Disability?

[Guest guest]

what state are you in. There is a national Law called the Beckett Law

that is supposed to stop this type of thing from happening. If the child

can be kept at home cheaper than an institution then this coverage is for

this purpose. Up here in ALaska is called TEFRA. It is a special part of

Medicaid, but you have to know about it.

debra angel in ALaska

[Guest guest]

i don't know about that law, all I know is that I am lucky to be getting what

I am and to bypass the hassle when my daughter turns 18...I was told to just

take what I am getting with no questions. I live next door to a family who

came directly from Russia. They have been here for 2 and 1/2 years...they

are already saying that sure, we are free but there are many prices to pay.

I think they are right. What can we do but go along? Sometimes you just get

so tired of it all.....

[Guest guest]

Thanks Janet, it helps to know people are on my side. Sometimes I wonder if

I am trying to bullshit them or whatever, even though I know I'm being

honest. The system really scares me sometimes, I know that all will be okay

because we are together and doing our best. I am so glad I re-subscribed to

this list...you all have made me feel so much better.......thank you.

[Guest guest]

Thanks Irish, I really have to admit that even though my husband and I are

very married even if not on paper....my one dream is to get married again and

have my daughters be flower girls. Sounds silly because I know it's just a

piece of paper but I feel like I'm being punished in a way and I know this is

my choice. I just have to make sure that my daughter will get all that she

deserves from the government when she turns 18 and they say that the best way

is to hang in and and continue filling out the forms even though the rewards

are useless at this time.....maybe for her it will be okay. I can only hope.

Thanks for your support. I said it before and I will say it again....I am so

oo glad I resubscribed to this group. Thank you.

[Guest guest]

, we are here for you, don't forget that!!! (((((((MANY HUGS))))))) Janet

[Guest guest]

Janet,

Thank you, that means alot to me. For some reason, at this time in my life I

feel very alone even though I have man people who love me and are trying to

understand. I need support and its wonderful to know that I have it.

Thank you so much!

[Guest guest]

you are very welcome and anytime you want to email me personally, that

is ok too. My email address should be on the list here. But in any event it's

jlyjan@.... I'm here for you and so is everyone else Prayers and hugs

sent your way! I'm living with the dragon. ARGH!!!!!!! Janet

[Guest guest]

Stay strong and keep doing whatever you have to. A wedding with your girls as

flower girls sounds great and in time it will happen. I am glad you came back

here to. We all need to vent and this is a good place for it.We learn a lot

from each other.Keep in touch,Irish

[Guest guest]

: It just amazes me how the richest country in the world can only find

$45 a month to support a disabled 12 year old. We cannot begin to imagine

how much " pork " Congress approves in spending each year. There was an

internet joke going around " You know you work in Wash D.C if... " And one of

them was " ...if you find yourself saying 'It only costs $1.5 billion.' They

will choke on a gnat and swallow an elephant. Hang in there. Tree

[Guest guest]

: Many of us have commented how we need and appreciate the sincere and

understanding support we get from this list. I'm glad you re-joined too.

Tree

[Guest guest]

WAY TO GO NANCY !!!!!!! YOUR A GIRL AFTER MY OWN HEART.. I COULD SCREAM

WHEN I SEE THAT. MY HUSBAND SAYS I GIVE OUT THE DIRTIEST LOOKS WHEN I DO SEE

THAT TOO.OH WELL!!!! WELL, I HAVE THE FORMS AGAIN TO FILL OUT AND WILL DO SO

TOMORROW AND WRITE SOME MORE LETTERS. THANKS FOR THE SENTIMENTS NANCY IRISH

[Guest guest]

irishladi26@... wrote:

>

> , it is a shame the American people have to go to these extremes to get

> the help we need. I am truly sorry for your daughter and You and your

> husband. But to do all this and only get $43.00 a month, that's an insult.

.. . . I am still trying to get help

> and have called places and we are going to apply again for the Medicaid

> services, Not disability just some medical help... have to try all I know how

> to do.

Hey! I have an idea: Next time I -- with my grocery shopping limited

by the coupons and what's in my pocket -- am in line behind one of those

babes talking on her cellular phones (which I, of course, cannot

afford), who naturally pays for the groceries with food stamps . . .

perhaps I can grab the cell phone out of the professionally-done fingers

of that babe, and ask whether there are any pointers she can recommend

for those who are trying to get the medical services they DESERVE and

need to stay alive! I'd be pleased to pass on her recommendations.

Obviously those fancy little bitches have got the system all figured

out.

.. . . now that I think about it, I almost feel sorry for the next one of

those creatures I encounter. Methinks it's going to be ugly!!!

(the hot-blooded Italian Little Sis)

[Guest guest]

Hi all. I have suffered from ctoma my whole life. It went undiagnosed for the

first 10 years, the doctors just treated recurring ear infections, until I had a

CT scan and they found it. I have since had 6 surgeries on it, my last one was

on 11/10/10. Everytime I explain my situation to someone, one of the first

questions they ask is " Why aren't you on disability for that? " It's not really

something I've ever put a lot of thought into, and lately I've been thinking

more about it. I just wanted to find out if anyone else out there gets

disability benefits from this disease. I don't want to try to cheat the system

and get something I shouldn't get, so if I don't qualify for it, then that's ok.

But I know I've suffered a lot, and according to my doctor, I'm probably going

to suffer a lot more, and it's never going to go away.