Re: Digest Number 133

[Guest guest]

,

My symptoms are a very dull pain that last for hours

the pain is about between the chest and belly button

area. What I now do to relieve the pain is take Tylenol

sometimes it helps.

Stay Well

Bob

[Guest guest]

This is all I get from the Digest. Do I need to do something?

Thanks

Carol

bathz@...

Digest Number 133

>

>---------------------------

[Guest guest]

gail,

i am sorta behind on the list, but pardon my french " what in the hell " kinda

class is this.....is this his regular class or a class your looking at for

him???????? i can't belive they rattled off so many damn questions, give the

kid time to think for pete's sake.......... jeezues.........

[Guest guest]

,

I started to tilt over after the surgery to S1. There is no hardware since

the fusion was only that last disc. He wanted to do whatever he needed to do

to make it straight but the surgery had been too long. The surgeon was

Tozzi out of Washington, D.C. The surgery removed the little Harrington clip

that replaced the 14 inch rod taken out 5 years prior when l4/5 failed to

fuse. The original rod became displaced from the hook at the top. The

original surgery had been done in 81 at s Hopkins with Vernon Tolo. The

rod remained loose for 8 months because Hopkins never xrayed from the side.

Finally, the rod started to poke through at the bottom. I am very hunched

over and thge shoulders and knees have also suffered. Any advice?

[Guest guest]

Hi MsCello...

I'm not quite sure I understand your history, but it sounds to me like

you might (still) have a non-fusion somewhere. Any chance you could see

Kostuik? He seems to be the most likely candidate for you to

discover what's really going on.

Regards,

[Guest guest]

You might want to try Dr. Lauerman, too - if you are in the Balt/Wash area -

email me if you would like more info..........knightond@...

[Guest guest]

>

[Guest guest]

Regarding the message posted by Gordon J. Ward-I am very new to this list as

I had just recently heard about the list and have been trying to be very

patient with the messages that have been posted. I must admit many of them

have really turned me off, as I am here to learn all I can about HBO-not to

read where everyone seems to want to argue with each other about just about

anything. I was VERY offended by the post by Mr. Ward in response to

Hartsoe's message regarding openings at his facility. I saw that message

from Mr. Hartsoe as a compassionate message to let us all know there were

openings, as I know many have to wait and wait to get the treatments. I saw

NO advertising or even promoting his facility in his message. I only wish

those of you who do NOT have a brain injured or handicapped child would try

to realize what we caregivers and parents of those who NEED these treatments

have to endure and just MAYBE you could also be more sympathetic for our

situations and hardships along our way. I for one applaud and compliment Mr.

Hartsoe for POSTING that message, and I sent it on to others who I KNOW are

waiting to get in HBO facilities. I saw Mr. Gordon's message more of an

advertisement by far than Mr. Hartsoe. PLEASE use this list in a way that we

caregivers and parents can be comfortable being associated with you and help

us in our frustrations and pain. Thank you. Sincerely, Ila Nofziger <A

HREF= " http://www.home.tbinet.org/raf/ " >

Recovery Awareness Foundation</A>

[Guest guest]

--- medicaid wrote:

>

[Guest guest]

Tony wrote:

>Meanwhile my last letter seem to did not grace the pages of this list.

I would be interested to read it if it is a reply to . I see nothing

wrong with a civil discussion on an important subject. In fact, I look

forward to it, myself. I have in the past heard advocated the boycott of

all use of incense and oils of both sandalwood and agarwood, and I wonder

whether or not such extreme measures are necessary when ethnical harvesting

recommendations, for example, are not advocating all-out boycott because

the they don't deem the threat that dangerous at this point. Furthermore,

some argue that oil and incense use is a tiny part of the use of

sandalwood, for example, which is in far greater danger from use for

funerals. I am not an expert nor do I claim to be, so I would like to hear

both sides. I hope you will send it again, Tony, and the discussion

continues. Are you advocating a consumer boycott of all products that use

sandalwood or agarwood? The discussion so far seems very civil to me and

as long as it stays that way, I feel it's interesting.

Best wishes,

Janine

[Guest guest]

Hi Janine,

Its absolutely true that for those families that can afford it in India,

their deceased loved ones can be burned over a sandalwood pyre. I have

observed this by the side of the Ganges, although it is too macabre for me.

The ratio of ordinary cremations to sandalwood cremations seemed very high

to me, although of course large weights of wood are piled for this purpose.

If nobody else volunteers figures for this I'll see if I can find some. And

of course sandalwood for construction and carving of fine boxes, trinkets,

statues etc continues unabated. Perhaps there will be estimates of figures

for this published too. However I do not think that the amount of wood used

to prepare Sandalwood oil was inconsequential. What isn't generally known is

that solvent extraction and co-distillation are used to get the last

vestiges of oil out of the pores in the wood structure - even after steam

distillation a lot of the higher quality components - including the

santalols - are still held there.

My new forthcoming update on Sandalwood talks more about Spike disease which

is difficult to eradicate and is treated by " antibiotic " substances. I

suppose it is ironic to think that some of the sandalwood products making

the rounds probably contain the very synthetics, that many in this genre of

interested folks here, absolutely abhor.

Yes I am asking people to examine their attitudes to sandalwood and

aloeswood. I freely admit that I have learned a lot, even in the past few

months, about what goes on. But then life's a learning process!

Tony

www.tonyburfield.co.uk

Re: Digest Number 133

>

>

> Tony wrote:

>

>

> >Meanwhile my last letter seem to did not grace the pages of this list.

>

>

> I would be interested to read it if it is a reply to . I see nothing

> wrong with a civil discussion on an important subject. In fact, I look

> forward to it, myself. I have in the past heard advocated the boycott of

> all use of incense and oils of both sandalwood and agarwood, and I wonder

> whether or not such extreme measures are necessary when ethnical

harvesting

> recommendations, for example, are not advocating all-out boycott because

> the they don't deem the threat that dangerous at this point. Furthermore,

> some argue that oil and incense use is a tiny part of the use of

> sandalwood, for example, which is in far greater danger from use for

> funerals. I am not an expert nor do I claim to be, so I would like to

hear

> both sides. I hope you will send it again, Tony, and the discussion

> continues. Are you advocating a consumer boycott of all products that use

> sandalwood or agarwood? The discussion so far seems very civil to me and

> as long as it stays that way, I feel it's interesting.

>

> Best wishes,

> Janine

>

>

>

[Guest guest]

Dear Lorrie,

Were you the one who had BC/BS with Dr. Boachie? I am thinking of seeing him & Lenke if possible - someday.

Dear All,

Does anyone else have extreme trouble with being cold? What I mean is when the room feels "chilly", I end up hudlled in blankets, near tears for some time. My back/hips/butt/legs hurt worse thatn usual. but I also hurt in my joints as well. I end up gettin really, really tensed up & go into spasm pretty bad. This time of the year, it is getting worse & I fear I may lose even more mobility/freedom as it seems worse this year than before. My PT told me to avoid getting cold, unless I LIKED being in major spasms. I wear LS shirts & pants most of the time. I am looking for a way to stay warm enough to avoid being stuck in a "huddle" on the couch.

Blessings,

Carla Kay

Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

[Guest guest]

I used to have a lot more pain when I was cold. When I was young, I

would start to shiver if the temperature dropped below 80.

Shivering would make my muscles tense up, and then I would hurt --

and this was before I started having pain on a daily basis.

Living in the Bahamas cured me from being cold. It was always hot

and I sweated buckets (to the point of being hospitalized for

dehydration a couple of times), so I grew to appreciate colder

weather.

Now that menopause has hit, I no longer own any long sleeves and

rarely feel cold.

>

> Dear Lorrie,

>

> Were you the one who had BC/BS with Dr. Boachie? I am thinking of

seeing him

> & Lenke if possible - someday.

>

> Dear All,

>

> Does anyone else have extreme trouble with being cold? What I

mean is when

> the room feels " chilly " , I end up hudlled in blankets, near tears

for some

> time. My back/hips/butt/legs hurt worse thatn usual. but I also

hurt in my

> joints as well. I end up gettin really, really tensed up & go

into spasm pretty

> bad. This time of the year, it is getting worse & I fear I may

lose even more

> mobility/freedom as it seems worse this year than before. My PT

told me to

> avoid getting cold, unless I LIKED being in major spasms. I wear

LS shirts &

> pants most of the time. I am looking for a way to stay warm

enough to avoid

> being stuck in a " huddle " on the couch.

>

> Blessings,

> Carla Kay

> Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD,

all the

> earth. Declare His glory among the nations, His marvelous deeds

among all peoples.

> For great is the LORD and most worthy of praise...

>

[Guest guest]

Yes - I have BC/BS - a PPO - so they reimburse 70% of what they think is reasonable after a $400 deductible.

Lorrie

-------------- Original message -------------- Dear Lorrie,Were you the one who had BC/BS with Dr. Boachie? I am thinking of seeing him & Lenke if possible - someday. Dear All,Does anyone else have extreme trouble with being cold? What I mean is when the room feels "chilly", I end up hudlled in blankets, near tears for some time. My back/hips/butt/legs hurt worse thatn usual. but I also hurt in my joints as well. I end up gettin really, really tensed up & go into spasm pretty bad. This time of the year, it is getting worse & I fear I may lose even more mobility/freedom as it seems worse this year than before. My PT told me to avoid getting cold, unless I LIKED being in major spasms. I wear LS shirts & pants most of the time. I am looking for a way to stay warm enough to avoid being stuck in a "huddle" on the couch.Blessings,Carla KayPs. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...