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I have been chatting with a fella who is blind and deaf and has

little mobility. He lost his hearing when quite young, so has little

memory. He feels that if he cannot get speech comprehension, anything

else is of little benefit. He thinks waiting for new technology will

pay off. I think he believes that future technology will give him

speech comprehension. We are debating this. What do you all think?

*---* *---* *---* *---* *---*

Always remember you're unique, just like everyone else.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

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Hi !

I really liked Alice's reply back to you about the fellow having two ears

so maybe get one implanted now and save the other for the future. There is

no guarantee that speech discrimination will kick in. I never had much speech

discrimination in my whole life and lost what little I did have during my

elementary school years. Thank goodness for loud brothers and sisters! At my

CI Candidacy, I was told that speech discrimination may not kick in for me.

On my hook up day, I was just so happy to hear and understand environmental

sounds even though I had to rely on lipreading to understand people. It was a

real happy day for my family and me. Then 3 months later, we were all

surprised when I answered to my name being called just a few feet away from me

and

started understanding some tv programs and some store PA systems and

conversations. I still rely on lipreading but that's okay by me. It's what I

am used

to. The CI has made lipreading even easier. I don't have to concentrate

sooo much like I used to. Yes, I realize lipreading is not an option for your

friend; but my point is that he will be able to hear some sounds with one CI.

Like your friend, I became a CI Candidate long before I actually went for

the testing. I thought I had too much residual hearing to risk it back in the

late 80's. Plus there was a guy in the waiting room that day all freaked out

because he was not doing well with his new implant. I wanted no part of it.

Little did I know. I have no regrets though for waiting so long. I am just

so thrilled with what my CI has given me today! It's better than any

hearing aid. And yes, I only had one ear done. I guess I could have my right

ear

done in the future. But, first I would have to get family support for

another possible 12 week recovery. So far, the gang says no way. I can't

blame

them. They are all thrilled with the results of this one and relieved that

I am finally pretty much back to myself balance wise. It's not an easy

decision to make regarding when to get implanted. It's a toss up sometimes.

I

am glad I finally did get implanted.

Sorry to be sooo long! Happy Birthday, !

Good luck to your friend!

Patti (aka Velma)

Surgery day 11/25/02 (What A Day!)

Hook Up Day 1/2/03 (A Happy Day!)

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Lee,

I hope we meet soon, I would enjoy talking with you about your

experiences. You also said, " Your fiend will have to understand that

it will take longer for our group to understand speeches... " Yep, he

can indeed be a fiend at times.

(heh I couldnt resist that)

*---* *---* *---* *---* *---*

I just broke up with someone and the last thing she said to me was,

" You'll never find anyone like me again! " I'm thinking, I should hope

not! If I don't want you, why would I want someone like you? "

--Larry

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

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Patti,

I think the guy has a few misperceptions about the CI. So I

expect we will be tossing emails back and forth, arguiing, Yeah, he

is like that. LOL

I've often wondered how a preling can learn sounds. I mean, when

we are born with normal hearing, there is no programming so whatever

sounds come in, we perceive them as such. So how does a preling work

with the audie to achieve the programming that is as close to normal

sound as can be? Intriguing as Data would say.

He thinks technology will take care of it in 5-10 years. Well, he

really does not know what he is missing, is almost 40 now. But I have

a feeling he knows he is missing " something " . When I told him why I

want 2 CI's, he said this.... " I don't see why having an implant in

both ears will eliminate the need for visual cues. " He just does not

understand what normal hearing is like. I do because I had mild loss

most of my life.

*---* *---* *---* *---* *---*

The best defense against logic is stupidity.

--

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

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Alice,

Those of us who had normal or near normal hearing or vision can

attest to the reality that two makes pie. (I made that up, its

copyrighted! LOL) Yes, we can adapt to one eye or one ear. But if

we have the option to have pairs, we should go for it. In this guy's

case, he could get a jump start on it and get a CI now.

*---* *---* *---* *---* *---*

Health is merely the slowest possible rate at which one can die.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

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In a message dated 4/23/2004 11:24:26 PM Pacific Standard Time,

rlclark77@... writes:

You also said, " Your fiend will have to understand that

it will take longer for our group to understand speeches... " Yep, he

can indeed be a fiend at times.

DANG DANG DANG, FIRE THE SPELLING CHECKER! LOL

Lee

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In a message dated 4/24/2004 12:08:15 AM Pacific Standard Time,

rlclark77@... writes:

I've often wondered how a preling can learn sounds. I mean, when

we are born with normal hearing, there is no programming so whatever

sounds come in, we perceive them as such. So how does a preling work

with the audie to achieve the programming that is as close to normal

sound as can be? Intriguing as Data would say.

You asked a good question !

We grew up by " visual cue " , what we lipread, we visioned, what noises we may

have heard, we visioned. I was also dependent on what little I can get, from

hearing aid, only as " environmental alert " .

When I was first activated my audie told me VISION...... use it and your

brain will connect the two (vision and hearing). Since I was already very

dependent on lipreading, I somehow connect what I hear and lipread. In time,

some

words just come across to me without lipreading.

When I first heard the crow, I was CLUELESS....... My daughter was with me,

didn't know what I was talking about, so I pointed in direction where it

sounded the loudest, then she was surprised cuz it somewhat further out and

heard a

crow and told me. A few days later,,, I heard that SAME sounds, I know I

heard it before but didn't remember where I heard it. Looking around, still

clueless, I looked down at Tanner (my dog) and he was busy looking UP. There it

was, a crow and I connected it. And remember what my daughter told me ... so

there the clue.... The 3rd time I heard it.... I didn't care but knew it was a

crow. I find the more I hear the same sounds, I usually " get it " after 2 or 3

times.

I do not see it any different for a blind person, as they have other mode of

communication and it can find it way to connect. You say he lost his hearing

prior to school years, I was told even in short time, the audio memory are

still there, just " asleep " waiting to be awaken.

Your friend could be one of many who having doubts. I know someone who

" think " it better to wait 5 10 years. But I want it now... Each person has own

opinion.

Yesterday, I met a " rude " deaf man at Shari's. He just barge right up to

Tanner and start petting him, then I realized he is deaf so I signed to him that

Tanner is a hearing dog. He asked if I am deaf and I told him yes, then he

asked why I talk so good to " her " (my daughter). I told him that I have talked

all my life and it natural to me.......

BEEP BEEP BEEP..... came the battery warning,,,, then it died while waiting

for table. I did the reset and died again, so changed batteries right there, he

then asked about THREE BATTERIES?!?!?!?! I told him it is a CI, he went on

bragging about his 5,000 dollars hearing aid, the best out there..... I didn't

want to tell him that CI is better. so I kept on nodding nodding nodding.

Later my daughter ended up being asked by a waitress to sign to him because he

wasn't understanding what she was trying to explain, and I was thinking,,,,

hummmmmm 5,000 dollar hearing aid????

Each person has there own set of ideas. It is just as bad as everyone have

their own preference of colors........ no one will agree which is " best " .

I hope I explained the best I can, visioning the sounds.

Lee

any typo, blame my spelling checker

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robert,

i agree with jolene. im preling but glad i didnt wait the time is laready here

with sawesome ci technology.

about your deaf blind freind how does he communicate with people most of time?

sign? or speaking? and does he use aids?

also if he s not ready for ci , we have to respect that too.

joni

preling

hook up 4-6-04

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Yeah Lee, sometimes our old memories are triggered. We dont give

our brains enough credit.

Dont bother with the crows, they are nothing but noisy pests. LOL

Look for song birds. Ahhh but I would love to see blue jays again

even if THEY are noisy. They are so pretty.

I look to Gimlet too for visual clues when I think I hear someone

talking to me or if I hear something and cannot get a fix on it.

*---* *---* *---* *---* *---*

You can't solve a problem with the same thinking that created the

problem in the first place.

--Albert Einstein

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

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Joni,

He relies on tactile signing. You are right, if he isnt ready, he

isnt ready. But when he keeps hounding us with issues, then I am

going to hound him back and remind him, you wanna do ir or what? You

will never know if a CI works until you try it.

*---* *---* *---* *---* *---*

" Alone we can do so little; together we can do so much. "

--Helen Keller

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

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