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Well, then what do you do if there isn't any way to get the help you need, to

get the meds, and to pay for the Dr. appointments.????? Aren't you forced to

do things you normally wouldn't do??? I think you should rethink what you

have said. This isn't a parent talking to a child who has done something

wrong and the child says, WELL HE MADE ME DO IT. Not everyone knows how they

got this disease and None of us should be made to feel like we are lepers or

nobody's, because of it. We are forced to say and do things we normally

wouldn't do, BECAUSE, We have this disease!!!!!! That's My OPINION !!!!!!!

Irish

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Well, you chose not to be pissed but you have 100% benefits too so even

though you aren't well you will never need to ask for HELP will you????? I am

just saying before you say some things think of the Others involved too. As

for Energy, yes We have to use it in order to get what we need not just for

complaining... Irish

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As I said before maybe you should think before you write some things. The

comment of " No on is forced to do anything, " really Pissed me off. I am not

saying you haven't gone through any hoops but you seem to be able to deal

with them (or sound like you are) just fine. Well, guess I am not that strong

or maybe I don't like what is happening to people who have this disease, not

just the health problems but the way society is NOT handling this disease. So

therefore I speak out about it and I consider it good energy to be able to

get it out and then try and find out what can be done to change it. This

board was meant for that as well... As for not realizing about the response

you would get... Well, I hope I opened up your eyes to the fact it takes all

kinds of people to make up this world and I guess we both just met another

one!!!! Irish

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Bob.....

There are many unfair practices everywhere in the world and in life.

Maybe some day someone will figure out a way to eliminate at least some

of them.

Two older friends of mine (who have since died), wanted to get married,

but couldn't afford to. So they had a big wedding and lived out their

days as " husband and wife " .... My husband and I were two of only about

five people who knew that it was a wedding in spirit only (no license)

and why. But it bothered Blanche until the day she died that she was

" forced " to do such a thing.

I miss them both greatly. They were two of the nicest, kindest, most

giving people I have ever known.

Merril

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Just thought I'd interject no one is " forced to do anything " .

Re: disability?

> Bob.....

>

> There are many unfair practices everywhere in the world and in life.

> Maybe some day someone will figure out a way to eliminate at least some

> of them.

>

> Two older friends of mine (who have since died), wanted to get married,

> but couldn't afford to. So they had a big wedding and lived out their

> days as " husband and wife " .... My husband and I were two of only about

> five people who knew that it was a wedding in spirit only (no license)

> and why. But it bothered Blanche until the day she died that she was

> " forced " to do such a thing.

>

> I miss them both greatly. They were two of the nicest, kindest, most

> giving people I have ever known.

>

> Merril

>

>

> ------------------------------------------------------------------------

> 72% off on Name brand Watches!

> Come and buy today and get free shipping!

> 1/4011/10/_/96144/_/958832632/

> ------------------------------------------------------------------------

>

>

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If you choose to look and think about problems well of course they are

there.

I was diagnosed with 100% disability with PTSD from Viet Nam. It took not

all that much to show I had a problem for in the normal way of things I was

different. Gee different?

Anyway my point is the more energy you see as a problem the more energy of

that problem it becomes.

From my years of dealing with the VA only to find out a couple years ago

that I may have contracted Hep C from surgery over there I could be very

pissed.

I don't and will not.

With Love,

Re: disability?

> I do agree with you about what you said on many levels but like everything

> else, there isn't much to be done about it unless you are a foreigner.

Seems

> to me they have more VOICE than the AMERICANS. Whether it be Government

or

> State. If you need help and have worked all your life and paid the taxes

you

> should be allowed to receive the help you need when you ask for it and not

> have to >>>BEG, BORROW AND STEAL FOR IT... I have a problem going to

these

> offices and getting looked at like I don't belong, meanwhile they have

> BEEPERS, CELL PHONES and are using them there and being called while

waiting

> for their appt..... Hell if you can afford these things then you don't

need

> all that help you are asking for... Meanwhile the kids of these parents

are

> walking around in all the expensive clothes and sneakers!!! Something

doesn't

> seem right to me ... as for Homosexuality well to each his Own but keep

it

> away from me and mine...... Irish

>

> ------------------------------------------------------------------------

> 72% off on Name brand Watches!

> Come and buy today and get free shipping!

> 1/4011/10/_/96144/_/958839906/

> ------------------------------------------------------------------------

>

>

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Gee I did not think anyone would react this way. I was trying to say that I

went through many hoops. I have finally understood what conscious energy is

and reactionary consciousness is. I choose to take what I've learned and

pass it on to others.

Re: disability?

> Well, you chose not to be pissed but you have 100% benefits too so even

> though you aren't well you will never need to ask for HELP will you????? I

am

> just saying before you say some things think of the Others involved too.

As

> for Energy, yes We have to use it in order to get what we need not just

for

> complaining... Irish

>

> ------------------------------------------------------------------------

> 72% off on Name brand Watches!

> Come and buy today and get free shipping!

> 1/4011/10/_/96144/_/958841714/

> ------------------------------------------------------------------------

>

>

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Irish & ....

I think I touched this off by using the word " forced. " It is not worth

anyone's time to pursue it, though I thank you Irish for defending my

use of the word.

Perhaps it will end this if I say that in order to be recognized as

being married, which was important to them, they decided to have a

ceremony and invite their friends and celebrate. They would much have

preferred to do it legally, but had they done that, they would not have

had enough money to live, even as sparingly as they did. Just as a

matter of record, they both gave at least 20 hrs a week of their time as

volunteers at a local hospital despite the fact that they both had

significant heart disease.

Now, can we just let it go..... thanks...

Merril

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What I hear on this list are good people who have real (not perceived)

problems. While there's something to be said about positive attitude, there

are some situations that a positive attitude simply can't change. But

instead of rolling over, these folks are actively seeking solutions. It all

sounds pretty healthy to me. (Doesn't mean we can't complain now and then!)

Tree

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Bob, you are right my Irish is up, and we all know why..Where is the site you

say has a form already printed for responding. I have sent many letters to

the GOVERNOR, MAYOR, PUBLIC ADVOCATE, HEALTH DEPT,PRESIDENT AND HIS WIFE,

since she is running for Senate in NY where I happen to live ... and many

others and the only one who has replied was from the Mayor's office. Last

night on the NBC news at 11:00 PM they had a small spot about Hep-c and that

no one knows they have it till it has shown symptoms, which for some is

usually to late. I am a firm believer in telling all, about this disease for

maybe then someone will hear and actually really try and do something about

the money that's needed for the research... Well, if you can tell me the

address for the site you mentioned I would be grateful and pass it on too.

Take Care, Irish

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Was it because of losing disability or SS benefits that they didn't get

married? I know a lady who had wanted to get married but was told she would

lose her SS benefits so she didn't do it either. It doesn't seem right to me

either. Somebody should make them change it.

The cliche about there being more rights and priveledges for criminals and

law breakers is certainly true here.

Bob Simons

Sr. Commander

Royal Rangers

Tucson, Az.

http://abbacomputers.homepage.com/bob.htm

For I know the plans I have for you, " declares the LORD, " plans to prosper

you and not to harm you, plans to give you hope and a future. Jer 29:11

(NIV)

Re: disability?

> Bob.....

>

> There are many unfair practices everywhere in the world and in life.

> Maybe some day someone will figure out a way to eliminate at least some

> of them.

>

> Two older friends of mine (who have since died), wanted to get married,

> but couldn't afford to. So they had a big wedding and lived out their

> days as " husband and wife " .... My husband and I were two of only about

> five people who knew that it was a wedding in spirit only (no license)

> and why. But it bothered Blanche until the day she died that she was

> " forced " to do such a thing.

>

> I miss them both greatly. They were two of the nicest, kindest, most

> giving people I have ever known.

>

> Merril

>

>

> ------------------------------------------------------------------------

> 72% off on Name brand Watches!

> Come and buy today and get free shipping!

> 1/4011/10/_/96144/_/958832632/

> ------------------------------------------------------------------------

>

>

>

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Merrill wrote,

> Just thought I'd interject no one is " forced to do anything " .

True-maybe not forced physically but possibly financially. If you hit them

in the pocket book then you are in effect hurting them physically. It tempts

you to want to lie or be dishonest in some way. Thats wrong in my book (did

I say I was wrinting my own book?). Just kidding. ;^)

Bob Simons

Sr. Commander

Royal Rangers

Tucson, Az.

http://abbacomputers.homepage.com/bob.htm

For I know the plans I have for you, " declares the LORD, " plans to prosper

you and not to harm you, plans to give you hope and a future. Jer 29:11

(NIV)

Re: disability?

>

>

> > Bob.....

> >

> > There are many unfair practices everywhere in the world and in life.

> > Maybe some day someone will figure out a way to eliminate at least some

> > of them.

> >

> > Two older friends of mine (who have since died), wanted to get married,

> > but couldn't afford to. So they had a big wedding and lived out their

> > days as " husband and wife " .... My husband and I were two of only about

> > five people who knew that it was a wedding in spirit only (no license)

> > and why. But it bothered Blanche until the day she died that she was

> > " forced " to do such a thing.

> >

> > I miss them both greatly. They were two of the nicest, kindest, most

> > giving people I have ever known.

> >

> > Merril

> >

> >

> > ------------------------------------------------------------------------

> > 72% off on Name brand Watches!

> > Come and buy today and get free shipping!

> > 1/4011/10/_/96144/_/958832632/

> > ------------------------------------------------------------------------

> >

> >

>

>

> ------------------------------------------------------------------------

> Best friends, most artistic, class clown Find 'em here:

> 1/4054/10/_/96144/_/958834603/

> ------------------------------------------------------------------------

>

>

>

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Yes but we shouldn't be forced to do something immoral, should we? Thats

what I'm saying. If we start lying here than whats to stop us from lying on

our income taxes, etc.

It seems to be a wrong approach.

Bob Simons

Sr. Commander

Royal Rangers

Tucson, Az.

http://abbacomputers.homepage.com/bob.htm

For I know the plans I have for you, " declares the LORD, " plans to prosper

you and not to harm you, plans to give you hope and a future. Jer 29:11

(NIV)

Re: disability?

> Well, then what do you do if there isn't any way to get the help you need,

to

> get the meds, and to pay for the Dr. appointments.????? Aren't you forced

to

> do things you normally wouldn't do??? I think you should rethink what you

> have said. This isn't a parent talking to a child who has done something

> wrong and the child says, WELL HE MADE ME DO IT. Not everyone knows how

they

> got this disease and None of us should be made to feel like we are lepers

or

> nobody's, because of it. We are forced to say and do things we normally

> wouldn't do, BECAUSE, We have this disease!!!!!! That's My OPINION !!!!!!!

> Irish

>

> ------------------------------------------------------------------------

> GET WHO WANTS TO BE A MILLIONAIRE FREE! GET THE OFFICIAL COMPANION

> TO TELEVISION'S HOTTEST GAME SHOW PHENOMENON PLUS 5 MORE BOOKS FOR

> $2. Click for details.

> 1/3014/10/_/96144/_/958840373/

> ------------------------------------------------------------------------

>

>

>

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-its not a matter of looking for problems. Its a matter of finding a

solution to the problem that does exist. Lack of income is a problem and you

don't have to look for it. Bills every month will keep reminding us.

I have not been applying much energy to this problem for about a year now

and it hasn't resolved itself. Burying our heads in the sand and hoping it

will go away isn't working. The problem hits us in our bellies where it

hurts. Providing for our families is a real problem. How do we do it now

that we are disabled.

Maybe calling the local news agency would help. Present our joint concerns

and lack of help from our Gov. If we make it an issue maybe we will be heard

and get some good response.

Food for thought doesn't feed our family!!

Bob Simons

Sr. Commander

Royal Rangers

Tucson, Az.

http://abbacomputers.homepage.com/bob.htm

For I know the plans I have for you, " declares the LORD, " plans to prosper

you and not to harm you, plans to give you hope and a future. Jer 29:11

(NIV)

Re: disability?

>

>

> > I do agree with you about what you said on many levels but like

everything

> > else, there isn't much to be done about it unless you are a foreigner.

> Seems

> > to me they have more VOICE than the AMERICANS. Whether it be Government

> or

> > State. If you need help and have worked all your life and paid the taxes

> you

> > should be allowed to receive the help you need when you ask for it and

not

> > have to >>>BEG, BORROW AND STEAL FOR IT... I have a problem going to

> these

> > offices and getting looked at like I don't belong, meanwhile they have

> > BEEPERS, CELL PHONES and are using them there and being called while

> waiting

> > for their appt..... Hell if you can afford these things then you don't

> need

> > all that help you are asking for... Meanwhile the kids of these parents

> are

> > walking around in all the expensive clothes and sneakers!!! Something

> doesn't

> > seem right to me ... as for Homosexuality well to each his Own but

keep

> it

> > away from me and mine...... Irish

> >

> > ------------------------------------------------------------------------

> > 72% off on Name brand Watches!

> > Come and buy today and get free shipping!

> > 1/4011/10/_/96144/_/958839906/

> > ------------------------------------------------------------------------

> >

> >

>

>

> ------------------------------------------------------------------------

> Save 75% on Products!

> Find incredible deals on overstocked items with Free shipping!

> 1/4013/10/_/96144/_/958841238/

> ------------------------------------------------------------------------

>

>

>

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OK Irish-don't get your Irish up! Get it. I'm Irish also so I can say that.

I agree with you. Its not right or fair but that seems to way our country is

headed. If we make our voices heard than maybe we will get some action. That

seems to be the way this works. Lets draw up some type of letter and send it

to our news agencys, Senators, Congressmen, etc until we get some

satisfaction. I know there is a web site that has a form letter already

about this issue. I sent my own version out to 4 Gov. agencies and did hear

back from them-they said they were lookin into it-so I guess I need to keep

pressing them and the news media. Hep-C is making headlines-it was on 60

mins. (or nightline) 2 nights ago. Lets put this into positive action rather

than negative-is that what you were trying to say ?

Bob Simons

Sr. Commander

Royal Rangers

Tucson, Az.

http://abbacomputers.homepage.com/bob.htm

For I know the plans I have for you, " declares the LORD, " plans to prosper

you and not to harm you, plans to give you hope and a future. Jer 29:11

(NIV)

Re: disability?

> As I said before maybe you should think before you write some things. The

> comment of " No on is forced to do anything, " really Pissed me off. I am

not

> saying you haven't gone through any hoops but you seem to be able to deal

> with them (or sound like you are) just fine. Well, guess I am not that

strong

> or maybe I don't like what is happening to people who have this disease,

not

> just the health problems but the way society is NOT handling this disease.

So

> therefore I speak out about it and I consider it good energy to be able to

> get it out and then try and find out what can be done to change it. This

> board was meant for that as well... As for not realizing about the

response

> you would get... Well, I hope I opened up your eyes to the fact it takes

all

> kinds of people to make up this world and I guess we both just met another

> one!!!! Irish

>

> ------------------------------------------------------------------------

> Failed tests, classes skipped, forgotten locker combinations.

> Remember the good 'ol days

> 1/4053/10/_/96144/_/958843333/

> ------------------------------------------------------------------------

>

>

>

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Great point Bob.

Jeanie

--- Bob Simons <bsimons@...> wrote:

> OK Irish-don't get your Irish up! Get it. I'm Irish

> also so I can say that.

> I agree with you. Its not right or fair but that

> seems to way our country is

> headed. If we make our voices heard than maybe we

> will get some action. That

> seems to be the way this works. Lets draw up some

> type of letter and send it

> to our news agencys, Senators, Congressmen, etc

> until we get some

> satisfaction. I know there is a web site that has a

> form letter already

> about this issue. I sent my own version out to 4

> Gov. agencies and did hear

> back from them-they said they were lookin into it-so

> I guess I need to keep

> pressing them and the news media. Hep-C is making

> headlines-it was on 60

> mins. (or nightline) 2 nights ago. Lets put this

> into positive action rather

> than negative-is that what you were trying to say

> ?

> Bob Simons

> Sr. Commander

> Royal Rangers

> Tucson, Az.

> http://abbacomputers.homepage.com/bob.htm

> For I know the plans I have for you, " declares the

> LORD, " plans to prosper

> you and not to harm you, plans to give you hope and

> a future. Jer 29:11

>

> (NIV)

>

>

>

> Re: disability?

>

>

> > As I said before maybe you should think before you

> write some things. The

> > comment of " No on is forced to do anything, "

> really Pissed me off. I am

> not

> > saying you haven't gone through any hoops but you

> seem to be able to deal

> > with them (or sound like you are) just fine. Well,

> guess I am not that

> strong

> > or maybe I don't like what is happening to people

> who have this disease,

> not

> > just the health problems but the way society is

> NOT handling this disease.

> So

> > therefore I speak out about it and I consider it

> good energy to be able to

> > get it out and then try and find out what can be

> done to change it. This

> > board was meant for that as well... As for not

> realizing about the

> response

> > you would get... Well, I hope I opened up your

> eyes to the fact it takes

> all

> > kinds of people to make up this world and I guess

> we both just met another

> > one!!!! Irish

> >

> >

>

------------------------------------------------------------------------

> > Failed tests, classes skipped, forgotten locker

> combinations.

> > Remember the good 'ol days

> >

>

1/4053/10/_/96144/_/958843333/

> >

>

------------------------------------------------------------------------

> >

> >

> >

>

>

>

------------------------------------------------------------------------

> 72% off on Name brand Watches!

> Come and buy today and get free shipping!

>

1/4011/10/_/96144/_/958870284/

>

------------------------------------------------------------------------

>

>

__________________________________________________

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In a message dated 5/20/00 10:14:37 PM Eastern Daylight Time,

irishladi26@... writes:

Bob, you are right my Irish is up, and we all know why..Where is the site

you

say has a form already printed for responding. I have sent many letters to

the GOVERNOR, MAYOR, PUBLIC ADVOCATE, HEALTH DEPT,PRESIDENT AND HIS WIFE,

since she is running for Senate in NY where I happen to live

******

Perhaps we`ll get some funding for research, when a politician or his/her

family member, contract this disease.....until it touches the " powers that

be " , I`m afraid we won`t recieve any attention.

:-((

debmc

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You are so right. Now in NY the big thing is Cancer because of the Mayor.

Weird thing in August of 99 NY husband went in for prostate problems and

that's when they found the Hep-c......Irish

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Deb...

Same issue as on my mito list. Montel has MS, J. Fox has

Parkinson's,

Magic has HIV.....

whoops, I forgot, one of the Judd's had/has hepC... guess we missed our

chance.....

Merril

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Bob,

I am kinda of new to the group. I subscribed for a while and then decided to

unsubscribe all my lists for a while...well, I'm back and just wanted to say

in regards to the SSI issue that my husband and I had to divorce after we had

our third child because she was born with a heart defect and had several

strokes. She is 15 with the mind of a 7 yr old and blind in one eye. They

wouldn't give her SSI unless I was a single mom. Now that my oldest son

moved out (he turned 18 last Sept.) my daughter receives a whopping $43

dollars a month. Unbelievable......the one gentleman who takes care of my

case told me to keep up on it even though its a low $ amount because she will

get more when she is 18. It is hard to believe that they really believe 43

dollars will buy food, clothes and shelter for her. I have hep C and work

part time and my " husband " is a blue collar worker. Just doesn't make sense.

Thanks for listening!

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, it is a shame the American people have to go to these extremes to get

the help we need. I am truly sorry for your daughter and You and your

husband. But to do all this and only get $43.00 a month, that's an insult. I

have seen many people with less get more and that's what bothers me the most.

How the ones who really need it get practically nothing or nothing at all.

Did the Man who is working your case tell you what you are supposed to do

till your daughter turns 18?? I know it isn't his fault he is following his

rules, just wish they would change the rules. I am still trying to get help

and have called places and we are going to apply again for the Medicaid

services, Not disability just some medical help... have to try all I know how

to do. I am trying to be positive but there are days when it seems

impossible. Hard to smile and feel like this... Have to do what you have to

do Right!!!!! Well Take Care, Irish

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, I find the " system " APPALLING!!!! I cannot believe that they did such

a despicable thing to your daughter and you. My prayers are with you. I'm so

sorry that this has happened to you. There has got to be someone we can write

to in protest against this inhumane treatment. I mean the crack heads sure

make out ok, This really hacks me off. Janet

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