Guest guest Posted October 6, 1999 Report Share Posted October 6, 1999 Margaret, It wasn't any trouble! I hope they can help you. Keep us posted on the outcome. mom to Ashton and Landon 16 months --- greysean <greysean@...> wrote: <HR> <!DOCTYPE HTML PUBLIC " -//W3C//DTD W3 HTML//EN " > <HTML> <HEAD> <META content=text/html;charset=iso-8859-1 http-equiv=Content-Type> <META content=' " MSHTML 4.72.3110.7 " ' name=GENERATOR> </HEAD> <BODY bgColor=#f0e8d8> <DIV><FONT color=#000000 size=2>,</FONT></DIV> <DIV> & nbsp;</DIV> <DIV><FONT color=#000000 size=2>Thank you so much, I really appreciate you going to so much trouble. I will call them this week. We thought we would have heard which school we are assigned to on Friday but still no word. Once we have that we will go out and see how dreadful the class is. Saretta went to her designated school and she is trying to figure out what to do also. </FONT></DIV> <DIV><FONT color=#000000 size=2>Thank & nbsp; you again</FONT></DIV> <DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV> <DIV><FONT color=#000000 size=2>Margaret w/ Greyson and -almost 3 and Annice 16mos.</FONT></DIV></BODY></HTML> ------------------------------------------------------------------------ <pre> http://DSyndrome.com/Multiples</pre> <HR> <html> ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2000 Report Share Posted January 1, 2000 Hi -- Oh is it ever! I could write a paper or three about it--actually I did! LOL...I'm about to send it to our minister of health asking her to consider funding such a pilot project for two years. And WHEN you do open that centre, I'm packing my bags and heading to Ottawa! BTW, it got really warm here yesterday...like +12 warm. Can you believe it? Jan. 1 12 C...unbelievable eh? Take good care, In S. Ontario In a message dated 1/1/2000 10:55:05 PM Eastern Standard Time, wb4@... writes: << - this is a field much neglected in our health care system. I belong to a newly formed group called Childrens Mental Health First which advocates for the rights of our children to recieve the attention they deserve (medical, financial, educational, etc) from our province. If I ever open up that residential centre I've been dreaming about - I would hire you in a snap!! take care, great day temp. wise, eh? (in the +'s c. = the high 30's f) wendy, in canada >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2001 Report Share Posted February 10, 2001 Right on, Jule, > You wrote: > This is why it is SO important as we are able, to move from emotion to advocacy > -- not just advocating for our children in school, but against the stigma of > mental illness in general. > I think you are absolutely right about this and I admire the advocacy work that you've done and continue to do. I am at a place in the process where I am eager to learn from you and others like you. Thanks for sharing your info and experience, Lesli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Hi - I'm new to the group and still learning - I just wanted to welcome you - you really have had a shocking time. I don't know how to help you myself, but this group seems to be an amazing bunch of people - you're in the right place - a wealth of information - I'm sure someone will be along very shortly to advise you. I cannot believe the way some people are in such a poor state of health yet not getting the proper help from their health service- it really is shocking to me Take care Moley From: jennifer415588 <Egyptian.1@...>thyroid treatment Sent: Friday, 12 December, 2008 13:52:08Subject: advocacy Hi there, I'm new to the group and hope that someone will be able toadvise me.I've been on thyroxine for more than 15 years, and in all that timehave continued to have symptoms, which, since I had been diagnosedwith depression, I was told, and believed were caused by thedepression. Over the last couple of years the symptoms have becomegradually worse and worse - mostly absolute exhaustion, quite severepain in joints and face, weight gain etc. Following a heart attacklast year, I was started on beta blockers which have really helpedwith the anxiety and depression. I still have cognitive problems whichare really bad at the moment, in fact sometimes I can barely string asentence together.I've been getting lower rate DLA (care+mobility) , but have now beentold my renewal has been declined, so it'll stop in Feb 09. I'm in theprocess of appealing, but am worried because it's so difficult toconcentrate and remember thing important points. Unfortunately Ifilled in the claim form on my own - I know now that I should have gothelp.The point is, I need help in how to deal with this. Does anyone haveany advice, or could give me some pointers re advocacy/support/ etc.Any information greatly appreciated.thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Hi - I have just sent a copy of your message to Adele (one of our members) who works in the Benefits department. She helps out our members occasionally if there is a problem, so expect to get a message from her. She will do what she can to help you, and you couldn't be dealing with a better or more experienced person. I am sorry you are having such a hard time of it, but you are not alone as you will have already found out, and you will learn a lot from the members here, from the FILES and LINKS and from the Information on Hypothyroidism and all its different angles from our website www.tpa-uk.org.uk Can you let us know how much Thyroxine you are taking and how long it has been since this was increased. We also need to see your thyroid function blood tests together with the reference range for each of the tests. Depression in hypothyroidism is usually caused because your brain is not getting the thyroid hormones it requires. It needs both T4 and T3 - and if these are low, you get brain fog, short term memory and depression, which leaves you once you get onto the right treatment. Pity doctors are not taught about this. Ask your GP to let you have a copy of your blood test results (they are yours by law). If he wants to know why you need them, tell him you are keeping a diary of what is happening to you and you need a record of all your tests. Ask at the same time, if he will check your ferritin, B12, Vit. D. Look in our FILES at everything to do with adrenals (do the adrenal and candida questionnaire) and see how you score. There are several 'associated conditions' that go along with hypothyroidism that can stop your levothyroxine from being absorbed and you may be suffering with one (or more ) of these. Again, you can read about these on our website, under hypothyroidism. Anything you do not understand, let us know and we will try to find an answer for you. There IS light at the end of the tunnel, even though that tunnel might be looking very, very long for you at this moment in time. Luv - Sheila I've been getting lower rate DLA (care+mobility), but have now been told my renewal has been declined, so it'll stop in Feb 09. I'm in the process of appealing, but am worried because it's so difficult to concentrate and remember thing important points. Unfortunately I filled in the claim form on my own - I know now that I should have got help. The point is, I need help in how to deal with this. Does anyone have any advice, or could give me some pointers re advocacy/support/etc. Any information greatly appreciated. thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Thanks Moley,Unbelievable isn't it - and the benefit system makes you feel such a fraud!It's only since a friend told me about the controversy around routine thyroid tests that I've started to read and find out about it .As soon as I feel up to it I'm going to ask to see an endocrinologist.(I rang my gp's surgery today - next appointment available 6th Jan!) (unless its an emergency!) It would be funny if it wasn't so serious!Best of luck,From: <cwmole@...>Subject: Re: advocacythyroid treatment Date: Friday, 12 December, 2008, 2:22 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Thanks Sheila!I'll do as you suggest - It helps just to know others are having similar problems (though obviously I'd rather we didn't) I never realised before how helpful support can be - I wish I'd checked it out before. It was a friend who's recently been diagnosed who put me on the the issues raised round the standard thyroid tests, and I'm really glad she did. It never occurred to me that all my health problems over the years could possibly all stem from hypothyroidism. It's truly shocking that Dr's will just keep doling out the prescriptions, with an occasional blood test (if you remind them), without monitoring the patients progress.Unfortunately, as an ex-nurse (I left the NHS due to a combination of absolute disgust and health problems) I've been well and truly indoctrinated with the old school thinking that the doctor is always right! Doh! Fortunately I'm an awkward so and so won't give up without a fight!To answer your question, I'm on 150mcg of thyroxine daily - obviously this has slowly increased from a much lower dose over the years. It was last increased about a year ago. I've just had new tests and haven't got the results yet, but will let you know when I do.I'd like to say thanks! to all involve with this group, it's fantastic to know there's so much support out there! As for having a hard time of it, I've learned how to pace myself, and can get along fine if I'm left in peace by Department of Work and Pensions. (Thanks for asking Adele to look into it for me)Take care and let's keep goin'From: Sheila <sheilaturner@...>Subject: RE: advocacythyroid treatment Date: Friday, 12 December, 2008, 3:37 PM [Edit Abbrev Mod] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Welcome to the group hon luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 > > > > Hi there, I'm new to the group and hope that someone will be able to > > advise me. > > I've been on thyroxine for more than 15 years, and in all that time > > have continued to have symptoms, which, since I had been diagnosed > > > > [Edit Abbrev Mod] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 >Thanks Dawn! > Welcome to the group hon > > luv Dawnx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 Hi jenny, Welcome to the group. Appeal and appeal and appeal to get the benefits that you deserve. I have heard lots of people get it when they appeal. Also try the CAB? Love Ali xxx " jennifer415588 " <Egyptian.1@...> wrote: > > Hi there, I'm new to the group and hope that someone will be able to > advise me. > The point is, I need help in how to deal with this. Does anyone have > any advice, or could give me some pointers re advocacy/support/etc. > Any information greatly appreciated. > thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Hi jenny. you seem to have some adrenal problems. I have been taking some adrenal extra1/2 tab in the AM for my mild depression . worth a try I think. you could get a 24 hour stress test , details in our files .I fill so much better. angel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Hello All, I have recently been placed as a Program Manager for Disabled Employees at my workplace. As a past district director for LPA, I tried to advocate for lp's in my 8 years in office. As I step outside the box of a dwarf, and into the world of average size people with diabilities, I would like to tap into additional resources that the group has. If you are and know someone who works in the field of Disability Advocate, please email me offlist. I've signed up for www.disability.gov, www.tndisability.org, www.abilitymagazine.org, www.jan.wvu.edu which are good resources. I'm also wondering what organizations are planning for the Disability Awareness Month in October. The theme this year is " Talent Has No Boundaries, Workforce Diversity Includes Workers with Disabilities " . Thanks so much! Cricket Lynch aka Grace Lynch Quote Link to comment Share on other sites More sharing options...
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