Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 They just told me a few days ago that round 4 started 5/2. Guess the communication there leaves a little to be desired! Thanks for the update, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 , If you don't want to take the week off, do like I'm doing. Start by May1st and they can send the packet to you still. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Hello! From what we've been told, just one tiny cell remaining will grow another ctoma. Looking at it that way, it's easier to understand how it keeps coming back. Deosn't make it any better though! On a positive note, atleast your surgeon was able to spot the ctoma at your check up so you can get it cleaned out before it started causing you problems. Maybe that can be your silver lining. We are always waiting and wondering if our son's is regrowing... I'm always very paranoid. Sometimes I have to stop myself and remind myself there are some things that could be even scarier to have-not to belittle ctoma's in the least. But that helps me. I'd rather have a rottwieller chasing me than a Trex-if I'm forced to have anything chasing me I truly wish you a smooth operation and speedy recovery. Let's hope you can get that ctoma to stop chasing you! Jill From: <moonshadow2447@...>cholesteatoma Sent: Wed, March 9, 2011 1:33:15 PMSubject: Round 4 I went for my follow-up yesterday and the surgeon found another ctoma hiding behind my ear drum this time. I cried most of the day. While I have been through this going on 4 times now it doesn't get easier for me. I am overwhelmed with emotions and really just want my life back. I had a good recovery although it was very slow the last time. The last 2 surgeries were 3 weeks apart because of how bad the infection was in my ear. Has anyone had a CWD surgery and then later a surgery to remove a ctoma behind the ear drum that can shed some light on this for me? I am trying to stay positive but right now only negative thoughts are running through my mind. I just put all of this behind me and was thinking it was time to move forward...guess the job hunt is on hold for me once again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Thanks...that is a good way of putting it as well :-) Do they biopsy every ctoma removed from your son as well?? I am not sure if that is routine or if they do this because of the family history in my family...but wouldn't you think they were all safe if the first 3 were?? Jenni On Wed, Mar 9, 2011 at 12:24 PM, Jill Wharton <jmw5982@...> wrote: Hello! From what we've been told, just one tiny cell remaining will grow another ctoma. Looking at it that way, it's easier to understand how it keeps coming back. Deosn't make it any better though! On a positive note, atleast your surgeon was able to spot the ctoma at your check up so you can get it cleaned out before it started causing you problems. Maybe that can be your silver lining. We are always waiting and wondering if our son's is regrowing... I'm always very paranoid. Sometimes I have to stop myself and remind myself there are some things that could be even scarier to have-not to belittle ctoma's in the least. But that helps me. I'd rather have a rottwieller chasing me than a Trex-if I'm forced to have anything chasing me I truly wish you a smooth operation and speedy recovery. Let's hope you can get that ctoma to stop chasing you! Jill From: <moonshadow2447@...>cholesteatoma Sent: Wed, March 9, 2011 1:33:15 PMSubject: Round 4 I went for my follow-up yesterday and the surgeon found another ctoma hiding behind my ear drum this time. I cried most of the day. While I have been through this going on 4 times now it doesn't get easier for me. I am overwhelmed with emotions and really just want my life back. I had a good recovery although it was very slow the last time. The last 2 surgeries were 3 weeks apart because of how bad the infection was in my ear. Has anyone had a CWD surgery and then later a surgery to remove a ctoma behind the ear drum that can shed some light on this for me? I am trying to stay positive but right now only negative thoughts are running through my mind. I just put all of this behind me and was thinking it was time to move forward...guess the job hunt is on hold for me once again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 I'm not aware of them biopsying my son's everytime. I think they did the first time. Maybe that's just protocol at your hospital though? Take care! Jill From: Jenni <moonshadow2447@...>cholesteatoma Sent: Wed, March 9, 2011 4:51:25 PMSubject: Re: Round 4 Thanks...that is a good way of putting it as well :-) Do they biopsy every ctoma removed from your son as well?? I am not sure if that is routine or if they do this because of the family history in my family...but wouldn't you think they were all safe if the first 3 were?? Jenni On Wed, Mar 9, 2011 at 12:24 PM, Jill Wharton <jmw5982@...> wrote: Hello! From what we've been told, just one tiny cell remaining will grow another ctoma. Looking at it that way, it's easier to understand how it keeps coming back. Deosn't make it any better though! On a positive note, atleast your surgeon was able to spot the ctoma at your check up so you can get it cleaned out before it started causing you problems. Maybe that can be your silver lining. We are always waiting and wondering if our son's is regrowing... I'm always very paranoid. Sometimes I have to stop myself and remind myself there are some things that could be even scarier to have-not to belittle ctoma's in the least. But that helps me. I'd rather have a rottwieller chasing me than a Trex-if I'm forced to have anything chasing me I truly wish you a smooth operation and speedy recovery. Let's hope you can get that ctoma to stop chasing you! Jill From: <moonshadow2447@...>cholesteatoma Sent: Wed, March 9, 2011 1:33:15 PMSubject: Round 4 I went for my follow-up yesterday and the surgeon found another ctoma hiding behind my ear drum this time. I cried most of the day. While I have been through this going on 4 times now it doesn't get easier for me. I am overwhelmed with emotions and really just want my life back. I had a good recovery although it was very slow the last time. The last 2 surgeries were 3 weeks apart because of how bad the infection was in my ear. Has anyone had a CWD surgery and then later a surgery to remove a ctoma behind the ear drum that can shed some light on this for me? I am trying to stay positive but right now only negative thoughts are running through my mind. I just put all of this behind me and was thinking it was time to move forward...guess the job hunt is on hold for me once again. Quote Link to comment Share on other sites More sharing options...
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