Re: Re: Deaf vs CI - Alison

[Guest guest]

Alison,

Do you have support groups in the UK? I'm referring to groups similar to SHHH (

http://www.hearingloss.org<http://www.hearingloss.org/> ) because this is where

you would be likely to find others with the implant. If not, you could talk to

your CI Center to see if they could help you contact CI users from their center

and get together to form a support group. You would need someone who is sharp in

publicity and let them advertise in as many areas that are allowed, TV, news and

even magazines. The best way to bring attention to the technology is to be

vocal and advocate. I personally believe that this is why there is such growth

in the states.

Alice

From: Alison Patuck<mailto:alison7582@...>

I hardly see anyone who has a CI 'in the wild' - am from the UK......I see a

lot of HA people........

[Guest guest]

Alice, Thanks for your e-mail; yes there is a support group, which was formed by

2 audiologists in Bristol - here I had it done, there are 13 or 16 implant

centres throughout the UK - prob in the States there are more..........I meant

I've never 'bumped' or someone with a CI in the street.......that is why I have

joined these groups - even started a new group - CI users group - specifically

for UK residents, becuase I feel there is so little support compared to your

country in means of first hand expereinces.........

Thanks again

Alison

A ADAMS <justagram14@...> wrote:

Alison,

Do you have support groups in the UK? I'm referring to groups similar to SHHH (

http://www.hearingloss.org ) because this is where you would be likely to find

others with the implant. If not, you could talk to your CI Center to see if they

could help you contact CI users from their center and get together to form a

support group. You would need someone who is sharp in publicity and let them

advertise in as many areas that are allowed, TV, news and even magazines. The

best way to bring attention to the technology is to be vocal and advocate. I

personally believe that this is why there is such growth in the states.

Alice

From: Alison Patuck

I hardly see anyone who has a CI 'in the wild' - am from the UK......I see a lot

of HA people........

[Guest guest]

Alison,

That's great to read. I know you must feel like a pioneer but you are a mighty

one. I saw your post on Problem CI too and wanted to thank you for helping the

list member there. It's so nice to have you here.

If it helps any, I don't see many people with a CI either. Once in a while,

I'll see someone in a restaurant or in a store but not often at all.

Alice

Alice, Thanks for your e-mail; yes there is a support group, which was formed

by 2 audiologists in Bristol - here I had it done, there are 13 or 16 implant

centres throughout the UK - prob in the States there are more..........I meant

I've never 'bumped' or someone with a CI in the street.......that is why I have

joined these groups - even started a new group - CI users group - specifically

for UK residents, becuase I feel there is so little support compared to your

country in means of first hand expereinces.........

Thanks again

Alison

[Guest guest]

Thanks - I do have a great friend, we first met when she was waitng for her CI

op, and I was starting the pre implants tests etc - and since have beecome great

friends..........spooky thing is we both had excatly same op, in same hosp,

ward, surgeon, excalt same day and time only a year apart!! But it nice to

recieve e-mails/posts from CI uers and I do try to help/reply to them - becuase

i know what it is like not to receive first hand expereince.......only wished i

had found all this beofre I had the op!! never mind!

Alsion

A ADAMS <justagram14@...> wrote:

Alison,

That's great to read. I know you must feel like a pioneer but you are a mighty

one. I saw your post on Problem CI too and wanted to thank you for helping the

list member there. It's so nice to have you here.

If it helps any, I don't see many people with a CI either. Once in a while, I'll

see someone in a restaurant or in a store but not often at all.

Alice

Alice, Thanks for your e-mail; yes there is a support group, which was formed by

2 audiologists in Bristol - here I had it done, there are 13 or 16 implant

centres throughout the UK - prob in the States there are more..........I meant

I've never 'bumped' or someone with a CI in the street.......that is why I have

joined these groups - even started a new group - CI users group - specifically

for UK residents, becuase I feel there is so little support compared to your

country in means of first hand expereinces.........

Thanks again

Alison