Re: Hello all - update on Max(long)

[Guest guest]

Hi Amy,

I was asking about you on chat last wek, missded ya. Glad you

were busy with your kids and life and moving on. Sent a pic of Max,

I'm excited to see his progress. Keep in touch,

Lorraine.

> Hey there friends. I have really fallen behind this summer with

all

> 3 of the kids home driving me NUTS!!!! Can't wait till Sept!!!!

>

> Anyway - welcome to all of the new mommies(and daddies) and their

> beautiful babies!!! You sure found a great place to come for

> support! My name is Amy and my son Max was originally dx'd

> positional and later Cranio. He'd probably still be in a helmet and

> me in the nuthouse without this wonderful support system. He had

> surgery on June 11th and is doing well.

>

> *** Max has seen the docs quite a few times since surgery. He is

> looking remarkabley well- his head is so round- it still impresses

> me! Unfortunately he will be having a touch up surgery in the late

> fall or early winter to shave some bone off of his left brow (the

> advanced side). It is a minor surgery and I am totally not freaking

> out...believe it or not!

>

> His PT is going great! His trunk is strong enough that he can now

> get into a sitting position from standing without falling backwards

> and he can also get into a laying down position from sitting

without

> falling back...HOORAY!!!!!

>

> He can also hold his bottle and cup much better. He doesn't talk

> much but I feel like it is gonna happen soon. It is hard because

both

> my daughters at 16 months were chatter boxes and Max only says

about

> 3 words but I am being patient.

>

> OT is going well too. In fact, I don't even think it is necessary

> but...whatever.

>

> You all might think I am nuts but I pulled some of the foam out of

> his old starband and when he gets really wild

> (spinning,climbing...etc) I put it on his head - he usually pulls

it

> right off(some things never change - LOL)

>

> I miss you all! I think about you often. A friend of mine from

> online at the cranio group are having a support meeting at a local

> church for Plagio and Cranio families. I think we have about 6 or

7

> for our first one. I am so excited! If anybody lives in Long

Island

> PLEASE contact me!!!!!

>

> If anybody needs me at all for anything...I am here as always!

>

> Oh Yeah....Max's story is on the CAPS website for those of you that

> want to read it. It is www.caps2000.org and he is under cranio

kids -

> Coronal - Max.

>

> Love Ya!!!! Kisses!

> Amy(Max's mom)

>

> Ps- extra great big hug to Kendra!!!!!!!

[Guest guest]

Amy,

So glad to hear from you! Glad Max is doing so well! I too can't

wait for school to start!!!! Sue in California

- In Plagiocephaly@y..., " Amy Galm " <syddesi2@a...> wrote:

> Hey there friends. I have really fallen behind this summer with

all

> 3 of the kids home driving me NUTS!!!! Can't wait till Sept!!!!

>

> Anyway - welcome to all of the new mommies(and daddies) and their

> beautiful babies!!! You sure found a great place to come for

> support! My name is Amy and my son Max was originally dx'd

> positional and later Cranio. He'd probably still be in a helmet and

> me in the nuthouse without this wonderful support system. He had

> surgery on June 11th and is doing well.

>

> *** Max has seen the docs quite a few times since surgery. He is

> looking remarkabley well- his head is so round- it still impresses

> me! Unfortunately he will be having a touch up surgery in the late

> fall or early winter to shave some bone off of his left brow (the

> advanced side). It is a minor surgery and I am totally not freaking

> out...believe it or not!

>

> His PT is going great! His trunk is strong enough that he can now

> get into a sitting position from standing without falling backwards

> and he can also get into a laying down position from sitting

without

> falling back...HOORAY!!!!!

>

> He can also hold his bottle and cup much better. He doesn't talk

> much but I feel like it is gonna happen soon. It is hard because

both

> my daughters at 16 months were chatter boxes and Max only says

about

> 3 words but I am being patient.

>

> OT is going well too. In fact, I don't even think it is necessary

> but...whatever.

>

> You all might think I am nuts but I pulled some of the foam out of

> his old starband and when he gets really wild

> (spinning,climbing...etc) I put it on his head - he usually pulls

it

> right off(some things never change - LOL)

>

> I miss you all! I think about you often. A friend of mine from

> online at the cranio group are having a support meeting at a local

> church for Plagio and Cranio families. I think we have about 6 or

7

> for our first one. I am so excited! If anybody lives in Long

Island

> PLEASE contact me!!!!!

>

> If anybody needs me at all for anything...I am here as always!

>

> Oh Yeah....Max's story is on the CAPS website for those of you that

> want to read it. It is www.caps2000.org and he is under cranio

kids -

> Coronal - Max.

>

> Love Ya!!!! Kisses!

> Amy(Max's mom)

>

> Ps- extra great big hug to Kendra!!!!!!!

[Guest guest]

Amy:

SO happy to hear from you!! I was seriously thinking of you the

other day, wondering how the Bon Jovi concert was?? I'm sure

wonderful!

Glad to hear Max is doing so well. I worry about Abby w/her speech

as well, she's 17 mos old and also is saying just 3 words -

everything else she tries to say comes out sounding like duck for

some reason? I'm sure soon enuf Max & Abby will be talking our ears

off!

Please keep us updated with everything.

Debbie Abby's mom DOCgrad 6/22/01

> Hey there friends. I have really fallen behind this summer with

all

> 3 of the kids home driving me NUTS!!!! Can't wait till Sept!!!!

>

> Anyway - welcome to all of the new mommies(and daddies) and their

> beautiful babies!!! You sure found a great place to come for

> support! My name is Amy and my son Max was originally dx'd

> positional and later Cranio. He'd probably still be in a helmet and

> me in the nuthouse without this wonderful support system. He had

> surgery on June 11th and is doing well.

>

> *** Max has seen the docs quite a few times since surgery. He is

> looking remarkabley well- his head is so round- it still impresses

> me! Unfortunately he will be having a touch up surgery in the late

> fall or early winter to shave some bone off of his left brow (the

> advanced side). It is a minor surgery and I am totally not freaking

> out...believe it or not!

>

> His PT is going great! His trunk is strong enough that he can now

> get into a sitting position from standing without falling backwards

> and he can also get into a laying down position from sitting

without

> falling back...HOORAY!!!!!

>

> He can also hold his bottle and cup much better. He doesn't talk

> much but I feel like it is gonna happen soon. It is hard because

both

> my daughters at 16 months were chatter boxes and Max only says

about

> 3 words but I am being patient.

>

> OT is going well too. In fact, I don't even think it is necessary

> but...whatever.

>

> You all might think I am nuts but I pulled some of the foam out of

> his old starband and when he gets really wild

> (spinning,climbing...etc) I put it on his head - he usually pulls

it

> right off(some things never change - LOL)

>

> I miss you all! I think about you often. A friend of mine from

> online at the cranio group are having a support meeting at a local

> church for Plagio and Cranio families. I think we have about 6 or

7

> for our first one. I am so excited! If anybody lives in Long

Island

> PLEASE contact me!!!!!

>

> If anybody needs me at all for anything...I am here as always!

>

> Oh Yeah....Max's story is on the CAPS website for those of you that

> want to read it. It is www.caps2000.org and he is under cranio

kids -

> Coronal - Max.

>

> Love Ya!!!! Kisses!

> Amy(Max's mom)

>

> Ps- extra great big hug to Kendra!!!!!!!

[Guest guest]

Amy,

I am so glad to see you back and Posting. Can we expect you at the

next tuesday chat? Soooooo glad that Max is doing well but sorry

that he needs to have more surgery. Good for you and the local

support group. We are trying to get the same thing going in Mass.

Talk to you soon,

April in Ma

Mommy to Bri (helmet since 3/22) and Mandy

> Hey there friends. I have really fallen behind this summer with

all

> 3 of the kids home driving me NUTS!!!! Can't wait till Sept!!!!

>

> Anyway - welcome to all of the new mommies(and daddies) and their

> beautiful babies!!! You sure found a great place to come for

> support! My name is Amy and my son Max was originally dx'd

> positional and later Cranio. He'd probably still be in a helmet and

> me in the nuthouse without this wonderful support system. He had

> surgery on June 11th and is doing well.

>

> *** Max has seen the docs quite a few times since surgery. He is

> looking remarkabley well- his head is so round- it still impresses

> me! Unfortunately he will be having a touch up surgery in the late

> fall or early winter to shave some bone off of his left brow (the

> advanced side). It is a minor surgery and I am totally not freaking

> out...believe it or not!

>

> His PT is going great! His trunk is strong enough that he can now

> get into a sitting position from standing without falling backwards

> and he can also get into a laying down position from sitting

without

> falling back...HOORAY!!!!!

>

> He can also hold his bottle and cup much better. He doesn't talk

> much but I feel like it is gonna happen soon. It is hard because

both

> my daughters at 16 months were chatter boxes and Max only says

about

> 3 words but I am being patient.

>

> OT is going well too. In fact, I don't even think it is necessary

> but...whatever.

>

> You all might think I am nuts but I pulled some of the foam out of

> his old starband and when he gets really wild

> (spinning,climbing...etc) I put it on his head - he usually pulls

it

> right off(some things never change - LOL)

>

> I miss you all! I think about you often. A friend of mine from

> online at the cranio group are having a support meeting at a local

> church for Plagio and Cranio families. I think we have about 6 or

7

> for our first one. I am so excited! If anybody lives in Long

Island

> PLEASE contact me!!!!!

>

> If anybody needs me at all for anything...I am here as always!

>

> Oh Yeah....Max's story is on the CAPS website for those of you that

> want to read it. It is www.caps2000.org and he is under cranio

kids -

> Coronal - Max.

>

> Love Ya!!!! Kisses!

> Amy(Max's mom)

>

> Ps- extra great big hug to Kendra!!!!!!!

[Guest guest]

> Hi Amy--glad to hear Max is doing well. What do you think of the

brushing therapy in OT? I do that with my son also and it's too soon

to tell if it's helping him....Thanks, (Mom to age 10

months)

Hey there friends. I have really fallen behind this summer with all

> 3 of the kids home driving me NUTS!!!! Can't wait till Sept!!!!

>

> Anyway - welcome to all of the new mommies(and daddies) and their

> beautiful babies!!! You sure found a great place to come for

> support! My name is Amy and my son Max was originally dx'd

> positional and later Cranio. He'd probably still be in a helmet and

> me in the nuthouse without this wonderful support system. He had

> surgery on June 11th and is doing well.

>

> *** Max has seen the docs quite a few times since surgery. He is

> looking remarkabley well- his head is so round- it still impresses

> me! Unfortunately he will be having a touch up surgery in the late

> fall or early winter to shave some bone off of his left brow (the

> advanced side). It is a minor surgery and I am totally not freaking

> out...believe it or not!

>

> His PT is going great! His trunk is strong enough that he can now

> get into a sitting position from standing without falling backwards

> and he can also get into a laying down position from sitting

without

> falling back...HOORAY!!!!!

>

> He can also hold his bottle and cup much better. He doesn't talk

> much but I feel like it is gonna happen soon. It is hard because

both

> my daughters at 16 months were chatter boxes and Max only says

about

> 3 words but I am being patient.

>

> OT is going well too. In fact, I don't even think it is necessary

> but...whatever.

>

> You all might think I am nuts but I pulled some of the foam out of

> his old starband and when he gets really wild

> (spinning,climbing...etc) I put it on his head - he usually pulls

it

> right off(some things never change - LOL)

>

> I miss you all! I think about you often. A friend of mine from

> online at the cranio group are having a support meeting at a local

> church for Plagio and Cranio families. I think we have about 6 or

7

> for our first one. I am so excited! If anybody lives in Long

Island

> PLEASE contact me!!!!!

>

> If anybody needs me at all for anything...I am here as always!

>

> Oh Yeah....Max's story is on the CAPS website for those of you that

> want to read it. It is www.caps2000.org and he is under cranio kids

-

> Coronal - Max.

>

> Love Ya!!!! Kisses!

> Amy(Max's mom)

>

> Ps- extra great big hug to Kendra!!!!!!!