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Hi everyone,

My son has been in his helmet now for two weeks and I just wondered

if it is normal that it moves around on his head. We try to keep in

centered but when he sleeps, it does push toward the side of his head

he is sleeping on. I can't imagine fastening the chin strap any

tighter around because it would be very uncomfortable. I am hoping

that it this loose fit is due to the fact that he is growing into the

helmet. Any input would be helpful! Thank you so much. I enjoy

checking all the posts and knowing all you other mothers are out

there.

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,

I would give it one more week and if it is still sliding around alot I would

get back in to the orthotist for an adjustment. If you have an appointment

coming up soon you should definately mention your concern. In the meanwhile I

wouldn't worry about tightening the chin strap and the sliding should be ok

as long as it isn't sliding into his eyes. You're right though, the way the

helmet fits will change everytime your baby has a growth spurt.

Marci (Mom to )

Oklahoma

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Hey - a little looseness is to be expected- if it is falling

off or spinning sideways then it is definitely too loose and I would

call your ortho right away. They do need a little head room to grow

into it but you still want it in the right place. I'd call the ortho

just to be sure- never feel bad about calling them it always made me

feel better. Welcome to the group and good luck with your little

pumpkin.

Beck

mom to brian

doc grad

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  • 3 months later...

Hi Dana- Grace has a locally made helmet from Primary Childrens Hospital here and the total cost for the helmet and visits etc is $637. We have had incredible success with her helmet she has almost been in it for 2 months and we started noticing a difference right away. I can't speak for everybody who has had a locally made helmet I am sure it all depends on the orthotist and their level of expertise but our experience thus far has been wonderful and her head is looking so beautiful!! and Grace

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Dana,

We have a lot of members who have used a locally made helmet. Just

as with a DOC or STARband, most have had wonderful results, it all

depends on the expertise of the ortho/clinician. Prices vary because

the ortho is able to determine the cost on their own, depending I

assume on materials, expertise and labor..the same is true for the

STARbands.

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi all,

> I recieved some info today from the Cranialfacial program where

> will be going on March 6. They said that the helmet will cost

> approx. $500. Any idea why there is such a discrepecy in prices

for

> the helmet? It kind of makes me nervous.. like locally made

helmets

> don't work or something. Has anyone had any success with a local

> helmet?

>

> Thanks again.

> Dana (mom to )

> Ont.

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Dana, My daughter Makenna has been in her localy made helmet for 2

weeks, and i swear i'm already noticing some progress! she actually

has a bump at the base of her skull now, instead of just a flat head!

and she is begining to round out some too. SO far i am very pleased

with this helmet. Its cost was $650, but insurance paid all but $250

for us. When we decided to go ahead with the helmet, i too was

worried that it wouldnt work as well as a band but so far so good.Let

us know how things go!!

Illinois.

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Dana:

We have several members of our group who have had success in a

locally made helmet. It is true that most members in our group have

or had use a DOCband or STARband which do cost more than locally made

helmets. I see you've gotten good responses from others already. It

all depends on the orthotist who will be treating your child. Make

sure he has had experience in treating plagio with their helmets

before.

Debbie Abby's mom DOCGrad

MI

> Hi all,

> I recieved some info today from the Cranialfacial program where

> will be going on March 6. They said that the helmet will cost

> approx. $500. Any idea why there is such a discrepecy in prices

for

> the helmet? It kind of makes me nervous.. like locally made

helmets

> don't work or something. Has anyone had any success with a local

> helmet?

>

> Thanks again.

> Dana (mom to )

> Ont.

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Dana,

My daughter wore a locally made helmet that cost us $700. It worked very

well. We asked the ortho about the low price and he explained that because he

works for a University Hospital (a research hospital) they sold the helmet to

us at cost (no profit) because the helmet was part of research project he was

involved with. That was the rationale there. We were very pleased with the

helmet - it was a passive device rather then a dynamic band, but we got some

very good correction despite a somewhat late start.

Good luck and I hope this helps!

Marci (Mom to )

Oklahoma

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