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In a message dated 12/28/2002 7:42:44 AM Central Standard Time,

writes:

<< How many of you listen to relatives who aren't around that much who are

clueless about DS and related issues? Both Tim's mother (who has been to our

house twice in the past 2 years) and my father (was shocked about him) said

that wasn't disciplined. Did they listen to the fact we take him to

a behavioral psych (they probably don't even know what that is), a DS expert,

a neurologist, have an IEP and behavioral plan. etc?? No, we need to spank

him. LOL...like lack of spanking caused his ADHD, ODD, OCD, etc. PLEASE!!

I'm glad Tim and I are on the same wavelength and can try our best to ignore

these comments. I didn't even tell them that is now under the care

of a psychiatrist - and I don't think they need to know what medications he

is taking now.

Also, TIm's mom insisted that is isolating me and I am isolating

him. She also said I am going to resent him for that. I've raised that kid

for 9 years now and any good mother will accomadate her child based on their

needs. If that means not going to the mall, so be it. I don't resent him

and I'm sure Tim is happy that I'm not at the mall that often :) Tim and I

do have a partnership - we both give each other breaks and believe we are

happy people.

All I can think is thank god that Tim and I had a special needs child and

not our parents. I can honestly say and feel pretty confident that Tim and I

are far better parents than ours were (my mom being the exception) and we

take great pleasure, despite some bumps along the way, in being parents with

all the joys and challenges that parenting brings to us. We are blessed!

I will have to say my sister was also here - I wished she could have stayed

a week.

>>

,

My parents live in the same town and see us several times a week. They should

know all the things about but they still fall into this trap. Heck,

sometimes I get frustrated at 's limitations but know that it is what

works for him. Even dh gets frustrated at his limitations at times.

I don't look forward to holidays. doesn't handle the change in routine

well and gets overstimulated very easily. Of course all the people in the

house getting him goofy doesn't help.

Fortunately many children with ds do well with holidays and have a great

time. I wish was one of them but he gets better each year. We keep

working at it. Sometimes I think extended family is more frustrating than the

child.

Anyway, just sympathizing.

Karyn

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> <<How many of you listen to relatives who aren't around that much who are

> clueless about DS and related issues?

Oh, I am dealing with family who lives with us all the time and can't deal

with Mav or his issues and are very critical of how we are raising him. He

has cousins who refuse to play with him. And are allowed to. We steer clear

of as many family related activities as possible.

Now we have a foster daughter who has ds and her behavior is SO different

from Mav's. She is passively defiant and they don't see it. Mav is IN YOUR

FACE defiant and lets everybody know......so now we get how well behaved she

is and how spoiled he is.

This is MY family. My husbands are even worse but they are in Minnesota and

we only have to see them every couple of years.

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In a message dated 12/29/2002 7:52:55 AM Central Standard Time,

writes:

<< Maverick is still

up at night at least once..usally to sneak some pop or lately egg nog from

the fridge. The other night I heard the door open and I called out MAV!...

pretty soon he comes meandering into my bedroom saying " I didn't DO

anything! " He had his flashlight on his forehead. I laughed so hard I woke

up..he turned to see what I was laughing at and he also started to

chuckle. It was great!

The next day I relayed the story to both my mom and my sister. They didn't

think it was cute..they just pointed out that that was one more reason why

they never have him overnight and he's too old for that..and we need to get

a

lock for that fridge!. I feel so sad that they can't see the JOY of those

simple little antics!

>>

,

I also have those stories that people just don't get. My husband still gets

up at night and raids the refrig. You're never too old for that.

While 's defiance is frustrating I really enjoy his spunk and

creativity. Fortunately his teachers get it but not everyone appreciates it.

I always struggle with getting compliance without crushing his spirit. Not

that it is likey that is even possible.

Karyn

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  • 6 months later...
Guest guest

Welcome to the "other" sid eof the Zapper. You will find that you fit right in. We sometimes get a little warped over here. But all in all we are a friendly group, don't bite. Some of the jokes can get bad at times, but we are all adults (aren't we?).

Gail

Whew!!!

Man, it took FOREVER to get all those dang "i"'s crossed and "t"'s dotted before I could post here! I feel like a Certs! Now I can be fresh and sassy in TWO (click), TWO (click), TWO forums in ONE!dirk'n'iggy, happy as clams in a chowder (boston, not manhattan)...Please visit the Zapper homepage athttp://www.ZapLife.org

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Guest guest

Hey Dirk'n Giggy:

Welcome to the group. Did you mean new england clam chowder, or is there a boston clam chowder as well? :) TURK

Whew!!!

Man, it took FOREVER to get all those dang "i"'s crossed and "t"'s dotted before I could post here! I feel like a Certs! Now I can be fresh and sassy in TWO (click), TWO (click), TWO forums in ONE!dirk'n'iggy, happy as clams in a chowder (boston, not manhattan)...Please visit the Zapper homepage athttp://www.ZapLife.org

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Guest guest

Hey Dirk and Iggy --

Welcome aboard - so glad you found us!!! Between you Bill,

and Bob we will be rolling on the floor! You are just what the Doc

ordered!

Welcome, guin

i's crossed, t's

dotted..... mmmmmmmm

dirk_n_iggy wrote:

Man, it took FOREVER to get all those dang

"i"'s crossed and "t"'s

dotted before I could post here!

I feel like a Certs! Now I can be fresh and sassy in TWO

(click),

TWO (click), TWO forums in ONE!

dirk'n'iggy, happy as clams in a chowder (boston, not manhattan)...

Please visit the Zapper homepage at

http://www.ZapLife.org

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Guest guest

Hi, welcome and all that.

Would Iggy be an iguana sitting on your shoulder?

Bridget

> Man, it took FOREVER to get all those dang " i " 's crossed and " t " 's

> dotted before I could post here!

> I feel like a Certs! Now I can be fresh and sassy in TWO (click),

> TWO (click), TWO forums in ONE!

> dirk'n'iggy, happy as clams in a chowder (boston, not manhattan)...

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  • 3 years later...

, I am so proud of you. I had a good chuckle at the wedding events.

Weddings are stressful. I remember the day of my first wedding, all I

wanted to do was get it over with. Makes a good argument for paying them to

elope and use the money for a down payment on a house, doesn't it?! I am so

pleased you are doing well. Congrats. My surgery is scheduled for 9/7 and

I am getting more excited each day.

C.

Tampa

>From: " " <susan@...>

>Reply-

>

>Subject: Whew!!!

>Date: Tue, 22 Aug 2006 01:30:22 -0000

>

>Well, folks, congratulate me beause I made it through my daughter's

>wedding on Saturday without eating anything I wasn't supposed to,

>although I did have a sip of champagne to toast the new couple, and I

>enjoyed one bite of white chocolate raspberry cheesecake wedding cake.

>

>The dress that I had ordered months ago as a size 4x / 28 was

>ridiculous on me.....who knew that that could ever happen? So I bought

>a lovely new suit from Lord & s the week of the wedding, with a

>long straight skirt, a sleevless lace shell, and a silky jacket, and

>when it the temperature rose to the high 90's, I said the heck with

>it, took off the jacket, and actually went sleeveless in public. OH MY

>GAWD, at a wedding no less. At my DAUGHTER's wedding. I was thrilled

>to be wearing the size 20/22. I wanted to take off the corsage, and

>put the dress tag on my chest, instead <g> (Ok, I'm excited to be

>losing weight, but I'm not completely insane- I wore the jacket for

>the photos <g>

>

>Not only did I not splurge at dinner, drink the wine or overdo on the

>cheesecake, I also did not smack the groom when he told the brides

>great uncle ( who was the Southern Baptist Minister they had asked to

>perform the ceremony) that he was an atheist and didn't want any of

>that " God stuff mentioned during the ceremony " .I did not tell the

>bride, my lovely daughter who somehow went from being a charming 20

>year old self sufficient young woman to being an obnoxious 17 year old

>sullen teenager the day of the wedding to f* off at any time during

>the day ( and believe me, that I accomplished THAT without a bottle of

>champagne is a victory in itself!) I did not smack my own mother for

>chuckling at how obnoxious the bride was being to me, I did not even

>turn to look when one of my nephews screamed " " and jumped off

>the diving board into the pool just as the non-religous vows were

>being uttered, even if it did cause a splash of water to sweep over

>the caterers.....

>

> P.

>

>

>Pre-op ( before starting preop diet) 7/6/2006 276 lbs.

>date of surgery 7/20/06 248 lbs.

>today 8/21/06 230 lbs.

>

>

>

>

>

>

>

>

>

>

>

>

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Oh my gosh , I just read about the excitement at the wedding. You must have amazing patience :0)

You should be very proud of yourself for keeping your cool. That is a movie in the making :0)

Congrats!

Whew!!!>Date: Tue, 22 Aug 2006 01:30:22 -0000>>Well, folks, congratulate me beause I made it through my daughter's>wedding on Saturday without eating anything I wasn't supposed to,>although I did have a sip of champagne to toast the new couple, and I>enjoyed one bite of white chocolate raspberry cheesecake wedding cake.>>The dress that I had ordered months ago as a size 4x / 28 was>ridiculous on me.....who knew that that could ever happen? So I bought>a lovely new suit from Lord & s the week of the wedding, with a>long straight skirt, a sleevless lace shell, and a silky jacket, and>when it the temperature rose to the high 90's, I said the heck with>it, took off the jacket, and actually went sleeveless in public. OH MY>GAWD, at a wedding no less. At my DAUGHTER's wedding. I was thrilled>to be wearing the size 20/22. I wanted to take off the corsage, and>put the dress tag on my chest, instead <g> (Ok, I'm excited to be>losing weight, but I'm not completely insane- I wore the jacket for>the photos <g>>>Not only did I not splurge at dinner, drink the wine or overdo on the>cheesecake, I also did not smack the groom when he told the brides>great uncle ( who was the Southern Baptist Minister they had asked to>perform the ceremony) that he was an atheist and didn't want any of>that "God stuff mentioned during the ceremony".I did not tell the>bride, my lovely daughter who somehow went from being a charming 20>year old self sufficient young woman to being an obnoxious 17 year old>sullen teenager the day of the wedding to f* off at any time during>the day ( and believe me, that I accomplished THAT without a bottle of>champagne is a victory in itself!) I did not smack my own mother for>chuckling at how obnoxious the bride was being to me, I did not even>turn to look when one of my nephews screamed "" and jumped off>the diving board into the pool just as the non-religous vows were>being uttered, even if it did cause a splash of water to sweep over>the caterers.....>> P.>>>Pre-op ( before starting preop diet) 7/6/2006 276 lbs.>date of surgery 7/20/06 248 lbs.>today 8/21/06 230 lbs.>>>>>>>>>>>>

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Wow , it sounds like you had an interesting day. Thank God you made it through. Congradulations on your new size, keep up the good work. M. <susan@...> wrote: Well, folks, congratulate me beause I made it through my daughter's wedding on Saturday without eating anything I wasn't supposed to, although I did have a sip of champagne to toast the new couple, and I enjoyed one bite of white chocolate

raspberry cheesecake wedding cake. The dress that I had ordered months ago as a size 4x / 28 was ridiculous on me.....who knew that that could ever happen? So I bought a lovely new suit from Lord & s the week of the wedding, with a long straight skirt, a sleevless lace shell, and a silky jacket, and when it the temperature rose to the high 90's, I said the heck with it, took off the jacket, and actually went sleeveless in public. OH MY GAWD, at a wedding no less. At my DAUGHTER's wedding. I was thrilled to be wearing the size 20/22. I wanted to take off the corsage, and put the dress tag on my chest, instead <g> (Ok, I'm excited to be losing weight, but I'm not completely insane- I wore the jacket for the photos <g>Not only did I not splurge at dinner, drink the wine or overdo on the cheesecake, I also did not smack the groom when he told the brides great uncle ( who was the Southern

Baptist Minister they had asked to perform the ceremony) that he was an atheist and didn't want any of that "God stuff mentioned during the ceremony".I did not tell the bride, my lovely daughter who somehow went from being a charming 20 year old self sufficient young woman to being an obnoxious 17 year old sullen teenager the day of the wedding to f* off at any time during the day ( and believe me, that I accomplished THAT without a bottle of champagne is a victory in itself!) I did not smack my own mother for chuckling at how obnoxious the bride was being to me, I did not even turn to look when one of my nephews screamed "" and jumped off the diving board into the pool just as the non-religous vows were being uttered, even if it did cause a splash of water to sweep over the caterers..... P. Pre-op ( before starting preop diet) 7/6/2006 276 lbs.date of surgery 7/20/06 248 lbs.today

8/21/06 230 lbs.

Stay in the know. Pulse on the new .com. Check it out.

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