Tricia

[Guest guest]

P wrote:

> From: " P " <butterfli30@...>

>

> Marcia: Here are the two sites I had:

> http://members.aol.com/cfseng/kidsfids/cfs.html and

> http://members.aol.com/harvestctr/pps/polio.html

>

> As Suzy stated in an earlier mailing, the condition is " post polio " . I

> hope this helps a bit. Tricia

Thanks so much Tricia! Will look at them tomorrow and see what I can learn!

Marcia

[Guest guest]

Hi...I have the same problem with my knees...it goes on for weeks many times

a day and then goes for a while..what causes it?? my doc wont dx w/o an MRI

and I don't have insurance so testing is on the back burner for now..

[Guest guest]

have had still's for 7 years now. right now just taking naprosyn and pain

and sleep meds...the original message had something about knee buckling and

injections and I was curious as to what it was cause I get that all the time

and it is driving me NUTS..

Thanks a bunch

[Guest guest]

Nope, he refuses to put me on the list. I'm

thinking he's ready for my " list. " Not a good

thing...

My family doc doesn't do anything when it

comes to prescribing things like MTX or

Enbrel. Perhaps he can't for reasons by law.

Otherwise he is a gem.

Yes, Carmen..I take Codeine, but it doesn't

work very well to cover up the bad pain.

I'm looking forward to meeting you and the others

at the Wisconsin get-together. Hoping I'm not too

sick on those days. That's a big negative with this

dragon. Plans have to be squashed so often, and

many times at the last minute too.

Bet that new babe is sweetheart!! You can give

him lots of hugs while sitting down! )

Hugs, tricia

-- Tricia

Tricia, Tricia, Tricia.........

I can't believe that a doctor would not put you on the waiting list for

Enbrel. How about checking with your regular doctor? I don't think my

regular doctor knows much about Enbrel but when I go see him for something

other than Stills related and he sees I am taking Enbrel, he just looks at

me

and smiles and nods so I take that as a positive thing. Or like you say, go

look for another Rheumatologist. If you have to drive a distance, but still

like the guy/gal, it will be worth it. Just pretend you are driving to the

mall to replace your whole wardrobe and the time will fly. To me, there's

nothing like a good day's shopping and I miss it a lot now. (

I don't know if inflammation causes swelling but I always thought it did.

Where I hurt, I swell. I have an appointment Thursday with my Rheumatologist

and shall try to remember to ask him that question.

My husband is going to Canada to visit friends for a few days so I shall

have

the house to myself and peace and quiet. He'll be back on Monday and then we

have company for three days and then off to Wisconsin. I sure hope you'll be

able to make it! Do you take pain pills for your pain? My knees are getting

to the point of buckling without warning and I'm wary about holding our new

grandson unless I'm sitting down now. I think I might ask my Rheumatologist

about a couple of shots in the knees. He told me I couldn't have them too

often so I'll have to see if it's time again now. The injections only work

for a couple of weeks but those couple of weeks are so fantastic!

Here's to a better night for you..... )

xxoo

Carmen

[Guest guest]

Hi ,

Wouldn't it be great to have answers to our questions

about this disease??? So many questions..so few

answers!

, how long have you had the Stills?? May

I ask what meds you are on..?

Also, thank goodness, I am blessed to have medical

coverage. That is something that upsets me no end.

There are so many folks who *need* help with meidcal,

and aren't getting it.

I know it won't help much, but here's a big hug and please

know I care! ((((((((((((((((((((((())))))))))))))))

~~tricia~~

-- Re: Tricia

Hi...I have the same problem with my knees...it goes on for weeks many times

a day and then goes for a while..what causes it?? my doc wont dx w/o an MRI

and I don't have insurance so testing is on the back burner for now..

[Guest guest]

Hi again ,

Perhaps you would feel more comfortable trying

the drug Kineret?? It requires an injection daily,

but..this still might not seem quite as invasive as

the Remicade.

Still running temps. no, the dragon is not sleeping.

Are the breathing problems due to inflammation

around the lungs??

The final decision is up to you , but, Im

thinking I'd rahter try the Kineret....but ..then,

what if the Remicade was your miracle drug??

My heart goes out to you, because this is not

an easy thing to decide is it??

Your friend..tricia

-- Tricia

Hi Tricia

I am taking MTX 15mg now, was at 20mg but side affects were bad, prednisone

15mg, 2 different inhalers(10 hits a day), Leucovor (similar to folic acid).

My breathing problems are most of my concern. No, I don't feel the disease

is under control, the only difference between my onset and now is my fevers

are only 101-102 instead of 106+. AOSD seems to have kicked my butt

differently than most. I was 43 at the onset, I am 46 now, so much for not

affecting folks over 35. I am in the small percentile I guess. Anyway,

thanks for your response.

rjones202@...

[Guest guest]

,

My daughter is 13. Her breathing becomes affected also when she

flares. She requires 2 inhalers, she likes to call them puffers. The doctors

always say it is asthma, but she didn't have asthma until her last flare a

little over a year ago. she hasn't used them in quite a while but we

discontinued all her meds last week, due to a bad liver test and a couple days

later the rash and fever are breaking through and she is using her inhalers

again.

Just thought it interesting enough to share,

Take care and God Bless,

Suzie

<R202@...> wrote: Hi Tricia

I am taking MTX 15mg now, was at 20mg but side affects were bad, prednisone

15mg, 2 different inhalers(10 hits a day), Leucovor (similar to folic acid). My

breathing problems are most of my concern. No, I don't feel the disease is under

control, the only difference between my onset and now is my fevers are only

101-102 instead of 106+. AOSD seems to have kicked my butt differently than

most. I was 43 at the onset, I am 46 now, so much for not affecting folks over

35. I am in the small percentile I guess. Anyway, thanks for your response.

rjones202@...

[Guest guest]

Dear Suzie, Hi I have stills and JRA and have had it since age three. I

have had many flares and not until this last one did I now need the

inhaler. The doctor calls it " Adult onset Asthma " and am using a

nebulizer.

At first the Rheumy sent me to see a lung doctor who in turn did x-rays

and then gave me inhalers but they didn't always work, so he gave me a

nebulizer. He said to use it every four hours and I did for the first

two days but now I only need it once every other day.

Good luck and it will get better.

God Bless You All,

ette

suzie s wrote:

>

> ,

> My daughter is 13. Her breathing becomes affected also when

> she flares. She requires 2 inhalers, she likes to call them puffers.

> The doctors always say it is asthma, but she didn't have asthma until

> her last flare a little over a year ago. she hasn't used them in

> quite a while but we discontinued all her meds last week, due to a bad

> liver test and a couple days later the rash and fever are breaking

> through and she is using her inhalers again.

> Just thought it interesting enough to share,

> Take care and God Bless,

> Suzie

> <R202@...> wrote: Hi Tricia

>

> I am taking MTX 15mg now, was at 20mg but side affects were bad,

> prednisone 15mg, 2 different inhalers(10 hits a day), Leucovor

> (similar to folic acid). My breathing problems are most of my concern.

> No, I don't feel the disease is under control, the only difference

> between my onset and now is my fevers are only 101-102 instead of

> 106+. AOSD seems to have kicked my butt differently than most. I was

> 43 at the onset, I am 46 now, so much for not affecting folks over 35.

> I am in the small percentile I guess. Anyway, thanks for your

> response.

>

> rjones202@...

>

>

[Guest guest]

,

Talk to your doc about the possibility of having pleurisy. It's an inflammation

of the lining of the lungs. It would be extremely possible to have this as part

of any inflammatory condition such as Stills. The inhalers would help only

because they are usually inhaled steroids. Steroids, as we all know, work on

reducing inflammation. Your lungs may be perfectly fine. You might just be

having some inflammation of the lung lining. I've had it. It feels like a

pressure and something heavy sitting on your chest. If it hurts to take a big

deep breath, then that's a sign of pleurisy. Oh, and FYI, humidity will worsen

the symptoms and/or sometimes bring on the inflammation in the first place.

Jul

(lilac_rose@... )

Tricia

Hi Tricia

I am taking MTX 15mg now, was at 20mg but side affects were bad, prednisone

15mg, 2 different inhalers(10 hits a day), Leucovor (similar to folic acid). My

breathing problems are most of my concern. No, I don't feel the disease is under

control, the only difference between my onset and now is my fevers are only

101-102 instead of 106+. AOSD seems to have kicked my butt differently than

most. I was 43 at the onset, I am 46 now, so much for not affecting folks over

35. I am in the small percentile I guess. Anyway, thanks for your response.

rjones202@...

[Guest guest]

ette,

Thank you for your response. It seems a little more than a coincidence that

alot of us have breathing problems while in a flare. They have always written

christine's off as asthma, but I will see what the new doctor thinks.

Thank you and God Bless

Suzie

ginger sunshine <sweetpeas777@...> wrote: Dear Suzie, Hi I have stills and

JRA and have had it since age three. I

have had many flares and not until this last one did I now need the

inhaler. The doctor calls it " Adult onset Asthma " and am using a

nebulizer.

At first the Rheumy sent me to see a lung doctor who in turn did x-rays

and then gave me inhalers but they didn't always work, so he gave me a

nebulizer. He said to use it every four hours and I did for the first

two days but now I only need it once every other day.

Good luck and it will get better.

God Bless You All,

ette

suzie s wrote:

>

> ,

> My daughter is 13. Her breathing becomes affected also when

> she flares. She requires 2 inhalers, she likes to call them puffers.

> The doctors always say it is asthma, but she didn't have asthma until

> her last flare a little over a year ago. she hasn't used them in

> quite a while but we discontinued all her meds last week, due to a bad

> liver test and a couple days later the rash and fever are breaking

> through and she is using her inhalers again.

> Just thought it interesting enough to share,

> Take care and God Bless,

> Suzie

> <R202@...> wrote: Hi Tricia

>

> I am taking MTX 15mg now, was at 20mg but side affects were bad,

> prednisone 15mg, 2 different inhalers(10 hits a day), Leucovor

> (similar to folic acid). My breathing problems are most of my concern.

> No, I don't feel the disease is under control, the only difference

> between my onset and now is my fevers are only 101-102 instead of

> 106+. AOSD seems to have kicked my butt differently than most. I was

> 43 at the onset, I am 46 now, so much for not affecting folks over 35.

> I am in the small percentile I guess. Anyway, thanks for your

> response.

>

> rjones202@...

>

>

[Guest guest]

<R202@...> wrote:

I was 43 at the onset, I am 46 now, so much for not affecting folks over 35. I

am in the small percentile I guess. Anyway, thanks for your response.

rjones202@...

,

I guess we are two of a kind. I was 43 at my onset, or at least where my

symptoms became problematic enough for the doctors to decide to try to figure

out what is wrong with me. I have had fevers to 105 in the past for no reason,

but not since the onset in full force in November 2000. Since then, my temps

were 102+ daily, but never much over 103. I am taking two injections of MTX a

week for the combined total of 15 mg, 10 mg of Prednisone (I could most likely

take more, but I can't seem to take less) and now Bextra 10 mg twice a day. ( I

have tried Ibuprophen, Naprosyn, Aleeve, Salsalate, Viox, Celebrex, Relafin and

others. I do okay on them for a while, then get bad side effects.) I also take

Homocystine Formula (B vitamins and Folic Acid - 1 mg) Calcium and Vitamin D. I

have two prescriptions for Diabetic drugs (and some scripts for syringes,

lancets and test strips), and Two prescribed drugs for sleep. I have managed to

stay off the inhalers so far, but not for lack of need at times. They make my

heart race and I already have a pulse rate of 106-120. I take acupuncture and

herbs for my lungs and so far, so good. My father tells me my real problem is

that I have " C.U.S. " which stands for Chronic Unique Syndrome. I seem to be

collecting rare illnesses, and fall outside the standard rules for things...

like being over 35 when the Stills disease hit full force. I don't have the rash

either, but I have everything else. What a pair we are! Hope you make peace with

the Remicade thing. What NSAIDS are you taking for inflamation?

Smiles and warm wishes for today.

We may not be able to change the direction of the wind, but we can adjust our

sails.

Caroline

---------------------------------

[Guest guest]

I am 46 now and of course I have had it since age three. But I got my

last flare two years ago. So I don't understand why they say that. LOL

ette

C J wrote:

>

> <R202@...> wrote:

> I was 43 at the onset, I am 46 now, so much for not affecting folks

> over 35. I am in the small percentile I guess. Anyway, thanks for your

> response.

>

> rjones202@...

>

> ,

>

> I guess we are two of a kind. I was 43 at my onset, or at least where

> my symptoms became problematic enough for the doctors to decide to try

> to figure out what is wrong with me. I have had fevers to 105 in the

> past for no reason, but not since the onset in full force in November

> 2000. Since then, my temps were 102+ daily, but never much over 103. I

> am taking two injections of MTX a week for the combined total of 15

> mg, 10 mg of Prednisone (I could most likely take more, but I can't

> seem to take less) and now Bextra 10 mg twice a day. ( I have tried

> Ibuprophen, Naprosyn, Aleeve, Salsalate, Viox, Celebrex, Relafin and

> others. I do okay on them for a while, then get bad side effects.) I

> also take Homocystine Formula (B vitamins and Folic Acid - 1 mg)

> Calcium and Vitamin D. I have two prescriptions for Diabetic drugs

> (and some scripts for syringes, lancets and test strips), and Two

> prescribed drugs for sleep. I have managed to stay off the inhalers so

> far, but not for lack of need at times. They make my heart race and I

> already have a pulse rate of 106-120. I take acupuncture and herbs for

> my lungs and so far, so good. My father tells me my real problem is

> that I have " C.U.S. " which stands for Chronic Unique Syndrome. I seem

> to be collecting rare illnesses, and fall outside the standard rules

> for things... like being over 35 when the Stills disease hit full

> force. I don't have the rash either, but I have everything else. What

> a pair we are! Hope you make peace with the Remicade thing. What

> NSAIDS are you taking for inflamation?

>

> Smiles and warm wishes for today.

>

> We may not be able to change the direction of the wind, but we can

> adjust our sails.

>

> Caroline

>

> ---------------------------------

>

[Guest guest]

Hi your welcome. I too wonder if it's really asthma. I have had pleurisy

before and sometimes wonder if it's not that again. I do know that my

doctor told me because of the stills and all the JRA that my lungs do

not fill to their capacity. So I will always have a breathing problem.

LOL

God bless You All,

ette

suzie s wrote:

>

> ette,

> Thank you for your response. It seems a little more than a

> coincidence that alot of us have breathing problems while in a flare.

> They have always written christine's off as asthma, but I will see

> what the new doctor thinks.

>

> Thank you and God Bless

> Suzie

> ginger sunshine <sweetpeas777@...> wrote: Dear Suzie, Hi I have

> stills and JRA and have had it since age three. I

> have had many flares and not until this last one did I now need the

> inhaler. The doctor calls it " Adult onset Asthma " and am using a

> nebulizer.

> At first the Rheumy sent me to see a lung doctor who in turn did

> x-rays

> and then gave me inhalers but they didn't always work, so he gave me a

> nebulizer. He said to use it every four hours and I did for the first

> two days but now I only need it once every other day.

>

> Good luck and it will get better.

>

> God Bless You All,

>

> ette

>

> suzie s wrote:

> >

> > ,

> > My daughter is 13. Her breathing becomes affected also

> when

> > she flares. She requires 2 inhalers, she likes to call them

> puffers.

> > The doctors always say it is asthma, but she didn't have asthma

> until

> > her last flare a little over a year ago. she hasn't used them in

> > quite a while but we discontinued all her meds last week, due to a

> bad

> > liver test and a couple days later the rash and fever are breaking

> > through and she is using her inhalers again.

> > Just thought it interesting enough to share,

> > Take care and God Bless,

> > Suzie

> > <R202@...> wrote: Hi Tricia

> >

> > I am taking MTX 15mg now, was at 20mg but side affects were bad,

> > prednisone 15mg, 2 different inhalers(10 hits a day), Leucovor

> > (similar to folic acid). My breathing problems are most of my

> concern.

> > No, I don't feel the disease is under control, the only difference

> > between my onset and now is my fevers are only 101-102 instead of

> > 106+. AOSD seems to have kicked my butt differently than most. I

> was

> > 43 at the onset, I am 46 now, so much for not affecting folks over

> 35.

> > I am in the small percentile I guess. Anyway, thanks for your

> > response.

> >

> > rjones202@...

> >

> >

[Guest guest]

Our next set of shows aren't until the end of August. We have 8 days up in

Atlanta & , Georgia. Macavelli, our standard poodle will be coming back

out on the scene in adult trim. He has grown some serious coat the past

several months. Ths standard poodle show coats are so much work, but I love

them so much. My partner in shows, breeding & handling, Dawn just had major

surgery on her shoulder and so we took the rest of the summer off basically

to recover. Now when we get back out we will be there in full force with our

poodles and the toy manchesters. OH and before you ask, YES we will be

attending Westminster Kennel Club in February 2003. Gaenja Watch Over Me

a/k/a will be there and I am predicting now that we will win the

breed at Westminster in Madison Square Garden. If he doesn't then one of my

other dogs will be and I am soooooo proud to tell you I will have at least 4

of my offspring at the Garden next year!!!!!!!! WOOO HOOO!

Those of you that heard of my Ch. Lou-Gin Sophie Tucker whelped a litter of 6

about 12 weeks ago from Ch. Fwaggles Tapman at Burmack a/k/a Jake the number

1 TMT in the country and I believe he is in the Top 10 All Breed, but don't

quote me. He is a multiple Best In Show Winner and won the Nationals 2 years

in a row and the breed this year at the Garden. My Sophie knows how to pick

her hubbies. Better than I do. LOLOLOLOL

So, now that life has taken on a new path, I can devote myself expressly to

my dogs and maybe if I am lucky I'll meet some rich middle aged divorce or

widower. That would be icing on the cake!

Well, I will talk to you later.

Much love,

Terry

[Guest guest]

Does anyone know how to get in touch with Tricia that previously

maintained the MGB Friends site? I desperately want to ask her

something and I can't find an e.mail address for her. If you have

her e.mail address can you send it to me privately please? Thanks!

in GA

MGB 10/04/00

[Guest guest]

sandy,

the doc told me to give him gatorade, but brian cant drink anything with sugar

in it since he is on the ketogenic diet. when his twin was on the diet , after 3

months he had the same thing with the constant vomiitng but much worse and after

7 days of it the doc admitted him for pancreatitis. i then thought it was just a

bug as usual. that is why i wonder if maybe this is just our time to end this

diet. i could really care less if i weight another meal again! the suppositories

sound great, i will call tonight, maybe they can order some over the phone.

thanks so much!!

tricia

Tricia

In a message dated 3/7/2005 7:06:24 PM Pacific Standard Time,

EUMANAFAMILY@... writes:

he just took

a sip of water a few minutes ago and now i am cleaning it up off the floor.

he is probably gonna be dehydrated soon. at least i can sleep some what

peaceful tonight knowing that it could be the ivig and not neccesarily an

illness. thank you.

Tricia,

Have you tried other fluids such as Gatorade?? When my stomach is upset,

water is way to hard on it--I can't keep it down. Also, for next time, you

could ask the Doc to write you an RX for suppositories that will keep the

vomiting down. You could also call the Doc who is oncall tonight and let them

know

what is going on.

Meanwhile, hang in there!!

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, COPD, asthma, Carnitine deficiency,

GERD,

suspected Velocardiofacial syndrome.

[Guest guest]

sandy,

the doc told me to give him gatorade, but brian cant drink anything with sugar

in it since he is on the ketogenic diet. when his twin was on the diet , after 3

months he had the same thing with the constant vomiitng but much worse and after

7 days of it the doc admitted him for pancreatitis. i then thought it was just a

bug as usual. that is why i wonder if maybe this is just our time to end this

diet. i could really care less if i weight another meal again! the suppositories

sound great, i will call tonight, maybe they can order some over the phone.

thanks so much!!

tricia

Tricia

In a message dated 3/7/2005 7:06:24 PM Pacific Standard Time,

EUMANAFAMILY@... writes:

he just took

a sip of water a few minutes ago and now i am cleaning it up off the floor.

he is probably gonna be dehydrated soon. at least i can sleep some what

peaceful tonight knowing that it could be the ivig and not neccesarily an

illness. thank you.

Tricia,

Have you tried other fluids such as Gatorade?? When my stomach is upset,

water is way to hard on it--I can't keep it down. Also, for next time, you

could ask the Doc to write you an RX for suppositories that will keep the

vomiting down. You could also call the Doc who is oncall tonight and let them

know

what is going on.

Meanwhile, hang in there!!

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, COPD, asthma, Carnitine deficiency,

GERD,

suspected Velocardiofacial syndrome.

[Guest guest]

Hi Tricia,

I sure hope you are doing good. It took me at least a few months to really have

my energy level back after my esophagectomy last October 1st. After having an

open myotomy, followed by an esophagectomy, please don't be in a rush to return

to work. If you have any " dumping " issues, we all share stories quite openly

and offer advice on what works and what doesn't. I just recently discovered

that all the salad I was eating was causing me more grief than the health

benefits. I'm going to try 100% whole grains and a little less vegetables.

Please let us know how you are coping after your surgery and helpful hints are

always nice too!

I'm sorry, like Dawn, I didn't know you had your esophagectomy either. I hope

you have a lot of family support.

Take Care,

_________________________________________________________________

[Guest guest]

,

I am doing great. Had some dumping issues now it seems to have

subsided I avoid sugar and fat that seems to work I also have a

nutritionist that helps with out with this issue. How about you?

As for work my surgeon told me I could go back to work the first week

in September but I am returning the first week in October gave myself

another month I really could not work right now I get tired.

I have not been eating too much fresh fruits and vegetable I feel

guilty but they are way to gassy and make me uncomfortable. I do eat

whole grains the Kashi waffles are good make sure you use sugar free

syrup to avoid dumping.

Do you have reflux? I do not seem to be to bothered by that. Anything

else I should know about?

Thanks for your well wishes and I wish you the best.

Be Well

Tricia

> Hi Tricia,

>

> I sure hope you are doing good. It took me at least a few months

to really have my energy level back after my esophagectomy last

October 1st. After having an open myotomy, followed by an

esophagectomy, please don't be in a rush to return to work. If you

have any " dumping " issues, we all share stories quite openly and

offer advice on what works and what doesn't. I just recently

discovered that all the salad I was eating was causing me more grief

than the health benefits. I'm going to try 100% whole grains and a

little less vegetables. Please let us know how you are coping after

your surgery and helpful hints are always nice too!

>

> I'm sorry, like Dawn, I didn't know you had your esophagectomy

either. I hope you have a lot of family support.

>

> Take Care,

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

>

>

>

>

[Guest guest]

Hi Tricia,

No, I don't have any reflux at all! No more spasms since my surgery either.

Yes, the fruits and vegetables cause a gassy, bloated feeling. I've had to

change my diet. I like the Kashi waffles with peanut better, and I've been

eating 100% whole grain bagels too. I avoid sugar and dairy, but I miss my

milk! I can't even have 1/2 glass without the cramping. It sure is nice to eat

meat again after all these years. I never have a problem with pork chops, steak

etc.

Any way, I do have the option of seeing a nutritionist, but I seem to be doing

better at judging what I can have and what to avoid. Like said, I can

usually look back and say " I know I shouldn't have eaten that " .

Have a great day,

.

_________________________________________________________________

[Guest guest]

Hey ,

 

Sounds like you are doing good. I had cramping from milk and I switched to fat

free lactose free milk and it seemed to work. I do the same thing I do not

regret what I eat until 10 or 15 minutes after and I say why did I eat that but

it does taste so gooood and it does go down and stays down. Best thing of all no

tube up my nose..

 

I think tomorrow morning I am going to try the waffles w/peanut butter thanks!

 

Best Always

Tricia

RE: Re: Tricia

Hi Tricia,

No, I don't have any reflux at all! No more spasms since my surgery either. Yes,

the fruits and vegetables cause a gassy, bloated feeling. I've had to change my

diet. I like the Kashi waffles with peanut better, and I've been eating 100%

whole grain bagels too. I avoid sugar and dairy, but I miss my milk! I can't

even have 1/2 glass without the cramping. It sure is nice to eat meat again

after all these years. I never have a problem with pork chops, steak etc.

Any way, I do have the option of seeing a nutritionist, but I seem to be doing

better at judging what I can have and what to avoid. Like said, I can

usually look back and say " I know I shouldn't have eaten that " .

Have a great day,

.

____________ _________ _________ _________ _________ _________ _

[Guest guest]

wrote:

> ... I avoid sugar and dairy, but I miss my milk! ...

You may be able to use unsweetened yogurt mixed with water. I know it

isn't milk but people actually drink it in parts of the world. If you

like smoothies it is kind of like that without the fruit and not so sweet.

notan

[Guest guest]

Hi (and others),

Indeed yoghurt and other " sour " dairy products often can be used without getting

dumping issues. The same goes for cheese products. My dietician told me this and

she's right, I cannot handle " normal " dairy products (a glass of milk, pudding,

etc.), but the " sour " and cheese products are OK. Add some sugar though and you

are almost sure you'll get the dumping...

Worth a try if you miss the dairy products.

Isabella

Re: Re: Tricia

wrote:

> ... I avoid sugar and dairy, but I miss my milk! ...

You may be able to use unsweetened yogurt mixed with water. I know it

isn't milk but people actually drink it in parts of the world. If you

like smoothies it is kind of like that without the fruit and not so sweet.

notan