Guest guest Posted July 7, 2010 Report Share Posted July 7, 2010 Hi everyone. Its been 2.5 years since I have been on this site. I had my C-Toma surgery in Nov of 2007. I have struggled with vertigo since then. I have had tubes put in both ears due to eustation tube dysfunction. Unexpectedly, my vertigo went away as soon as the tubes were put in. I would get vertigo again when they fell out. Consequently, I have had a surgery every 10 months to put the tubes in and have a " look see " to keep on top of any c-toma regrowth. I felt very optmistic as 10 months ago it was still clear. Unfortunately in my lst tube surgury a few weeks ago they found the c-toma has grown back, and looks worse than the first time. I am scheduled for another c-toma surgery Sept.14. I am soooo disappointed and nervous. Probably because I know what to expect this time and last recovery was quite difficult. I blocked out so much of what I learned and went through as I believed dI would be one of the lucky one's not having to deal with this a second time. I go see my neuosurgeon next week for a pre-op consult, I'm not sure what proceedure they will go with this time. Last time was behind the ear through the skull. It was a 6 hour surgery and they did reconstruction of the incus and eardrum during the surgery. This time I'm not sure what they will do. I'm grateful to have a place to go with my fears and frustrations with all of you who know how it feels. I am open to any new ideas out there in the past couple years with regards to showering ideas and post surgery care. All the best, Joanne Quote Link to comment Share on other sites More sharing options...
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