Re: qualifications for implant

[Guest guest]

In a message dated 10/4/2003 4:05:20 PM Pacific Daylight Time,

n.mcbride@... writes:

> . I do not qualify for an implant apparently because my " comprehension

> level is high. Meaning I can understand sentences said to me, because I lip

read

> really well.

>

....you have only 15% hearing in one ear, nothing in the other ear and

you failed to qualify for a CI based on the fact that you can lipread well?

Sounds to me like you need a second opinion......and you need it fast! Can

you talk on the phone? Can you understand the radio or listen to music? Did

you have your testing at a CI center? Based on what you said......sounds like

you are a candidate for a CI. To qualify for a Clarion you need to have a

severe to profound loss of 70 db or greater for adults. I hope you don't give

up on this.

Deb H

CII surgery 6/18/02-hook up 7/18/02

HiRes,1/2003, Auria, 2/2003

Post lingual/Previous failed implant in 1985

BEA volunteer

[Guest guest]

Hi ,

I thought you aren't supposed to use your lipreading skills when your

hearing is being tested for implant candidacy!

In a message dated 10/4/2003 7:05:33 PM Eastern Standard Time,

n.mcbride@... writes:

Meaning I can understand sentences said to me, because I lip read really well.

I can't tell you how disappointed I was to " hear " this news.

[Guest guest]

, I recently was tested at Sunnybrook Women's College Hospital for an

implant. I have no hearing in my right ear and less than 15% in my left. I do

not qualify for an implant apparently because my " comprehension level is high.

Meaning I can understand sentences said to me, because I lip read really well.

I can't tell you how disappointed I was to " hear " this news.

[Guest guest]

I have no doubt that would qualify for any one

of the three implants here in the US. She lives in

Canada where things are different than they are here.

, if you have the option to go to another center,

you certainly should do that because being able to

lipread should actually help you qualify for an

implant based on your percentage. Lipreading is a good

thing but does nothing for you in most life situations

as Deb has described. Is it possible to go for a

second opinion there in Canada?

Alice

--- Debyell4@... wrote:

> In a message dated 10/4/2003 4:05:20 PM Pacific

> Daylight Time,

> n.mcbride@... writes:

>

> > . I do not qualify for an implant apparently

> because my " comprehension

> > level is high. Meaning I can understand sentences

> said to me, because I lip read

> > really well.

> >

>

> ....you have only 15% hearing in one ear,

> nothing in the other ear and

> you failed to qualify for a CI based on the fact

> that you can lipread well?

> Sounds to me like you need a second opinion......and

> you need it fast!

[Guest guest]

When I had my test there was no lipreading. They need to find out how well

you can understand if someone was in a different room. Do what Deb said...

get another opinion. I have a profound loss and without lipreading I got a

score of only 4 %.

susan & hobbes

michigan

At 07:19 PM 10/4/2003 -0400, you wrote:

>In a message dated 10/4/2003 4:05:20 PM Pacific Daylight Time,

>n.mcbride@... writes:

>

> > . I do not qualify for an implant apparently because my " comprehension

> > level is high. Meaning I can understand sentences said to me, because I

> lip read

> > really well.

> >

>

>....you have only 15% hearing in one ear, nothing in the other ear and

>you failed to qualify for a CI based on the fact that you can lipread well?

>Sounds to me like you need a second opinion......and you need it fast! Can

>you talk on the phone? Can you understand the radio or listen to music? Did

>you have your testing at a CI center? Based on what you

>said......sounds like

>you are a candidate for a CI. To qualify for a Clarion you need to have a

>severe to profound loss of 70 db or greater for adults. I hope you don't

>give

>up on this.

>

>Deb H

>CII surgery 6/18/02-hook up 7/18/02

>HiRes,1/2003, Auria, 2/2003

>Post lingual/Previous failed implant in 1985

>BEA volunteer

>

>

>

[Guest guest]

At U of M we were put in the sound proof booth and tested with

hearing aids. to qualify here you need have less than 60%

comprehension in your best aided ear.. No lip reading skills

required to qualify or not.

I wish those of you who are not qualified due to lip reading skills

the best of luck in getting qualified, and I'd suggest you get

another opinion from a different clinic if at all possible.

Hugs,

Silly MI

In , <hobbes@n...> wrote:

> When I had my test there was no lipreading. They need to find out

how well

> you can understand if someone was in a different room. Do what

Deb said...

> get another opinion. I have a profound loss and without

lipreading I got a

> score of only 4 %.

>

> susan & hobbes

> michigan

]

[Guest guest]

, I wish someone had told me that before I went for the test. I guess I

just do it naturally. When I was tested for the sentences, I was not able to

look at , so I did not score as well. I think he based my abilities on when

we were just talking together.

[Guest guest]

Deb;

I can talk on the phone if I know who it is. Meaning, just my kids and my

husband because they know enough to shout! Any calls I get I have to hand over

to someone else. I cannot listen to radio at all, haven't for years and music is

completely lost on me, much to my Husband's regret. He's a musician.

I don't know who I can get a second opinion from. I'm in Canada, I don't know if

the rules are different from yours, as far as I know right now, Sunnybrook and

Women's College Hospital is the only CI Center in Ontario. I will check into

this however, I don't want to give up on it.

Thanks for your e-mail.

[Guest guest]

Alice: I am trying to find out if Sunnybrook and Women's College Hospital is the

only CI center in Ontario.

If anyone has any info on this, please forward,

Thanks for ALL your e-mails, you people are terrific.

[Guest guest]

,

should know that lipreading is not a

disqualifier for someone who's testing for an implant.

What did you score when you did the sentence testing

and what would it take for you to have all the testing

done again?

I would be very surprised if the critera was so much

different in Canada but don't really know. With only

15% hearing in one ear - you are certainly deaf by US

standards.

Alice

--- McBride <n.mcbride@...> wrote:

> , I wish someone had told me that before I

> went for the test. I guess I just do it naturally.

> When I was tested for the sentences, I was not able

> to look at , so I did not score as well. I

> think he based my abilities on when we were just

> talking together.

>

>

[Guest guest]

Hi ,

Before I got my implant, I was able to use the phone only with my family

and one close friend. And just barely! It was interesting to hear them say

how frustrating it was for them to speak to me when I thought I was doing

okay. I got my implant three years ago when the requirements for getting one

were

much greater than they are now. As the technology increases, so does the

accessibility of the device. Don't give up!!

N24C

2000

P.S. - Would you like to read my journal of my experiences from surgery and

on? Let me know and I will send it to you.

In a message dated 10/4/2003 10:05:39 PM Eastern Standard Time,

n.mcbride@... writes:

Deb;

I can talk on the phone if I know who it is. Meaning, just my kids and my

husband because they know enough to shout! Any calls I get I have to hand over

to

someone else. I cannot listen to radio at all, haven't for years and music is

completely lost on me, much to my Husband's regret. He's a musician.

[Guest guest]

when i first saw my CI surgeon i had no doubts i was a candidate long

ago i was tested and score a 155Db on the audiogram but when i

talked to this doc he doubted this because i speak normally and lip-read very

well we had no problem carrying on a conversation although on this

first visited i just wanted to asks questions this doctor was so curious he

wanted to do a hearing test then and there ... meaning i put ahead of others who

were waiting to be tested of course i didn't hear anything .... and next

was a CT scan which showed everything to be fine because of

insurance regulations i had to tested wearing hearing aids (such a waste of time

and

money) i was told to listen and NOT speech read the audie was in

another room but there was a window i was tested on what i heard

not my ability to speech read

get another opinion contact CI companies and let them know what your

audie says these companies have a lot of power sometimes

whatever you do don't give up!!! from what you say you ARE a CI

candidate

susan

N24

r 7/01/02

l 10/01/03

[Guest guest]

Hi :

When I was tested for my CI, they did test my lipreading ability, too. It

was as bad as my hearing.

Hal

[Guest guest]

Are those 2 hospitals in Toronto? I know there is a CI center in Ottawa as a

friend of mine went there for his CI so perhaps you should go there for a second

opinion. There is no reason why you should get a CI if you are not able to hear

much. I am a Canadian and had my CI done in Halifax,N.S. I would encourage you

to go for a second opinion as it seems the audi did not test you correctly. Let

me know how things are going with your search for a CI and if you have any

questions contact me thru e-mail and I will try to help you find another CI

center in Canada.Don't give up!

Re: qualifications for implant

Deb;

I can talk on the phone if I know who it is. Meaning, just my kids and my

husband because they know enough to shout! Any calls I get I have to hand over

to someone else. I cannot listen to radio at all, haven't for years and music is

completely lost on me, much to my Husband's regret. He's a musician.

I don't know who I can get a second opinion from. I'm in Canada, I don't know

if the rules are different from yours, as far as I know right now, Sunnybrook

and Women's College Hospital is the only CI Center in Ontario. I will check into

this however, I don't want to give up on it.

Thanks for your e-mail.