instant understanding on hook up day

[Guest guest]

Great idea Joni (you can see I am behind with my emails). Problem with me

I don't really know how to class myself. From what my parents told me, I

didn't really start talking until I was 3 years old and it was a lot of

garble. I do remember that I would say words as I thought they were and

most of the time people would try to figure out what I was saying. So am I

prelingual (hearing loss before speech) or postlingual (since I did have

some hearing to be able to pick up some hearing without aids)? Want to vote? :}

susan & hobbes

michigan

>i would like to sugest we add " prelingual " or " postlingual " under our names.

>it woudl give more hope to people and at the same time provide more realistic

>expecations for all the readers out there.

>

>thanks

>joni

>prelingual

>HU 4-04

>

>

>

[Guest guest]

stargazzing susan

the one thing all these idividuals have in common is that they are

postlingual deaf... they had been born hearing and had hearing during the

crucial

language development years from age 0 to 5 years and then maybe had hearing a

few

more years or not.

we have not seen any posts from a prelingual deafie that has " a miraculous "

hook up. these folks have far more to overcome. but its sill just as

miraculous

lets applaud allthe hook ups miraculous or not. it does work!

wehn hearing about antoher ci experience, you need to only compare to the

other person ci experience ONLY IF they have a similar background to you as far

as hearing history and how they used their aids and how they functioned with

lipreading and speech. even then individaul responses are so different as we

have seen several posts about how family memebers with ci react differently.

i am having to remind several (discouraged) " newly ci prelinguals that these

miraculous hookups are the extreme and mostly postlinguals.

i have heard of some prelinguals (and even some postlingual) who feel

discouraged when they hear others have " instantaneous hearing " and they dont

want to

work at the thier ci andymore and give up and take it off altogether. these

folks dont realize it s people who are have had years of hearing who do the

best on hook up day.

i would like to sugest we add " prelingual " or " postlingual " under our names.

it woudl give more hope to people and at the same time provide more realistic

expecations for all the readers out there.

thanks

joni

prelingual

HU 4-04

[Guest guest]

Joni,

Well said!!! I couldnt agree more as i m prelingual too. We certainly need

some encouragement to go all the way. My hearing therapist told me that I m

doing well and to be realistic i know that i wont be able to have normal

converstaion without lipreading. I only can hear few simple words without

lipreading but its still a miracle to any of us.

Do take care

minnie,.

10/2/04 NC24C/3G

Hook up on march 15th 2004

Now - Wonderful!

Prelingual

[Guest guest]

In a message dated 5/6/2004 9:02:43 AM Pacific Standard Time,

justagram@... writes:

Is your goal to be able to totally understand without lipreading?

YIKE, who me?? it's just creep up on us without knowing. On day one, can

tell the variety of sounds and " separation " . Now, 3 months post-activated, been

picking up few words, bits and bits from radio. Yesterday I caught " on the

way to " and " 15 minutes " on radio, daughter was in car to confirm what i heard.

Lee

pre-lingual

[Guest guest]

Is your goal to be able to totally understand without lipreading? Even hearing

people use lipreading very often without realizing it. Just curious. Minnie

and Joni - I am very impressed with your progress that has happened very

quickly. You should both be extremely proud of yourselves.

Alice

Postlingual

I only can hear few simple words without

lipreading but its still a miracle to any of us.

[Guest guest]

Even after 2 years of CI, I still utilize my lipreading skills. I dont think Ill

ever lose them since I have been lipreading since as an infant. They still come

in handy especially in the nursing home. :-) Over this weekend, Ill tell you

about my experiences of my reactivation of the new right CI. I am just wearing

it right now and I am hearing the zillion clicking clicking of the keyboards. (

I am in a public library in NYC. It is coming back :-)

--

Snoopy

bilateral

RI

[Guest guest]

Hello All:

Just wanted to ring my chimes in here. My brother and I were born deaf since

birth and have worn body aids and it will till after we had graduated from

college before we were fitted with BTEs. We both are in our late 40's and

received our CI last summer.

We were excellent lipreaders and speaks very well. We both could not use the

phone. We did some signing with using the oral and signing interpreter along

with CART reporters.

Last July when we both were hookup for the first time in our lives, I cannot

fathom how much we were hearing so many new sounds we have never heard in our

entire life before. We heard each other's voices for the first time and

especially to our family and friends. We were able to repeated back in words

and

short sentences back to our respective audiologists without lipreading. We

were hearing water running, door clicks, car signal, bird singing and footsteps

from behind, etc.

We both now talks to each other on the phone and can even talk to our family

and friends and even some few strangers. I have to admit that having CI is

1000x better than HAs and there is no comparison at all. I encourage those

prelinguals to research all three brands and go for CI. You have nothing to

lose

period.

We are still in AWE how much we are hearing and it is a whole new world to

us. I have to say it is a MIRACLE for both of us and thank each day for the

wonderful gift of hearing to enable us to hear.

Debbie

Auria--07/03

Prelingual

[Guest guest]

Good question . I was just thinking of this today. My son was

implanted at 32 months. He heard enough to have some word approximations

and locate environmental sounds. He repeated whatever we tried to say to

him but it basically came out " garble " too. He did generally get the

syllables, tone of voice, vocal volume etc. I guess I would have to say he

is MORE postlingual though, than he is prelingual as he really didn't have

the " language " down prior to his CI. I don't know. We'll have to come up

with a 50/50 term...

Kim (Jaxon and Brixon's mom)

Re: instant understanding on hook up day

Great idea Joni (you can see I am behind with my emails). Problem with me

I don't really know how to class myself. From what my parents told me, I

didn't really start talking until I was 3 years old and it was a lot of

garble. I do remember that I would say words as I thought they were and

most of the time people would try to figure out what I was saying. So am I

prelingual (hearing loss before speech) or postlingual (since I did have

some hearing to be able to pick up some hearing without aids)? Want to vote?

:}

susan & hobbes

michigan

>i would like to sugest we add " prelingual " or " postlingual " under our

names.

>it woudl give more hope to people and at the same time provide more

realistic

>expecations for all the readers out there.

>

>thanks

>joni

>prelingual

>HU 4-04

>

>

>