Re: menirere's

[Guest guest]

yes, my friend has lost comprehension from menieres ... if you are looking

at her directly, she can read lips and understand, but if you look away, she

cant hear anymore.

Cate

menirere's

> has your firend lost their hearing from menirere's ? i have lost my

> hearing in the left ear and all most all in the right ear .i don't

> have much undrestanding in the right ear now .and i was hoping that a

> CI would be of help to me? i would just like to know how people and

> everthing sounds to them and can you hear the tv .i had good hearing

> tell i got menirere's in both ears.........

>

>

>

[Guest guest]

Hi Wayne and everyone,

I have very recently joined this list and perhaps I should have introduced

myself before replying to your post, but you are obviously worried and keen for

some info..

Just to introduce myself, I am 45, from England married to a great lady with 2

fantastic children was a self employed builder, but do not do so much now. I

lost my hearing and balance function very quickly over about 12 weeks, never had

an ear problem in my life. I was diagnosed with menieres disease had every pill

under the sun administered but they had no success apart from a course of

prednestrone that did halt the hearing loss very temporally. I am a little

sceptical about the diagnosis, I believe really that the symptoms point to AIED,

or some immune related problem but the ENT specialist sticks with his diagnosis

and the deafness was so quick and total that they gave up on any further testing

to perhaps pinpoint the problem.

I am told by my implant hospital that although it is rare to totally loose your

hearing with menieres, the outcomes are generally good for sufferers, AIED they

said was a more aggressive version of menieres.

I was implanted in November 2002 and switched on in December on Christmas Eve. I

have not met anyone who has been implanted with menieres so have no one to

compare with, but I don't think you can really compare as I am sure outcomes are

all different.

Having had perfect hearing and then being implanted 6 months or so later, I have

to say that I did not enjoy the sounds of speech I still find it a little

tiresome and tiring. On the other hand environmental sounds are fantastic, just

to be connected to the sounds of life again is an immense joy. I chose the C11

and was the first person in the country to have HI RES straight off, so I feel I

was a bit of a guinea pig. It took 6 maps and in the third month I started to

hear better, I have not really improved dramatically since then, according to

the various tests, but I still have little moments. In the last two weeks I have

noticed that the car engine has several notes as it accelerates. Testing shows

that I understand 98% with lip-reading, 80% without lip-reading and 47% of

single words without lip-reading all in quiet, this does drop off somewhat with

background noise and group situations, where my understanding is very poor

unless I am a couple of feet away from the speaker.

Amazingly peoples voices are very similar to before, I was really expecting them

all to sound the same and at first they were. Music is unrewarding, and I am

poor on the telephone, the TV I find much easier to understand with a pair of

good quality headphones.

I think, having spoken to people who have quickly lost their hearing and have a

good auditory memory, it can be difficult to adjust to hearing in a different

way, so one must persevere and I am sure you will be rewarded.

Do you have a general balance problem as well ? I have found that hearing with

the implant makes me a little more steady, except for loud noises like traffic

and busy places where it effects my balance for the worse, but that is possibly,

because there is lots of visual activity going on as well.

Good luck I hope this gives you a little encouragement, do ask more questions

however silly they may seem.

A very happy new year and regards to you all

C11 HiRes 24/12/02

menirere's

has your firend lost their hearing from menirere's ? i have lost my

hearing in the left ear and all most all in the right ear .i don't

have much undrestanding in the right ear now .and i was hoping that a

CI would be of help to me? i would just like to know how people and

everthing sounds to them and can you hear the tv .i had good hearing

tell i got menirere's in both ears.........

[Guest guest]

Hi

thanks for getting back to me. and thanks for the info. i have had menieres for

the last 12 years in my left ear and 5 in my right ear. i can't hear anything

with out a hearing aid in the left and then it not much good the right ear some

times i can still hear something with out a hearing aid in the right .but it has

to be real loud and close. i have the best hearing that they say i can get .but

it's getting to where they are not enough to hear very good .i think that my

last hearing test was about 20% in the left and 50% in the right ear and that is

with the hearing aids in .i hear nothing with out them 0 .my doctor said that

you can and people do go deaf from menireres but it about 5% . and yes i am

dizzy a lot from menieres everything is distorted with hearing aids when you

have menieres .my hearing is never the same from day to day . i guess that your

hearing is the same with a CI ? from day today? can you trun your CI up and

down or is it the same all the time?. i go back next

month to be check again for a CI .i have never talk much about a implant but i

think the day has come that the CI is sounding better then the hearing aids that

i have now .every body is saying that ever body is diffrerent?it will be hard to

make that first move if the doctor said that i',m ready for the CI

......wdonahue@...

<barn@...> wrote: Hi Wayne and

everyone,

I have very recently joined this list and perhaps I should have introduced

myself before replying to your post, but you are obviously worried and keen for

some info..

Just to introduce myself, I am 45, from England married to a great lady with 2

fantastic children was a self employed builder, but do not do so much now. I

lost my hearing and balance function very quickly over about 12 weeks, never had

an ear problem in my life. I was diagnosed with menieres disease had every pill

under the sun administered but they had no success apart from a course of

prednestrone that did halt the hearing loss very temporally. I am a little

sceptical about the diagnosis, I believe really that the symptoms point to AIED,

or some immune related problem but the ENT specialist sticks with his diagnosis

and the deafness was so quick and total that they gave up on any further testing

to perhaps pinpoint the problem.

I am told by my implant hospital that although it is rare to totally loose your

hearing with menieres, the outcomes are generally good for sufferers, AIED they

said was a more aggressive version of menieres.

I was implanted in November 2002 and switched on in December on Christmas Eve. I

have not met anyone who has been implanted with menieres so have no one to

compare with, but I don't think you can really compare as I am sure outcomes are

all different.

Having had perfect hearing and then being implanted 6 months or so later, I have

to say that I did not enjoy the sounds of speech I still find it a little

tiresome and tiring. On the other hand environmental sounds are fantastic, just

to be connected to the sounds of life again is an immense joy. I chose the C11

and was the first person in the country to have HI RES straight off, so I feel I

was a bit of a guinea pig. It took 6 maps and in the third month I started to

hear better, I have not really improved dramatically since then, according to

the various tests, but I still have little moments. In the last two weeks I have

noticed that the car engine has several notes as it accelerates. Testing shows

that I understand 98% with lip-reading, 80% without lip-reading and 47% of

single words without lip-reading all in quiet, this does drop off somewhat with

background noise and group situations, where my understanding is very poor

unless I am a couple of feet away from the speaker.

Amazingly peoples voices are very similar to before, I was really expecting them

all to sound the same and at first they were. Music is unrewarding, and I am

poor on the telephone, the TV I find much easier to understand with a pair of

good quality headphones.

I think, having spoken to people who have quickly lost their hearing and have a

good auditory memory, it can be difficult to adjust to hearing in a different

way, so one must persevere and I am sure you will be rewarded.

Do you have a general balance problem as well ? I have found that hearing with

the implant makes me a little more steady, except for loud noises like traffic

and busy places where it effects my balance for the worse, but that is possibly,

because there is lots of visual activity going on as well.

Good luck I hope this gives you a little encouragement, do ask more questions

however silly they may seem.

A very happy new year and regards to you all

C11 HiRes 24/12/02

menirere's

has your firend lost their hearing from menirere's ? i have lost my

hearing in the left ear and all most all in the right ear .i don't

have much undrestanding in the right ear now .and i was hoping that a

CI would be of help to me? i would just like to know how people and

everthing sounds to them and can you hear the tv .i had good hearing

tell i got menirere's in both ears.........

[Guest guest]

Hi Wayne,

Im reply to your question about being able to turn the volume up and down, yes

you can, I think the audoiologist calls it sensetivity, but I call it volume. As

for your fluctuating hearing, as the implant stimulates the ganglion nerve

endings, and not the hair cells, your hearing with an implant should be fairly

constant, having said that I do notice that it is not so good some days.

particularly if I have a cold or am tired, I can't explain why this is. I have

talked to people with an implant and they have all said the sounds are much

better than with a hearing aid, I never have worn an aid.

The BTE processor I have has 3 program slots, so you can have variations to your

program for say noisy places.

Yes everybody has different outcomes, there are so many variables, one has to

remember that there are only 16 or 20 odd electrodes that let you hear,

sometimes they can not get all the electrodes in, some nerve endings maybe dead

as well. so it is all variable, but meniere's I am told only kills the hair

cells through pressure, that full ear feeling, that often leads to dizzynees and

vertigo.

C11 HiRes 24/12/02

Re: menirere's

Hi

thanks for getting back to me. and thanks for the info. i have had menieres

for the last 12 years in my left ear and 5 in my right ear. i can't hear

anything with out a hearing aid in the left and then it not much good the right

ear some times i can still hear something with out a hearing aid in the right

..but it has to be real loud and close. i have the best hearing that they say i

can get .but it's getting to where they are not enough to hear very good .i

think that my last hearing test was about 20% in the left and 50% in the right

ear and that is with the hearing aids in .i hear nothing with out them 0 .my

doctor said that you can and people do go deaf from menireres but it about 5% .

and yes i am dizzy a lot from menieres everything is distorted with hearing aids

when you have menieres .my hearing is never the same from day to day . i guess

that your hearing is the same with a CI ? from day today? can you trun your CI

up and down or is it the same all the time?. i go back next

month to be check again for a CI .i have never talk much about a implant but i

think the day has come that the CI is sounding better then the hearing aids that

i have now .every body is saying that ever body is diffrerent?it will be hard to

make that first move if the doctor said that i',m ready for the CI

......wdonahue@...

a.. on the web, go to:

/

b..