Repost: Bracheocephaly vs plagiocephaly

[Guest guest]

Thanks all again for all the answers. was on and off the

helmet

for 2 days (skin check) and we have decided to leave

it off for today

until we

go to the DOC clinic tomorrow. I never thought there

will be so many

problems.

:-)

First of all, there are red spots, not too many, just

around 2 that

would go

away in an hour if he worn it for 2 hours but it he

worn it for 3

hours or

more, the spot wouldn't go away in an hour. Last

night before going to

bed, we

took the helmet off and the red spot got so bad it

took 12 hours to go

away!!!

So we decided to leave the helmet off today.

Secondly, I know my son's case is a little more

difficult than others

because

he has hemifacial microsomia which causes flatness in

his left face.

For some

reason, he only worn the helmet for maybe 15 or 16

hours combined but

I

already feel the asymmetry in his face is getting

worse!! I just

looked at his

helmet carefully and I have some questions.

The outer " shell " of his helmet is asymmetric, shaped

just like his

head, is

this the case for everybody?

Ok, this half of this message is written after we

visited the clinic

today. I still have some questions. I have told them

all the

concerns and they had made adjustments the helmt but

still the helmet

is very close to his eyes and it kinda squeezes them

and make the

right one droopy. The sides of the helmet go all the

way down to below

his nose level and are very tight on the cheeks. Is

that the case for

everybody?

They told me the helmet has to sit on the eyebrow for

support but

s' goes lower than that. And you know how

baby has chubby

cheeks, the sides of the helmet kind of tight on that

as well. THey

told me that's also for support. I just want to see

how everybody's

helmet is like and whether this will affect the

growth and shape of

the eyes and cheeks.

Also, the plastic surgeon said has

plagiocephaly

but the clinic, after measuring and molding his head,

classified it as Bracheocephaly. How does it affect

the

correction and the making of the helmet? Thanks in

advance again for

all the help!!

Mic

[Guest guest]

I know that the terms can be confusing. I imagine that what has happened is that the ps has said plagiocephaly, referring to the general term positional plagiocephaly or deformational plagiocephaly, which refers to why the skull has the shape. The clinic has used the term bracheocephaly referring to the shape of the skull (flatness at the back with corresponding bossing at the front). Does this sound about right?

Sorry I can't help you with the helmet questions.

-----Original Message-----From: korea_10017@... [mailto:korea_10017@...]Sent: Thursday, 6 September 2001 3:39 AMPlagiocephaly Subject: Repost: Bracheocephaly vs plagiocephalyThanks all again for all the answers. was on and off the helmet for 2 days (skin check) and we have decided to leave it off for today until we go to the DOC clinic tomorrow. I never thought there will be so many problems. :-) First of all, there are red spots, not too many, just around 2 that would go away in an hour if he worn it for 2 hours but it he worn it for 3 hours or more, the spot wouldn't go away in an hour. Last night before going to bed, we took the helmet off and the red spot got so bad it took 12 hours to go away!!! So we decided to leave the helmet off today. Secondly, I know my son's case is a little more difficult than others because he has hemifacial microsomia which causes flatness in his left face. For some reason, he only worn the helmet for maybe 15 or 16 hours combined but I already feel the asymmetry in his face is getting worse!! I just looked at his helmet carefully and I have some questions. The outer "shell" of his helmet is asymmetric, shaped just like his head, is this the case for everybody? Ok, this half of this message is written after we visited the clinic today. I still have some questions. I have told them all the concerns and they had made adjustments the helmt but still the helmet is very close to his eyes and it kinda squeezes them and make the right one droopy. The sides of the helmet go all the way down to below his nose level and are very tight on the cheeks. Is that the case for everybody? They told me the helmet has to sit on the eyebrow for support but s' goes lower than that. And you know how baby has chubby cheeks, the sides of the helmet kind of tight on that as well. THey told me that's also for support. I just want to see how everybody's helmet is like and whether this will affect the growth and shape of the eyes and cheeks. Also, the plastic surgeon said has plagiocephaly but the clinic, after measuring and molding his head, classified it as Bracheocephaly. How does it affect the correction and the making of the helmet? Thanks in advance again for all the help!! MicFor more plagio info