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Wow, its interesting to see what happens during the surgery!

What is the foil for? And that HUGE tube? Glad your son is doing well

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Jane Fraser

Sent: 06 October 2010 08:01

cholesteatoma

Subject: Q - Update

For those interested...

Not the best quality pics but these are from our awesome Doc, taken

in the theatre during Quinn's latest surgery...

Under GA – Q Under General Aesthetic (for 5 whole hours – well actually 295

minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

Docs in action - The fabulous Dr R standing by, Prof L working with the

microscope, the theatre nurse and scrub nurse. Fascinating stuff. I would have

loved to have been able to attend, I love surgeries!

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and they

are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!'

This was at 3 days post op when it was still swollen and bruised:

Here is the latest photo taken last week at 2 weeks post-surgery and

after I took his stitches out.

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

Jane

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Hi Jane,Fantastic photos.. Wish our surgeon did the same. It still feels a bit if a blur!Also Quinns scar looks fab! Hollies doesn't look that good and her surgery was may 10. We have next check up on 10th November, armed with lots more questions.Hope Quinn is feeling ok now? :)Sent from my iPhoneOn 6 Oct 2010, at 08:00, Jane Fraser <janefraser101@...> wrote:

For those interested...

Not the best quality pics but these are from our awesome

Doc, taken in the theatre during Quinn's latest surgery...

Under GA – Q Under General Aesthetic (for 5 whole hours – well actually

295 minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

<image001.jpg>

Docs in action - The fabulous Dr R standing by, Prof L working with the

microscope, the theatre nurse and scrub nurse. Fascinating stuff. I would have

loved to have been able to attend, I love surgeries!

<image002.jpg>

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and

they are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

<image003.jpg>

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!' <image004.gif>

This was at 3 days post op when it was still swollen and bruised:

<image005.jpg>

Here is the latest photo taken last week at 2 weeks post-surgery

and after I took his stitches out.

<image006.jpg>

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

Jane

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Share on other sites

Thanks, I think the pics are pretty cool too, and love that I have had this opportunity to see what goes on.The foil is a space blanket, they are used in long surgeries to maintain body temperature and stop the patient from losing too much heat and getting hypothermia and/or just having the shivers after the surgery.

The tube is from the face mask for delivering oxygen and the anaesthetic etc.On 6 October 2010 17:28, Kenna Balion <kenna_balion@...> wrote:

 

Wow, its interesting to see what happens during the surgery!

What is the foil for? And that HUGE tube? Glad your son is doing well

 

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Jane Fraser

Sent: 06 October 2010 08:01

cholesteatoma

Subject: Q - Update

 

 

 

For those interested...

 

Not the best quality pics but these are from our awesome Doc, taken

in the theatre during Quinn's latest surgery...

Under GA – Q  Under General Aesthetic (for 5 whole hours – well actually 295

minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

Docs in action - The fabulous Dr R standing by, Prof L working with the

microscope, the theatre nurse and scrub nurse. Fascinating stuff. I would have

loved to have been able to attend, I love surgeries!

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and they

are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!'

This was at 3 days post op when it was still swollen and bruised:

 

 

Here is the latest photo taken last week at 2 weeks post-surgery and

after I took his stitches out.

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

 

Jane

 

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Thanks ,Quinn does seems to heal very nicely, which is great, I scar much more badly.Quinn is doing well, he has been a champ throughout the whole ordeal, and yesterday the foam packing bandaging was removed with a compressor and suctioning - clearly not fun and he just lay there barely flinching. I can tell by subtle muscle twitches in his forehead that it is not 'nice' but he is so stoic and always says he is 'fine' when the doc asks. It's amazing how much they can deal with and how brave they can be, way beyond their years.

Our doctors has been incredible too and we would not have managed so well without him. As a single income single parent he has gone above and beyond in providing excellent personalised care AND minimising the costs as far as possible. we'll be forever grateful to him!

On 6 October 2010 20:37, <sarah_l_jones26@...> wrote:

 

Hi Jane,Fantastic photos.. Wish our surgeon did the same. It still feels a bit if a blur!Also Quinns scar looks fab! Hollies doesn't look that good and her surgery was may 10. 

We have next check up on 10th November, armed with lots more questions.Hope Quinn is feeling ok now? :)Sent from my iPhone

On 6 Oct 2010, at 08:00, Jane Fraser <janefraser101@...> wrote:

 

For those interested...

 

Not the best quality pics but these are from our awesome

Doc, taken in the theatre during Quinn's latest surgery...

Under GA – Q  Under General Aesthetic (for 5 whole hours – well actually

295 minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

<image001.jpg>

Docs in action - The fabulous Dr R standing by, Prof L working with the

microscope, the theatre nurse and scrub nurse. Fascinating stuff. I would have

loved to have been able to attend, I love surgeries!

<image002.jpg>

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and

they are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

<image003.jpg>

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!' <image004.gif>

This was at 3 days post op when it was still swollen and bruised:

<image005.jpg>

 

 

Here is the latest photo taken last week at 2 weeks post-surgery

and after I took his stitches out.

<image006.jpg>

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

 

Jane

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Share on other sites

At least your sons surgeon is helpful! Are you in the uk? My

surgeon sucks! I don’t know anything about my surgery nor has he really told me

anything, only that it was a cholesteatoma!!

Was this his first surgery?

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Jane Fraser

Sent: 07 October 2010 07:32

cholesteatoma

Subject: Re: Q - Update

Thanks, I think the pics are pretty cool too,

and love that I have had this opportunity to see what goes on.

The foil is a space blanket, they are used in long surgeries to maintain body

temperature and stop the patient from losing too much heat and getting

hypothermia and/or just having the shivers after the surgery.

The tube is from the face mask for delivering oxygen and the anaesthetic etc.

On 6 October 2010 17:28, Kenna Balion <kenna_balion@...> wrote:

Wow, its

interesting to see what happens during the surgery! What is the foil for? And

that HUGE tube? Glad your son is doing well

From: cholesteatoma

[mailto:cholesteatoma ]

On Behalf Of Jane Fraser

Sent: 06 October 2010 08:01

cholesteatoma

Subject: Q - Update

For those interested...

Not the best quality pics but these are from

our awesome Doc, taken in the theatre during Quinn's latest surgery...

Under GA – Q Under General Aesthetic (for 5 whole hours – well actually

295 minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

Docs in action - The fabulous Dr R standing by, Prof L working with the microscope,

the theatre nurse and scrub nurse. Fascinating stuff. I would have loved to

have been able to attend, I love surgeries!

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and

they are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!'

This was at 3 days post op when it was still swollen and bruised:

Here is the latest photo taken last week at

2 weeks post-surgery and after I took his stitches out.

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

Jane

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Share on other sites

Hi kenna,Been reading your posts, hope you can get your answers. Call your surgeons secretary and say you need to be seen sooner than the 5 week appointment and state your reasons why.My hollie had her surgery in may this year after having earlier surgery in February to insert grommets. She had two different surgeons who worked very differently. We are in the uk and from our experience they seem to explain very little! I have learnt through research and this group.Keep us posted and wish you well.- hollies mumSent from my iPhoneOn 7 Oct 2010, at 16:08, "Kenna Balion" <kenna_balion@...> wrote:

At least your sons surgeon is helpful! Are you in the uk? My

surgeon sucks! I don’t know anything about my surgery nor has he really told me

anything, only that it was a cholesteatoma!!

Was this his first surgery?

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Jane Fraser

Sent: 07 October 2010 07:32

cholesteatoma

Subject: Re: Q - Update

Thanks, I think the pics are pretty cool too,

and love that I have had this opportunity to see what goes on.

The foil is a space blanket, they are used in long surgeries to maintain body

temperature and stop the patient from losing too much heat and getting

hypothermia and/or just having the shivers after the surgery.

The tube is from the face mask for delivering oxygen and the anaesthetic etc.

On 6 October 2010 17:28, Kenna Balion <kenna_balion@...> wrote:

Wow, its

interesting to see what happens during the surgery! What is the foil for? And

that HUGE tube? Glad your son is doing well

From: cholesteatoma

[mailto:cholesteatoma ]

On Behalf Of Jane Fraser

Sent: 06 October 2010 08:01

cholesteatoma

Subject: Q - Update

For those interested...

Not the best quality pics but these are from

our awesome Doc, taken in the theatre during Quinn's latest surgery...

Under GA – Q Under General Aesthetic (for 5 whole hours – well actually

295 minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

<image001.jpg>

Docs in action - The fabulous Dr R standing by, Prof L working with the microscope,

the theatre nurse and scrub nurse. Fascinating stuff. I would have loved to

have been able to attend, I love surgeries!

<image002.jpg>

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and

they are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

<image003.jpg>

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!' <image004.gif>

This was at 3 days post op when it was still swollen and bruised:

<image005.jpg>

Here is the latest photo taken last week at

2 weeks post-surgery and after I took his stitches out.

<image006.jpg>

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

Jane

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Share on other sites

No we are in South Africa. It was his second surgery.We are very lucky to have found this doctor, he is a complete gem. We found him quite by chance too, our kids are in the same school and we were both on a cub scouts hike together when he noticed Quinn's distinctive smell and asked me about it. Within 30-seconds I had established that he is an ENT and he explained perfectly what it was which no one had been able to do for 5+ years before that!

On 7 October 2010 17:08, Kenna Balion <kenna_balion@...> wrote:

 

At least your sons surgeon is helpful! Are you in the uk? My

surgeon sucks! I don’t know anything about my surgery nor has he really told me

anything, only that it was a cholesteatoma!!

 

Was this his first surgery?

 

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Jane Fraser

Sent: 07 October 2010 07:32

cholesteatoma

Subject: Re: Q - Update

 

 

Thanks, I think the pics are pretty cool too,

and love that I have had this opportunity to see what goes on.

The foil is a space blanket, they are used in long surgeries to maintain body

temperature and stop the patient from losing too much heat and getting

hypothermia and/or just having the shivers after the surgery.

The tube is from the face mask for delivering oxygen and the anaesthetic etc.

On 6 October 2010 17:28, Kenna Balion <kenna_balion@...> wrote:

 

Wow, its

interesting to see what happens during the surgery! What is the foil for? And

that HUGE tube? Glad your son is doing well

 

From: cholesteatoma

[mailto:cholesteatoma ]

On Behalf Of Jane Fraser

Sent: 06 October 2010 08:01

cholesteatoma

Subject: Q - Update

 

 

 

For those interested...

 

Not the best quality pics but these are from

our awesome Doc, taken in the theatre during Quinn's latest surgery...

Under GA – Q  Under General Aesthetic (for 5 whole hours – well actually

295 minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

Docs in action - The fabulous Dr R standing by, Prof L working with the microscope,

the theatre nurse and scrub nurse. Fascinating stuff. I would have loved to

have been able to attend, I love surgeries!

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and

they are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!'

This was at 3 days post op when it was still swollen and bruised:

 

 

Here is the latest photo taken last week at

2 weeks post-surgery and after I took his stitches out.

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

 

Jane

 

 

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I guess we get treated like this as we are NHS patients, treated

almost like 2nd class citizens. I am sure if I went to a BMI

hospital the situation would be very different even though it is the same

surgeon, madness!

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of

Sent: 08 October 2010 00:03

cholesteatoma

Subject: Re: Q - Update

Hi kenna,

Been reading your posts, hope you can get your answers. Call

your surgeons secretary and say you need to be seen sooner than the 5 week

appointment and state your reasons why.

My hollie had her surgery in may this year after having

earlier surgery in February to insert grommets. She had two different surgeons

who worked very differently. We are in the uk and from our experience they seem

to explain very little! I have learnt through research and this group.

Keep us posted and wish you well.

- hollies mum

Sent from my iPhone

On 7 Oct 2010, at 16:08, " Kenna Balion " <kenna_balion@...> wrote:

At least your sons surgeon is helpful!

Are you in the uk? My surgeon sucks! I don’t know anything about my surgery nor

has he really told me anything, only that it was a cholesteatoma!!

Was this his first surgery?

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Jane Fraser

Sent: 07 October 2010 07:32

cholesteatoma

Subject: Re: Q - Update

Thanks, I think the pics are pretty cool too, and love that I have had this

opportunity to see what goes on.

The foil is a space blanket, they are used in long surgeries to maintain body

temperature and stop the patient from losing too much heat and getting

hypothermia and/or just having the shivers after the surgery.

The tube is from the face mask for delivering oxygen and the anaesthetic etc.

On

6 October 2010 17:28, Kenna Balion <kenna_balion@...>

wrote:

Wow, its

interesting to see what happens during the surgery! What is the foil for? And

that HUGE tube? Glad your son is doing well

From: cholesteatoma

[mailto:cholesteatoma ]

On Behalf Of Jane Fraser

Sent: 06 October 2010 08:01

cholesteatoma

Subject: Q - Update

For those interested...

Not the best quality pics but these are from

our awesome Doc, taken in the theatre during Quinn's latest surgery...

Under GA – Q Under General Aesthetic (for 5 whole hours – well actually

295 minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

<image001.jpg>

Docs in action - The fabulous Dr R standing by, Prof L working with the

microscope, the theatre nurse and scrub nurse. Fascinating stuff. I would have

loved to have been able to attend, I love surgeries!

<image002.jpg>

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and

they are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

<image003.jpg>

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!' <image004.gif>

This was at 3 days post op when it was still swollen and bruised:

<image005.jpg>

Here is the latest photo taken last week at

2 weeks post-surgery and after I took his stitches out.

<image006.jpg>

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

Jane

Link to comment
Share on other sites

>

> I guess we get treated like this as we are NHS patients, treated almost like

2nd class citizens. I am sure if I went to a BMI hospital the situation would be

very different even though it is the same surgeon, madness!

>

I think we get treated like this because ENT is one of the last bastions of the

" old school " consultants who work on the basis that the patient is an idiot. And

of course most of us are initially referred because of problems with our

hearing, which as members of this board are aware is one of the more minor

concerns from the surgeon's point of view.

I hasten to add that my own consultant is NOT like this - if he were, I wouldn't

be seeing him.

It would of course be worlds different in a BMI hospital - but that's another

big problem with the NHS, the fact that these doctors are allowed to make money

on the side like this. Can you tell I used to work for the NHS, lol !

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I can agree but we have gone private. I have it as a benefit with work so we felt real lucky as it fast tracked us past the 18 week wait!Our current surgeon is very good at explaining this to us, verbally and through drawings. However the surgeon before who performed the grommet insertion didn't. It was through reading hollies medical notes on her first op that I found out what they had discovered in her left ear.Keep pushing, it's your health after all.Where in the uk did you have your surgery? Hollie was Brentwood in Essex for first op but now we are under Ipswich hospital.Fingers crossed you get some answers :)Sent from my iPhoneOn 8 Oct 2010, at 13:54, "Kenna Balion" <kenna_balion@...> wrote:

I guess we get treated like this as we are NHS patients, treated

almost like 2nd class citizens. I am sure if I went to a BMI

hospital the situation would be very different even though it is the same

surgeon, madness!

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of

Sent: 08 October 2010 00:03

cholesteatoma

Subject: Re: Q - Update

Hi kenna,

Been reading your posts, hope you can get your answers. Call

your surgeons secretary and say you need to be seen sooner than the 5 week

appointment and state your reasons why.

My hollie had her surgery in may this year after having

earlier surgery in February to insert grommets. She had two different surgeons

who worked very differently. We are in the uk and from our experience they seem

to explain very little! I have learnt through research and this group.

Keep us posted and wish you well.

- hollies mum

Sent from my iPhone

On 7 Oct 2010, at 16:08, "Kenna Balion" <kenna_balion@...> wrote:

At least your sons surgeon is helpful!

Are you in the uk? My surgeon sucks! I don’t know anything about my surgery nor

has he really told me anything, only that it was a cholesteatoma!!

Was this his first surgery?

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Jane Fraser

Sent: 07 October 2010 07:32

cholesteatoma

Subject: Re: Q - Update

Thanks, I think the pics are pretty cool too, and love that I have had this

opportunity to see what goes on.

The foil is a space blanket, they are used in long surgeries to maintain body

temperature and stop the patient from losing too much heat and getting

hypothermia and/or just having the shivers after the surgery.

The tube is from the face mask for delivering oxygen and the anaesthetic etc.

On

6 October 2010 17:28, Kenna Balion <kenna_balion@...>

wrote:

Wow, its

interesting to see what happens during the surgery! What is the foil for? And

that HUGE tube? Glad your son is doing well

From: cholesteatoma

[mailto:cholesteatoma ]

On Behalf Of Jane Fraser

Sent: 06 October 2010 08:01

cholesteatoma

Subject: Q - Update

For those interested...

Not the best quality pics but these are from

our awesome Doc, taken in the theatre during Quinn's latest surgery...

Under GA – Q Under General Aesthetic (for 5 whole hours – well actually

295 minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

<image001.jpg>

Docs in action - The fabulous Dr R standing by, Prof L working with the

microscope, the theatre nurse and scrub nurse. Fascinating stuff. I would have

loved to have been able to attend, I love surgeries!

<image002.jpg>

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and

they are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

<image003.jpg>

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!' <image004.gif>

This was at 3 days post op when it was still swollen and bruised:

<image005.jpg>

Here is the latest photo taken last week at

2 weeks post-surgery and after I took his stitches out.

<image006.jpg>

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

Jane

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Share on other sites

Is there a secret to viewing the photos? They are not downloading on my

computer...I am using Internet Explorer...Would love to see the pics from the

surgery. Thanks, Jenni

>

> For those interested...

>

>

>

> Not the best quality pics but these are from our awesome Doc, taken in the

> theatre during Quinn's latest surgery...

>

> Under GA – Q Under General Aesthetic (for 5 whole hours – well actually 295

> minutes officially) for his second Cholesteatoma surgery. This is our

> anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

> boy.

> [image: Image]

>

> Docs in action - The fabulous Dr R standing by, Prof L working with the

> microscope, the theatre nurse and scrub nurse. Fascinating stuff. I would

> have loved to have been able to attend, I love surgeries!

> [image: Image]

>

> Inside his head - Inside Quinn's head during the surgery. It is hard to see

> with the overexposure but that is his ear flapped forward and retracted and

> they are working inside his head from behind the ear... (When Quinn saw this

> he simply said `Siff' LOL )

> [image: Image]

>

> I love that I have this relaxed relationship with the doc that he shares

> these things with me and will say, 'Sorry I should have got consent before

> taking photos' and I was all like 'Dude you know me I'm totally cool with

> it'. And he was all like 'Yeah I know, that's what I thought. Give me your

> memory stick so I can give you a copy!' [image: 8)]

>

> This was at 3 days post op when it was still swollen and bruised:

>

> [image: Image]

>

>

>

>

>

> Here is the latest photo taken last week at 2 weeks post-surgery and after I

> took his stitches out.

>

> [image: Image]

>

> It looks like it is healing up nicely.

>

> we see the doc tomorrow to remove the internal bandages and do a good

> clean-out and see what's happening inside...

>

>

>

> Jane

>

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Share on other sites

I must apologise for hacking this post, sorry! , my partner

and daughter have private healthcare through his work also, wish I’d been put

on but thought it would be a waste of money, how wrong was I?? Wont be able to

get put on it now L

My operation was in Dundee. I know we are  lucky to have the

NHS, I understand Americans are left with  massive bills but I feel with all

the cut backs they are making they are risking peoples health!  My surgeon only

found the cholesteatoma by accident, he was in there to simply repair my

eardrum. I’ve read on sites that an attic crust (which I had) is one of the

main signs of a ctoma, plus he put me to sleep in may to investigate my ear

which he clearly never done properly.

Rant over haha

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of

Sent: 09 October 2010 00:07

cholesteatoma

Subject: Re: Q - Update

I can agree but we have gone private. I have it as a benefit

with work so we felt real lucky as it fast tracked us past the 18 week wait!

Our current surgeon is very good at explaining this to us,

verbally and through drawings. However the surgeon before who performed the

grommet insertion didn't. It was through reading hollies medical notes on her

first op that I found out what they had discovered in her left ear.

Keep pushing, it's your health after all.

Where in the uk did you have

your surgery? Hollie was Brentwood in Essex for first op but now we are under

Ipswich hospital.

Fingers crossed you get some answers :)

Sent from my iPhone

On 8 Oct 2010, at 13:54, " Kenna Balion " <kenna_balion@...> wrote:

I guess we get treated like this as we

are NHS patients, treated almost like 2nd class citizens. I am sure

if I went to a BMI hospital the situation would be very different even though

it is the same surgeon, madness!

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of

Sent: 08 October 2010 00:03

cholesteatoma

Subject: Re: Q - Update

Hi

kenna,

Been

reading your posts, hope you can get your answers. Call your surgeons secretary

and say you need to be seen sooner than the 5 week appointment and state your

reasons why.

My

hollie had her surgery in may this year after having earlier surgery in

February to insert grommets. She had two different surgeons who worked very

differently. We are in the uk and from our experience they seem to explain very

little! I have learnt through research and this group.

Keep

us posted and wish you well.

-

hollies mum

Sent from my iPhone

On 7 Oct 2010, at 16:08, " Kenna Balion " <kenna_balion@...> wrote:

At least your sons surgeon is helpful! Are

you in the uk? My surgeon sucks! I don’t know anything about my surgery nor has

he really told me anything, only that it was a cholesteatoma!!

Was this his first surgery?

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Jane Fraser

Sent: 07 October 2010 07:32

cholesteatoma

Subject: Re: Q - Update

Thanks, I think the pics are pretty cool too, and love that I have had this

opportunity to see what goes on.

The foil is a space blanket, they are used in long surgeries to maintain body

temperature and stop the patient from losing too much heat and getting

hypothermia and/or just having the shivers after the surgery.

The tube is from the face mask for delivering oxygen and the anaesthetic etc.

On

6 October 2010 17:28, Kenna Balion <kenna_balion@...>

wrote:

Wow, its

interesting to see what happens during the surgery! What is the foil for? And

that HUGE tube? Glad your son is doing well

From: cholesteatoma

[mailto:cholesteatoma ]

On Behalf Of Jane Fraser

Sent: 06 October 2010 08:01

cholesteatoma

Subject: Q - Update

For those interested...

Not the best quality pics but these are from

our awesome Doc, taken in the theatre during Quinn's latest surgery...

Under GA – Q Under General Aesthetic (for 5 whole hours – well actually

295 minutes officially) for his second Cholesteatoma surgery. This is our

anaesthetist affectionately known as 'Tubby' who takes fantastic care of my

boy.

<image001.jpg>

Docs in action - The fabulous Dr R standing by, Prof L working with the

microscope, the theatre nurse and scrub nurse. Fascinating stuff. I would have

loved to have been able to attend, I love surgeries!

<image002.jpg>

Inside his head - Inside Quinn's head during the surgery. It is hard to see

with the overexposure but that is his ear flapped forward and retracted and

they are working inside his head from behind the ear... (When Quinn saw this he

simply said ‘Siff’ LOL )

<image003.jpg>

I love that I have this relaxed relationship with the doc that he shares these

things with me and will say, 'Sorry I should have got consent before taking

photos' and I was all like 'Dude you know me I'm totally cool with it'. And he

was all like 'Yeah I know, that's what I thought. Give me your memory stick so

I can give you a copy!' <image004.gif>

This was at 3 days post op when it was still swollen and bruised:

<image005.jpg>

Here is the latest photo taken last week at

2 weeks post-surgery and after I took his stitches out.

<image006.jpg>

It looks like it is healing up nicely.

we see the doc tomorrow to remove the internal bandages and do a good clean-out

and see what's happening inside...

Jane

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>

> Is there a secret to viewing the photos? They are not downloading on my

computer...I am using Internet Explorer...Would love to see the pics from the

surgery. Thanks, Jenni

>

+ 1 to that ! I haven't found a means to view them yet, and I (supposedly !)

know what I'm doing with computers. Anyone ?

Milton Keynes, UK

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