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Hey mel- I feel sorry for that little one's mother!! It took me all of thirty seconds to see my cutie patootie in the band and I fell in love with it. I hope she comes around for her childs sake- she needs to join our support group:-)

Beck

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Wow! That is kind of sad that this mother can't be a little more positive

about her baby's band. We've had very few negative responses - the usual

stares with the curled up lip - but we stare back at those people and most

everyone else who stares has a kind smile on their face. Sometimes I feel

badly because my daughter gets ignored and Corey gets a ton of attention.

wrote:

> Hey everyone,

> I have a question... how long did it take for you guys to have a

> positive view about having your child banded? I ask because I

> encountered a very negative mommy last Thursday. We have Leigha's

> band quite decked out for her birthday and it caught lots of eyes.

> One of the OT's pointed out our band to another mommy of a banded

> girl and the mom's response was " No way are we calling attention to

> *daughter's* band by putting stickers all over it,it's bad enough

> that we have to deal with this necessary evil! " First I though well

> excuse me! But it really seems sad that she has to keep such a

> negative view. Her daughter has been banded over a month, yes I

> understand its a hassle and that people stare but believe me being a

> mom that has been through both a major surgery and the band with

> Leigha the band is no big deal. Have a little fun with it mommies

> and don't you think you would rather have people stare and think well

> that's cute the way she has that painted up or would you rather have

> someone see a plain white band and think " Oh my God what is wrong

> with that kid?! " I know we all handle things our different ways but

> if you could have heard how snotty the lady was about it....makes no

> since to me!

> Okay vented thanks for reading *wink*,

> Lots of love

> - mommy of Leigha banded 5/25/01

>

> For more plagio info

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Wow, I guess I have been pretty lucky! Except for the occasional

dumb nurse, I haven't really gotten any negative response...as a

matter of fact, I did meet a mommy who was going to have her baby

banded at the same place I did and she wanted to know what I

thought! I suspect I am not bothered because I am one of those

people with the natural bug-me-and-I-shoot-you look!

Jill Ramos, Sin City, NV

>

> > Hey everyone,

> > I have a question... how long did it take for you guys to have a

> > positive view about having your child banded? I ask because I

> > encountered a very negative mommy last Thursday. We have Leigha's

> > band quite decked out for her birthday and it caught lots of eyes.

> > One of the OT's pointed out our band to another mommy of a banded

> > girl and the mom's response was " No way are we calling attention

to

> > *daughter's* band by putting stickers all over it,it's bad enough

> > that we have to deal with this necessary evil! " First I though

well

> > excuse me! But it really seems sad that she has to keep such a

> > negative view. Her daughter has been banded over a month, yes I

> > understand its a hassle and that people stare but believe me

being a

> > mom that has been through both a major surgery and the band with

> > Leigha the band is no big deal. Have a little fun with it mommies

> > and don't you think you would rather have people stare and think

well

> > that's cute the way she has that painted up or would you rather

have

> > someone see a plain white band and think " Oh my God what is wrong

> > with that kid?! " I know we all handle things our different ways

but

> > if you could have heard how snotty the lady was about it....makes

no

> > since to me!

> > Okay vented thanks for reading *wink*,

> > Lots of love

> > - mommy of Leigha banded 5/25/01

> >

> > For more plagio info

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I think just having your child banded IS a positive thing. You are

helping your child--just as if they needed braces for their teeth! Why

shouldn't you decorate it and make it pretty? People decorate casts on

their legs and arms all the time, why make it cold and sterile? Sounds

like that other mom just needs an entire attitude adjustment.

gets her band this Thursday. Am I thrilled? Of course not--I'd

far rather she not have to do it at all! But on the scale of things that

need doing, this isn't that bad--and if a few stickers and some paint

make it all the more cheerful, go for it. (I wish I was crafty and knew

how to do that kind of thing! i have seen some really cute decorations

but alas, I have NO artistic ability. Even putting on stickers straight

would test my abilities :-) Anyone want to come decorate my daughters

band?

PS that other mom is delusional if she thinks she can avoid attention by

not decorating the band. Its going to stand out and call attention, so

she might as well try to make it positive and educational! frankly, she

sounds like a num nuts. Just think--she could be educating other parents

and teaching her child to be a role model, instead of " a necessary

evil " . She's got a bad attitude.

At 06:10 PM 7/14/2001 +0000, you wrote:

Hey everyone,

I have a question... how long did it take for you guys to have a

positive view about having your child banded? I ask because I

encountered a very negative mommy last Thursday. We have Leigha's

band quite decked out for her birthday and it caught lots of eyes.

One of the OT's pointed out our band to another mommy of a banded

girl and the mom's response was " No way are we calling attention to

*daughter's* band by putting stickers all over it,it's bad enough

that we have to deal with this necessary evil! " First I though

well

excuse me! But it really seems sad that she has to keep such a

negative view. Her daughter has been banded over a month, yes I

understand its a hassle and that people stare but believe me being a

mom that has been through both a major surgery and the band with

Leigha the band is no big deal. Have a little fun with it mommies

and don't you think you would rather have people stare and think well

that's cute the way she has that painted up or would you rather have

someone see a plain white band and think " Oh my God what is wrong

with that kid?! " I know we all handle things our different

ways but

if you could have heard how snotty the lady was about it....makes no

since to me!

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Jill,

that look you mentioned was the one I give, thats probably why

we had a good exsperiece with the band and Mackenzie.Dont mess with

me and my kid!

Lorraine Sonntag, Boca Raton Fl.

> >

> > > Hey everyone,

> > > I have a question... how long did it take for you guys to have a

> > > positive view about having your child banded? I ask because I

> > > encountered a very negative mommy last Thursday. We have

Leigha's

> > > band quite decked out for her birthday and it caught lots of

eyes.

> > > One of the OT's pointed out our band to another mommy of a

banded

> > > girl and the mom's response was " No way are we calling

attention

> to

> > > *daughter's* band by putting stickers all over it,it's bad

enough

> > > that we have to deal with this necessary evil! " First I though

> well

> > > excuse me! But it really seems sad that she has to keep such a

> > > negative view. Her daughter has been banded over a month, yes I

> > > understand its a hassle and that people stare but believe me

> being a

> > > mom that has been through both a major surgery and the band with

> > > Leigha the band is no big deal. Have a little fun with it

mommies

> > > and don't you think you would rather have people stare and

think

> well

> > > that's cute the way she has that painted up or would you rather

> have

> > > someone see a plain white band and think " Oh my God what is

wrong

> > > with that kid?! " I know we all handle things our different

ways

> but

> > > if you could have heard how snotty the lady was about

it....makes

> no

> > > since to me!

> > > Okay vented thanks for reading *wink*,

> > > Lots of love

> > > - mommy of Leigha banded 5/25/01

> > >

> > > For more plagio info

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Marilyn

You are exactly right! I think it was better to have the helmet decorated.

Less sterile and medical looking. Look at all the colored braces and colored

cast covers they make! This is the same thing!

Good luck with the band fitting on Thursday - let us know how it goes.

Marci (Mom to )

Oklahoma

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,

Sounds like the lady you talked with has not figured out how "minor" her child's problems are compared to some. This weekend I watched this real life MD show and all these kids were sick and/or dying. If this is all that God challenges me with for my son, I will be grateful! I am so thankful that this is considerably minor in comparison. Maybe she will realize that when she sees other children and what they go through. I think its great that you are so creative, I wish I knew what the heck to put on there! My dad kinda gave me a complex like that too and said, why are you going to put stickers on it? With this weird, disapproving look (if I told him this, he'd probably be like, what, I don't care, do what you want!) I want to do something neat, but haven't found any cool stickers! Gotta get to s soon, or he'll be out of it before I get my act together! Take Care,

' Mom

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I know I felt much better about the helmet once it was decorated. The

responses from other people - especially kids - are also much warmer.

Elijah's cousins look forward to seeing his new decorations each time they

visit. That mommy needs to be lighten up a little!

Amy Mom to Elijah, Proud owner of a space theme helmet (this week)

> -----Original Message-----

> From: [sMTP:mmalfam@...]

> Sent: Saturday, July 14, 2001 2:10 PM

> Plagiocephaly

> Subject: Have to vent a little

>

> Hey everyone,

> I have a question... how long did it take for you guys to have a

> positive view about having your child banded? I ask because I

> encountered a very negative mommy last Thursday. We have Leigha's

> band quite decked out for her birthday and it caught lots of eyes.

> One of the OT's pointed out our band to another mommy of a banded

> girl and the mom's response was " No way are we calling attention to

> *daughter's* band by putting stickers all over it,it's bad enough

> that we have to deal with this necessary evil! " First I though well

> excuse me! But it really seems sad that she has to keep such a

> negative view. Her daughter has been banded over a month, yes I

> understand its a hassle and that people stare but believe me being a

> mom that has been through both a major surgery and the band with

> Leigha the band is no big deal. Have a little fun with it mommies

> and don't you think you would rather have people stare and think well

> that's cute the way she has that painted up or would you rather have

> someone see a plain white band and think " Oh my God what is wrong

> with that kid?! " I know we all handle things our different ways but

> if you could have heard how snotty the lady was about it....makes no

> since to me!

> Okay vented thanks for reading *wink*,

> Lots of love

> - mommy of Leigha banded 5/25/01

>

>

> For more plagio info

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I personally found that when Hannah's band was decorated people

accepted it so much better. I really think it looks less like a

medical device when it is decorated at puts people more at

ease...because it gives them something to start a conversation

about ...then they can ask questions if they want. It really made

Hannah's 5 months in the band and her public appearances much easier

on all of us! Plus it was fun to decorate and always looked so cute.

Stacey

Hannah (doc graduate 7-11-01)

> >Hey everyone,

> >I have a question... how long did it take for you guys to have a

> >positive view about having your child banded? I ask because I

> >encountered a very negative mommy last Thursday. We have Leigha's

> >band quite decked out for her birthday and it caught lots of eyes.

> >One of the OT's pointed out our band to another mommy of a banded

> >girl and the mom's response was " No way are we calling attention to

> >*daughter's* band by putting stickers all over it,it's bad enough

> >that we have to deal with this necessary evil! " First I though

well

> >excuse me! But it really seems sad that she has to keep such a

> >negative view. Her daughter has been banded over a month, yes I

> >understand its a hassle and that people stare but believe me being

a

> >mom that has been through both a major surgery and the band with

> >Leigha the band is no big deal. Have a little fun with it mommies

> >and don't you think you would rather have people stare and think

well

> >that's cute the way she has that painted up or would you rather

have

> >someone see a plain white band and think " Oh my God what is wrong

> >with that kid?! " I know we all handle things our different ways

but

> >if you could have heard how snotty the lady was about it....makes

no

> >since to me!

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