Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 I have been profoundly deaf since birth and have always worn 2 HA. Last summer I received my CI and since my hookup, have worn just the CI only. Will never put the HA in my non-implanted ear. I do so well with just the CI itself. It really helps to train my brain to adjust to so many sounds. I have been using the phone and can recognize sentence and words of what people are saying without lipreading and especially on the radio. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 that is a great topic for the ci companies or audiology students to reserach for now there s not much info on it. there is lots to explore regarding ci use... but whatever jerome... you will do whatever works for you. you know with or without HA you will have what you are looking for.. improved hearing. there are many paths to get there and you dont have to decide everything now. wait and see on your " hearing adventure " happy travels Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Jerome: Knowing you have asked ton of questions about CI. Keep in mind that yours will be different from the others. No one is equally as we all have vary results. I didn't ask as many questions as you did. I just did my own research of all three brands and pick the choice to fit my needs. Does your CI center do all three brands? Some prefer not to wear HA with their CI while others prefer to wear HA with their CI. It is their choice and perhaps their audiologist suggested what is best for their patients. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 If you wanted Nucleus and it is not available in your country, are you willing to somewhere else? If not, then I would think Med-El is the only brand you will have to go with if you've no other choice. You will have nothing to lose. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 hi jerome i think its very individual thing whether someone wears HA with ci . it depends on many factors, how much beneift they get from ha etc. ideally we were made to hear with two ears so if you can hear with both ears, that is optimal. however some ci folks jsut dont like having a hearing aid on other ear. so i think its just a preference too. ' i have been activated less than one month and was told to try HA after a few weeks with ci. i tried to put on my aid but all i hear is squealing of my HA that i didnt hear before. now i know why hearing people dont like tohear squealing HA. so i need to get new mold or tubing before i can try again. i wouldnt mind not having hearing aid in that ear and only rely on ci, as i am really enjoying no ear molds! so just one ci is plenty. the only drawback is computerish sounds. i dont know if that will ever go away. but to me it s a trade off and worth hearing the fuller range of sounds and the easier lipreading im experiencing already... joni prelingual HU (hook up) 4-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 as a preling bi ci, i think you are in a minoritry group, but your group will grow.. who knows i may in it too someday Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 i think children with ci and HA is very different than a deaf adult who wore HA all thier lives or not muc hof their lives and then suddenly have CI later in life. childrens brains are much more flexible and not the same issues orf " retraining the brain " i think i wud definitely encourage children to start off both ha and ci if it was my child. early in life ie easier... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Hi, You're asking some very good questions! In fact, I can remember asking the exact thing of CI users when I was looking at getting implanted. I'll be honest with you: I HATE the way the world sounds through my HA's. I have some nice HA's (Claro 311's) but they can only do so much. If you're not able to hear a certain frequency...then you simply can't hear it. Making it louder isn't going to help. My CI provides auditory input in frequencies that I otherwise can't hear. The sound quality is more balance with the CI. Low frequency, mid-ranges, and hi-ranges are all there again in the right proportions. Yes, at first the sounds through the CI seemed VERY robotic/electronic, but that got better with time. After activation I was determined to use the CI. I wanted to learn to hear with it and I felt that the best way was to turn the HA off and depend completely on the cochlear implant. For me, the strategy worked really well. I have no idea if it'd work for anyone else, but it worked for me. Most days I'd put the earmold in and leave the HA turned off. That way, I'd totally depend on what I was getting from the CI. After things started sounding good with the CI, I thought I'd start using the HA again. I hated it even more than before. The poor sound quality just didn't help me. SO...4 months into using the CI...I rarely use a hearing aid in my unimplanted ear. I know CI users who do use HA's and wouldn't dream of doing otherwise; I know just as many CI users who NEVER want to use a HA ever again. Guess it just depends on the person! -Jeff happily using his Clarion 90K for 4 months today! > Hi there, > > I would like to ask how many of the implantees here have cochlear implant on > one ear and hearing aid on another. > > I noticed that in general, people with cochlear implant on one ear and > hearing aid on another ear are less happy with the result. I'm not sure if > it's due to unable to completely adapt to the new sounds... I have chatted > with one person with hearing aid on one ear and cochlear implant on another, > who just said that the robotic sound don't go away, and yet, people who have > profound loss with cochlear implant on one ear and none on another ear are > happier, they said the robotic sound go away after a month. > > I also read some sites, and I read another cochlear implant user who is also > not very happy with the result, turns out that she has hearing aid on one > ear, and a cochlear implant on another. > > However, some people with cochlear implant, and hearing aid on another, said > that having hearing aid and implant increases their frequency range. I find > their claim suspicious, if implant will give you 125hertz to 8000 hertz, > hearing aids only give you 250hertz to 4000hertz (mostly, even less when you > have severe/profound)... > > I hope to hear from you guys what you think about hearing aids restricting > faster adaptation to CI.... > > I wonder if there are any studies regarding this. > > Some not so happy cochlear implant users worries me about the result and > makes me dig some further information. > > > Regards/ > Jerome > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Hi Jeff, That has been my observation... I think your brain got used to cochlear implant. So you will have problem going back to hearing aids... But, *IF* you have been using cochlear implants with hearing aids, I think your brain will not move forward in accepting the signal from the implant as it will depend more on hearing aids because your brain is already trained to use the hearing aid... And in case you want to use the hearing aids again after relying on CI only for several months, you will have to *relearn* how to hear with hearing aids... That's what I think. Just thought of bringing this up as people who don't use hearing aids but only CI appear to be a lot more happier than people who use hearing aids on the other ear. And also, I am curious about factors (factors that we can control) affecting the satisfaction of CI user, and I think hearing aid on the other ear is one... Regards/ Jerome Re: does HA restrict faster adaptation to CI? Hi, You're asking some very good questions! In fact, I can remember asking the exact thing of CI users when I was looking at getting implanted. I'll be honest with you: I HATE the way the world sounds through my HA's. I have some nice HA's (Claro 311's) but they can only do so much. If you're not able to hear a certain frequency...then you simply can't hear it. Making it louder isn't going to help. My CI provides auditory input in frequencies that I otherwise can't hear. The sound quality is more balance with the CI. Low frequency, mid-ranges, and hi-ranges are all there again in the right proportions. Yes, at first the sounds through the CI seemed VERY robotic/electronic, but that got better with time. After activation I was determined to use the CI. I wanted to learn to hear with it and I felt that the best way was to turn the HA off and depend completely on the cochlear implant. For me, the strategy worked really well. I have no idea if it'd work for anyone else, but it worked for me. Most days I'd put the earmold in and leave the HA turned off. That way, I'd totally depend on what I was getting from the CI. After things started sounding good with the CI, I thought I'd start using the HA again. I hated it even more than before. The poor sound quality just didn't help me. SO...4 months into using the CI...I rarely use a hearing aid in my unimplanted ear. I know CI users who do use HA's and wouldn't dream of doing otherwise; I know just as many CI users who NEVER want to use a HA ever again. Guess it just depends on the person! -Jeff happily using his Clarion 90K for 4 months today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 herome i would be interested to know if postlingually deaf aare happier with ci plus HA and prelings satisifed with only ci?? i also think those who are late deafned tend to go for bilateral ci i dont knnow any prelingual deaf who went bilateral ci... if i were you jerome i would seek people with similar hearing loss and history to yours and then that wud be a better predictor for your outcome... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Hi Jonik, I have alaready found people with similar hearing loss as I do... The problem is, they have varied results... Now, the factor that differs them is, one is using hearing aid on the other side, while the happier person doesn't use any hearing aid at all. They completely rely on CI only, so it made me think that HA interferes with the progress of our brain in adapting CI sounds. Regards/ Jerome Re: Re: does HA restrict faster adaptation to CI? herome i would be interested to know if postlingually deaf aare happier with ci plus HA and prelings satisifed with only ci?? i also think those who are late deafned tend to go for bilateral ci i dont knnow any prelingual deaf who went bilateral ci... if i were you jerome i would seek people with similar hearing loss and history to yours and then that wud be a better predictor for your outcome... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Base on several testimonies I have read, however I don't have exact counts... It falls as follows in terms of happiness: Postlingual deaf with CI only and prelingual deaf with CI only will be almost the same in terms of satisfaction, postlingual with CI and HA are usually not that satisfied, they feel they can't function well without the HA on the other ear, thus, probably makes them not that confident when relying on CI alone. And also, their brain is not trained very well for CI only, as the brain is *most likely* to get confused whether to accept the sounds from CI or from hearing aid (remember, both sound differently). With the hearing aid on the other side, it's most likely that the brain will be constantly reminded by the hearing aid sounds that that should how things sound, thus, high possibility to reject the sounds from CI... You would noticed that I put words like " most likely " and " usually " because these are just my hypothesis base on what I have observed/analyzed. Regards/ Jerome Re: Re: does HA restrict faster adaptation to CI? herome i would be interested to know if postlingually deaf aare happier with ci plus HA and prelings satisifed with only ci?? i also think those who are late deafned tend to go for bilateral ci i dont knnow any prelingual deaf who went bilateral ci... if i were you jerome i would seek people with similar hearing loss and history to yours and then that wud be a better predictor for your outcome... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Joni--I am prelingually deafened and I have bilateral CI's. I know of a few bilateral prelingual CIers. -- Snoopy bilateral RI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Nope, only Med-El is here. I'm from Philippines by the way. At first, my choice was Nucleus, and that would require me to fly out of the country. Regards/ Jerome Re: Re: does HA restrict faster adaptation to CI? Jerome: Knowing you have asked ton of questions about CI. Keep in mind that yours will be different from the others. No one is equally as we all have vary results. I didn't ask as many questions as you did. I just did my own research of all three brands and pick the choice to fit my needs. Does your CI center do all three brands? Some prefer not to wear HA with their CI while others prefer to wear HA with their CI. It is their choice and perhaps their audiologist suggested what is best for their patients. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 My first thought is that there really isn't a way to study this because hearing and satisfaction with a CI is so subjective. Also, you could only study each person in one situation and not both. Once the decision has been made to wear or not to wear the HA over the first 6 months, let's say, there is no going back. Anyway, I was advised from the beginning that it would benefit me to NOT wear the HA while I was acclimating to the implant. It mades sense to me and I trusted my audie implicitly. I have some useable hearing in my other ear and it took me a quite a while before I noticed that my reliance was moving from my unimplanted ear to my implanted ear. I do believe that it would have taken me even longer if I had chosen to wear my aid. However, if I really did need the aid in my other ear just to function in my daily life, then I would have worn it when I needed to. Over the long run, our comfort is more important. One can always choose not to wear their HA for aperiod of time just to see what happens...and put it back in anytime as well. In a message dated 4/29/2004 12:53:12 PM Eastern Standard Time, jt1@... writes: I hope to hear from you guys what you think about hearing aids restricting faster adaptation to CI.... I wonder if there are any studies regarding this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 this is interesting, after my daughter's ci implant God-willing) she'll still wear her heairng aid in the other ear. i was told this input from both will create a balnace for her and making use of the sounds she already knows more familiar with tht CI. so then what happens if she no longer benefits from that hearing aid and has to rely solely on the CI, will this be difficult to adapt to ( will it be like a brand new sound without that acousitcal input from the hearing aid?) and even if she gets implanted in the other ear down the line, is the total electrical stim sound be so different that its difficult to adapt too? hmm...am i making sense here? ----- Original Message ----- > > I have alaready found people with similar hearing loss as I do... The > problem is, they have varied results... > > Now, the factor that differs them is, one is using hearing aid on the other > side, while the happier person doesn't use any hearing aid at all. They > completely rely on CI only, so it made me think that HA interferes with the > progress of our brain in adapting CI sounds. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 After wearing CI for almost a year, so I decided to try on HA on my other ear. Boy! It's a huge difference of sound! It seems like the sounds from my HA mask the sounds from CI in my brain. I rather to ear with CI only, not with HA because I can hear more. Also, I don't like the earmold. I feel free for not wearing earmold! -gs -- Greg Swager Nucleus 03/03/03 gswager@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 When you said mask, you mean it covers the sound of the CI? If that's the case I think that's just normal. You hear louder sounds from HA.. Regards/ Jerome Re: does HA restrict faster adaptation to CI? After wearing CI for almost a year, so I decided to try on HA on my other ear. Boy! It's a huge difference of sound! It seems like the sounds from my HA mask the sounds from CI in my brain. I rather to ear with CI only, not with HA because I can hear more. Also, I don't like the earmold. I feel free for not wearing earmold! -gs -- Greg Swager Nucleus 03/03/03 gswager@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 The problem with hearing aids is that they don't function similar as eyeglass. In sensorineural hearing loss, when you have 70db loss, when the sound goes in is 30db, it will be amplified to 75db or 80db, and what your ears hear is 75db or 80db, and not 30db. 75db and 80db is loud... That's why people with sensorineural hearing loss find sounds too loud for them to get hurt or too soft for them to hear. The same cannot be said if you have conductive hearing loss... I have not had my CI so I base this on what I have read, cochlear implants does not make sound louder, but makes you be able to hear soft sounds. So sounds remain to be soft and yet audible. Regards/ Jerome Re: Re: does HA restrict faster adaptation to CI? In a message dated 4/29/2004 9:18:36 PM Pacific Standard Time, jt1@... writes: If that's the case I think that's just normal. You hear louder sounds from HA.. Not sure what you mean, my loss pre-CI was 90dB at 250 slope downward to NR at 750-1,000,, with hearing aid, best I got was around 60 to 65dB at 250. With CI, i hear at 30dB. I do not " see " it as " louder " , just that I first hear at louder sounds. I spoke louder when I had my HA than now. Can you explain? Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 my daughter's audio said that wearing a CI and a hearing aid is a good thing, my question is this: will she be dependent on her hearing aid to make good use of her CI because of the way the brain integrates sound, or if a year down the road goes by and her hearing has gotten worse in that ear (right) having to get rid of the hearing aid, she'll still be fine with just that one CI on her left ear? make sense? Re: does HA restrict faster adaptation to CI? > After wearing CI for almost a year, so I decided to try on HA on my other > ear. Boy! It's a huge difference of sound! It seems like the sounds > from my HA mask the sounds from CI in my brain. I rather to ear with CI > only, not with HA because I can hear more. > > Also, I don't like the earmold. I feel free for not wearing earmold! > -gs > -- > Greg Swager > Nucleus 03/03/03 > gswager@... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 In my opinion, I think a persons ability to use a hearing aid with the ci is directly connected to how much residual hearing they have in the unimplanted ear. I tried my hearing aid briefly a couple of months after being implanted to see if it would help me localize sound better.. it didn't take me long to put it away for good.. My hearing was too far gone for the hearing aid to be of any value to me and I hear so much better with just the ci, from which btw, sounds are mostly normal to me.. as I remember them. If I had a chance to have my other ear implanted, I'd do it, but to this date, my center only does one implant in order to give as many people as possible the chance to hear with at least one ear.. I can live with that for now, because I know exactly what it's like being able to hear sounds for the first time and I too want everyone possible to have this chance if they qualify. Words can't really describe the feeling unless one has been there. Like you Greg, I am so happy not having to have a mold stuck in my ear any longer.. I have had exactly one ear infection in the 2 and a half years since my implant where I was getting them frequently when I wore my hearing aids.. due to the moisture in my ear that allowed bacteria to grow and thrive. Have a great day. Hugs, Silly MI In , Greg Swager <gswager@y...> wrote: > After wearing CI for almost a year, so I decided to try on HA on my other > ear. Boy! It's a huge difference of sound! It seems like the sounds > from my HA mask the sounds from CI in my brain. I rather to ear with CI > only, not with HA because I can hear more. > > Also, I don't like the earmold. I feel free for not wearing earmold! > -gs > -- > Greg Swager > Nucleus 03/03/03 > gswager@y... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 I am catching up on email but thought I would say something on this. I was at the state SHHH convention over the past weekend and I talked to several people that had a CI in one ear and HA in the other. They all said that they like having hearing with both ears. After today I know I will be one of the people with a HA in the other ear. Not hearing from one ear bothers me. While I don't miss the ear molds, the hearing is more important. susan & hobbes michigan At 12:47 AM 4/30/2004 +0800, you wrote: >Hi there, > >I would like to ask how many of the implantees here have cochlear implant on >one ear and hearing aid on another. > >I noticed that in general, people with cochlear implant on one ear and >hearing aid on another ear are less happy with the result. I'm not sure if >it's due to unable to completely adapt to the new sounds... I have chatted >with one person with hearing aid on one ear and cochlear implant on another, >who just said that the robotic sound don't go away, and yet, people who have >profound loss with cochlear implant on one ear and none on another ear are >happier, they said the robotic sound go away after a month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 I think these are questons that can't necessarily be answered. Who knows how things will go a year down the road?? If she wears her hearing aid for the first year and gets used to the sound of both CI amd HA, then there would be another period of adjustment with the CI alone. It would seem that motivation is a key factor. How motivated will she be to go through another period of adjustment? But leaving the HA off and then putting it back in the ear doesn't seem to require the same amount of adjustment IMO. In a message dated 4/30/2004 8:28:27 AM Eastern Standard Time, sohada@... writes: my question is this: will she be dependent on her hearing aid to make good use of her CI because of the way the brain integrates sound, or if a year down the road goes by and her hearing has gotten worse in that ear (right) having to get rid of the hearing aid, she'll still be fine with just that one CI on her left ear? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 This is exactly how I feel. The goal is for better hearing so whatever we need to use to make that happen makes sense to me. Please remember...this is my personal opinion. While I don't miss the ear molds, the hearing is more important. susan & hobbes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Hi there, I read this post with some delay and that's why I didn't post earlier. My daughter Natalia is 7 and was activated Jan 16 2004. She's severe to profound and was a good HA user. She was implanted in her worse ear and since activation is wearing CI + HA. As a result she had no problem adapting to the new CI sound at all and had no difficult " transition " period, which I'd expect would happen if she had to start with CI only. Our audi says that as she has usable hearing in her right ear, our goal is to utilize sound bilateraly with the help of CI + HA. In that case it is not a good idea to let her brain get used to CI only and then have another adaptation period, getting used to CI + HA. Instead her brain was exposed to CI+HA from the very beginning. The result is her hearing has been continously improving since the activation and she could never hear as good as now. I also see her speech discrimination is getting better, including understanding TV and phone conversation, which she just didn't get at all before the implant. And I expect it to get even better, as it's only been 3 months... There has been a fresh study on using CI + HA, and some information about it can be found at: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Ab stract & list_uids=15035557 I also noticed (but it's just my observation) that people tend to prefer CI only if they have so little hearing in their reamaining ear it's just isn't useful to them. People with useful residual hearing in unimplanted ear say that HA in that ear improves their overall hearing as well as sound localization. So it might be an important factor in deciding for or against HA with the CI. Regards, Ewa Rakowska Re: Re: does HA restrict faster adaptation to CI? herome i would be interested to know if postlingually deaf aare happier with ci plus HA and prelings satisifed with only ci?? i also think those who are late deafned tend to go for bilateral ci i dont knnow any prelingual deaf who went bilateral ci... if i were you jerome i would seek people with similar hearing loss and history to yours and then that wud be a better predictor for your outcome... Quote Link to comment Share on other sites More sharing options...
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