Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 In a message dated 10/19/2004 10:12:37 AM Pacific Daylight Time, gayle227@... writes: The hearing aids may help to keep Elise's hearing nerve stimulated, even if she cannot hear very well. That stimulation would definitely come into use when she is ready to receive an implant. Thank you gayle,, you found the right word to best explain it but you did it! Yes, I agree with Gayle. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 Elise is almost 6 weeks old, and she is to be implanted at 1 year. The CMV virus caused the hearing loss. She has had extensive testing, and they say she does not hear. I did not know that you could get approval for younger implantation. They told us she had to wear hearing aids for awhile even though they will do her no good. They said she has to wear them as the first step toward the CI. Seems kinda silly to me. Is this always the case? Dora Weber <dora_weber@...> wrote:Hi Kathy Did you by chance mean that your G daughter is 6 mo old?There was a 6mo old baby girl who was implanted bilaterally at my clinic due to ossification from Meningitis but they had to get approval from the FDA to do so..I am thinking that a 6 week old baby is much too young..also..the tests that they do on newborns sometimes are not accurate. Dora Weber Nucleus Volunteer Advocate dora_weber@... Bilateral N22-96 N24C-01 Cochlear Otosclerosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 , Well, it could be for a variety of reasons: 1. Just to see if the hearing aids would give her some benefit, if there's any residual hearing at all, she would still have some benefit -- better that she hears something than NOTHING -- which will help her with her language development and acquisition. This " pre-cochlear implant " training will help her get used to the " sound " that she would get later on with her cochlear implant. Having NO use of her residual hearing would probably result in her being unduly scared/surprised when the CI is activated. 2. She might want to get used to *wearing* the aid. 3. Some insurance companies require that a HA be worn first in order to assess the potential implantee's candidancy; if Elise has no benefit from the HA, then she'd be approved right away. 4. The hearing aids can be worn NOW, even at six months -- any delay in hearing would result in a delayed language acquisition and development period. The most precious time for learning is between birth and age 3... and six months is important! Hope these help. going in tomorrow, age 43, HAs for 40 years On Tue, 19 Oct 2004 07:24:35 -0700 (PDT), on <cathyreg@...> wrote: > > > Elise is almost 6 weeks old, and she is to be implanted at 1 year. The CMV virus caused the hearing loss. She has had extensive testing, and they say she does not hear. I did not know that you could get approval for younger implantation. They told us she had to wear hearing aids for awhile even though they will do her no good. They said she has to wear them as the first step toward the CI. Seems kinda silly to me. Is this always the case? > > Dora Weber <dora_weber@...> wrote:Hi Kathy > Did you by chance mean that your G daughter is 6 mo old?There was a 6mo old baby girl who was implanted bilaterally at my clinic due to ossification from Meningitis but they had to get approval from the FDA to do so..I am thinking that a 6 week old baby is much too young..also..the tests that they do on newborns sometimes are not accurate. > > Dora Weber > Nucleus Volunteer Advocate > dora_weber@... > > Bilateral > N22-96 > N24C-01 > Cochlear Otosclerosis > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 Hello , I see that has already answered your question but I had one thought I'd like to mention. The hearing aids may help to keep Elise's hearing nerve stimulated, even if she cannot hear very well. That stimulation would definitely come into use when she is ready to receive an implant. I would listen to your doctor and, at same time, continue researching the cochlear implant. Sending prayers and hope your way, Gayle > > Elise is almost 6 weeks old, and she is to be implanted at 1 year. ....They said she has to wear them as the first step toward the CI. Seems kinda silly to me. Is this always the case? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 Thanks so much. That makes a ton of sense. Bring on the hearing aids. spottedlee@... wrote: In a message dated 10/19/2004 10:12:37 AM Pacific Daylight Time, gayle227@... writes: The hearing aids may help to keep Elise's hearing nerve stimulated, even if she cannot hear very well. That stimulation would definitely come into use when she is ready to receive an implant. Thank you gayle,, you found the right word to best explain it but you did it! Yes, I agree with Gayle. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 I talked to my daughter, and she said the hearing aids were necessary for 2 reasons--to make sure that they do not improve her hearing, and so that the insurance company knows they have already gone down the HA avenue. The Dr. said he doesn't want them to spend $ on buying HA's for Elise because he knows they will not improve her hearing much if any. She is going to wear some that she an get free that have already been used. They are loaners. Dora Weber <dora_weber@...> wrote:Hi Ok..now I know that she won't be implanted at 6wks old.The reason the baby i mentioned was bilaterally implanted at 6mo. of age was because her cochleas were ossifying very rapidly from meningitis.They had to get permission from the FDA. The reason they have everyone try hearing aids first is to see if they hear with them.If they are helped sufficiently then a cochlear implant is not needed.It may be because they want to stimulate her nerve cells too..ask your CI team why they do this.I would like to know also.I wish you all the best ! Dora Weber Nucleus Volunteer Advocate dora_weber@... Bilateral N22-96 N24C-01 Cochlear Otosclerosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 It is true that they want to be sure that the child does not benefit from hearing aids. My daughter, , who has been activated to 5mos now, will need to continue to wear her aid in the unimplanted ear to keep the Nerve stimulated, for possible future technology? We met a little girl who had the same degree of loss as our , however hearing aids gave her speech. It was a bittersweet moment for me as hearing aids gave nothing. I'm sure they cannot tell yet with your baby if hearing aids will work for her, so the trial is necessary, I would have loved it if the aids worked for . (mom to 31mos) Implanted 3/25/04 Activated 5/7/04 N24C > Hi > Ok..now I know that she won't be implanted at 6wks old.The reason the baby i mentioned was bilaterally implanted at 6mo. of age was because her cochleas were ossifying very rapidly from meningitis.They had to get permission from the FDA. > > The reason they have everyone try hearing aids first is to see if they hear with them.If they are helped sufficiently then a cochlear implant is not needed.It may be because they want to stimulate her nerve cells too..ask your CI team why they do this.I would like to know also.I wish you all the best ! > > Dora Weber > Nucleus Volunteer Advocate > dora_weber@m... > > Bilateral > N22-96 > N24C-01 > Cochlear Otosclerosis > > > Quote Link to comment Share on other sites More sharing options...
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