A NEW MEMBER,WITH A RARE DISEASE

[Guest guest]

HI ALL,

I'm so happy finding this group and joining it,I'm a 32 year old

female having a rare disease called TAKAYASU which is an

inflammatory disease of unknown etiology that affects the aorta and

its branches.I was diagnosed when I was 18 and since then i'm

sufferimg from hypertension and many other things

15 years of sickness changed my whole life,15 years of medication

made me a girl full of sadness,depression,lonely one, with no aim

except searching day and night for the right medicine for my

disease,no matter what i do to prevent this painful feeling I

always fail cause of this huge gap between me and happiness,I'm full

of hope and faith and I know that it's GOD will for me being

sick,but I also feel that i need some help with some advise to pass

what i'm going through.

WITH RESPECT,

MIRNA.