Hello!!

May 8, 2002

Hi ...

I'm reading you loud and clear.

Christie

*Momi* of Sara 9, Sabaa 6, Alia 5 and Hana (ds) 2 mos!!!

On Wed, 8 May 2002 21:51:44 -0400 " jcburg " <jcburg@...> writes:

I haven't gotten anything from the group this evening, I was just

wondering if we're quiet or I have a problem here.

Take Care!!

B

GOD BLESS AMERICA !

May 9, 2002

Thanks!!

B

GOD BLESS AMERICA !

Hi ...

I'm reading you loud and clear.

Christie

*Momi* of Sara 9, Sabaa 6, Alia 5 and Hana (ds) 2 mos!!!

On Wed, 8 May 2002 21:51:44 -0400 " jcburg " <jcburg@...> writes:

I haven't gotten anything from the group this evening, I was just

wondering if we're quiet or I have a problem here.

Take Care!!

B

GOD BLESS AMERICA !

July 24, 2002

Thanks Dawn,

Glad you had the opportunity to get away. Yep! I feel like

when I return home from a trip, there is no place like home. I can

just picture him. rules!: ) Wow! Triplets? I say the babies

enjoyed having lots of hands around by not waiting for their turn.

How was 's reaction towards seeing 3 all at once? Glad you had

some cutie moments holding them. Ahhhhhh!

Irma,14,DS/ASD

> Happy Birthday (late) to yeaaaa !!!!, any other B-

days

> I missed? I missed you all, our trip was good but hard, so glad we

> are home, so is , he got home, rolled around on the carpet

and

> just grinned from ear to ear ('s house!) hey, happy

anniversary

> to and welcome to our new folks on the list, it is wonderful!

> will catch up to read some posts but appreciated your well wishes

> before our trip!! The triplets are precious, we all got our chance

to

> feed and hold, you all take care, Dawn

July 24, 2002

-Hey Irma!!! usually cries when he hears babies or kids

crying, (really loud) but God was with us and he did not this time!!

He just did alot of stimming and growling!! It was very great holding

them all, they are three months old, take care Irma, Dawn

-- In @y..., " mum592001 " <ICANFIELD@s...> wrote:

> Thanks Dawn,

> Glad you had the opportunity to get away. Yep! I feel like

> when I return home from a trip, there is no place like home. I can

> just picture him. rules!: ) Wow! Triplets? I say the babies

> enjoyed having lots of hands around by not waiting for their turn.

> How was 's reaction towards seeing 3 all at once? Glad you

had

> some cutie moments holding them. Ahhhhhh!

> Irma,14,DS/ASD

>

> > Happy Birthday (late) to yeaaaa !!!!, any other B-

> days

> > I missed? I missed you all, our trip was good but hard, so glad

we

> > are home, so is , he got home, rolled around on the carpet

> and

> > just grinned from ear to ear ('s house!) hey, happy

> anniversary

> > to and welcome to our new folks on the list, it is

wonderful!

> > will catch up to read some posts but appreciated your well wishes

> > before our trip!! The triplets are precious, we all got our

chance

> to

> > feed and hold, you all take care, Dawn

January 13, 2006

Karac had the night terrors just like that several years ago, and I did just what you are doing. They just stopped after a couple of weeks. Pat K

March 15, 2006

Hello and welcome back from lurkdom. Glad you didn't gain during your "absence" ;-)

March 15, 2006

Hope everything is getting better. And yep I missed ya! Welcome back!

June 27, 2006

Hello and welcome to this group you will be glad you

joined we are. My son is 8 will be 9 on 7-3-06. he has

had what we feel in since he was about 2 1/2

yrs. He was dx with back in 2002 had his T & A

back in 2003 it helped him a lot. He had a six month

break no at all. Than it came back just not as

bad. The fever we low and some times no at all but

still had the mouth sores every 21 days. He went that

way until about 12 months ago. He had a 8 month break

from the again than it came back but really bad

for him. he got the mouth sores again really bad one

all in his mouth. He could not eat or talk for days

sometimes a week. He could drink but not much. The

fever came back as well from 100 - 104 every 21 days.

Now we are back with the ID doctor who dx with

to see if it are one of the other fever

disorders. Just had a lot of blood work done and

genetic test done last week now just wanted for the

results. It the meantime had been on Colochicine

since May 06. We have see some change in the outbreaks

less mouth sores but still the fever every 21 days

until this week. He was due for an outbreak on Friday

6-23 and has not had one. With his B-day coming up

soon I am praying he will not have on right now. He

usually dose get them on his b-day like most of these

poor kids. So I feel that have the T & A helped a

lot and if I had to chose I would do it again for my

other Child if she ever needed it. She has never had

any signs of and I thank God for that. I hope

this will help you some. Good luck sending prayer for

you and your family.

Dawn Colley mom to 8 almost 9 & Nikki 5

--- prestonpatti <prestonpatti@...> wrote:

> Hello to all, I have just joined the group.

> Our now 7 year old

> son started with cycled fevers in 2002. Hard to

> believe it's been

> that long. I just now discovered this group. Our

> Pediatrician

> diagnosed him about 3 years ago. We had started a

> fever journal

> checking temps daily and started seeing a pattern to

> the fevers. At

> the beginning, fevers were ever 15 days, now they

> are about 28 days

> apart. We started using prednisone for the fevers

> about 2 1/2 years

> ago, and is deffinately does shorten the duration of

> the fevers.

> Before, fevers lasted 5 - 7 days always spiking to

> at least 105.0.

> Now, when he has a fever (it always starts low and

> spikes the next

> day), we then do a 1 day 3 dose treatment of

> prednisone and the fever

> is gone by the next day. Pretty crazy actually.....

>

> Our son was born with a heart condition called

> Tetralogy of Fallot

> and had open heart surgery at 4 months old. Many

> complications lead

> to a 1st year of life that was really a struggle

> every day. Then

> after things got better heart wise for him, the

> fevers started. Many

> tests were done to rule out heart infections, and

> other disorders.

> Nothing was found, so finally was diagnosed with

> . Every cycle

> is the same for him, high fever, really yucky throat

> (but never

> positive for strep.) My question for other on this

> group is: Have

> many people tried the tonsilectomy, and has it

> helped. We feel that

> really is our next option to see if the fevers will

> stop. The poor

> thing misses so much school and now going into 2nd

> grade, that just

> gets harder every year. Just really curious what

> results have been

> for kids who have had a tonsilectomy. Our

> pediatrician says it helps

> for some kids but not for others. So really curious

> if that would be

> good choice at this point.

>

> Anyway, long post, but I am anxious to read some

> past postings from

> people to see what their struggles have been. I just

> chuckle to

> myself because we are scheduled to take vacation the

> end of July and

> don't you know, that will be fever time. Not very

> good planning on

> our part. You would think we would have figured that

> all out by now.

>

> My husband and I live in North Dakota and have our 7

> year old son and

> our 10 year old daughter. We are very fortunate we

> have a wonderful

> Pediatrician in Fargo that is very well informed.

> Thank goodness for

> small favors.

>

> We look forward to being a part of this group.

>

__________________________________________________

June 27, 2006

Isn't it funny.... Brady too, ends up missing so much stuff. Always sick on his

Birthday, fever the first day of school, missed the Halloween party, missed the

Valentine's day party, had a fever the last day of school. Has anyone else ever

posted that stress seems to bring on the fevers more so too? I have always

wondered that. I wish I would have found this group a long time ago. I will be

very glad to read other postings from people in the group. Thank you so much for

your time to e-mail me.

Patti

DAWN COLLEY <d74colley@...> wrote:

Hello and welcome to this group you will be glad you

joined we are. My son is 8 will be 9 on 7-3-06. he has

had what we feel in since he was about 2 1/2

yrs. He was dx with back in 2002 had his T & A

back in 2003 it helped him a lot. He had a six month

break no at all. Than it came back just not as

bad. The fever we low and some times no at all but

still had the mouth sores every 21 days. He went that

way until about 12 months ago. He had a 8 month break

from the again than it came back but really bad

for him. he got the mouth sores again really bad one

all in his mouth. He could not eat or talk for days

sometimes a week. He could drink but not much. The

fever came back as well from 100 - 104 every 21 days.

Now we are back with the ID doctor who dx with

to see if it are one of the other fever

disorders. Just had a lot of blood work done and

genetic test done last week now just wanted for the

results. It the meantime had been on Colochicine

since May 06. We have see some change in the outbreaks

less mouth sores but still the fever every 21 days

until this week. He was due for an outbreak on Friday

6-23 and has not had one. With his B-day coming up

soon I am praying he will not have on right now. He

usually dose get them on his b-day like most of these

poor kids. So I feel that have the T & A helped a

lot and if I had to chose I would do it again for my

other Child if she ever needed it. She has never had

any signs of and I thank God for that. I hope

this will help you some. Good luck sending prayer for

you and your family.

Dawn Colley mom to 8 almost 9 & Nikki 5

--- prestonpatti <prestonpatti@...> wrote:

> Hello to all, I have just joined the group.

> Our now 7 year old

> son started with cycled fevers in 2002. Hard to

> believe it's been

> that long. I just now discovered this group. Our

> Pediatrician

> diagnosed him about 3 years ago. We had started a

> fever journal

> checking temps daily and started seeing a pattern to

> the fevers. At

> the beginning, fevers were ever 15 days, now they

> are about 28 days

> apart. We started using prednisone for the fevers

> about 2 1/2 years

> ago, and is deffinately does shorten the duration of

> the fevers.

> Before, fevers lasted 5 - 7 days always spiking to

> at least 105.0.

> Now, when he has a fever (it always starts low and

> spikes the next

> day), we then do a 1 day 3 dose treatment of

> prednisone and the fever

> is gone by the next day. Pretty crazy actually.....

>

> Our son was born with a heart condition called

> Tetralogy of Fallot

> and had open heart surgery at 4 months old. Many

> complications lead

> to a 1st year of life that was really a struggle

> every day. Then

> after things got better heart wise for him, the

> fevers started. Many

> tests were done to rule out heart infections, and

> other disorders.

> Nothing was found, so finally was diagnosed with

> . Every cycle

> is the same for him, high fever, really yucky throat

> (but never

> positive for strep.) My question for other on this

> group is: Have

> many people tried the tonsilectomy, and has it

> helped. We feel that

> really is our next option to see if the fevers will

> stop. The poor

> thing misses so much school and now going into 2nd

> grade, that just

> gets harder every year. Just really curious what

> results have been

> for kids who have had a tonsilectomy. Our

> pediatrician says it helps

> for some kids but not for others. So really curious

> if that would be

> good choice at this point.

>

> Anyway, long post, but I am anxious to read some

> past postings from

> people to see what their struggles have been. I just

> chuckle to

> myself because we are scheduled to take vacation the

> end of July and

> don't you know, that will be fever time. Not very

> good planning on

> our part. You would think we would have figured that

> all out by now.

>

> My husband and I live in North Dakota and have our 7

> year old son and

> our 10 year old daughter. We are very fortunate we

> have a wonderful

> Pediatrician in Fargo that is very well informed.

> Thank goodness for

> small favors.

>

> We look forward to being a part of this group.

>

__________________________________________________

September 3, 2006

Hi welcome to the group. Im Lorna and I have aspergers(aspie) they are the same. Its jusdt a nick or short name for a person with aspergers sydrome. Im 33 I live in Wichita Kansas. I was dx in 2000. How old is your daughter?. Lorna Philbrook <heatherlp9@...> wrote: Hello Everyone!I am new to the group, just joined today, wanted to introduce myself.MY name is I am a 30 yr old single mother, with a HFA son. Ilive in Phoenix Arizona, and I also have a daughter who shares

some ofmy quirkyness I have been doing research on my self and done someonline testing and it looks like my suspicion of me being an aspie isbecoming more evident. I do have a question though, is there adifference between aspie and aspergers syndrome?? Im just reallystarting to figure this all out and Its very interesting. I am lookingforward to sharing and learning from everyone here. Thanks,

Get your email and more, right on the new .com

September 3, 2006

wrote: " I am new to the group, just joined today, wanted to

introduce myself. "

Welcome, . I'm glad you found your way here. :-D

wrote: " I do have a question though, is there a difference

between aspie and aspergers syndrome?? "

Those with Asperger Syndrome sometimes refer to themselves as Aspies.

Some children with Asperger Syndrome and some adults refer to children

with Asperger Syndrome as Asplings.

Raven

September 3, 2006

An Aspie is a nickname for someone who has Asperger Syndrome.

Welcome to the group!

Tom

Administrator

I do have a question though, is there a difference between aspie and

aspergers syndrome??

September 5, 2006

Hi ,

welcome to the group. My son is dx with HFA and I was dx'd with

Aspergers last year and it does appear to run in my family.

>

> Hello Everyone!

>

> I am new to the group, just joined today, wanted to introduce myself.

> MY name is I am a 30 yr old single mother, with a HFA son. I

> live in Phoenix Arizona, and I also have a daughter who shares some of

> my quirkyness I have been doing research on my self and done some

> online testing and it looks like my suspicion of me being an aspie is

> becoming more evident. I do have a question though, is there a

> difference between aspie and aspergers syndrome?? Im just really

> starting to figure this all out and Its very interesting. I am looking

> forward to sharing and learning from everyone here.

>

> Thanks,

>

September 5, 2006

Hi, , welcome!