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Re: CATSCAN

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I was told that there was a long waiting period to get a catscan at Kaiser

Permanente. They projected a possible date Aug.24th. GUESS WHAT??? On Sunday,

Kaiser called and got me in on Aug.4th!!! Am I supposed to get a MRI as well??

Kaiser did not mention anything about it, I wonder why. At this rate, can

anyone tell me how long before I can expect an implant surgery.THANKS, Moses

Katz

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> I was told that there was a long waiting period to get a catscan at Kaiser

> Permanente. They projected a possible date Aug.24th. GUESS WHAT??? On Sunday,

> Kaiser called and got me in on Aug.4th!!! Am I supposed to get a MRI as

> well?? Kaiser did not mention anything about it, I wonder why. At this rate,

can

> anyone tell me how long before I can expect an implant surgery.THANKS, Moses

> Katz

>

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  • 3 years later...
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We had a ct scan with contrast done in November and it came back

negative. Madelyn was injected with the radioactive dye and we walked

around the hospital for 2.5 hours. We then came back and they performed

the scan. They used a suppository med which made her fall asleep and

she was under the machine for approx. 45 minutes. We were allowed to

sit with her and watch. When she woke they observed her for about 1/2

hour and we went home. If you have any other questions feel free to

ask.

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We had a ct scan with contrast done in November and it came back

negative. Madelyn was injected with the radioactive dye and we walked

around the hospital for 2.5 hours. We then came back and they performed

the scan. They used a suppository med which made her fall asleep and

she was under the machine for approx. 45 minutes. We were allowed to

sit with her and watch. When she woke they observed her for about 1/2

hour and we went home. If you have any other questions feel free to

ask.

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This is completely in my personal opinion - but if the symptoms your

daughter is experiencing are simply those standard for , I would

not do a Catscan. However, if they have some serious concerns and can

articulate what they are trying to rule out --- that might be a

different story.

A catscan with contrast is nothing that is standard testing procedure

for (from what I have read over the past year and a half).

We did not do genetic testing, but did walk through history, backgrounds

of family members, testing for rheumatoid issues, Hyper IGD (HIDS), and

Inflammatory diseases (potentially ruled out a few other diseases) via

blood testing. After that we tracked for 6-12 months and tried

cimetidine for 4 months.

We ended up with a T & A in December, and she has been fever free since

11/16/08 (123 days - but who's counting!!!).

I would preserve invasive testing for when the doctor can truly

articulate " WHY " they are doing it. If they are simply running tests to

find a needle in a haystack - it doesn't outweigh the risk. If I were

to put my child under anesthesia, why not try a T & A instead - since that

is one of the riskiest pieces of the T & A.

Ginger

Daughter - le, 2.5 years old

(fevering since 7 months, diagnosed at 15 months, T & A on

12/11/07, Fever free since 11/16/07)

Son - Jay, 10 months old

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I noticed on the WHOSE COUNTING, although very inspiring since my sons T & A is

up and coming, bu you said fever free since 11/16/08 123 days, I am assuming

you mean 07? lol PRAYERS THAT THEY STAY GONE!1!!! WOOOHOOO!

" Hackett, Ginger " <ginger.hackett@...> wrote: This is

completely in my personal opinion - but if the symptoms your

daughter is experiencing are simply those standard for , I would

not do a Catscan. However, if they have some serious concerns and can

articulate what they are trying to rule out --- that might be a

different story.

A catscan with contrast is nothing that is standard testing procedure

for (from what I have read over the past year and a half).

We did not do genetic testing, but did walk through history, backgrounds

of family members, testing for rheumatoid issues, Hyper IGD (HIDS), and

Inflammatory diseases (potentially ruled out a few other diseases) via

blood testing. After that we tracked for 6-12 months and tried

cimetidine for 4 months.

We ended up with a T & A in December, and she has been fever free since

11/16/08 (123 days - but who's counting!!!).

I would preserve invasive testing for when the doctor can truly

articulate " WHY " they are doing it. If they are simply running tests to

find a needle in a haystack - it doesn't outweigh the risk. If I were

to put my child under anesthesia, why not try a T & A instead - since that

is one of the riskiest pieces of the T & A.

Ginger

Daughter - le, 2.5 years old

(fevering since 7 months, diagnosed at 15 months, T & A on

12/11/07, Fever free since 11/16/07)

Son - Jay, 10 months old

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