Re: Digest Number 268

[Guest guest]

To Louis:

My thoughts are with you and your wife, I pray for peace and good health for

your family.

Best,

Tamar Chansky

Re: Bathroom OCD

There was a post a few days ago about a 7 year old who couldn't " stop wiping " .

THis is very common. Some other ideas are to ask your daughter when she's not

in the bathroom, how she knows

when to stop wiping- e.g., if the toilet paper is clean, after 2 wipes, after 1

wipe, whatever. You could stop there and reinforce her good information, tell

her that it sounds like

bathroom man is trying to keep her in the bathroom longer, wasting her time etc,

and then put a chart in the bathroom which she can check off- how many times she

listens to herself and wipes

how much she wants, vs. how many times bathroom man wins and makes her waste

time and paper. Or.. As strange as this next idea might sound... Lee Baer in his

book Getting Control talks about

asking a friend, coach, family member how they handle situations as a model for

how much is enough of washing or checking etc. So you could also have your

daughter do a little survey and

ask parents and any other people who are " in " on the OCD who could be supportive

of this- and ask them- how they know when to stop wiping. This way your

daughter can then gather the info

and say, well if everybody else is doing it this much but bathroom man is saying

to do it this much then I'm going to break bathroom man's rules and only wipe as

much as everyone else...

Best of luck

Tamar Chansky, Ph.D.

[Guest guest]

Hi All, Anyone out there in the Syracuse area? Here's a note from Lori

Overland, our speech/lang pathologist:

" Maybe your online group can help me. I am lecturing in Auburn ......near

Syracuse in a few weeks. I need to find a child with Down Syndrome for a

hands on demo. Would you ask if anyone is in the area????

There is no charge and the family gets a program plan from the eval!

THANKS! "

If you are in the Syracuse, NY area, write to Lori at oromotorlo@... and

get the details.

Have fun, love Debbi and Logan (almost 6) Eli (DS) and Milo 3 1/2

[Guest guest]

In a message dated 5/2/2000 9:02:18 PM US Mountain Standard Time,

egroups writes:

<< >>

Hi , Kathy here no i have one leg slighly shorter which is the right.

Calf wise my left is slightly smaller than the right.

[Guest guest]

Thanks for the info on MCV/MCH. Mine have ALWAYS been low, since I was a teen &

doctors could never tell me why. One thing to check though is if you are a

carrier for thallessemia (a form of anemia), which you'd want to know if you are

planning on having kids.

Marcia

hyperthyroidism wrote:

MCV 79.1 (80.00-100.00) MCV is typically decreased in hypothyroidism. It

refers to the size of the red blood cell. It's also decreased in iron

deficiency anemia.

MVH 25.8 (28-34) I think this is the same as MCH which refers to how

dense or packed with hemoglobin the red cell is. Again, it's low in iron

deficiency anemia.

[Guest guest]

, thank you so much, perhaps we shall learn.

Larice White

[Guest guest]

>Margaret, You wrote " I still haven't figured out what medical discipline or

> type of specialist we should find to get a clearer idea of 's issues

>and how best to overcome them. "

Many of my friends whose children have " issues, " small or large, swear

by developmental pediatricians. Of course, finding a good one is key. Ask

around. The ones here guide the parents in determining what type of therapy

a child needs, how much and often can refer you to therapists. There are

also physicians who specialize in rehabilitative medicine although I do not

know if they treat children. We ourselves are getting ready to go to one...

Hope this helps.

Lynn, in GA,

Mom to 3, Ben, 9, , 5.8, apraxia and auditory descrimination problems

and , 8 months and babbling up a storm

[Guest guest]

Hello - The Heller Graduate School at Brandeis University in Massachusetts has a very strong program in public policy. There are diferent concentrations available, such as health policy, disability, aging, sustainable international development...The faculty has diverse research interests, and most have been (as have the students) "real world" practitioners as well as researchers. Please feel free to be in touch if I can give you more information.

Schuman

Center for Scientific and Social Studies

Newton, MA, USA/Mococha, Yucatan, MX

e-mail: CTripleS@...

[Guest guest]

Hello group,

I am a new member and would like to know if anyone has had a

percutaneous microdiscetomy and did it help?

Thank you,

> From: spinaldisorderssupport

> Reply-spinaldisorderssupport

> Date: 8 Apr 2003 10:57:11 -0000

> spinaldisorderssupport

> Subject: Digest Number 268

>

>

>

[Guest guest]

Hello group,

I am a new member and would like to know if anyone has had a

percutaneous microdiscetomy and did it help?

Thank you,

> From: spinaldisorderssupport

> Reply-spinaldisorderssupport

> Date: 8 Apr 2003 10:57:11 -0000

> spinaldisorderssupport

> Subject: Digest Number 268

>

>

>

[Guest guest]

Hello ALL SURVIVORS of this set of physical circumstances we all share , in

some way . I wrote a few times as my main concern was how to keep my

funding going ,while I work at getting healthier. I haven`t found out any

info re Workers Comp in Canada ,as its different in The USA. But, I know one

thing you are all so supportive of each other ..its great!

I went back to PT after not going for 7 months..I went the first 5

months and as I really lost a lot of my mobility in that time. I have foot

drop with my right foot as my big toe drags. I sometimes have numbness and

pain in my right foot. I always have pain in my groin, right hip..buttock,

and leg to the knee. Sometimes ,I get pain on the left side. Sitting for me

is about the worse and standing is next.The exercises I have been given over

the last 2 weeks are one to just get the hip area a bit less rigid. I often

get more Pain when doing them but, I know its the best thing I could have

done ,to make a decsion to go back to PT. (the saying ,if you don`t use it

you lose ,it must pertasin to more than one part of the anatomy)

I go for 2 more epidural shots ..one in May and one in June. I got hurt 12

months ago in May. The surgeon I seen in Dec said he didn`t want to operate

at this time. I am hoping after I have the allowed number of shots at the

PAIn Clinic and tried everyhting else he`ll do the decompression and

fusion.Its great to have such a supportive group where you can express

yourself without fear of being judged. what a great lot of folks you are.

Jackie

> >

> >

> >

> > ________________________________________________________________________

> > ________________________________________________________________________

> >

> >

> >

> >

[Guest guest]

Hello ALL SURVIVORS of this set of physical circumstances we all share , in

some way . I wrote a few times as my main concern was how to keep my

funding going ,while I work at getting healthier. I haven`t found out any

info re Workers Comp in Canada ,as its different in The USA. But, I know one

thing you are all so supportive of each other ..its great!

I went back to PT after not going for 7 months..I went the first 5

months and as I really lost a lot of my mobility in that time. I have foot

drop with my right foot as my big toe drags. I sometimes have numbness and

pain in my right foot. I always have pain in my groin, right hip..buttock,

and leg to the knee. Sometimes ,I get pain on the left side. Sitting for me

is about the worse and standing is next.The exercises I have been given over

the last 2 weeks are one to just get the hip area a bit less rigid. I often

get more Pain when doing them but, I know its the best thing I could have

done ,to make a decsion to go back to PT. (the saying ,if you don`t use it

you lose ,it must pertasin to more than one part of the anatomy)

I go for 2 more epidural shots ..one in May and one in June. I got hurt 12

months ago in May. The surgeon I seen in Dec said he didn`t want to operate

at this time. I am hoping after I have the allowed number of shots at the

PAIn Clinic and tried everyhting else he`ll do the decompression and

fusion.Its great to have such a supportive group where you can express

yourself without fear of being judged. what a great lot of folks you are.

Jackie

> >

> >

> >

> > ________________________________________________________________________

> > ________________________________________________________________________

> >

> >

> >

> >

[Guest guest]

Delbert -

Make sure that any cutting on you is done by a NEUROSURGEON.

Please. It sounds like you need the laminectomy, but you might

want to consider an endoscopic discectomy. You can check on

it at sites such as www.drjho.com. It seems to be less invasive.

Good luck.

joe

Re: Digest Number 268

> Hello ALL SURVIVORS of this set of physical circumstances we all share ,

in

> some way . I wrote a few times as my main concern was how to keep my

> funding going ,while I work at getting healthier. I haven`t found out any

> info re Workers Comp in Canada ,as its different in The USA. But, I know

one

> thing you are all so supportive of each other ..its great!

>

> I went back to PT after not going for 7 months..I went the first 5

> months and as I really lost a lot of my mobility in that time. I have

foot

> drop with my right foot as my big toe drags. I sometimes have numbness and

> pain in my right foot. I always have pain in my groin, right hip..buttock,

> and leg to the knee. Sometimes ,I get pain on the left side. Sitting for

me

> is about the worse and standing is next.The exercises I have been given

over

> the last 2 weeks are one to just get the hip area a bit less rigid. I

often

> get more Pain when doing them but, I know its the best thing I could have

> done ,to make a decsion to go back to PT. (the saying ,if you don`t use it

> you lose ,it must pertasin to more than one part of the anatomy)

>

> I go for 2 more epidural shots ..one in May and one in June. I got hurt

12

> months ago in May. The surgeon I seen in Dec said he didn`t want to

operate

> at this time. I am hoping after I have the allowed number of shots at the

> PAIn Clinic and tried everyhting else he`ll do the decompression and

> fusion.Its great to have such a supportive group where you can express

> yourself without fear of being judged. what a great lot of folks you are.

> Jackie

> > >

> > >

> > >

> > >

________________________________________________________________________

> > >

________________________________________________________________________

> > >

> > >

> > >

> > >

[Guest guest]

Delbert -

Make sure that any cutting on you is done by a NEUROSURGEON.

Please. It sounds like you need the laminectomy, but you might

want to consider an endoscopic discectomy. You can check on

it at sites such as www.drjho.com. It seems to be less invasive.

Good luck.

joe

Re: Digest Number 268

> Hello ALL SURVIVORS of this set of physical circumstances we all share ,

in

> some way . I wrote a few times as my main concern was how to keep my

> funding going ,while I work at getting healthier. I haven`t found out any

> info re Workers Comp in Canada ,as its different in The USA. But, I know

one

> thing you are all so supportive of each other ..its great!

>

> I went back to PT after not going for 7 months..I went the first 5

> months and as I really lost a lot of my mobility in that time. I have

foot

> drop with my right foot as my big toe drags. I sometimes have numbness and

> pain in my right foot. I always have pain in my groin, right hip..buttock,

> and leg to the knee. Sometimes ,I get pain on the left side. Sitting for

me

> is about the worse and standing is next.The exercises I have been given

over

> the last 2 weeks are one to just get the hip area a bit less rigid. I

often

> get more Pain when doing them but, I know its the best thing I could have

> done ,to make a decsion to go back to PT. (the saying ,if you don`t use it

> you lose ,it must pertasin to more than one part of the anatomy)

>

> I go for 2 more epidural shots ..one in May and one in June. I got hurt

12

> months ago in May. The surgeon I seen in Dec said he didn`t want to

operate

> at this time. I am hoping after I have the allowed number of shots at the

> PAIn Clinic and tried everyhting else he`ll do the decompression and

> fusion.Its great to have such a supportive group where you can express

> yourself without fear of being judged. what a great lot of folks you are.

> Jackie

> > >

> > >

> > >

> > >

________________________________________________________________________

> > >

________________________________________________________________________

> > >

> > >

> > >

> > >

[Guest guest]

Thanks Don. You're suggestion is right in line with my game plan. I have the

flats, organic soil and wheat to make the wheatgrass and a dusty juicer

(ahem!). The problem is, I live in the desert and healthy organic produce can

be difficult to find. There are a few wilted things at the co-op (yech!)

although they are getting a little better. I buy produce from the farmer's

market, although there is not much in the way of organic fruits and vegetables

and one must be careful not to buy produce from Mexico where DDT is still in

use. I have some vegetable wash that is supposed to remove pesticides. Does

anyone know how effective this type of wash is? Is there a home-made version

that is as effective? If it's a toss up between yech and fresh looking store

bought, I'll go with the store bought.

Thanks,

Hi ,

Not necessarily. If your bowels move just fine without the prune juice

than leave it out. If your bowels aren't moving then you need to use the

prune juice. Personally I would suggest that you do a juice fast using

Celery, Parsley, Carrots and Beets. I would also suggest that you take 2

ounces of Wheat grass juice per day. Taking a tablespoonful of vinegar

and honey will help to alkalinize your system. Drinking distilled water

with lemon in it will help in removing excess mucus and dissolving

inorganic minerals from the muscles and joints. Cut out all mucus

forming foods and allow the healing to begin.

You can overcome your rheumatoid arthritis just by changing your diet

and doing the juicing cleanses. I would still suggest you use prune

juice unless your bowels move easily.

Peace be with you .

--

Peace, love and light,

Don Quai

[Guest guest]

cweeks@... wrote:

> Thanks Don. You're suggestion is right in line with my game plan. I

> have the

> flats, organic soil and wheat to make the wheatgrass and a dusty juicer

> (ahem!). The problem is, I live in the desert and healthy organic

> produce can

> be difficult to find. There are a few wilted things at the co-op (yech!)

> although they are getting a little better. I buy produce from the

> farmer's

> market, although there is not much in the way of organic fruits and

> vegetables

> and one must be careful not to buy produce from Mexico where DDT is

> still in

> use. I have some vegetable wash that is supposed to remove pesticides.

> Does

> anyone know how effective this type of wash is? Is there a home-made

> version

> that is as effective? If it's a toss up between yech and fresh looking

> store

> bought, I'll go with the store bought.

> Thanks,

>

>

> Hi ,

>

==============================

Yes, I know about the desert. I lived in Arid-zona for 7 years. If you

can't get organic then do the best you can with what you have.

I don't have much experience using vegetables washes as I only use soap

and water. I do know that a little hydrogen peroxide added to the water

with some lemon juice makes for a pretty good veggie wash. How effective

it is at removing pesticides I don't really know. But if you wash with

soap or (heaven forbid) use a detergent then you should not have any

problems removing pesticides.

--

Peace, love and light,

Don Quai

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

[Guest guest]

cweeks@... wrote:

> Hi all,

> I have been drinking about 8 oz. of kefir a day, for about 4 months

> now, made

> with pasturized cow's milk. I also drink about 8 oz. a day or more of

> kombucha. If I start following a mucousless diet, are these things I

> will need

> to discontinue? In ayurveda, sour things are supposed to aggravate the

> vata

> dosha which is a contributing factor to arthritis. Does anyone have

> experience

> with this?

>

=====================

Hi ,

No matter how you wish to view it diet is a major contributing factor in

arthritis, rheumatism, gout, CFS, fibromyalgia, etc. Our thoughts are

also a contributing factor in these. As I have no experience in Kefir at

present I can't really say on this one. Because you are only drinking

such a small amount per day I wouldn't think that it would be too much

of a problem and it is quite beneficial. But I do believe that you would

be much better making your Kefir with raw organic milk than with enzyme

dead milk. Of course if you can't get raw then pasteurized will have to

do. ;-)

If anyone is interested in Dom's Kefir site here is the URL:

http://ftp.newave.net.au/~dna/Makekefir.html

This guy knows Kefir for sure. LOL

--

Peace, love and light,

Don Quai

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

[Guest guest]

Hi Bee thanks for your reply,

My Dr. prescribed this drug I take it 2 times a day five days a week and I start

after menses this is my 4th month taking it. I see improvement but I still have

mild symptoms. I have been suffering since June 2003. I have tried a variety

of different postpones including Diflucan. I have also tried taking oil of

oregano and garlic etc while making a boric acid suppository. I feel better

than I have in a long time, but again I'm not symptom free.

LS

________________________________________________________________________

________________________________________________________________________

Message: 7

Date: Sat, 11 Dec 2004 12:12:06 -0000

From: " Bee "

Subject: Re: Ketoconazole (Nozoral)

wrote:

>

> Has any one tried Ketoconazole (Nizoral) to treat candidia? If so,

wha was your experience with it?

Hi ,

I haven't taken it myself, but Nizoral causes liver problems in some

people. If a person is going to take it a lab test for liver

function should be done before starting treatment and every 30 days

during treatment. A safer drug that is not invasive and doesn't

cause liver problems is Nystatin (preferably the powdered form).

Why do you ask about it?

Bee

________________________________________________________________________

________________________________________________________________________

__________________________________________________

[Guest guest]

All,

Three great things happened to me today - first the Kennedy

article which I immediately posted to a number of friends for whom I had

been attempting to condense EOH into a short presentable format that my

brain could handle and that would work for their reasonably generous

attention span. Fantastic article!

Second I got a DAN appointment in the UK with Dr Heard! July 4

(wonderfully appropriate!)

Third I read the link below and the long thread - if you get a minute I

encourage you to read it - well researched and medically qualified

posters putting rational arguments from our side of the issue. Perhaps

its because I'm in the UK but I found it comforting and uplifting

Simon

(Rians Dad)

Date: Wed, 15 Jun 2005 16:09:42 -0400 (EDT)

From: Aasa <penas7ar@...>

Subject: from BMJ's R.R.: Mercury dose in UK injection double that

previously disclosed in some cases

A response by Stone to the Hopkins Tanne article " Thiomersal

doesn't cause developmental disorders " :

http://bmj.bmjjournals.com/cgi/eletters/329/7466/588-b#109640

[This message contained attachments]

[Guest guest]

Kalinda:

Would you be willing to share your skin care recipes

with me (and/or the group)?

Louise

--- wrote:

>

[Guest guest]

Louise,

No problem, I just need to find them, I tend to make up a bunch at a

time and then use it,so give a few days to track down my recepies.

Most of them come from " Absolute Beauty by Raichur,Pratima) and are

based on East Indian beauty. I use her recepies as a basic guide but

also play arounda a little to mix and match to meet my needs. Once

you buy the basics (which can be expensive the 1st time) it will

last a long time and the cost evens out since you are not having it

rebuy the supplies every time.

The only item not in the book is the face wash my husband uses which

is simply amaranth flour, mixed with water as a paste and then

washed off. He has sentsative skin and acne and it helps keep his

face happy.

Kalinda

>

> >

[Guest guest]

Dear All,

In light of the very positive responses I've gotten from those who've undergone revision, and considering that I'm a TOTAL grouch with my darling daughter, I think it best to at least see a couple of surgeons. Looking at my current financial situation, I think I could maybe travel in April.

I apologize, but I cannot remember who posted that their surgeon kept them very heavily medicated for the first couple of postop days. I'd like the name & location of the surgeon.

I was also wondering if anyone knows whether Boachie ever does revisions in one day or not. I know that he does consider posterior only at times. And if anyone had surgery at HSS & had small kids at the time, any input would be great.

I remember that someone posted that their surgeon did many new, innovative procedures posteriorly, & uses the very latest technology. I would also like the name & location of this surgeon.

It is starting to sound like I might possibly be able to find someone who could offer me some actual options, versus the standard revisions commonly done. And given that my condition is adversely affecting, not only my quality of life, but my daughter's as well, I think I need to be moving forward with this "quest".

Yesterday, I was walking down the sidewalk with my little girl. We were having to walk further than what I can handle without being in serious pain. She asked if I would ever get better so I could be fun again. Then she looked up at me & said, "it would be just awesome if you could run Mommy. Running is so fun." So there you have it. Not only am I grouchy & short-tempered, but I am simply not fun.

I've avoided pursuing this, partly b/c I thought revision would mean even more restrictions & deformity, with no guarantee of any real pain relief. I've also avoided proceeding b/c I felt pretty desperate a couple of months ago. I knew I was headed downhill & would have done almost anything to not end up suffering like I did a couple of years ago. I have deteriorated, unfortanately quite a bit since then, but, by God's grace, I do not feel as panicked/desperate as I did a few months ago. I am tired, exhausted in fact, of being in pain, looking old, feeling useless. But I'm not desperate anymore. And I want to make intelligent choices when deciding on surgeons to evaluate & potentially, treat me. I want the latest technology. I want the best techniques. I want the best possible results. I want excellent pain control. I want a kid-friendly hospital/staff. And I expect to be treated with respect, to be treated like a human being with valid concerns & questions. And, unless I cannot care for my daughter by myself, I will not settle for anything less.

Blessings,

Carla Kay

Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

[Guest guest]

Hi Carla – My name is Lorrie Snyder

and I had a revision surgery by Dr. Boachie on November 8th, 2005 –

anterior and posterior done in 1 day – 10 ½ hours. I have a daughter

who was about 20 months at the time of surgery and obviously she didn’t

visit me. I didn’t see any young children at the hospital while I

was walking around the corridors.

How old is your daughter? The fact

that my daughter is young was a major consideration in me going through with

the surgery. I want to have fun in the future with my daughter and not be

in any pain. I just envisioned her saying to me what your daughter said

about “when I would be fun.” Right now she isn’t in

school and my mom is still agile enough to help – she is 77. I live

in land and after staying at my parents a

couple of weeks after the surgery at their home on Long Island I came back to land with my mom is

tow. She is still here but I plan to reluctantly let her go on February 9th.

I know she wants to go home. I’ll manage somehow. I’m

practicing dressing and diapering my little girl on the floor. We’ve

been also trying to introduce the “potty” to her – the little

potty on the floor. So with all this going on it is kind of time for her

to learn about the potty! She is young but likes to get a sticker on her

hand when she just sits on the potty.

After my mom leaves I won’t be able

to lift her into the high chair. She can climb up into a chair next to

the kitchen table but that is only “when” she wants to climb

up. I guess we will just have to have picnics on the floor for breakfast

and lunch. I have to make sure I get up with my husband so he can lift

Jill out of the crib. Right now she is napping in a play pen, so we will

have to figure out something with a mat on the floor for her naps. I miss

not going places in the car with her. I can’t lift her into the car

seat and besides I’m not suppose to drive being on the Fentanyl

patch.

All in all I think these are minor

setbacks and they are sure to get better. I do have my down days as I’m

sure you have read. I get down, but I need to hear people say it will get

better – it makes me feel better just to hear that.

I have some anterior tightness across the

side of my ribs. It almost feels like a terrible “stich” in

my side as if I ran miles. I assume this is just the abdominals

reconnecting. It really isn’t pain but very tight. This just

started a couple of days ago.

I see Dr. Boachie for my 4 month check up

on March 17th.

Let me know if you have any other

questions.

Lorrie

From: [mailto: ] On Behalf Of singer4jc7494@...

Sent: Tuesday, January 17, 2006

10:42 PM

Subject: Re: [ ]

Digest Number 268

Dear All,

In light of the very positive responses I've gotten from those who've undergone

revision, and considering that I'm a TOTAL grouch with my darling

daughter, I think it best to at least see a couple of surgeons. Looking

at my current financial situation, I think I could maybe travel in April.

I apologize, but I cannot remember who posted that their surgeon kept them very

heavily medicated for the first couple of postop days. I'd like the name

& location of the surgeon.

I was also wondering if anyone knows whether Boachie ever does revisions in one

day or not. I know that he does consider posterior only at times.

And if anyone had surgery at HSS & had small kids at the time, any input

would be great.

I remember that someone posted that their surgeon did many new, innovative

procedures posteriorly, & uses the very latest technology. I would

also like the name & location of this surgeon.

It is starting to sound like I might possibly be able to find someone who could

offer me some actual options, versus the standard revisions commonly

done. And given that my condition is adversely affecting, not only my

quality of life, but my daughter's as well, I think I need to be moving forward

with this " quest " .

Yesterday, I was walking down the sidewalk with my little girl. We were

having to walk further than what I can handle without being in serious

pain. She asked if I would ever get better so I could be fun again.

Then she looked up at me & said, " it would be just awesome if you

could run Mommy. Running is so fun. " So there you have

it. Not only am I grouchy & short-tempered, but I am simply not

fun.

I've avoided pursuing this, partly b/c I thought revision would mean even more

restrictions & deformity, with no guarantee of any real pain relief.

I've also avoided proceeding b/c I felt pretty desperate a couple of months

ago. I knew I was headed downhill & would have done almost anything

to not end up suffering like I did a couple of years ago. I have

deteriorated, unfortanately quite a bit since then, but, by God's grace, I do

not feel as panicked/desperate as I did a few months ago. I am tired,

exhausted in fact, of being in pain, looking old, feeling useless. But

I'm not desperate anymore. And I want to make intelligent choices when deciding

on surgeons to evaluate & potentially, treat me. I want the latest

technology. I want the best techniques. I want the best possible

results. I want excellent pain control. I want a kid-friendly

hospital/staff. And I expect to be treated with respect, to be treated

like a human being with valid concerns & questions. And, unless I

cannot care for my daughter by myself, I will not settle for anything

less.

Blessings,

Carla Kay

Ps.

96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the

earth. Declare His glory among the nations, His marvelous deeds among all

peoples. For great is the LORD and most worthy of praise...

[Guest guest]

Dear Carla Kay,

I am the member who had a doc that likes to keep patients under for the first couple of days post-op, doesn't want you remembering the worst of the pain. Dr. Anant Kumar is my surgeon, he is located in the Denver area. He has two offices, one next door to the hospital where he does surgery, and one across town. His website for the practice can be found by Googling DenverSpine.com. Here is the address and phone#.

Dr. Anant Kumar

Denver Spine Center

1601 E. 19th Ave. Ste 4000

Denver Co,80218

303-860-1500

His assistant is Lee Sherry, she's a doll and very helpful, just ask for her when you call, and mention you are in the Flatback Group with Kirkaldie. Anything I can do to help just let me know!

Colorado Springs

Re: [ ] Digest Number 268

Dear All,In light of the very positive responses I've gotten from those who've undergone revision, and considering that I'm a TOTAL grouch with my darling daughter, I think it best to at least see a couple of surgeons. Looking at my current financial situation, I think I could maybe travel in April. I apologize, but I cannot remember who posted that their surgeon kept them very heavily medicated for the first couple of postop days. I'd like the name & location of the surgeon.I was also wondering if anyone knows whether Boachie ever does revisions in one day or not. I know that he does consider posterior only at times. And if anyone had surgery at HSS & had small kids at the time, any input would be great.I remember that someone posted that their surgeon did many new, innovative procedures posteriorly, & uses the very latest technology. I would also like the name & location of this surgeon.It is starting to sound like I might possibly be able to find someone who could offer me some actual options, versus the standard revisions commonly done. And given that my condition is adversely affecting, not only my quality of life, but my daughter's as well, I think I need to be moving forward with this "quest". Yesterday, I was walking down the sidewalk with my little girl. We were having to walk further than what I can handle without being in serious pain. She asked if I would ever get better so I could be fun again. Then she looked up at me & said, "it would be just awesome if you could run Mommy. Running is so fun." So there you have it. Not only am I grouchy & short-tempered, but I am simply not fun. I've avoided pursuing this, partly b/c I thought revision would mean even more restrictions & deformity, with no guarantee of any real pain relief. I've also avoided proceeding b/c I felt pretty desperate a couple of months ago. I knew I was headed downhill & would have done almost anything to not end up suffering like I did a couple of years ago. I have deteriorated, unfortanately quite a bit since then, but, by God's grace, I do not feel as panicked/desperate as I did a few months ago. I am tired, exhausted in fact, of being in pain, looking old, feeling useless. But I'm not desperate anymore. And I want to make intelligent choices when deciding on surgeons to evaluate & potentially, treat me. I want the latest technology. I want the best techniques. I want the best possible results. I want excellent pain control. I want a kid-friendly hospital/staff. And I expect to be treated with respect, to be treated like a human being with valid concerns & questions. And, unless I cannot care for my daughter by myself, I will not settle for anything less. Blessings,Carla KayPs. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...