Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Caroline, Only 6 more weeks - so glad to hear that is doing well - you're getting there now! Kerri 's mom --- In Plagiocephaly , " masetane " <masetane@a...> wrote: My son started treatment at 5 months and now at 6 > months he is half way there. They are telling me 6 more weeks of > treatment. Check into Cranial Tech or StarBand > Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Thanks . Caroline had a great day. Her pneumonia/cough is still pretty bad, but she's still her happy chipper self! She got a new Barbie Bicycle for her birthday so she's been riding to " school " and " grandma's house " all day! I can't wait for winter to be over so she can actually take the bike outside instead of through the kitchen!! Alia and Caroline, age 3, poly and uveitis Caroline Happy Birthday Day to Caroline!! I hope today brought a pain free and wonderful day! Lots of Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Hi Alia, I am so glad to hear that Caroline is doing a little better and that she was able to enjoy her birthday party. She has had such a difficult winter. I am praying that nothing gets worse while you are in the process of changing meds. I bet Caroline will be a great big sister! My kids are almost 3 1/2 years apart and I just loved that age difference. My son was able to take a very active part of welcoming Aundrea home. They have always enjoyed a good sibling bond. thought that we brought Aundrea home to him as a present! :-) God Bless, (drea 9 systemic) > Thanks . Caroline had a great day. Her pneumonia/cough is still pretty > bad, but she's still her happy chipper self! She got a new Barbie Bicycle > for her birthday so she's been riding to " school " and " grandma's house " all > day! I can't wait for winter to be over so she can actually take the bike > outside instead of through the kitchen!! > > Alia and Caroline, age 3, poly and uveitis > > Caroline > > > Happy Birthday Day to Caroline!! I hope today brought a pain free and > wonderful day! > > Lots of Love > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Alia! Soft hugs and plentiful prayers are coming your way for Miss C. Maybe just a bit too much fun this weekend. The young adults often discuss the post conference flare so hope all stay away from that..... Hang tight , Hang tough Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Oh no! Hearing that was enough to bring me out of my " lurking " mode! I am so, so sorry to hear of her latest health hurdle! That really stinks. She, you, and your family are all in out thoughts. We will be hoping she gets through this as quickly and smoothly as possible! Please keep us updated on her progress (as I'm sure you will)! I apologize to everyone else. I've had some re-occurring back pain that I've been going through the " process " of finding out what is the cause/cure. I'm currently in PT and am having another laparoscopy (had one in 2000) b/c I think my endometriosis has reared its ugly head again. ANYWAY, with all that and the girls' birthdays (Sophie turned 5 on the 13th and Charlie will be one on the 25th), I've been lurking through the posts these past couple of months. Quickly, I have all the " newbies " in my thoughts. I hate to read of the newly diagnosed. However, I'm glad they find their way to this group. Though I lurk, I still feel supported through the many stories that are so incredibly similar to our own! The " veterans " are there, as well: Caroline, Hannah, , Rob, and the many others. I constantly hope a stretch of quiet, inactive peace fills your homes! On a personal note, Sophie is doing well. Went to the Rheumy last week. She remains quiet. Her liver counts went up when we tried to bump up her mtx dosage. We've gone back down a bit and her eyes are still quiet. I'm not sure that will be the case in 6 weeks when we return to her ophthalmologist. If she flares again, we will be making a trip to Boston and her rheumy want to try a switch to Enbrel. So, we wait... Again, Alia... I can't tell you how sorry I am to hear of that sweet daughter of yours having to fight yet another illness! That girl of yours is so dang tough! To the rest of you, I hope this message finds you and your families well. I think of you all often and constantly read your posts for support and inspiration. Thanks for being a dependable source for both!!! Take care, Weber Professional Mom to: Sophie - NOW 5!!!!! - pauci/panuveitis - JRA super fighter Charlie - the big ONE in 7 days!!!! - it's a good thing she's so cute... I'd have given her back long ago if she wasn't ;-) On 7/18/06, Alia Pranke <Alia.Pranke@...> wrote: > > Hey everyone - > > Please say an extra prayer for Miss C tonight. We just got back from > the doctor and she has PNEMONIA!!! > > We are starting her on an anti-biotic treatment and we'll go back in 5 > days to re check her. I assume no Remicade today, but we haven't been > able to get a hold of her rheumy.. > > Alia and Caroline, age 4, poly and uveitis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 oh Dear Lord Alia, What more? Sending prayers and hugs your way. Jo and family PS: checked out your website, but couldn't see pics of car magnets? Hey everyone - > Please say an extra prayer for Miss C tonight. We just got back from > the doctor and she has PNEMONIA!!! > We are starting her on an anti-biotic treatment and we'll go back in 5 > days to re check her. I assume no Remicade today, but we haven't been > able to get a hold of her rheumy.. > > Alia and Caroline, age 4, poly and uveitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Alia: Sending happy thoughts & hugs your way! Alia Pranke <Alia.Pranke@...> wrote: Hey everyone - Please say an extra prayer for Miss C tonight. We just got back from the doctor and she has PNEMONIA!!! We are starting her on an anti-biotic treatment and we'll go back in 5 days to re check her. I assume no Remicade today, but we haven't been able to get a hold of her rheumy.. Alia and Caroline, age 4, poly and uveitis Beth Yohnk Happy Thoughts..Be Well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Hey Jo - Yes I agree. Caroline is definitely one of those kids that as an extra hard time with things. If it's not the arthritis or the uveitis - it's those nasty infections! I worry about what this means for her Remicade. We have only done 4 Remicade treatments, but pnemonia is not a good sign for her. Especially considering it is JULY!! I left a message with her nurse, but she told me that she would not be happy!! Thanks for thinking of us. Now that I am back I will send off some magnets and bracelets to you down under!! Alia and Caroline, age 4, poly and uveitis > Hey everyone - > > Please say an extra prayer for Miss C tonight. We just got back from > > the doctor and she has PNEMONIA!!! > > We are starting her on an anti-biotic treatment and we'll go back in > 5 > days to re check her. I assume no Remicade today, but we haven't > been > able to get a hold of her rheumy.. > > > Alia and Caroline, age 4, poly and uveitis > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Tracey - Happy birthday Sopie and Charlie!!! Where does the time go?? I am so glad to hear that Sophie's eye's are doing well. I am sorry to hear she can't tolerate more MTX, but at least it's holding it's own for now. If you go to MERSI you will be so impressed! Dr. is just amazing. Thanks for the warm thoughts - they are much appreciated! Alia and Caroline, age 4, poly and uveitis Evan Guy, age 1, aka " I like to move it, move it " > > > > Hey everyone - > > > > Please say an extra prayer for Miss C tonight. We just got back from > > the doctor and she has PNEMONIA!!! > > > > We are starting her on an anti-biotic treatment and we'll go back in 5 > > days to re check her. I assume no Remicade today, but we haven't been > > able to get a hold of her rheumy.. > > > > Alia and Caroline, age 4, poly and uveitis > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Thanks Robbin!! Alia and Caroline, age 4, poly and uveitis > > Alia, > I hope Caroline feels better soon. When did she get sick? I was praying > That wouldn't get sick going from the cold AC to the HEAT outside. > Then when she got in that pool. I said be sure to cover yourself up before > going back inside. My Son got that because I would carry him inside and outside > cold to hot. Tell Caroline we said Hi > Robbin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Alia, I get on when I can here days but came across this new thread tonite. I hope and pray after a few days Caroline is much better. delt with this at Christmas time and By late Jan early Feb had developed a real,CDC reported case of the flu. was given antibiotics with the thought that it could be viral.Sure enough it was and the cough lasted and lasted and lasted some more. Keep us posted on how Miss C is. Love and hugs Becki and 7 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Caroline, I've had a few members ask if we can do something for you (financially or otherwise, i.e. food, herbs, etc... I think it is a wonderful idea. I asked you earlier and you said prayers... which I'm sure you're getting... but can we help you out with the electric bill?? We all either have been there or maybe someday we will be there ourselves... You can either post your mailing addy or if you have paypal, or if you prefer I can handle the funds and send you one check... I'm writing this on the group as I'm sure from the past there are others who are probably thinking the same thing but haven't said anything yet. Let me know Caroline... we are family here. Your "group mom" Suzi Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 I honestly don't know what to say....I am truly blessed to have people like all of you in my life. My home mailing address is: Caroline Hanifen 1217 Belair Street E Lehigh Acres, FL 33936 I don't expect anything...because it is not my way. A note of encouragement that things will be alright is always enough for me to keep going on most days. You all are very special to offer. I am in tears here. It has just been such a rough few months...and the last two weeks have been unbelievable. I don't know if I told you all...but my brother in law was killed in an accident the monday before last. It has been a very emotional two weeks...with everything else going on it has been difficult. This was my husband's last brother. My son not only lost his father to a terrible accident but his two uncles as well. My mother in law has lost all of her children...which no mother should ever have to endure. It has been a terrible emotional roller coaster we have been on. Plus my mother in law has had two strokes since then...and believe it or not...I'm the closest person to her!! Anyway...I do truly thank all of you...you guys are so incredible!! Sincerely blessed, Caroline >Caroline, >I've had a few members ask if we can do something for you >(financially or otherwise, i.e. food, herbs, etc... >I think it is a wonderful idea. I asked you earlier and you said >prayers... which I'm sure you're getting... but can we help you out >with the electric bill?? We all either have been there or maybe >someday we will be there ourselves... >You can either post your mailing addy or if you have paypal, or if >you prefer I can handle the funds and send you one check... > >I'm writing this on the group as I'm sure from the past there are >others who are probably thinking the same thing but haven't said anything yet. > >Let me know Caroline... we are family here. > >Your " group mom " >Suzi -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.12.13/463 - Release Date: 10/4/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Hi Caroline, had you had blood tests before you tried the T3? I was diagnosed with fibromyalgia and given amitriptylene, which really helps me - in fact Ive been trying to cut it down since being on levothyroxine and my pains have come back! Im not sure how it works but it relaxes muscles and really does make a massive difference to me. If you havent tried it I would suggest doing so as the difference to me is being fairly normal or being in lots of pain! Some studies on fibromyalgia have said its hypoT and T3 works but there are others that say it might be due to lack of human growth factor and other things as well - Dr Lowe is good for fibromyalgia studies. Gill Gill Hi Shelia Last year around June I think I was doing terrific, i was on 100mg t3 and 20mg cortef. I was able to exercise daily, gardening, and able to write which is my passion. I was thinking about going back to work, but was not 100% well. I went up to 150mg t3 (over time) and went a bit worse but not hyper. My temps have never been stable and I spoke to dr P, who told me to come of all t3 and go up to 40mg cortef. This unfortunately did not help, temps still all over the place, can vary a degree every day and yes I've tried different themomeeters. At this stage I decided to see if I could get an nhs diagnosis so booked an appointment at huddersfield. It was a diaster my letters kept getting lost and the surgery told me to ring up every day, my GP put that is was a referral for fibromyalgia so Dr B refused to see me. Back to GP new referral and eventually he saw me. The minuite we walked in he was moaning about the fact that i had been chasing the letters and refused to listen to symptoms only wanted blood tests. Results were T4 14.7 (8-21) T3 4.8 (2.5-6) TSH 1.4 (.2-4) Ferretin 25 (15-230) Dr B said I was totally normal and he would not treat me including ferritin. I started on iron and t3 straight away and have got up to 60mg T3 and 100mg iron one day 200mg the next. Unfortunatley I have not been able to get myself recovering this time and neck, shoulder and back pain has been terrible as well as headaches. I am spending most days going from my bed to the bath and just praying the day will be over. I have noticed that my hands are no longer as cold so hopefully I am on the road to recovery. If you have any advice, please let me know as I have been at my wits end. Regards Carolinesheilaturner <sheilaturnertpa-uk (DOT) org.uk> wrote: I am sorry to hear you are feeling so rotten since stopping your T3. Can you remind me why you did that? Luv - Sheila .. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (4) Reply (via web post) | Start a new topic .. __,_._ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 I am one who says that Fibromyalgia is another name for hypothyroidism. This is the name doctors call this disease when they don't know how to diagnose or treat hypothyroidism. T3 is the drug of choice for people who suffer CFS, ME, Fibromyalgia - and is the active hormone all hypothyroids need. Gill, if you went on to Armour, I bet you your pains would disappear. You've read the papers - you should perhaps try the medicine. luv - Sheila Hi Caroline, had you had blood tests before you tried the T3? I was diagnosed with fibromyalgia and given amitriptylene, which really helps me - in fact Ive been trying to cut it down since being on levothyroxine and my pains have come back! Im not sure how it works but it relaxes muscles and really does make a massive difference to me. If you havent tried it I would suggest doing so as the difference to me is being fairly normal or being in lots of pain! Some studies on fibromyalgia have said its hypoT and T3 works but there are others that say it might be due to lack of human growth factor and other things as well - Dr Lowe is good for fibromyalgia studies. Gill Gill Hi Shelia Last year around June I think I was doing terrific, i was on 100mg t3 and 20mg cortef. I was able to exercise daily, gardening, and able to write which is my passion. I was thinking about going back to work, but was not 100% well. I went up to 150mg t3 (over time) and went a bit worse but not hyper. My temps have never been stable and I spoke to dr P, who told me to come of all t3 and go up to 40mg cortef. This unfortunately did not help, temps still all over the place, can vary a degree every day and yes I've tried different themomeeters. At this stage I decided to see if I could get an nhs diagnosis so booked an appointment at huddersfield. It was a diaster my letters kept getting lost and the surgery told me to ring up every day, my GP put that is was a referral for fibromyalgia so Dr B refused to see me. Back to GP new referral and eventually he saw me. The minuite we walked in he was moaning about the fact that i had been chasing the letters and refused to listen to symptoms only wanted blood tests. Results were T4 14.7 (8-21) T3 4.8 (2.5-6) TSH 1.4 (.2-4) Ferretin 25 (15-230) Dr B said I was totally normal and he would not treat me including ferritin. I started on iron and t3 straight away and have got up to 60mg T3 and 100mg iron one day 200mg the next. Unfortunatley I have not been able to get myself recovering this time and neck, shoulder and back pain has been terrible as well as headaches. I am spending most days going from my bed to the bath and just praying the day will be over. I have noticed that my hands are no longer as cold so hopefully I am on the road to recovery. If you have any advice, please let me know as I have been at my wits end. Regards Carolinesheilaturner <sheilaturnertpa-uk (DOT) org.uk> wrote: I am sorry to hear you are feeling so rotten since stopping your T3. Can you remind me why you did that? Luv - Sheila .. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (4) Reply (via web post) | Start a new topic .. __,_._ No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1331 - Release Date: 16/03/2008 10:34 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Hi Shiela, Im hoping that my endo will try T3 when I see him again in about 3 weeks, then if that doesnt sort me out I will press him for Armour - Im trying to go down the NHS route and my endo will prescribe Armour, though he will only do so as a last resort, so Im trying to 'hang in there'. I do think that fibromyalgia is caused by hypothyroidism, but I wonder if there are other causes as well, or is it that because we werent treated early enough - in my case because my bloods have always been 'normal' - that the fiibromyalgia either takes longer to go away or even doesnt go away! But for anyone suffering still with fibromyalgia I really have found that the amitriptylene does make a difference. Gill I am one who says that Fibromyalgia is another name for hypothyroidism. This is the name doctors call this disease when they don't know how to diagnose or treat hypothyroidism. T3 is the drug of choice for people who suffer CFS, ME, Fibromyalgia - and is the active hormone all hypothyroids need. Gill, if you went on to Armour, I bet you your pains would disappear. You've read the papers - you should perhaps try the medicine. luv - Sheila Hi Caroline, had you had blood tests before you tried the T3? I was diagnosed with fibromyalgia and given amitriptylene, which really helps me - in fact Ive been trying to cut it down since being on levothyroxine and my pains have come back! Im not sure how it works but it relaxes muscles and really does make a massive difference to me. If you havent tried it I would suggest doing so as the difference to me is being fairly normal or being in lots of pain! Some studies on fibromyalgia have said its hypoT and T3 works but there are others that say it might be due to lack of human growth factor and other things as well - Dr Lowe is good for fibromyalgia studies. Gill Gill Hi Shelia Last year around June I think I was doing terrific, i was on 100mg t3 and 20mg cortef. I was able to exercise daily, gardening, and able to write which is my passion. I was thinking about going back to work, but was not 100% well. I went up to 150mg t3 (over time) and went a bit worse but not hyper. My temps have never been stable and I spoke to dr P, who told me to come of all t3 and go up to 40mg cortef. This unfortunately did not help, temps still all over the place, can vary a degree every day and yes I've tried different themomeeters. At this stage I decided to see if I could get an nhs diagnosis so booked an appointment at huddersfield. It was a diaster my letters kept getting lost and the surgery told me to ring up every day, my GP put that is was a referral for fibromyalgia so Dr B refused to see me. Back to GP new referral and eventually he saw me. The minuite we walked in he was moaning about the fact that i had been chasing the letters and refused to listen to symptoms only wanted blood tests. Results were T4 14.7 (8-21) T3 4.8 (2.5-6) TSH 1.4 (.2-4) Ferretin 25 (15-230) Dr B said I was totally normal and he would not treat me including ferritin. I started on iron and t3 straight away and have got up to 60mg T3 and 100mg iron one day 200mg the next. Unfortunatley I have not been able to get myself recovering this time and neck, shoulder and back pain has been terrible as well as headaches. I am spending most days going from my bed to the bath and just praying the day will be over. I have noticed that my hands are no longer as cold so hopefully I am on the road to recovery. If you have any advice, please let me know as I have been at my wits end. Regards Carolinesheilaturner <sheilaturnertpa-uk (DOT) org.uk> wrote: I am sorry to hear you are feeling so rotten since stopping your T3. Can you remind me why you did that? Luv - Sheila .. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Messages in this topic (4) Reply (via web post) | Start a new topic .. __,_._ No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1331 - Release Date: 16/03/2008 10:34 Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.6/1192 - Release Date: 21/12/07 13:17 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Hi Gill I had blood tests at gp several times, always normal only ones i have are june 2005 t4 19 tsh 0.69 This said to me I wasn't converting and I did wilsons t3 protocal for about a year with great results. Only problem was it was a private doctor in Hove so very expensive. She has now retired so I had to stop. Next I went to see Dr Peatfield, he diagnoised me and put me on Armour, but it gave me headaches so he changed me to T3. I was doing great on T3 and cortef but came of it as my temps never stabalised. Now can't seem to get it right again. I have tried amitriptiline but it never helped and it is a drug I just don't want to use. It made me very drowsy and increased my migraines. Luv Caroline GILL <gilljohnthurgo@...> wrote: Hi Caroline, had you had blood tests before you tried the T3? I was diagnosed with fibromyalgia and given amitriptylene, which really helps me - in fact Ive been trying to cut it down since being on levothyroxine and my pains have come back! Im not sure how it works but it relaxes muscles and really does make a massive difference to me. If you havent tried it I would suggest doing so as the difference to me is being fairly normal or being in lots of pain! Some studies on fibromyalgia have said its hypoT and T3 works but there are others that say it might be due to lack of human growth factor and other things as well - Dr Lowe is good for fibromyalgia studies. Gill Gill . Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Hi Caroline, When I was given this for pain, yes I slept well but couldn't wake up properly the next day, I was like a zombie. Also it is known to cause weight gain and I can do without gaining anymore. I wont use it again either. Luv Dee > I have tried amitriptiline but it never helped and it is a drug I just don't want to use. It made me very drowsy and increased my migraines. > > Luv > Caroline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Hi Caroline, Maybe you could find something about temps not stabilizing on http://www.drlowe.com or ask him the question on his online facility. Subject: Re: Caroline Hi Gill I had blood tests at gp several times, always normal only ones i have are june 2005 t4 19 tsh 0.69 Next I went to see Dr Peatfield, he diagnoised me and put me on Armour, but it gave me headaches so he changed me to T3. I was doing great on T3 and cortef but came of it as my temps never stabalised. Now can't seem to get it right again. I have tried amitriptiline but it never helped and it is a drug I just don't want to use. It made me very drowsy and increased my migraines. Luv Caroline GILL <gilljohnthurgo@...> wrote: Hi Caroline, had you had blood tests before you tried the T3? I was diagnosed with fibromyalgia and given amitriptylene, which really helps me - in fact Ive been trying to cut it down since being on levothyroxine and my pains have come back! Im not sure how it works but it relaxes muscles and really does make a massive difference to me. If you havent tried it I would suggest doing so as the difference to me is being fairly normal or being in lots of pain! Some studies on fibromyalgia have said its hypoT and T3 works but there are others that say it might be due to lack of human growth factor and other things as well - Dr Lowe is good for fibromyalgia studies. Gill Gill .. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
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