Guest guest Posted October 14, 2010 Report Share Posted October 14, 2010 Alpe Foundation in the news from which the article below mentions, with pics: http://ivcongresoalpeacondroplasia.blogspot.com/2010/10/lunes-11-de-octubre-clau\ sura-del-iv.html The Alpe Foundation's own homepage: http://www.fundacionalpe.org/ The article, " My physical condition has always been teased. " : http://www.discapacitadosonline.org/condicion-fisica-objeto-burla.html In Espanol but translated here into English: " My physical condition has always been teased. " Spain-The people of short stature (Achondroplasia) for their condition have always been used as an object of laughter. " According to Felipe Orviz, My disability is the only one laughing because, unlike other disabilities that if they are viewed with respect as Down Syndrome, disabled or suffering from sensory disabilities. Felipe Orviz is less than five feet tall, just call on a payphone, or get cash from an ATM, but does 'a funeral every day' for your situation. The man, affected by Achondroplasia (a person of short stature), is asking to break the barriers of architecture, but also, and most important, social. Legal Adviser to the Alpe Foundation, attended yesterday Orviz Felipe IV International Congress on Achondroplasia, held in Gijón, to raise awareness and research advances in this field. Although there is no census of people affected by disability, Asturias only 12 cases have been detected in schools. - What progress has been made in the investigation of Achondroplasia? Right now it's in experimental stage, we can not speak of a practical application, but the issue of ID i to improve the quality of life, we can talk about progress. In the homeopathic treatment is making a bid to improve the quality of life. Then in the social sphere, we have to make the first doctoral thesis on the social stigma of people with Achondroplasia. " In the strictly medical field, what claim? There is a national census. No one knows how many we are, or what we do, or what quality of life we have. We are calling to the ministry of social policy and health to develop a nationwide census. Then demand a performance protocol from birth the fetus, because to be a low incidence of physical disability there is very little information between professionals and what little there, are scattered. Already there have been several deaths of newborns can not handle, it is not only a matter of height. In the day to day, are socially stigmatized? Yes, my condition has been historically used as an object of laughter. My disability is the only laughable, as in the rest of disabilities (Down syndrome, blind, wheelchair) there is a feeling of respect. That's because we have historically been used as buffoons and are still recruiting, and public institutions, spaces comic bullfighting, whose sole purpose is to make fun of a physical condition with the complacency of society. If instead of people of short stature, were Down Syndrome, or blind. Does the company you consent? However, there are concerned that appeal to their freedom to carry out this work. What we demand is that no government hires these shows in a public space, then there is the freedom of each individual to work in private spaces. " In your case, have suffered social rejection? Yes, when you realize your fitness brings with more than a height problem. You have to concienciarte that there are some things you can not do, but do not dramatize. Yes it's a bitch, but neither should we make a funeral every day because there are worse disabilities. " ~grady Quote Link to comment Share on other sites More sharing options...
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