Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 There's been a lot of information on the board about the Nucleus 24 but not so much about Advanced Bionics. I'd like to hear from someone who has used the Advanced Bionics. What do you like best about your implant? What do you dislike about its operation? Also, I'd like to hear about your experience with the surgery, hookup and followups. Thanks. --gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Hi-Just wondering if there are any people who have had bilateral implants done with AB out there? Dennis Handa On Sep 10, 2007, at 4:42 AM, jodi wrote: > Hi a and Aimee! > > I am originally from Baltimore, Md, but I've been living in Italy > for eleven years. We have lived all of Jordan's experience in > deafness here...thank goodness. We have been truly blessed to have > found excellent doctors, surgeons and speech therapists. The only > difficult, really difficult part was having to raise Jordan in > Italian, a language that I did not speak. We're still working on > improving our Italian. Aimee, does Simone speak Italian or English > or both? The cochlear implant has enabled Jordan to begin acquiring > spontaneous language, so his English is improving. > > a, do you wear hearing aids now? I'm trying to set up a > googlegroup through Pisa Santa Chiara Ospedale, where Jordan was > operated so that a group exists for the Italian side. I'm so > overwhelmed by the wealth of information provided by these > groups, that I think it's so important to try to create one for > Italy. I'll keep you " posted! " I started with ci circle but came to > Ci Hear to see how adults feel about the CI and to listen to issues, > opinions, etc regarding the adult experience, because one day, > Jordan will in fact be an adult. It's also easier for an adult to > explain problems and concerns regarding an implant than for kids. > > It's amazing meeting people from all over the world on these groups, > it really gives new meaning to the idea of community! > > Good luck on your surgery, bring tachipirina with you, they didn't > have any for Jordan, luckily I was prepared. We chose our own > implant based on my research, because I wanted a particular > model...but that decision obviously varies from person to person. > > Piacere e arrivederci! > Jodi > > PS. If you want to email me off-group, feel free! Aimee, there is > another American mother living near Rome with a five year old boy > with a ci. BTW, the upgrade to the FREEDOM is free, talk to your > audiologist. I'm still undecided but leaning based on all I've heard > on the groups. > > Jodi Cutler Del Dottore > Co-Author of RALLY CAPS > Mamma of Jordan 11 years old Nucleus 24 Esprit 3G left ear > and Sofia Madyson aka " DRAMA " 4 years old > www.rallycaps.net > > >>> >>> Ciao a, >>> I am an american living in Italy for the past 5 years with my > italian >>> husband. Our son Simone was born in New York in 2001 and was >>> profoundly deaf in both ears. He received an implant 3 years ago > in >>> Italy. I read your message and was happy to know there was a > person >>> from Italy in the group. I often feel an outsider in these >>> discussions, because the experience and approach here is quite > diverse >>> from those in the US. >>> >>> Our story started in the US when we were faced with frustration > and >>> anger over the healthcare system. Two days after Simone's birth, > we >>> were given the OK to check out of the hospital when my husband > saw >>> fluid coming from simone's neck. It turned out he had two small > holes >>> on either side of his neck and a big opening in the roof of his > mouth >>> that went undetected by doctors. Furthermore, our son's deafness > was >>> not diagnosed correctly and he received an operation he did not > need. >>> Later, we encountered problems of discrimination in numerous > daycare >>> centers (Asilo Nido). My in-laws from Italy came to stay with > us and >>> saved our son's life because as a result of his cleft palate, he > had >>> feeding problems and his weight slipped - at 5 months old his > eyes >>> were sunken and dark. >>> >>> In the US, insurance is often linked to your employment which > was the >>> case of ours. I returned to work after 2 months, because my > coverage >>> approved more than my husband's policy, therefore I was forced > to stay >>> at my job to ensure Simone would receive the 3 operations he > required >>> during his first year, not including the implant. We found > ourselves >>> making one sacrifice after another without any positive outcome > as the >>> situation became grave. >>> >>> My husband knew that Simone would not be denied these basic > rights >>> here in italy so we decided to move. I can only say fantastic > things >>> about this country and its humane approach to medicine. Not only > were >>> we advised correctly about the implant, but the entire > experience has >>> been a valuable one. >>> >>> We investigated the CI centers in Varese and Padova - but we > finally >>> selected Reggio Emilia with Prof. Cuda. The staff there has been >>> wonderful. Simone had malformations which made the operation > nearly 6 >>> hours long, double the average amount of time needed. He > received a >>> Cochlear Esprit 3G processor. Now there is a new model > available, >>> much smaller - very nice. I believe it operates with 2 batteries > and >>> has a device similar to an alarm for trouble shooting, for > example >>> indicating when the batteries are low. >>> >>> Although it is not common, some regions such as Sicily will > reimburse >>> the cost of batteries. We live in Umbria, where Simone has >>> transportation from our home to his speech therapist and then > they >>> take him to school after his lessons 3 mornings a week. He also > goes >>> to Scuola Materna and has an extra teacher in the classroom to > help >>> him. The best part is that we don't have to argue with anyone to > have >>> these things and it is free. >>> >>> Let us know when you have a date scheduled and I wish you all > the best >>> - in boca al lupo! If you wish, I understand Italian. >>> Aimee >>> >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 My daughter has bilateral implants with both being AB. She was done simultaneously about 3 years ago. Re:Advanced bionics Recent Activity a.. 2New Members Visit Your Group Fashion Groups on A great place to connect and share. Official Samsung Group for supporting your HDTVs and devices. Endurance Zone b/c every athlete needs an edge. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Hi Dennis, Yes, On August 21st I had simultaneous bilateral CI surgery with AB implants. I'll be activated on Wednesday. If I can help you at all, just let me know. > > Hi-Just wondering if there are any people who have had bilateral > implants done with AB out there? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Hi, I have bilateral AB implants. I received my first one in 2003 and my second one was activated April 11 of this year. I love having two!! Anita > > Hi-Just wondering if there are any people who have had bilateral > implants done with AB out there? > > Dennis Handa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Hi, I have bilateral AB implants. I received my first one in 2003 and my second one was activated April 11 of this year. I love having two!! Anita > > Hi-Just wondering if there are any people who have had bilateral > implants done with AB out there? > > Dennis Handa > Quote Link to comment Share on other sites More sharing options...
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