has this happened to anyone else?

July 23, 2001

Wow!! This is the first mail I have received since last week. Maybe its back to normal. Belinda(Indiana)

July 23, 2001

i am noticing a weird phenomenon. usually, when i go out with the twins,

lots and lots of people stop and talk to me (happens to most mothers of

multiples). however, when i go out with elizabeth in her band, suddenly, we

don't exist! i thought i was imagining it, but i took her band off for a

few moments as an experiment--and sure enough, people stopped and talked to

me again. put it back on--same thing, no one stopped. chris experienced it

too, so it isn't just me.

it makes me angry/sad/frustrated. same babies, different look, different

reactions.

marilyn

_________________________________________________________

July 23, 2001

Marilyn,

People are afraid of what they don't know or understand. I've

noticed that they look away because they don't want to appear to be

staring. It used to bother me but once I got used to the whole

thing, it didn't bother me anymore.

Don't let it bother you. You are doing the best thing for your

daughter and other people's opinions/actions don't really matter.

Walk with your head held high knowing you're a good mom. People will

respond well to you and you babies. Be proud!

Sue (Mom to Connor & Riley - DOC Grad 7/12/01)

Phoenix, AZ

> i am noticing a weird phenomenon. usually, when i go out with the

twins,

> lots and lots of people stop and talk to me (happens to most

mothers of

> multiples). however, when i go out with elizabeth in her band,

suddenly, we

> don't exist! i thought i was imagining it, but i took her band off

for a

> few moments as an experiment--and sure enough, people stopped and

talked to

> me again. put it back on--same thing, no one stopped. chris

experienced it

> too, so it isn't just me.

>

> it makes me angry/sad/frustrated. same babies, different look,

different

> reactions.

>

> marilyn

>

> _________________________________________________________

>

July 23, 2001

Marilyn,

I really never noticed too much of a change in approachability when

wore her helmet. What I did notice was a lot of staring and

strange looks, but in time I didn't even notice that. If I had

's helmet decorated nicely then the stares were usually

accompanied by smiles. (especially when I decorated with stuff

related to our local college football team *grin*)The decorations

seemed to help with the rude factor! I can understand your

frustration, but it really does become easier over time. It will be

over before you know it!! Keep up with the pretty decorations (like

in the pictures you posted) they will definately help.

Marci (Mom to )

Oklahoma

> i am noticing a weird phenomenon. usually, when i go out with the

twins,

> lots and lots of people stop and talk to me (happens to most

mothers of

> multiples). however, when i go out with elizabeth in her band,

suddenly, we

> don't exist! i thought i was imagining it, but i took her band off

for a

> few moments as an experiment--and sure enough, people stopped and

talked to

> me again. put it back on--same thing, no one stopped. chris

experienced it

> too, so it isn't just me.

>

> it makes me angry/sad/frustrated. same babies, different look,

different

> reactions.

>

> marilyn

>

> _________________________________________________________

>

July 23, 2001

> i am noticing a weird phenomenon. usually, when i go out with the

twins,

> lots and lots of people stop and talk to me (happens to most

mothers of

> multiples). however, when i go out with elizabeth in her band,

suddenly, we

> don't exist! i thought i was imagining it, but i took her band off

for a

> few moments as an experiment--and sure enough, people stopped and

talked to

> me again. put it back on--same thing, no one stopped. chris

experienced it

> too, so it isn't just me.

>

> it makes me angry/sad/frustrated. same babies, different look,

different

> reactions.

>

> marilyn

> During the time Vince wore his helmet, people did seem to shy away.

It made me realize how those who look " different " because of

disabilities, burns, birth defects have felt in society, as rejects!

At least our " conditions " are only temporary and the helemt/bands can

be removed. Belinda(Indiana)

________________________________________________

>

July 23, 2001

Marilyn:

I think this is a common reaction. People who don't know about plagio just don't know what to think. Some people think our banded beauties are handicapped in some way, or have seizures. It's just the fact that they are uneducated on the topic, and most people are uncomfortable approaching to ask what the head gear is for.

I think we can all relate to this in a way. I know that I, for one, don't approach every person I see in a wheel-chair to ask what happened to them.

Kendra in Canadafor information on positional plagiocephaly, visitwww.plagiocephaly.org/support..