Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 I worried about my annual oncology checkup coming up, & I am relieved all is well. I worry also when I go to the CI audie with unusual problems too because it is mighty scary when I cannot see & the CI may not be fixable, as in deteriorating auditory nerves. Ted, you are lucky you have your sight to fall back on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Thank you for saying that, . Ted DOES have his sight to rely on and as my audi said, it's very scary when you're totally blind (or visually impaired) and can't hear. I've lived with deafblindness (i.e. being unable to see or hear) for 10 years prior to receiving my CIs, but that doesn't change the fact that I've become attached to my CI hearing. ---- <wdywms@...> wrote: > I worried about my annual oncology checkup coming up, & I am relieved all is > well. I worry also when I go to the CI audie with unusual problems too > because it is mighty scary when I cannot see & the CI may not be fixable, as > in deteriorating auditory nerves. Ted, you are lucky you have your sight to > fall back on. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Ted, This is primarily for your benefit. I have the absolute last word on this so consider this topic closed. Let it be. *---* *---* *---* *---* *---* After eating, do amphibians need to wait an hour before getting OUT of the water? & Dreamer Doll ke7nwn E-mail- rclark0276@... Home Page- http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 and , What most people tend to forget is, we are blessed with the technology that gives back some of what we lost. I will soon join you both as my vision worsens but I am thankful to have the CI and some peace of mind. To go bilateral would be, oh I dont need to tell you, you two know! LOL We're human, we have emotions, we worry. And we are not worrying about nothing. As I pointed out earlier, a healthy worrying is a productive one for it leads to resolutions. *---* *---* *---* *---* *---* No matter where you go, there you are. --Buckaroo Banzai & Dreamer Doll ke7nwn E-mail- rclark0276@... Home Page- http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , I sure will let yuh know, buit dont hold your breath, ok? I am not certain that you would look good blue. LOL I may talk to my friend and see if she wants to combine errands in Portland and then plan a mapping at that time. *---* *---* *---* *---* *---* An ounce of action is worth a ton of theory. -- Gilbert Chesterton & Dreamer Doll ke7nwn E-mail- rclark0276@... Home Page- http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , Just be glad you had enough electrodes that they could turn off 6 and you wouldn't notice it. Audi may in the future, do something to give you sound on those electrodes, but not in high frequencies. Not sure what it is called, but they can do it, shift stimulus around, so you're getting 22 electrodes worth of hearing, even if not in the high frequencies. Amazing, is it not. Strawberry mochas all around, I say. Even my pooch would drink one of those. Tue Feb 3, 2009 11:22 pm (PST) , Yep. 6 high frequency electrodes were turned off on each side. Apparently they were what caused me to hear speech in a muddy, distorted manner and high frequencies as being off-key. Who would have thought? What's also interesting to me is the fact that I'm still able to hear high frequencies despite the 6 electrodes being turned off -- they just don't sound as loud or off-key as they did before. I'm not sure why that is, but I'm certainly not going to complain! I think this is worth celebrating with a strawberry mocha, don't you? LOL! ____________________________________________________________ Click here to find the low cost way to send and receive faxes by email! http://thirdpartyoffers.juno.com/TGL2141/fc/PnY6rw19e5c2DtcEwDzHnoPSyni8x1BbVqWY\ utA1UaE86NxOjY0qn/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , I took 2 and a half years of medical transcription and earned a 4.0 GPA, so I'm also well aware of the terminology that is used. Sometimes I've been tempted to do the same because some of the questions they ask on medical forms are so stupid. Aside from that, why ask questions about your medical condition(s) when they request old medical records in the first place? Isn't it their job to look at those records to find out why you suffer from the conditions and/or illnesses you do? LOL! Mona Bilateral Cochlear CIs December 2004 and February 2006 Deafblind/Postlingual Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , What's the point of providing sound to the 6 electrodes that have been shut off if I won't be able to hear high frequencies? Will turning them on create a greater clarity of sound? I'm quite happy with what I'm hearing and don't want to change anything. I think it's best to leave well enough alone and have already told my audi that I'd like my programming to remain the way it is. I don't want to risk having something changed only for me to hear poorly again. As the saying goes, " If it ain't broke, don't fix it. " LOL! Bilateral Cochlear CIs December 2004 and February 2006 Deafblind/Postlingual Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 , In your case the number of active electrodes did not equal greater clarity of sound. If I understand you correctly in the past that by turning off the six highest pitch electrodes result in the high frequencies sounding higher pitch in addition to greater clarity? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 , Ever since 6 high frequency electrodes have been turned off, I'm hearing *much* *much* better (i.e. clearer) than I have before (compared to when I had all 22 electrodes activated) and am able to hear high frequencies without them sounding off-key. Prior to having my electrodes turned off, speech sounded muddy and distorted and high frequencies sounded off-key. In addition, I was unable to hear extremely high frequencies. Bilateral Cochlear CIs December 2004 and February 2006 Deafblind/Postlingual ---- johngo57 <johngo57@...> wrote: > , > > In your case the number of active electrodes did not equal greater > clarity of sound. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 - you crack me up! LOL I always fill in that little box that says " sex " with a YES!!! That always brings a sourpuss nurse around. LOL Jackie **************Great Deals on Dell Laptops. Starting at $499. (http://pr.atwola.com/promoclk/100000075x1217883258x1201191827/aol?redir=http://\ ad.doubleclick. net/clk;211531132;33070124;e) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 , I am understanding your point that turning off the six highest frequency electrodes did not reduce your high frequency perception of sounds in fact increased it since the high frequencies is no longer off key. That tells me that there may be more to high frequency perception that the electrode location in the cochlea as it seems. The reason I am driving this is because I may have to turn off my electrode one since it seems no longer able to do the work in simulating a tone. You gave me courage to pursuit this and not to be overly concern about this and I may end up in getting a bit more clarity in the process. I sure that your audiologist is curious why this is happening but I sense no problem in your audiologist to leave the things as they are. > Ever since 6 high frequency electrodes have been turned off, I'm hearing *much* *much* better (i.e. clearer) In addition, I was unable to hear extremely high frequencies. > > > Bilateral Cochlear CIs > December 2004 and February 2006 > Deafblind/Postlingual Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 , I don't think you should experience any problems by turning off one electrode. If I'm not having any problems with 12 of them turned off, you definitely won't with one. I know a CI user who has only 3 functioning electrodes and yet she hears just fine, so I wouldn't worry about this at all if I were you. I'd give it a try to see what kind of results you receive. If this is what you decide to do, let us know how it turns out. Bilateral Cochlear CIs December 2004 and February 2006 Deafblind/Postlingual Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 20 years ago I had surgery for a c-toma. The surgeon at the time believed he got all of it out. This year I started having some major issues...infections that won't go away, swelling, redness, the list goes on. I had a CT done the 25th of May and got the results 2 days ago after being discharged from the hospital. (I became very ill and was admitted through the ER on the 1st of June). They found a polyp 12mm by 9mm in the right maxillary sinus and some thickening was found in the left posterior maxillary sinus. I had a right mastoidectomy during the first surgery 20 yrs ago. The left mastoid is perfect. They also noted the right ossicles has some erosion along with portions of the stapes and the scutum. They are not sure if the 2 lesions they found in the scan are c-toma's or cholesterol granulomas. They said it was difficult to evaluate because of my mastoidectomy changes. They are suggesting a MRI to differentiate between c-toma and cholesterol granuloma. This sounds very scary to me. I am on high doses of antibiotics and steroids. I am on anxiety meds and pain pills. I feel sick all the time...I do not like the nausea feeling. I am scared but do not see the surgeon for 3 more weeks. Does anyone else relate to these symptoms and can you give me some advice on easing some of them. I am so scared of getting meningitis because the scan showed the lesions right on the outer shell of the brain lining...I am no doctor so I am not sure how concerned I should be if I should be at all for that matter. Anyone else out there with similar results?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 , This may not be what you want to hear, and please check all I say with your treating docs. When nodes get bigger, it can be hard to tell where one begins and the next ends, hence the term confluence. This is somewhat dependent on the resolution of the scanner, but can begin when then get over 3 cm or so. I doubt they meant 11 mm, as that is nearly normal and would not be called extensive and would not encase anything. I do not know the " hamburger " sign. Ask for a DVD of the scan. Nodes this size generally need attention, but not always. It gets harder to treat large nodes. Stay strong Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.