Vertigo

[Guest guest]

Hello Jan

I probelly have CMT II just like my father.

And I have Vertigo just like my father.I have also hearingproblems,

ringing in my ear and unbalanced.

I've heard that they are look after it if it's belong to CMT II.

Greetings Mieke.

[Guest guest]

> the attending doc diagnosed vertigo from her symptoms. apparently

> there are

> different kinds of vertigo and we're hoping it's a more benign form. i

> don't

> know anything about vertigo and was wondering if anyone here has any

> experience with it? any recommended URLs? any idea of underlying

> causes?

Vertigo can be a symptom of many underlying problems, from inner ear

things to heart things. Direct link to a Medline search:

http://search.nlm.nih.gov/medlineplus/

query?DISAMBIGUATION=true & FUNCTION=search & SERVER2=server2 & SERVER1=server

1 & PARAMETER=vertigo & x=0 & y=0

Good luck to you both. These kinds of things are scary.

Lynn

-----

Lynn Siprelle * Writer, Mother, Programmer, Fiber Artisan

The New Homemaker: http://www.newhomemaker.com/

Siprelle & Associates: http://www.siprelle.com/

[Guest guest]

>the attending doc diagnosed vertigo from her symptoms. apparently there are

>different kinds of vertigo and we're hoping it's a more benign form. i don't

>know anything about vertigo and was wondering if anyone here has any

>experience with it? any recommended URLs? any idea of underlying causes?

I used to get it a lot (along with neuropathy) which was probably from ...

well, you KNOW what I'm going to say -- gluten and maybe casein. Anyway, my

balance problems cleared up when I went GF. I used to feel like I was

spinning around when I closed my eyes and could not balance well. Sometimes

I'd have to sit down suddenly because it seemed like the room was keeling

over. I also get it slightly from sinus problems, when my ear gets backed

up, which the neti pot takes care of.

Anyway, it is kind of a classic symptom of celiac, so if she has any other

symptoms you might be able to convince the docs to test her, esp. since you

seem to be gluten sensitive too? See:

http://www.gastro.on.ca/patientinfo/patientinfo.htm

Sorry to hear about your mom though -- that sounds like a bad case of it.

-- Heidi

[Guest guest]

>>>>I used to get it a lot (along with neuropathy) which was probably from

....

well, you KNOW what I'm going to say --

------->drumroll.....taking bets.....anticipation is mounting.....can't

think what it could be.....

>>>gluten

----->gosh, you are full of surprises ;-) lol!

>>> and maybe casein.

------->speaking of casein, my dad asked me if the kefir i gave my mom

recently has anything to do with it. i told him not likely. my mom drinks

unfermented raw milk fairly regularly. maybe she's consuming *more* casein

now because she LOVES the kefir so much. so casein overload may be a

possibility. does the casein in kefir get broken down at all?

>>>>>Anyway, my

balance problems cleared up when I went GF. I used to feel like I was

spinning around when I closed my eyes and could not balance well. Sometimes

I'd have to sit down suddenly because it seemed like the room was keeling

over. I also get it slightly from sinus problems, when my ear gets backed

up, which the neti pot takes care of.

---------->the neti pot takes care of your clogged ear? my mom's been having

ear troubles lately and i think the ER doc described the point of origin of

vertigo as somewhere in or around the ear canal. my mom's had sinus issues

for *years*. i might be able to convince her to try the neti pot....

>>>Anyway, it is kind of a classic symptom of celiac, so if she has any

other

symptoms you might be able to convince the docs to test her, esp. since you

seem to be gluten sensitive too? See:

http://www.gastro.on.ca/patientinfo/patientinfo.htm

--------->i don't know if i am or not. but i had bad bloating and an upset

stomach for about 3 days this week, then i remembered that i suddenly ate a

lot of rye/wheat sourdough that i got at a farmer's market on sat. it's a

traditional ferment and the best bread i've had in ages. in any case, the

day i stopped eating it, i felt better. i haven't eaten much gluten since

last fall, so i don't really have a sense as to whether it's a problem for

me, at least until this episode. my mom *seems* to do OK with bread, but

she's cut back alot on my suggestion. she's half scottish, 2nd

generation...so i'm alert to the increased possibility of gluten

sensitivity. i hope i can get her to test, in any case. am i recalling

correctly that this the most accurate test?

http://www.enterolab.com/Information_About_Tests/#stool_gluten_sensitivity

>>>Sorry to hear about your mom though -- that sounds like a bad case of it.

-------->thanks heidi :-) it was definitely a miserable day for her, and it

scared me to see her like that. well, maybe now she'll go to the

WAPF-friendly ND in our area to get checked out, as it scared her too

thanks to lynn for your vertigo response, too!

Suze Fisher

Lapdog Design, Inc.

Web Design & Development

http://members.bellatlantic.net/~vze3shjg/

mailto:s.fisher22@...

[Guest guest]

>---------->the neti pot takes care of your clogged ear? my mom's been having

>ear troubles lately and i think the ER doc described the point of origin of

>vertigo as somewhere in or around the ear canal. my mom's had sinus issues

>for *years*. i might be able to convince her to try the neti pot....

If your sinuses have problems, sooner or later your ears do too. The sinus

drainage clogs the Eustacian tubes maybe? Anyway, the neti pot (with salt,

baking soda, and a 1/2 tsp of kefir whey) does wonders. Not all vertigo is

in the ears though -- it can also be in the brain.

I believe kefir casein is " hydrolyzed " , which is better than whole casein,

but when it comes to immune reactions, your body is reaction to a protein

*fragment* and unless the correct fragment is broken down you can still

react. Personally I have no idea -- if I drink too much kefir I get

migraines, but it seems to be ok in cookies etc or in smaller amounts.

Dried milk, on the other hand, is NOT ok even in small amounts.

Milk seems to be a lot less harmful to me than wheat, but it does have

major mental effects. It makes me feel like I have an eggbeater going on

inside my head -- usually the NEXT day, not immediately after I drink it.

>--------->i don't know if i am or not. but i had bad bloating and an upset

>stomach for about 3 days this week, then i remembered that i suddenly ate a

>lot of rye/wheat sourdough that i got at a farmer's market on sat. it's a

>traditional ferment and the best bread i've had in ages. in any case, the

>day i stopped eating it, i felt better. i haven't eaten much gluten since

>last fall, so i don't really have a sense as to whether it's a problem for

>me, at least until this episode. my mom *seems* to do OK with bread, but

>she's cut back alot on my suggestion. she's half scottish, 2nd

>generation...so i'm alert to the increased possibility of gluten

>sensitivity. i hope i can get her to test, in any case. am i recalling

>correctly that this the most accurate test?

><http://www.enterolab.com/Information_About_Tests/#stool_gluten_sensitivity>htt\

p://www.enterolab.com/Information_About_Tests/#stool_gluten_sensitivity

It is the most accurate test IF the person is eating a fair amount of

gluten. Most people who react to gluten don't really have any obvious

symptoms (as you know, having read Dangerous Grains!). But the people may

be intuitively eating *less* gluten than average so they test negative.

Also about 10% of people who react to gluten are deficient in IgA, and the

stool test is an IgA test, so those people test negative also. People who

are low on IgA seem to have more sinus problems, BTW.

The whole issue reminds me a lot of lead poisoning -- some people in Roman

times and early America suspected lead was a culprit, but it was such a

long-term thing and hard to pin down that no one really took them

seriously, and they didn't have good lead-in-the-body tests.

I just came back from visiting my Mom though, and she is rather breaking

down in lots of ways. I'm fairly sure she reacts to gluten and probably

other things, and she has bad arthritis, and she has no interest in

changing anything even if she knew for sure it would help, and she is a

nurse who specialized in nutrition, she just says " I'm too old to change "

(she has said that for the last 30 years). It was interesting when we went

out to eat -- she made a point of devouring a plate of rolls and telling us

how good they were, and her mood changed within an hour or two, even her

pupil dilation. Her diet is pretty good as American diets go otherwise, but

it is hard to just let people make their own mistakes, esp. your parents.

-- Heidi

[Guest guest]

> If your sinuses have problems, sooner or later your ears do too.

I have gotten substantial relief from ear problems with the neti pot. I

just use salt or if I'm sick I use a wash that came with my pot that

has zinc and other things in it. Works great, feels weird, looks

weirder, but I always feel much better afterwards. Your kids will laugh

themselves silly watching you do it.

(full disclosure: I sell neti pots and wash in my store, but I use

them.)

Lynn S.

-----

Lynn Siprelle * Writer, Mother, Programmer, Fiber Artisan

The New Homemaker: http://www.newhomemaker.com/

Siprelle & Associates: http://www.siprelle.com/

[Guest guest]

>---------->the neti pot takes care of your clogged ear? my mom's been

having

>ear troubles lately and i think the ER doc described the point of origin of

>vertigo as somewhere in or around the ear canal. my mom's had sinus issues

>for *years*. i might be able to convince her to try the neti pot....

If your sinuses have problems, sooner or later your ears do too. The sinus

drainage clogs the Eustacian tubes maybe? Anyway, the neti pot (with salt,

baking soda, and a 1/2 tsp of kefir whey) does wonders. Not all vertigo is

in the ears though -- it can also be in the brain.

----->thanks heidi. i just saved this email to my " human health " folder.

i've got a ton of other posts from you in there! lots of recipes especially.

i thought i had saved your earlier posts on neti pots, but don't see them at

a glance. i'll have to check the archives. in any case, when i get back from

my mini-vacation next monday, i'll start looking into this because it sounds

like it would be GREAT for my mom. it's likely that she's got a ear

infection, and this may have caused the vertigo. she's come to adore kefir,

but it may take a little convincing to get her to squirt it up her nose ;-)

maybe i'll try first.

>>>>I believe kefir casein is " hydrolyzed " , which is better than whole

casein,

but when it comes to immune reactions, your body is reaction to a protein

*fragment* and unless the correct fragment is broken down you can still

react. Personally I have no idea -- if I drink too much kefir I get

migraines, but it seems to be ok in cookies etc or in smaller amounts.

Dried milk, on the other hand, is NOT ok even in small amounts.

----->i would guess it would be *somewhat* hydrolized based on how well

kefir buggies tenderize *meat*. question: reactions to protein can be to

the *whole intact* protein as well as *fragments*, right? and generally, the

smaller the fragment, the less likely the reaction, because the probabililty

of smaller fragments having a unique amino acid sequence becomes less and

less when there are fewer amino acids bound together, right?

>>>I just came back from visiting my Mom though, and she is rather breaking

down in lots of ways. I'm fairly sure she reacts to gluten and probably

other things, and she has bad arthritis, and she has no interest in

changing anything even if she knew for sure it would help, and she is a

nurse who specialized in nutrition, she just says " I'm too old to change "

(she has said that for the last 30 years). It was interesting when we went

out to eat -- she made a point of devouring a plate of rolls and telling us

how good they were, and her mood changed within an hour or two, even her

pupil dilation. Her diet is pretty good as American diets go otherwise, but

it is hard to just let people make their own mistakes, esp. your parents.

------->wow, that would kinda crush my heart to see my mom deteriorate like

that and not want to do anything about it. sorry to hear it i'm fortunate

in that my parents don't have any major health issues (that we know about)

AND they take most of my dietary advice eventually. over the last year

they've started eating a lot more locally raised grass-fed red meat,

switched from pasteurized milk to raw, switched from margerine to butter,

reduced their bread consumption considerably (they used to eat a lot of

artisian white bread), and my mom has yogurt or kefir daily, plus i found

her wandering around the local HFS one day looking for *lard*! however,

she's been eating a bowl of (processed) wheat bran *daily* for years, which

i don't think is doing her any good. i've suggested alternatives, but she's

worried that she might have a return of IBS, which she had a bout with when

she was in grad. school about 6 years ago. sigh...i'll keep looking for

alternatives to this, though.

this probably won't make you feel any better, but my overweight grandma ate

a ton of processed foods and lived to 89, same with my grandpa on the other

side of the family. of course there's always genetics (to some minor extent

probably) and the fact that they both probably ate traditional foods as

youngsters, but your mom could well live to an old age without *major*

discomfort from degeneration. my grandma did have a few strokes and she got

crampy legs, but my grandpa was still playing tennis into his late 80s (i

think), and i don't recall him having any major health issues in his senior

years.

Suze Fisher

Lapdog Design, Inc.

Web Design & Development

http://members.bellatlantic.net/~vze3shjg/

mailto:s.fisher22@...

[Guest guest]

>----->thanks heidi. i just saved this email to my " human health " folder.

>i've got a ton of other posts from you in there! lots of recipes especially.

>i thought i had saved your earlier posts on neti pots, but don't see them at

>a glance. i'll have to check the archives. in any case, when i get back from

>my mini-vacation next monday, i'll start looking into this because it sounds

>like it would be GREAT for my mom. it's likely that she's got a ear

>infection, and this may have caused the vertigo. she's come to adore kefir,

>but it may take a little convincing to get her to squirt it up her nose ;-)

>maybe i'll try first.

Have her do it without the whey first. It stings some people. I think it is

ok for me because I use baking soda too, and it buffers the acid.

> ----->i would guess it would be *somewhat* hydrolized based on how well

>kefir buggies tenderize *meat*. question: reactions to protein can be to

>the *whole intact* protein as well as *fragments*, right? and generally, the

>smaller the fragment, the less likely the reaction, because the probabililty

>of smaller fragments having a unique amino acid sequence becomes less and

>less when there are fewer amino acids bound together, right?

Yeah, it is very complex. Basically the reaction IS to a fragment, so

something like beer, which really only has tiny peptide fragments, gives

folks reactions anyway. But on the other hand, some bacterial reactions

alter that one particular fragment even though they don't break down the

whole protein, so people don't react. There is one bacteria that seems to

do that to one bad spot on gliadin (but people may react to multiple

" spots " , so it isn't foolproof). Anyway, I read some study once about some

reaction to casein that was only found on intact casein, not on hydrolyzed

casein, which makes me think that the hydrolyzation process (which is

basically putting the casein with acid, I think) does something that makes

it easier to tolerate.

>------->wow, that would kinda crush my heart to see my mom deteriorate like

>that and not want to do anything about it. sorry to hear it i'm fortunate

>in that my parents don't have any major health issues (that we know about)

>AND they take most of my dietary advice eventually. over the last year

>they've started eating a lot more locally raised grass-fed red meat,

>switched from pasteurized milk to raw, switched from margerine to butter,

>reduced their bread consumption considerably (they used to eat a lot of

>artisian white bread), and my mom has yogurt or kefir daily, plus i found

>her wandering around the local HFS one day looking for *lard*! however,

>she's been eating a bowl of (processed) wheat bran *daily* for years, which

>i don't think is doing her any good. i've suggested alternatives, but she's

>worried that she might have a return of IBS, which she had a bout with when

>she was in grad. school about 6 years ago. sigh...i'll keep looking for

>alternatives to this, though.

I was reading on IBS that wheat bran is NOT considered good for IBS --

almost any other fiber works better. Maybe you could get her hooked on

psyllium? Or quinoa? Quinoa is really GOOD, IMO, most folks like it when I

cook it, nice and fluffy, easy to make.

Sounds like you are making great progress with them though! That is nice!

>this probably won't make you feel any better, but my overweight grandma ate

>a ton of processed foods and lived to 89, same with my grandpa on the other

>side of the family. of course there's always genetics (to some minor extent

>probably) and the fact that they both probably ate traditional foods as

>youngsters, but your mom could well live to an old age without *major*

>discomfort from degeneration. my grandma did have a few strokes and she got

>crampy legs, but my grandpa was still playing tennis into his late 80s (i

>think), and i don't recall him having any major health issues in his senior

>years.

Actually she IS doing pretty well: her mind is sharp and she has had no

cancer etc. and here diet is mostly pretty good. She just has awful

arthritis, which was worrying me because I was getting it too. All her

connective tissues don't work right, and never have -- my son, daughter,

and myself have the same problem. Mine is getting a LOT better, and I think

the kids are too. I THINK the issue might be anti-endomysial antibodies:

people who react to gluten create self-attacking antibodies that eat up the

endomysium, which is part of the connective tissues/muscle structure. I'm

not sure if changing her diet at this point would help either, because the

cartilage is gone in her knees: would it regrow? I don't know, but she's

convinced nothing will help. Anyway, thanks for the words of encouragement!

-- Heidi

[Guest guest]

I have just had a nearly 2 week long episode of vertigo. It was, by

far, the most horrible thing I have ever gone thru! I didn't realize

it could be a symptom of my cmt. I had had 2 or 3 other episodes of

vertigo over the last, oh.......6 or 7 years that lasted less than 24

hours. I hope this isn't a new symptom that is going to start

striking more often and last longer each time.

Bob in Indianapolis

[Guest guest]

Hello Brittney,

I don't now sure its belong to CMT.

But I now the problems with cardriving.

I don't go more as 15 kilometers from home at my own.

When you are alone and have it, you must wait till its over.

There is nothing to do about it. I put on my sunglesses when the

air is clear. And when I am home and get it I take some medicine,

cinnarizine. But you get sleepy from it.

greetings

Mieke

[Guest guest]

Bob,

When you have vertigo does it feel like you're on an

upside down rollar coaster or something? Thats what it

feels like for me! its like all of a sudden my whole

body feels like its moving upside down and swaying all

around and i'm not even moving at all ! then my eyes

sort of hurt...? does any of this sound familar to you

or am i just going insane???

Brittney

[Guest guest]

Brittney,

Well, never rule out insanity.........hehe........just kidding. Every time

I have been hit with it it is while I am sleeping. It will jolt me awake and

when I open my eyes, the room is spinning at a 45-degree angle that is

opposite each other in each eye..........VERY nauseating. I can't walk without

falling like a drunk all over the place and spend most of the time trying to

make

it stop on the bathroom floor. My eyes never hurt tho. Do you get a headache

with it or just eye pain? Wondering if you are having migraines instead. I

won't be available to answer your reply until next weekend, as I am heading on

a week's journey to photograph lighthouses on the Great Lakes. Best of luck!

Bob in Indianapolis

[Guest guest]

Bob,

How weird! I've woken up before and felt that way too!

It's like everything is spinning and my body is moving

all over the place.... how very odd.. and yes

unfortunately i have migraines and lately i've been

upset about some personal relationship stuff and i've

been getting them quite often. So i'm thinking that

maybe i get vertigo when my eyes are hurting or

something? and then that might trigger the migraine?

or maybe vertigo sets off the headache? i don't

know... i'm just confused about it all ..... but have

fun at the lighthouses! sounds beautiful!

- Brittney from TN ( - Very small town called

ton )

[Guest guest]

,

Just recently my dad had some problems with vertigo. He always leans on

counters and walls to maintain balance, but it wasn't enough one day. He was

combing his hair and while attempting to return his comb to the shelf, he lost

all balance and fell over. I don't know exactly how or why, but he was unable

to return to his feet so her crawled to his bedroom and called my mother at her

job to return home and assist him. When she got there he was sprawled across

their bed with his head in a trash can as he was then unable to control the

vomiting. I don't know whether it is age-discriminant or not but my dad is 60

years. Hope this helps,

[Guest guest]

, Have you been checked for an inner ear infection?

[Guest guest]

Hi Saranya,

Do we know for sure if the vertigo is due to the LDN or possibly a flare up?

Would you be open to the idea of looking to change your LDN dosage? Believe

me I know how horrible vertigo can be, my thoughts are with you. It might

not be the answer for you, but meditation did wonders for me while going

through OP and vertigo. Good luck

-----Original Message-----

From: saranyasaranye [mailto:saranyasaranye@...]

Sent: Thursday, October 07, 2004 12:31 PM

low dose naltrexone

Subject: [low dose naltrexone] Vertigo

I have been taking LDN for only a week at 1.5 mg and am pretty intensely

dizzy. Is this unusual? I really want to give LDN a chance but this is a

big obstacle. Saranya

[Guest guest]

Thank you . I looked on the search and found a post from Alison

from Oct.4 and see that my situation is very similar to hers.

Initial burst of energy and then dizziness, brain fog, leg spasms,

fatigue and now a nasty headache. These particular symptoms are not

my usual pattern in flare ups. Although I am just coming out of one

and these last few days feel like a set back. I also am wondering if

people taking LDN have had these experiences and gone beyond them to

benefit. I am willing to change the dose but to what? Higher? I am

by the way a regular meditator. Saranya

- In low dose naltrexone , " Baden " <lbaden@t...>

wrote:

> Hi Saranya,

> Do we know for sure if the vertigo is due to the LDN or possibly a

flare up?

> Would you be open to the idea of looking to change your LDN dosage?

Believe

> me I know how horrible vertigo can be, my thoughts are with you. It

might

> not be the answer for you, but meditation did wonders for me while

going

> through OP and vertigo. Good luck

>

>

> -----Original Message-----

> From: saranyasaranye [mailto:saranyasaranye@y...]

> Sent: Thursday, October 07, 2004 12:31 PM

> low dose naltrexone

> Subject: [low dose naltrexone] Vertigo

>

>

>

> I have been taking LDN for only a week at 1.5 mg and am pretty

intensely

> dizzy. Is this unusual? I really want to give LDN a chance but

this is a

> big obstacle. Saranya

>

>

>

>

>

>

[Guest guest]

Hi Saranya,

Since you're taking only 1.5mg, you can't try taking less. Therefore, I'd

try 3mg for at least a week to see what type of reaction you get. I'm going

from 3 to 4.5 this evening, so I'll be thinking about you! Have a great

weekend!

-----Original Message-----

From: saranyasaranye [mailto:saranyasaranye@...]

Sent: Thursday, October 07, 2004 9:15 PM

low dose naltrexone

Subject: [low dose naltrexone] Re: Vertigo

Thank you . I looked on the search and found a post from Alison from

Oct.4 and see that my situation is very similar to hers.

Initial burst of energy and then dizziness, brain fog, leg spasms, fatigue

and now a nasty headache. These particular symptoms are not my usual pattern

in flare ups. Although I am just coming out of one and these last few days

feel like a set back. I also am wondering if people taking LDN have had

these experiences and gone beyond them to benefit. I am willing to change

the dose but to what? Higher? I am by the way a regular meditator.

Saranya

- In low dose naltrexone , " Baden " <lbaden@t...>

wrote:

> Hi Saranya,

> Do we know for sure if the vertigo is due to the LDN or possibly a

flare up?

> Would you be open to the idea of looking to change your LDN dosage?

Believe

> me I know how horrible vertigo can be, my thoughts are with you. It

might

> not be the answer for you, but meditation did wonders for me while

going

> through OP and vertigo. Good luck

>

>

> -----Original Message-----

> From: saranyasaranye [mailto:saranyasaranye@y...]

> Sent: Thursday, October 07, 2004 12:31 PM

> low dose naltrexone

> Subject: [low dose naltrexone] Vertigo

>

>

>

> I have been taking LDN for only a week at 1.5 mg and am pretty

intensely

> dizzy. Is this unusual? I really want to give LDN a chance but

this is a

> big obstacle. Saranya

>

>

>

>

>

>

[Guest guest]

Carol, Here are a few notes I have on hand...(got more somewhere) ginger can act relatively quickly-even within minutes-to combat the dizziness and nausea associated with motion sickness or mild vertigo ginkgo biloba, which boosts blood flow to the brain, helped almost half of the patients with chronic vertigo. It may, however, take eight to twelve weeks for ginkgo's effects to be noticed. In addition, vitamin B6, essential to normal brain and nervous system function, may be useful in some cases of chronic dizziness. Cut down on nicotine, caffeine, and salt, which can impair blood flow to the brain. Usual dosage Ginger 100 mg standardized extract every 4 hours as needed.Or try fresh ginger root (1/4 - to 1/2 - inch slice), ginger tea (1/2 tsp, ginger root per cup of hot water or powdered ginger (1 gram)-all taken 3 times a day, Ginger ale (8-ounce glass 3 times a day) can be equally effective if made with real ginger. Ginkgo biloba 80 mg 3 times a day.Standardized to have at least 24% flavone glycosides. Vitamin B6 50 mg 3 times a day.200 mg daily over long term may cause nerve damage. http://www.arcadiaherbsandalternatives.com/products/dizziness.aspx is a link for a vertigo product... take the ingredients and maybe make your own tincture or tea.... Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats __________________________________________________