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Yes, my question exactly! acknowledges her deafness, attained

many things the least of which is being the only Miss America to be deaf.

Marlee is an excellent, award winning actress and role model and choses to not

take the next step to become hearing. They both appear very comfortable in

their positions.

I am reminded of that corny song on the Laverne and Shirley...there's no

stopping us, gonna do it our way, make all our dreams come true...but they are

doing it two different ways.

Debra

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  • 6 months later...

It's very important to know that far too often children who do not

speak, whether due to hearing loss or autism or whatever, are tested

and declared mentally retarded. The tests are NOT valid. Children

MUST be tested by more than one method and in their first language.

For a child who uses ASL, that would mean all testing must be

completed by someone not only knowledgeable in educational testing

and the specific tests being used but also in ASL. There are very,

very few good tests for use with deaf/hard of hearing children.

This makes most tests invalid when being used with the d/hh

population. One of my students was labled mentally retarded when he

was six years old. The year I had him he was in the 8th grade, and

being taught with a 4th grade curriculum. His behavior was

HORRIBLE! When I " talked " with him about what was wrong, he let me

know in no uncertain terms that he was insulted by people treating

him as if he were stupid, and he was BORED! We went from 4th grade

to 8th grade curriculum that year. He is now a sophomore in high

school taking general education courses on grade level with a 3.8

GPA. =) Now, you tell me, is he mentally retarded or was he

mislabled for eight years? This kid is incredibly intelligent, he

just needed someone to realize it.

Beth

>

> Second, , you should really ask your sister to poll her

knowledgeable colleagues about this severely handicapped child.

Granted he may be profoundly retarded (we certainly can't say he

isn't) but can they reach him at all? I doubt it! It is more of

an...he is retarded so why bother giving him sound issue...they DO

NOT know what this child might respond to, IF he could receive sound

input.

>

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Beth,

Excellent post! As someone who was born prematurely with blindness and a

mild hearing loss diagnosed at age 3, doctors thought I would never develop

normally in terms of intellectual development. By the 3rd grade I was

diagnosed with a learning disability -- a diagnosis that continued until

high school. It wasn't until my sophomore year in high school that I decided

to fight the system so that I could enroll in accelerated courses in

preparation for college. Imagine...7 years wasted on the assumption that I

had a learning disability! Throughout my educational career all of my

teachers questioned why I was placed in the LD program to begin with,

especially when there was no evidence of my having any delays in math,

language or science. When I started my freshman year of college I asked to

be given a test which would prove once and for all whether or not I had a

learning disability. The test concluded that I had *no* LD of any kind and

that any problems I may have had were due to access issues related to

blindness and hearing loss.

Implanted: 12/22/04

Activation date: 1/18/05 (18 days and counting!)

Deafblind/Postlingual

BTE hearing aid user 19 years

Severe-profound hearing loss 9 1/2 years

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In a message dated 1/1/2005 9:09:54 AM Pacific Standard Time,

beth_brittney@... writes:

We see students who have disabilities that are most

definitely causing educational problems who are told they don't

qualify for special ed. services.

do you have a percentage of qualified students who can't get into special ed

because of the parents? I know of many parents who REFUSE to place child in

special ed.. that can be some of problems.

Lee

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In a message dated 1/1/2005 9:30:00 AM Pacific Standard Time,

beth_brittney@... writes:

you can't test the student to even see if the

student qualifies for special education services without giving the

parents prior written notice and gaining their approval in writing.

that's exactly the point,,,,

Lee

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,

This is the type of situation that prompted me to go into special

ed. rather than regular ed. (my first degree is elementary

education, first master's special ed., second master's will be

deaf/hard of hearing ed.) Unfortunately, the system is very

flawed. We see students who have disabilities that are most

definitely causing educational problems who are told they don't

qualify for special ed. services. (I observed a student recently

who was off-task 21 of 25 minutes during observation. He has

Tourette's but they still won't place him on an IEP because he's

unmedicated. As if we have the right to decide whether or not to

medicate the students....That's why we have behavioral modification

classrooms, to avoid medication if possible.) I have also seen

students with access issues, such as yours, who have no cognitive

disability, but are not receiving an appropriate education because

the access issues are not properly addressed. One d/hh teacher

wanted to pull my daughter from general education and place her into

a self-contained d/hh classroom. There was no reason to do this,

she was doing very well in the general ed. setting. This teacher

just didn't want to have to travel to a different school to make

sure accommodations were in place and provide consultation with the

gen. ed. teacher. She never did provide the consultation, only

visited the classroom once all year, didn't get the IEP written

until February when referral had been made in July, forged my name

on IEP documents, changed dates to make it look like she was in

compliance with federal and state law, and did many other things

which led me to file a formal complaint with the state dept. of

education. Come to find out, I was one of 18 parents to file a

formal complaint against her in that year alone. She's now the

president of a statewide d/hh teacher's association. How scary is

that? This is why I'm now working on the d/hh degree. Our kids

deserve better than this type of incompetence! I am so, so, so very

glad that I never let on at school that I couldn't hear. Back then

(in the 80's), d/hh kids were placed into self-contained resource

room programs. I would have missed out on being a cheerleader,

being in band, choir, being yearbook editor... I was a very strong

student, and offered scholarships to some top universities (Cornell,

Texas, Kansas State...to name a few) to major in agricultural

sciences with the intent of attending veterinary school.

Unfortunately, that never happened because of access issues. =(

But, everything works out for a reason, and now I've found the

reason. I think I was meant to become a special education teacher

and fight for better accommodations, more access, and just all

around better educations for my students. Hopefully because of my

work, my daughter will realize the dream of attending veterinary

school that she's had since pre-school.

The educational system has come a long way with special education.

But...we have a long way to go before we can truly say that we are

providing equal opportunities and appropriate educations for

students with disabilities, especially those with sensory

disabilities.

Beth

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Lee,

If the school district documents the need for special education

services, and the parents refuse, a due process suit can be filed by

the district. If the judge decides that the student needs the

services, the parents then have no choice. (This happens a lot with

ED/BD students. It's either place them in the special education

setting...generally a day school by this point...or the student is

not allowed to attend school in that district.) I don't have

statistics on the parents who refuse services. I have, in the past,

refused some services for my daughter, but not all services. This

means, the school had to follow the previous IEP (which I was happy

with) until we reached an agreement. I have also had parents of my

students do this when they weren't quite sure if they wanted to

follow our suggestions for placement. With a good educational team

and informed parents, it's generally not a problem. The problems

occur when the education team has one or more incompetent

teachers/administrators/psychologists/social workers, etc., or when

the parents have had prior bad experiences in other schools (the

case of the parent of my student who refused proposed services), or

just plain bad information or no information about the disability at

all. Of course, there's the stigma attached to special education

services, and some parents don't realize that special education

services can be provided completely as inclusive services rather

than being pull-out. It all comes down to doing what's best for

your child. I truly believe that the parents should have the final

say, as they know the child best, and they do (usually) want the

best for their child. I'm not a big fan of government interference

in parenting. The problem with parents not allowing special

education services is that these children tend to fall through the

cracks. I know that my success in general education is not typical

of someone with my degree of hearing loss. This is why I have my

daughter on an IEP. However, we've had so many problems with

incompetent teachers that she's now enrolled in an online school and

working from home where I can supervise and supplement her

educational program.

Beth

\ I know of many parents who REFUSE to place child in

> special ed.. that can be some of problems.

>

> Lee

>

>

>

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Oops...Lee, also, you can't test the student to even see if the

student qualifies for special education services without giving the

parents prior written notice and gaining their approval in writing.

You cannot formally assess any student, unless it's a test being

given to all students in that student's peer group (district or

state assessments, for instance) without prior written approval from

the parents.

Beth

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