore it. At one point I got

extreme headache and nausea because of it. I took gravol and slept

through it.

Now I am so used to tinnitus that sometimes I forget it's even there.

Shoot, when I hear about your experience with tinnitus , I

thought having CI will make tinnitus go away once I can hear sounds

better.

How many of you who are profoundly deaf in both ears have tinnitus?

Do they go away after a while, or do you get it for the rest of your

life?

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Nora,

You said, " I thought having CI will make tinnitus go away once I can

hear sounds

better. "

It may or may not go away but the CI can mask the tinnitus. No way to

know the outcome but the masking can help. I am more aware of tinnitus when

its quiet or the CI is off. Sometimes its made worse, in my case, by

caffeine. So I quit drinking coffee on a regular basis but have to have a

mocha now and then.

*---* *---* *---* *---* *---*

Never miss a good chance to shut up.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

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I have always had tinnitus and still do with the CI. The Ci does mask

tinnitus, but in my case it is the sound I hear with the Ci. The tinnitus is

still there, but faintly when I hear sound. At night when my processor is off,

it is as loud as ever.

Implanted with N22 in 12/88, activated 1/29

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

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lil'nora77,

Unfortunately, there is no guarantee that having a CI will eliminate

tinnitus. When I had tinnitus following my surgery, my surgeon and audi told

me it would get better once my CI was activated, but may never disappear

completely. They were right. My tinnitus has improved significantly, but is

still there whenever I remove my speech processor.

I hope that when you have CI surgery, it will help improve your tinnitus (or

help to mask it). My tinnitus went from being very loud and intense (freight

train, ocean/whooshing sound, high pitched beeping) to an ocean/whooshing

sound that equates to a fan turned on low.

Some people have taken medication to ease tinnitus, but I don't know how

well that works. I hope your tinnitus improves to some extent after having a

CI. I know how irritating it can be and am looking forward to the day when

they find a cure!

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

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> How many of you who are profoundly deaf in both ears have tinnitus?

> Do they go away after a while, or do you get it for the rest of your

> life?

Hi Lil_Nora

I am profoundly deaf in both ears, didn't have tinnitus until I

started to lose my hearing. My tinnitus worsened after I got a CI, I

hear humming constantly but when I wear my CI it's not that noticeable.

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Nora,

Tinnitus used to keep me awake at night for years. I would focus on a peaceful

scenery, such as a waterfall to blend in with the tinnitus so I could go to

sleep. After bilateral CI surgery, it sounded like freight trains running

through both ears lasting a few seconds but seemed like forever at the time. At

hookup, the right ear was mild but it took longer for the tinnitus to calm down

in the left ear. Now I hardly notice it anymore unless we are talking about it

or I have sinus/allergies. Even at night after I pull my CI's off it is only

mild. Guess I am one of the lucky ones.

Sharon Myers

Bilateral CI

**************************

How many of you who are profoundly deaf in both ears have tinnitus?

Do they go away after a while, or do you get it for the rest of your

life?

---------------------------------

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Click here to donate to the Hurricane Katrina relief effort.

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