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Re: Thanks and TORPs

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Better she gets Titanium prosthesis then ceramic

Dr.Arun

On Fri, Oct 7, 2011 at 1:28 PM, risky_fairy <risky_fairy@...> wrote:

 

Hi,Thank you to all that replied to my post about their experiences of cholesteatoma in both ears. When I've googled it I just get research studies of people affected by c-toma in both ears and can't find any statistics on it. No matter, we'll deal with it if ever it happens!

As my daughter lost all her ossicles in her left ear with no reconstruction of them at the time of surgery, the consultant has recommended that she has a TORP op. (total ossicle replacement prosthesis) in a few years. Has anyone on here had any experience of this operation and the prosthesis?

Thanks again!

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My son lost2.5 oscicles. Just the stapes foot plate remained... he had a titanium implant inserted in July, we have his audiologist appointment this week to see what affect it has had. We THINK it has helped a bit, but he does get bothered by some pitches and vibrations now, like loud  low noises in a movie theatre seem to resonate it in a way that bothers him... he says it sounds like a speaker vibrating in his head.

On 7 October 2011 09:58, risky_fairy <risky_fairy@...> wrote:

 

Hi,

Thank you to all that replied to my post about their experiences of cholesteatoma in both ears.

When I've googled it I just get research studies of people affected by c-toma in both ears and can't find any statistics on it. No matter, we'll deal with it if ever it happens!

As my daughter lost all her ossicles in her left ear with no reconstruction of them at the time of surgery, the consultant has recommended that she has a TORP op. (total ossicle replacement prosthesis) in a few years. Has anyone on here had any experience of this operation and the prosthesis?

Thanks again!

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I had one of my hearing bones replaced and my hearing is at the lower end of the

normal range in that ear. However, I do have issues in noisy environments and

with very loud sounds. It seems to work fine for normal voice ranges, but starts

sounding more like a cheap speaker the louder sounds are. But it's not a big

issue, and definitely worth it! I recommend trying the reconstruction before

going another route.

Thanks,

Dave

>

> Hi,

> Thank you to all that replied to my post about their experiences of

cholesteatoma in both ears.

>

> When I've googled it I just get research studies of people affected by c-toma

in both ears and can't find any statistics on it. No matter, we'll deal with it

if ever it happens!

>

> As my daughter lost all her ossicles in her left ear with no reconstruction of

them at the time of surgery, the consultant has recommended that she has a TORP

op. (total ossicle replacement prosthesis) in a few years. Has anyone on here

had any experience of this operation and the prosthesis?

>

> Thanks again!

>

>

>

>

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