Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 True, Zen, thanks for sharing:). Though I will say this one thing, I have never heard/known of any parent or family being embarrassed, ashamed, disturbed, frightened, or unsure of how their child's health might end up being and how much that might end up costing them and with all that is before their child grew up, of an above average tall child compared to them having one of us. I guess, as I have gotten to be an older lp, I have either seen it all or heard it all. From my meeting a proportionate lp lady whose parents had no pictures of her taken at family functions, because they were embarrassed that they even had her, to a disproportionate lp's parent, well, one of them, that flip out sooo bad after they were born they left both the child and the remaining parent on their own totally, never to be seen or heard from again. To my ever hearing of a parent or guardian of exceedingly tall kid do any of that. Now, what keeps me upbeat, positive, and sane, is knowing this: The number of parents who have hung in there, including my own:), OUTNUMBER the ones who didn't a million to one:).... BUT, my point still is this, I have never heard of a parent of an over tall kid being anything but happy. I could be wrong tho, and I can accept that. Those who I really feel for, are the extremely under-small as one might say it. Because it is easy for me to be smug at 4'6', an lp who has had his fair share of ailments and ops associated with his condition but still who has no Trach, no wheelchair (yet), no joint freezing/locking up (Diastrophic) as one gets older, no heart probs that I am aware of ('s), no limited lifespan (as some specific types do have) or of my being the type of dwarf sooo rare and/or sooo short that I would even get stared at by my own fellow lps at a group meeting.... And to those, I admire. They and their parents amaze and BLOW ME AWAY, ~TRULY~. ~grady > Hmmm, I think being anything other than " average " height is a > challenge. I'm 4'9 " and my nephew is 6' 8 " . Both of us have similar > issues, just on opposite ends of the spectrum. > Just my two cents, > Zen Cat Quote Link to comment Share on other sites More sharing options...
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