Re: I didn't mean it to sound like an attack: sorry

[Guest guest]

Marci,

Don't feel that way at all! I know you guys don't look down on

cranio moms and I really hope most don't! I just think that

sometimes people that lightly research about cranio and see that

surgery is done don't know all the details into why we choose to go

through with the surgery. Its not just for the looks and some cranio

is mild but like I told Kelli it gets worse as the child goes through

growth spurts. We have had some mom's opt out of surgery when their

child was diagnosed with cranio. That was there personal choice and

what they felt was right for their child. I just hope when someone

is reading about that surgery and thinking " thank God my child has

plagio and I would never do that to my child. " That they realize

their is a lot of emotion that goes into such a huge surgery and

their is a mom who had months of worrying about their own childs well

being before the surgery happened. I know that a lot of mom's here

realize its not purly cosmetic and understand that I didn't mean what

I said as an attack. Im sorry if it came off that way....I just hope

that everyone realizes we all do what we think is right for our own

child. Its not a simple surgery like getting tubes in her ears, its

a decision that involves a ton of emotion and a ton of self doubt.

Its a decision that I hope non of you here are ever faced with.

Sorry if it sounded like an attack it wasn't.

On the brighter side of things:

ONE MORE MONTH UNTIL GRADUATION!!!!!!!(Leigha's that is)

We just got back from the DOC band adjustment for Leigha and he

thinks that she'll be done with her helmet in a month! That is

unless the surgeon wants her in longer. He says her head looks

wonderful and that its rounding out nicely. She's only had a inch of

growth but he thinks that is because they don't have measurements

from before surgery...I must remember to ask Leigha's surgeon about

what her head measured before and after surgery for camparison.

I can't believe we only have a month to go....its kind of bitter

sweet although I can't wait untill I don't have to go every two weeks

for adjustments I am going to miss the staff at Rehab Designs, and

although I won't hate how smelly and sweaty her head gets I am going

to miss the added protection and the decorating it. So now I

celebrate and begin to get ready for that dreaded exit casting(she

was hard enough to hold down the first time. now she is going to be 4

months older and that much stronger!) Fun fun day. I also have got

to figure out how I want her band decorated for the last month in

it. I am thinking of something permanent now since we won't be

changing it again.

Well had to share my wonderful news with you hope everyone has a

wonderful weekend and Saturday is officially 3 months in the band!!!!

Love and hugs!

mommy of Leigha ---

In Plagiocephaly@y..., marcisch@a... wrote:

> In a message dated 08/24/2001 1:02:11 PM Central Daylight Time,

> mmalfam@h... writes:

>

> << And also I think you

> all on this board need to realize just like with plagio all us

cranio

> moms are not having this horrific surgery done because of cosmetic

> issues. >>

>

> Hey Mel - you know that we don't ALL feel that way! I'm kind of

hurt that you

> are making a blanket statement about all plagio moms looking at

cranio moms

> in a specific way. I would never ever assume that surgery to

correct cranio

> would be cosmetic!! Believe me, if had had cranio instead of

plagio we

> would have been looking at surgery and giving it some very serious

> consideration - heck - if the specialist had said we needed it we

would have

> done it without a second thought!

>

> Anyways, I just wanted to say I hope you don't feel like we all

look down on

> you here - nothing could be further from the truth! I would think

the vast

> majority of us support you and the other cranio moms in the group

and

> understand the seriousness of craniosynostosis.

>

> You know I luv ya!

>

> Marci