Re: Re: The Waiting Game Continues

[Guest guest]

Patti,

I didn't expect things to take this long but in the end, I know it will be

worth it. No matter what happens I plan to see this whole process through no

matter what happens. When I finally get my CI, all of the waiting I've done

will be rewarded with the gift of hearing. And that is *definitely*

something worth waiting for!

[Guest guest]

OMG!!! Patti

talk about being so close to getting a CI i think you hold the record!!!

to be right there IN the hospital and ready for surgery and to call it

off!!!! oh i do not think i could be very lady like about this LOL LOL

and to have it again postpone??!!! geeesh you're a very patient person!

this is amazing

susan

[Guest guest]

It will be worth it belive me - even it did not go as well as first (switch on)

it WILL get better - for me, I HATED it at first, it took me a good year before

I could start to understand, appreachiate and start to enjoy the sounds coming

thru. remember everyone is different...........good luck........again fire any

q's you have..........Alison

velma214 <Scrabbler214@...> wrote:

> Patti,

>

> " I didn't expect things to take this long but in the end, I know it

will be

> worth it. No matter what happens I plan to see this whole process

through no

> matter what happens. " When I finally get my CI, all of the waiting

I've done

> will be rewarded with the gift of hearing. And that is *definitely*

> something worth waiting for! "

>

>

That's the right attitude, ! Hang in there and your day will

come. Believe me I know it's easier typed than done. I do know

how hard it is to be so ready for a procedure only to have it

postponed. My CI surgery was postponed twice in the same week! On

my original date, I came within 20 minutes 3 times that day of going

into the OR only to be pushed back due to an emergency coming in and

overflowing recovery rooms. They finally sent me home that day 12

hours after arriving; without an implant and a surgery date for 4

days later which was cancelled two days later due to other

commitments my ENT had that were forgotten about. My surgery

finally took place a week after the original date. It's been quite

a journey for me and my whole family! But, it's been worth it all to

hear everyday sounds and my family's voices. Hang in there! I am

looking forward to reading how it goes for you. We just need to

wait a little longer than we want to.

Take care, !

Good luck to you!

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day 1/2/03 (A Happy Day!)

[Guest guest]

In a message dated 7/18/2004 9:14:27 AM Pacific Daylight Time,

alison7582@... writes:

yeah but not if you had HA's before - for me I was a v good HA user, went

thru all the pre-implant assessemtns, tests and scans.......it was about 22

months from referal to op date

Yike!!! like you, i was a faithful HA user prior to CI, from first appt to

op date was 3 1/2 months.

Lee

[Guest guest]

Hi,

If the same thing happens to me next month il woud cause a confusing

situation since the surgery il scheduled to take place in Quebec, which is

at morde than 300 kilometers from my home. Intervenors would have so small

problems to solve (smile0.

Jacques

At 08:40 2004-07-18 -0400, you wrote:

>OMG!!! Patti

>talk about being so close to getting a CI i think you hold the record!!!

> to be right there IN the hospital and ready for surgery and to call it

>off!!!! oh i do not think i could be very lady like about this LOL LOL

>and to have it again postpone??!!! geeesh you're a very patient person!

>this is amazing

>

>

>susan

>

>

>

[Guest guest]

that is bad.........i would have felt v v let down, esp when you've been waiting

for like ages, you get all worked up - esp if you are worried about the op -

thta happened to my firend - she was in hosp day before and was about ready to

go down to theatre the next morning - had the pre-meds etc etc, then was told

they could not do the op that time - she also has other probs as

well.........but i can see from her point of view - that must have been

awful............she got thru second time though.........i can understand some

your fustration!! Alison

stargazzingnite@... wrote:OMG!!! Patti

talk about being so close to getting a CI i think you hold the record!!!

to be right there IN the hospital and ready for surgery and to call it

off!!!! oh i do not think i could be very lady like about this LOL LOL

and to have it again postpone??!!! geeesh you're a very patient person!

this is amazing

susan

[Guest guest]

yeah but not if you had HA's before - for me I was a v good HA user, went thru

all the pre-implant assessemtns, tests and scans.......it was about 22 months

from referal to op date........but funding was already in place - as I came from

different NHS authroirty or soemthing.......oI heard there were a few people who

had to wait 5 years for funding before they can go ahead........god i don't

think i can wait that long

Armstrong <silly1@...> wrote:I didn't have to go through a HA

trial either as I only had 5%

overal hearing before surgery.. 2% in one ear and 3% in the other.

I had no problem with insurance approval either. This was the case

for all 4 members of my family who are implanted to date, but yes,

it does make sense to have a HA trial when there is more residual

hearing to work with.

is right though.. sometimes it's just simpler to go along with

the game plan rather than to drag it out and have to wait longer for

approval.

Hugs,

Silly MI

> i agree and so did the CI Center!!! they tried to explain to

the insurance

> company but the approval was based on testing with a HA and having

the person

> wear the HA for at least 6 weeks there should be exceptions

to rules

> but it was far easier just going through the trail HA than

explaining to

> an insurance company

> susan

>

>

>

[Guest guest]

really?? wow! that is v quick..........

spottedlee@... wrote:

In a message dated 7/18/2004 9:14:27 AM Pacific Daylight Time,

alison7582@... writes:

yeah but not if you had HA's before - for me I was a v good HA user, went

thru all the pre-implant assessemtns, tests and scans.......it was about 22

months from referal to op date

Yike!!! like you, i was a faithful HA user prior to CI, from first appt to

op date was 3 1/2 months.

Lee

[Guest guest]

i totally agree.........but it will be worth it in the end, even at first

doesn't seem so, but be patience - mine was tested after switch on - wanted to

hear everything more quickly!!

Armstrong <silly1@...> wrote:Oh yeah.. I'm not saying I wouldn't

be frustrated.. and I think I'd

have had more than one comment to make if it had happened to me

too.

You've definitely got some patience to go through all of this, and

patience is something one definitely needs in this waiting game!

Best of luck with it all.

Hugs,

Silly MI

In , Alison Patuck wrote:

> that is bad.........i would have felt v v let down, esp when

you've been waiting for like ages, you get all worked up - esp if

you are worried about the op - thta happened to my firend - she was

in hosp day before and was about ready to go down to theatre the

next morning - had the pre-meds etc etc, then was told they could

not do the op that time - she also has other probs as

well.........but i can see from her point of view - that must have

been awful............she got thru second time though.........i can

understand some your fustration!! Alison

[Guest guest]

Patti,

Being only 20 minutes away from surgery only to have it postponed once and

then postponed yet again...I would have been *so* disappointed!!

[Guest guest]

My CI audi hasn't mentioned anything to me yet about a HA trial. I've been

wearing super power BTEs since 1995 and have always been a very good hearing

aid user since I started wearing them in 1985. In fact, all of my audi's (3

within 9 years) have commented me on how well I use my hearing. My current

audi was impressed with how I used the environmental microphone on my FM

system to maximize the use of my residual hearing despite the fact that I

have no speech discrimination in my left ear and minimal speech

discrimination in the other. Then again, my total blindness doesn't give me

a choice in the matter since I can't use visual clues to help me understand

what I can't hear. As a result, I use tactile sign, Braille real-time

captioning and alternative communication methods. Sometimes an interpreter

or captionist can't be scheduled, so I just have to do my best in trying to

understand what is being communicated to me.

[Guest guest]

22 months from referral to operation date? Wow! I hope I won't have to wait

that long... I was really hoping to go back to school in January. Of course,

if the process takes awhile and I need to take the spring semester off, I

will gladly do it. I don't want to put this off because if I don't do this

now, I probably never will.

[Guest guest]

that is not on, esp after twice - I would been so fustrated..........I'd be v v

let down!

Kozlik <lisak70@...> wrote:Patti,

Being only 20 minutes away from surgery only to have it postponed once and

then postponed yet again...I would have been *so* disappointed!!

[Guest guest]

I think we hsve had enough of the Waiting Game continues! I am getting

many repeats.

Original Message:

-----------------

From: Alison Patuck alison7582@...

Date: Sun, 18 Jul 2004 17:13:54 +0100 (BST)

Subject: Re: Re: The Waiting Game Continues

yeah but not if you had HA's before - for me I was a v good HA user, went

thru all the pre-implant assessemtns, tests and scans.......it was about 22

months from referal to op date........but funding was already in place -

as I came from different NHS authroirty or soemthing.......oI heard there

were a few people who had to wait 5 years for funding before they can go

ahead........god i don't think i can wait that long

Armstrong <silly1@...> wrote:I didn't have to go through a HA

trial either as I only had 5%

overal hearing before surgery.. 2% in one ear and 3% in the other.

I had no problem with insurance approval either. This was the case

for all 4 members of my family who are implanted to date, but yes,

it does make sense to have a HA trial when there is more residual

hearing to work with.

is right though.. sometimes it's just simpler to go along with

the game plan rather than to drag it out and have to wait longer for

approval.

Hugs,

Silly MI

> i agree and so did the CI Center!!! they tried to explain to

the insurance

> company but the approval was based on testing with a HA and having

the person

> wear the HA for at least 6 weeks there should be exceptions

to rules

> but it was far easier just going through the trail HA than

explaining to

> an insurance company

> susan

>

>

>

[Guest guest]

" I think we hsve had enough of the Waiting Game continues! I am

getting

many repeats. "

No repeats, " the Waiting Game " has not yet aired on any TV

network. Watch for the announcement for the latest reality TV show.

Players must be extremely patient to play this game. More details

coming soon.

*---* *---* *---* *---* *---*

The most wasted of all days is one without laughter.

-e.e. cummings

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

,

Has anyone ever told you that you're a nut? LOL!

[Guest guest]

,

I don't know why, but your last message initially struck me as

funny...probably because of your writing style. <smile> You're right. The

entire process of getting a CI is time consuming and does require alot of

patience. Fortunately, I tend to be a very patient person, so this hasn't

been a problem. The only thing I need to think about is how this may impact

my plans to return to school in January. If I have to wait until summer to

resume my studies, I will because getting a CI will make my education,

future employment and life a little easier than it is now.

[Guest guest]

,

Oh many many times. LOL

*---* *---* *---* *---* *---*

A ship was carrying a cargo of yo-yos, bound for San Francisco from

Hong Kong. It was hit by a typhoon and sank twenty-three times.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

,

I am now playing my waiting game too. Sigh. The first CI was

about 4 months.

I think you got the right idea, the CI can really make a

difference so go on and wait. LOL

*---* *---* *---* *---* *---*

We are born naked, wet, hungry, and get slapped on our ass...then

things get worse.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

;the waiting game continues, continues and continues!!

Original Message:

-----------------

From: rlclark77@...

Date: Sun, 18 Jul 2004 16:30:33 -0700

Subject: Re: Re: The Waiting Game Continues

,

Oh many many times. LOL

*---* *---* *---* *---* *---*

A ship was carrying a cargo of yo-yos, bound for San Francisco from

Hong Kong. It was hit by a typhoon and sank twenty-three times.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

In a message dated 7/19/04 9:01:43 AM, geodv@... writes:

> the waiting game continues, continues and continues!!

>

>

Geo

Oh i Love the Waiting GAME ... it's my favorite show ... and because you are

forever waiting it does continue and continue and continue so you are

right!!! you must watch it too huh?

susan