Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 LOL I wonder if there is something we can do to softn that tissue. I know that simply rubbing a scare can make it fade (has to do with the redistribution of cells I think) but I wonder if that works with tissue as opposed to skin? I keep feeling mine too loltkbartek@... wrote: Mine doesn't hurt, but around the scar it is very hard, ( I think that is just scar tissue) and I can't stop feeling on it, it feels kinda weird, but it isn't sore, maybe I just have more fat around it and it hasn't surfaced yet. lol Tracie B. Sell on Auctions - No fees. Bid on great items. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 LOL, funny, not sure if it will go away, in time it will, hopefully, my husband rubbed up against me earlier and was like, ehhh what is that. Tracie B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Carole, I have heard of flipped ports, but I think is pretty hard. I don't think clothing has anything to do with it. I think it has to do with how well the surgeon anchored the thing in the first place. I am almost 3 years out. I do everything (roller coasters, running etc) and have had nary a problem. Donna Donna http://blog.myspace.com/schnauzergirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 The port is sutured down on 4 sides to the thin covering of the abdominal muscle (the fascia) , so it's pretty hard for it to turn. But if the sutures pull out or break before the scar tissue that also holds the port in place is formed, it CAN turn or flip. That's one reason it's impt to not lift over 10# and avoid abdominal exercises for the 6-week healing period. Usually, with other laparoscopic surgeries, none of these limits are needed, but when a port is trying to heal for a lifetime of use, it's very wise to follow them, IMO. Tight clothing cannot move the port, but it does add pressure to the area and that caqn cause some irritation or even breakdown of tissue, so it's good to avoid tight clothing that presses on the port area. In Europe, some of the docs feel that suturing the post is not needed at all. then, if it turns, it can sometimes be manually re- positioned. Even if a port turns, it is fine as long as it is accessible. If it is not accessible, it will require surgical re- positioning - and this is a quick outpatient procedure that is rarely a big deal. Sandy R > How easily does a port flip, turn or anything else? Can wearing to > tight clothing flip a port? > > carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 , Thanks for writing! That's what I was hoping to hear! Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma, GERD, immunodeficiency-SCIG, and now adrenal insufficiency), Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided), Evan (11, asthma and mild hearing loss/unaided), and Kelsey - (9 going on 19!) >From: Nanashmar@... >Reply- > >Subject: Re: Digest Number 2558 >Date: Wed, 10 Aug 2005 19:09:21 EDT > >Ashton has had her port for over a year now. She loves it. We numb it prior >to the infusion. She has not had any infection in it. She is thin, but you >really can't see it. >She thinks it was a good idea. She was a terrible stick. The doctor who put >it in, said she can still play soccer. It is very low profile. > L >Mom to Ashton 12 CVID, Asthma & Dyslexia Marina 9 Asthma > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 My thoughts for what they are worth is if the surgeon has a negative attitude no matter what kind of surgeon they are, you may want to reconsider. Having said that, Brittany's size is within the female adult range. I would ask the surgeon how many ports he has placed. I can also tell you from experience there will be a scar. Depending on how fair Brittany is and how her skin heals it could be fairly large and ugly. Both of my boys ended up with some raised scar tissue but they are boys and wear the scars as a badge of courage. Do I regret having had ports placed, NO WAY! Would I do it again with the emergence of sub q, probably only if sub q failed. It's a tough call, believe me I know. What does Brittany want? Kris > Does everyone think it's ok to let a adult surgeon put in a port on Britt? > She is 14 almost 15, but she is only 97 lbs and 5'3 inches tall. He said we > will be able to see it on her chest and she wasn't too happy about that at all. > > > Janet, Mom to Brittany, CVID, age 14 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 My thoughts for what they are worth is if the surgeon has a negative attitude no matter what kind of surgeon they are, you may want to reconsider. Having said that, Brittany's size is within the female adult range. I would ask the surgeon how many ports he has placed. I can also tell you from experience there will be a scar. Depending on how fair Brittany is and how her skin heals it could be fairly large and ugly. Both of my boys ended up with some raised scar tissue but they are boys and wear the scars as a badge of courage. Do I regret having had ports placed, NO WAY! Would I do it again with the emergence of sub q, probably only if sub q failed. It's a tough call, believe me I know. What does Brittany want? Kris > Does everyone think it's ok to let a adult surgeon put in a port on Britt? > She is 14 almost 15, but she is only 97 lbs and 5'3 inches tall. He said we > will be able to see it on her chest and she wasn't too happy about that at all. > > > Janet, Mom to Brittany, CVID, age 14 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 My son (Specific Antibody Deficiency) is on his second port, his first was put in at age 3 1/2 (because the nurses had to restart his IV 10 times with him screaming at the top of his lungs for one infusion, his veins kept collapsing because he had blood drawn and treatments too many times) up until this time I was reluctant to have it put in because it is surgery and surgery can be scarry. He had one faint appx. 1 " scar and one faint appx. 1/4 inch scar. After having it in we apply emla cream over the port 30 minutes before and he does not have any pain with the needle going in just a little pressure. He had this port in for 2 years. The first port was taken out because his immune system went within the normal range, and stayed that way for 6 months he was subsequently well for 2 1/2 years before his antibodies dropped again the Specialists thought he had outgrown it until he dropped again. We had his second port put in and this time the same surgeon put it in appx. 1/2 over from where the first one was put in and he developed a large thick red blister looking scar that has remained there since. I was concerned it could be an infection because it was so red and swollen but the doctor tells me it sometimes happens with scars and they could attempt to remove it but it may come back worse so we let it be, it does not really hurt just annoying. The benefit for my son in having the port is less pain and being able to have his IVIG treatment with just one needle prick. It made a huge difference for him. I hope this helps, Babs -- Port Does everyone think it's ok to let a adult surgeon put in a port on Britt? She is 14 almost 15, but she is only 97 lbs and 5'3 inches tall. He said we will be able to see it on her chest and she wasn't too happy about that at all. Janet, Mom to Brittany, CVID, age 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 My son (Specific Antibody Deficiency) is on his second port, his first was put in at age 3 1/2 (because the nurses had to restart his IV 10 times with him screaming at the top of his lungs for one infusion, his veins kept collapsing because he had blood drawn and treatments too many times) up until this time I was reluctant to have it put in because it is surgery and surgery can be scarry. He had one faint appx. 1 " scar and one faint appx. 1/4 inch scar. After having it in we apply emla cream over the port 30 minutes before and he does not have any pain with the needle going in just a little pressure. He had this port in for 2 years. The first port was taken out because his immune system went within the normal range, and stayed that way for 6 months he was subsequently well for 2 1/2 years before his antibodies dropped again the Specialists thought he had outgrown it until he dropped again. We had his second port put in and this time the same surgeon put it in appx. 1/2 over from where the first one was put in and he developed a large thick red blister looking scar that has remained there since. I was concerned it could be an infection because it was so red and swollen but the doctor tells me it sometimes happens with scars and they could attempt to remove it but it may come back worse so we let it be, it does not really hurt just annoying. The benefit for my son in having the port is less pain and being able to have his IVIG treatment with just one needle prick. It made a huge difference for him. I hope this helps, Babs -- Port Does everyone think it's ok to let a adult surgeon put in a port on Britt? She is 14 almost 15, but she is only 97 lbs and 5'3 inches tall. He said we will be able to see it on her chest and she wasn't too happy about that at all. Janet, Mom to Brittany, CVID, age 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 In a message dated 9/7/2005 12:47:16 A.M. Eastern Daylight Time, k.mcfalls@... writes: What does Brittany want? She wants it bad because she has to get her IVIG and they can no longer access her veins! She was sick in the hospital last weekend and needed a IV and they couldn't get one started, no place not even her legs. The doctor has put in many in cancer patients. Janet, Mom to Brittany, CVID, age 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 I would think the adult surgeon would be fine. It was an adult surgeon who came in to do a cut down on when he was so sick with rotovirus and we hadn't been able to get a peripheral in..I'm comfortable with the surgeons here, but that is probably because I work with them in the PACU.. My 80+ aunt had a port and you could see it, I think most of the time they are slightly visible..but then she wouldn't have the bruises, etc from the IV " S either...I could only see my aunts when she was undressing, etc. Her's was right around where the bra strap came up and she would put a soft cloth underneath. Ask the surgeon how many kids he does, ask if she can talk with another child, Ask if Child Life can help you out... Hope that helps. Re: Re: Port In a message dated 9/7/2005 12:47:16 A.M. Eastern Daylight Time, k.mcfalls@... writes: What does Brittany want? She wants it bad because she has to get her IVIG and they can no longer access her veins! She was sick in the hospital last weekend and needed a IV and they couldn't get one started, no place not even her legs. The doctor has put in many in cancer patients. Janet, Mom to Brittany, CVID, age 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 My son had his port placed in September 2005, he was 11 years old then too. The children's hosptial where he had his surgery, has a learning center/library. We went there a few days prior to the surgery and they had a children's video about ports explaining what they are and kids on the video talking about how they feel with it. We were able to check out the video and take it home with us so he watched it several times and we returned it on the day of the surgery. Good luck to you both, has done better with the port since he doesn't get 'poked' as many times. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2007 Report Share Posted August 2, 2007 Hi all, i was wondering if anyone ever had slight discomfort at port site for no apparent reason. i was at work today and for absolutely no reason it just sorta hurt. it lasted for alittle while. it wasnt bad, just noticable. dawn m dob 2/3/07 280/240/140 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.