Re: Kendall's ortho appt. - fontanels

[Guest guest]

I agree with Kendra!! CT SCAN!!! I hate to put doubt in any mom's

mind but doctors don't know it all. As most of you know Leigha did

have cranio but we went through months of 6 peditricians telling us

Leigha's head was fine it would just round out once she could sit

up. Then at 5 mths old when her anterior fontanel was barly the size

of a dime we were told that sometimes it was normal for the fontenel

to close early and lets just keep an eye on it. No test, no x-rays,

and plenty of people in my family telling me that Leigha was fine

that her head wasn't that awckward. I don't know if it will turn out

cranio or turn up nothing Debbie but please push for a CT scan!

Sometimes doctors like to think they know it all and presume if they

can't quite put their finger on it then it probably is nothing.

Believe better safe than sorry!!!

Hugs and prayers that all it is is cranio.

Mel

> Debbie:

> I hate to spark the worry in a Mommy (it's soooo easy to do!!! ;o)

but I just want you to be sure. The wording of your post piqued

my " CT scan " instinct!! ;o)

> Hanna didn't have any tests done either, and we too went thru

the " does she have cranio " thoughts, but seeing as we did she changes

in her head shape thru therapy, and she showed all of the " classic "

signs of plagio, I'm sure she's just fine! It's simply a mother's

prerogative to be a worry wart (and to push for answers and concrete

evidence if needed to settle the mind!)

> Let us know what you find out! )

> Kendra in Canada

> www.plagiocephaly.org/support/

> Plagiocephaly/join

> http://geocities.com/kendraandhanna/

> ----- Original Message -----

> From: dhands1@h...

> Plagiocephaly@y...

> Sent: Saturday, September 08, 2001 1:42 PM

> Subject: Re: Kendall's ortho appt. - fontanels

>

>

>

> > What makes you say the fontanelles are closed? Was there an X-

ray

> or CT scan? Usually this is an indication of craniosynostosis.

I

> encourage you to ask your orthotist/neurosurgeon to explain what

s/he

> means by this statement. If there is any uncertainty, and there

were

> no scans done, I would suggest taking that next step.

> > Kendra

>

>

> Kendra, this was determined by her ped., but not by X-ray, just

by

> feel, so I'm guessing it may not be COMPLETELY closed, but very

> close. Typically, the posterior fontanel closes around 3 months

and

> the anterior one begins closing around 9 months and most babies

are

> completely closed by 18 months. When her ped. said it was closed

I,

> of course, FREAKED OUT thinking cranio. Still no x-rays have

been

> done, but I have asked her ped,. her craniofacial specialist, and

her

> ortho. about it and they all say that closed at 9 months is

early,

> but on the early side of normal (anywhere between 9-18 mo. is

> considered normal). And, they all say that the soft spot being

> closed does not mean that the sutures are closed. Of course, as

I am

> sure it does with most plagio moms, the cranio thought lurks in

the

> back of my mind, and this didn't help. No one we have seen so

far

> thinks she has cranio, but of course they didn't do any tests.

I'll

> be sure to push the subject again at her ortho appt. next week

and

> her next craniofacial appt. Thanks for giving ME a little push.

>

> Debbie

>

>

>